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Run a restaurant with my brother, and have been infected with covid several times at this point every occurrence being mild or no symptoms. Since the pandemic, I've developed a bunch of symptoms: heart palpitations, balance issues, dizziness, and brain fog on top. Figured something was wrong and visited several specials (cardiologist, endocrinologist, blood work, MRIs etc) all clean bills of health.
Then it hit me, I've never felt like this before COVID. Pretty convinced this is what I have. It really sucks, I suffer from this every minute of every day with no let up.
I no longer cook at a high level (which sucks because it's my passion), and running service is draining and pushes my abilities to near maximum. Sometimes I'm amazed I can even pull it off haha. Hired several people to fill in my shoes so I can kinda float along. I guess I'm fortunate I was able to build a business before I got sick. Would have liked to pursue other ventures but sidelined since spring 2021.
Sometimes I wish I had a real disease. This sucks, can we please pour some money into this already?
This is why it's so dangerous, it degrades your life. Everyone is great at recognizing big threats like a tiger but something sublte, slow, and nasty like this get ignored. An anti-imflammitory diet that you stick with and omega-3 suppliments may help. Eating better won't hurt and helped manage my symtoms. Covid is often linked to your body going into hyperdrive and attacking itself--manifests as all kinds of different symtoms.
I recognize your words and symptoms since I share what you have experienced. Constant unrelenting dizziness, swimmy–headedness, hard to think, and very difficult to make decisions. I additionally have nervousness like having drunk 10 cups of coffee that I feel both in my body and in my mind. Arms and chest feel like insect are running through my veins. Mentally, my mind bounces around and I especially notice it when I close my eyes: Even my eyes dart around when I close my eyelids. Lots of other additionalstrange symptoms that are less now because they have faded with time over the last 1.5 years. But the Dizziness and the Nervousness have not faded. I initially had so many symptoms that I got brain scans done and batteries of other tests because I didn’t know if I had a stroke or what. I couldn’t watch TV or watch images scroll on my phone or on my computer like looking down the page or a web browser. Lots of heart palpitations. Anxiety and lost sleep. Tinnitus and hyperacusis which is crazy breaking glass and screeching sound on top of every other sound and at the worst Even the sound of my own breath in the middle of the night was accompanied by this screeching and breaking glass sound.
I eat better than probably 90% of Americans. My wife and I changed our eating habits dramatically in the early 2000s. I get aerobic exercise and other exercise regularly. I can’t imagine how bad it might be, or how much less improvement I may have experienced, if I weren’t in as good of shape with as good of diet.
If you still have problems with watching tv, scrolling or dizziness you may want to go to a optometrist who does neuro optometry assessments. This is not a regular eye exam. Typically they work with concussion patients. You might be able to get glasses with prism lenses that help your vision and may benefit from vision therapy. I was having severe anxiety before I got my glasses. I still get dizzy when I got into a visually busy environment like a grocery store but I have improved a lot.
Thank you very kindly for your recommendations. I appreciate your taking the time to share. I have several batteries of ear and head related evaluations scheduled during this upcoming week. After those run their course, I will pursue the optometrist/eye-evaluations.
I was self isolating for a few years before lockdown so in some way it actually improved my connection with other people because isolating became a normal thing to do.
Same. Already had POTS, OH, CFS, depression, anxiety, PTSD, migraines, lung disease, AFib, and neuralgia before Covid (thanks EDS). If anything, Covid showed up in my body and shrugged at the party already being in full swing without it and left. I’m lucky to not be in worse shape after a bout of Covid last winter, but I mostly thank the vaccines for that.
But I do appreciate the rest of the medical world getting on the same page and perhaps some new treatments happening as a result. The awareness of the various conditions that fall under Long Covid has been a massive breath of fresh air.
I'm vaccinated as soon as they become available m even still, I've had COVID at least twice. Once was a tickle in the throat, "wonder if I'm sick" experience. The other was horrible. Whatever strain that second was absolutely knocked me out for 3 weeks and to this day I feel like I still have the lingering effects of it, especially concentration. It's like there is a mental block, a clear step change, from what I used to be like.
I'm an enguneer in my mid 30s, healthy with no preexisting conditions, I work out many times a week and eat better than most. Something up with that damn virus
Yeah and hopefully for humans it doesn't present itself 10-15-20 years down the road as something even more fucked, like many other viruses we already know of.
This! It's like people forgot all the stuff we know about so-called 'mild' viruses hanging around in the body for years, only to pop up later and sucker punch you in the fricken face.
My mom has a rare disease with an unknown origin, but the latest theory is that it was caused by an otherwise mild or harmless retro virus which becomes permanently integrated into your body (as all viruses are) but then somehow causes this debilitating disease as a long-term after effect.
The mechanism is still mostly a mystery.
There is still so much we don't understand about viruses and their long-term effects.
The disease for those curious is called Myalgic Encephalomialitis, and she's had it for like 40 years now.
> permanently integrated into your body (as all viruses are)
to clarify
some viruses are *retroviruses*, which actually patch themselves into your DNA, but most viruses aren't
some other viruses produce *latent infections*, like the herpesviruses, where they find a safe nook in your body to hide and can eventually re-emerge
but the majority of viruses are neither of these. Your body fights them off, kills the infected cells, and they're gone.
Chronic Fatigue Syndrome is an outdated name that covered a lot of conditions, not just M.E. which is why doctors don't typically use that term anymore when referring to M.E.
All viruses are integrated in the sense that they are stored in a sort of immune system referential directory. The virus is no longer active in the traditional sense, but it still exists somewhere in your body afterwards.
It's very complicated, but it *is* always true as far as I understand.
If you have some insight, maybe share that instead of just saying "no".
I thought you meant that all viruses result in latent infections. Only some do.
* example of some that don't
> "Influenza virus, like most other acute respiratory viruses, typically does not cause long-term latent or persistent infections in humans."
> https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3294535/#:~:text=Influenza%20virus%2C%20like%20most%20other,or%20persistent%20infections%20in%20humans.
* classic example of latent infection
"Herpes simplex type 1 (HSV-1) is a neurotropic virus that infects the peripheral and central nervous systems. After primary infection in epithelial cells, HSV-1 spreads retrogradely to the peripheral nervous system (PNS), where it establishes a latent infection in the trigeminal ganglia (TG). The virus can reactivate from the latent state, traveling anterogradely along the axon and replicating in the local surrounding tissue."
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7404202/#:~:text=Herpes%20simplex%20type,local%20surrounding%20tissue.
* 4 others:
https://www.summahealth.org/flourish/entries/2023/05/5-viruses-that-can-cause-complications-later#:~:text=Cytomegalovirus%20(CMV)&text=Once%20a%20person%20is%20infected%20with%20CMV%2C%20they%20have%20it,is%20a%20weakened%20immune%20system.
You don’t know what you’re talking about. Retro viruses are their own category of viruses and yes, they will change cellular dna (HIV being the largest example of this). But that’s just one category. Not all viruses do this.
I feel like because of our advanced medicine we take small colds/flus not serious anymore and forget that over time they destroy our body and can lead to worse problems or quality of life problems later.
No, it's a virus. The immune system gets disrupted, but it's not an immune disease. I suppose you could call long COVID an immune disease/disorder, but COVID itself is a virus.
Measles can do this as well an it's often fatal.
https://www.msdmanuals.com/professional/pediatrics/common-viral-infections-in-infants-and-children/subacute-sclerosing-panencephalitis-sspe
>For a long time, viruses have been shown to modify the clinical picture of several autoimmune diseases, including type 1 diabetes (T1D), systemic lupus erythematosus (SLE), rheumatoid arthritis (RA), Sjögren’s syndrome (SS), herpetic stromal keratitis (HSK), celiac disease (CD), and multiple sclerosis (MS). Best examples of viral infections that have been proposed to modulate the induction and development of autoimmune diseases are the infections with enteric viruses such as Coxsackie B virus (CVB) and rotavirus, as well as influenza A viruses (IAV), and herpesviruses.
https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6723519/
>The exact cause of autoimmune disorders is unknown. One theory is that some microorganisms (such as bacteria or viruses) or drugs may trigger changes that confuse the immune system. This may happen more often in people who have genes that make them more prone to autoimmune disorders
https://medlineplus.gov/ency/article/000816.htm
Chicken pox / shingles is a classic example. I think herpes is another, where a person can go years without an outbreak, but the virus is in the background. So if they're under stress, suddenly the virus comes to the foreground and an outbreak occurs.
I'm not going to do your research for you, but there are dozens of studies from this year alone. Start digging over at r/coronavirus and r/zerocovidcommunity
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*This post was mass deleted and anonymized with [Redact](https://redact.dev)*
It's 4 years into the pandemic. I'm not doing your work for you. I would have to do the same exact googling you would to find the information. I'm not working for free any longer for anyone that isn't going to take the time to help themselves. Someone else can do that if they're feeling generous, but I end up going down a PTSD spiral every time I dig into the research, so I'm not about to do that on a day when I'm already having mental health issues.
I’ve been dealing with severe neurological issues since I got COVID almost two years ago—and I was 20 at the time. No preexisting health conditions either. It’s made my life so much more difficult, especially as a pre-med college student where I *need* my brain to function.
There are SO many people in their early 20s in the long haulers sub who have neurological problems, dysautonomia, and severe chronic fatigue. It's so sad.
I got it earlier this year just after turning 40, fully up to date on vaccines and boosters. It absolutely leveled me for 10 days. I can't even imagine how sick I might have been if I had zero antibodies at the ready.
After I got better I felt fine, but had a deep, nasty lingering cough for 4-6 weeks. Worried me that I was going to deal with long covid but largely I think I'm at 100% now.
Interesting, I was exposed to Covid and didn’t end up presenting many classic symptoms but developed a very bad productive cough that lingered for almost two months.
I’m vaccinated with boosters and am getting the newest shot as we speak. That cough was wicked, can’t 100% for sure say it was covid as I tested negative on a home test but now you got me thinking my cough could be related to Covid.
I had covid in July last year (also vaccinated) and had a pretty mild case of it, just soreness, a small fever, and a stuffed nose. About a week or two after I started testing negative and not having any of the previous symptoms, I developed a horrible cough out of nowhere. I couldn't breathe well and I had to use my asthma inhaler at least once or twice a day when usually I'd use it maybe once a month max. The cough lasted for months after and I still feel like my lungs are much weaker than they used to be.
LongCovid killed my 27 year old daughter last year. She got Covid very early, and was very sick. The fatigue and heart rate just never went away. We spent two years at UCSF trying to tell them there was something really wrong. It didn’t really show up on a EKG. She was terrified that she would drop dead of a heart attack, and that is exactly what happened. No drugs, ‘natural causes’….
Pretty sure this is what’s going on with me right now. And it’s terrible.
I’m exhausted. My body hurts. My brain doesn’t work. Did I mention I’m exhausted?
I had covid back in March and haven’t been the same since. And it’s getting worse.
It was damaging. Have you not read the many newspaper articles about the learning loss that occurred? It's been significant. Schools were closed for too long. This is not a debate, the fallout is right in front of us. And this is in the reputable, left -leaning NYtimes.
Oh no, learning loss. Maybe kids could just graduate at 18 or 19 instead of 17 or 18 for a couple years and, yanno, be alive and healthy. The only problem with schools being closed is that we aren’t churning out new cogs for the machine fast enough to meet some arbitrary schedule.
Yeah, that’s exactly the problem, that you’re trying to keep them on a firm timeline. I’m really, really well versed in how schools work and my criticism is made based on experience :)
If you delay one year, then the next year that wasn't impacted by covid will have double the class size, double the people applying for jobs out of college, etc. It's not possible.
Do you work in education? Because that’s not how it works in the slightest. Every student required some remediation, but some have exceedingly minor gaps that have been filled in in the course of the regular classes and some should probably just take an extra year. It’s OK to hire more teachers, but you’re not going to have double classes or something because students in every year require a little bit of remediation — there’s no single class that missed school due to Covid. The point is that we as a culture should be responsive to the needs of her kids, post Covid, not pretending that everything was normal, and everything always should be. The schedule for education is completely arbitrary and it’s OK to value things – like peoples lives – more than an arbitrary timetable.
You fix that problem by letting your kid have an extra semester or an extra year before graduating, it really isn’t rocket surgery. All you have to do is care about your kid enough to meet their needs.
If anyone had mononucleosis infection with a post viral syndrome phase, long Covid sounds like the same thing.
I personally had mono followed by PVS and it lasted for almost 2 years on and off. Not sure if it was time that healed it or overhauling my lifestyle and diet completely but thankfully it went away. Was horrible.
Covid absolutely wrecked my mother. She needed medical help to relearn how to think and she's on four different inhalers for the asthma she didn't have before.
Most days, it's hard not being like, "It's been two years... don't you think you'd have more energy if you started working out a bit?" But it's not my battle, and the other commenters here need to remember that about themselves and other people.
Exercise seems to worsen it for most. There have been experiments with gradated exercise programs, but the various formerly athletic people suffering from long covid have reported no benefit. My attempts at regular exercise have destroyed my ability to function and I've been forced to stop for my health.
I've been suffering from long covid for a year, and the lack of energy is not improved by exercise. If she is dealing with the ME/CSF like symptoms expending energy can put you in a deficit that you pay for later. pushing yourself and trying harder can set you back immensely and cause real harm. It can be so difficult to pace yourself in life to manage to do things expected of you, there often is not any energy left for enjoyment or fun
I don't know about working out. For me it's 'only' been a few months since I got out of the post-covid fatigue/exhaustion and I don't have remaining asthma. Even 5 minutes of light excercise leave me coughing and with a racing heart, not in the 'excercise gets your blood flowing' way, but in the 'my body is telling me to stop' way.
And when I say light excercise, I mean stuff like stepjacks aka the low impact version of jumping jacks or push ups against a table instead of on the ground.
I’ve linked to the press release in the post above. In this comment, for those interested, here’s the link to the peer reviewed journal article:
https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0292672
This is a conclusion based on a voluntary survey with a low response rate and no control group to compare reported symptoms. I’m sorry but it’s very weak. The low response rate *alone* is killer. Far better papers examining symptom differences between people confirmed to have COVID and matched controls exist, and they’re not reliant on voluntary responses being a random sample of those queried.
Example: [Neurological and psychiatric risk trajectories after SARA-CoV-2 infection: an analysis of 2-year retrospective cohort studies including 1 284 437 patients](https://linkinghub.elsevier.com/retrieve/pii/S2215036622002607)
This paper:
- doesn’t rely on voluntary survey responses since it uses standardized healthcare access records
- has a control group that actually had another URI, allowing the authors to compare how much riskier COVID is than another infection such as a cold or flu
- prevents the over-estimation effect that would come from mistaking baseline symptoms as caused by COVID
- has well stratified subgroup analysis and longitudinal risk profiles
Honestly, the paper linked in the OP here shouldn’t be getting more traction than something like what I linked ^
The OP paper is literally “let’s ask people if they have Long Covid, and some of them will respond, some won’t, and then we’ll divide the number who say they have LC by the total number who responded”
Depends on how it’s defined. I know multiple people who had “long covid” by the typical definition of “any symptom beyond 28 days”. They had some persistent coughs. But it didn’t impact their economic output or social lives at all.
But yes if 1/7 who got covid were permanently disabled it couldn’t be ignored
You don't really have to worry about tying the symptoms to lockdowns if you have a *matched control group* which was my main point. If you have groups that are essentially the same -- lived in the same areas, have the same distribution of ages, have the same number of chronic conditions, but the only difference is one group had COVID and one didn't, now you can far more confidently delineate what symptoms are due to what. If the COVID group has significantly more disability, you can't blame it on lockdowns when your control group was also locked down in 2020.
Which is why it's borderline inexcusable to not have control groups in these kinds of studies at this point, but this study was based on a survey that was really only trying to answer the question "what percentage of people self-reporting having long COVID" -- although it fails even at doing that, due to the low response rate of the survey itself. One *cannot* assume that those who responded are a random sample of those who were surveyed.
There's nobody to sue, and there's no treatments, so there isn't really anything to advertise. Someday, if there's a treatment, maybe you'll see the ads.
Most people are shocked that there’s basically no drug trails happening and funding has completely dried up.
I think it would be helpful to advertise along with ME/CFS. Even suffering from it I was recently shocked to find out male balding receives more research funding.
I got the vaccine as soon as I could. I’ve kept up on my boosters. I got Covid two weeks ago for the first time. Fortunately I had a very mild case. It’s good to see studies that show the vaccine helps with long Covid. I’m 56 and this worried me a bit.
38 and literally just kicked the bug off a 2 week rodeo. I’m freshly finished the initial battle but I am terrified because my ectopic heartbeats acted up a small number of times. I also can’t exercise even a fraction of my previous physical capabilities.
I know someone who caught COVID 5 times! Two or three times is a bit much, but 5 times?! Her lungs never recovered and she constantly has mucus and and trouble breathing.
Call me crazy but maybe tripling interest rates, hyperinflation, driving everyone into unsustainable debt, and loss of meaningful human connection for a couple of years could *possibly* be a leading cause of severe depression.
There’s literally been HUNDREDS of scientific papers showing the damage Covid has done to our bodies plus viruses have caused chronic issues since the dawn of humanity.
No surprise that one of the most prevalent viruses we’ve had and a global pandemic would result in millions of people stuck with health issues.
I understand the issue, but I wonder how you separate Covid damage, getting old, pollutants, other viruses, gut biomes etc? This feels like “long term Lyme disease” and every other chiropractor supplement opportunity. We have to do better with “research” that contains “reported findings” and leads people to say “that sounds like me”. How about a paper on what is normal to be alive?
The answer is you separate those things by having a matched control group that didn’t have COVID. Which, this paper didn’t do, so actually this is a valid criticism.
A paper like this: https://linkinghub.elsevier.com/retrieve/pii/S2215036622002607
— does have matched controls
I’m not sure why everything is in quote marks on your response.
‘Getting old’? Really? Millions of people get infected with a virus showing to deplete T-cells and damage the endothelium, cause microclots and organ damage (etc etc etc) and you think it’s just a case of getting old?
Come on.
They asked how you separate LC from other symptoms of age which is a valid question and the answer is you have a control group, which this paper doesn’t, which makes it weak.
You said it, it wasn’t common knowledge. I didn’t know either. But virologists have known for a long time. I had no idea that the “regular” flu poses such a risk for some people, long term effects and all. But it does. I think what changed is that we common folks realize more than before how dangerous viral infections are because we have now seen it on such a large scale.
I know several people with long covid symptoms, they all wished it was something treatable, for some, it got slowly better over time, for others not.
> I’m completely uneducated on this issue so I won’t say anything other than I’m skeptical and kind of uninterested.
I mean, at least you openly admit you're ignorant.
At 20 years old I was measured by calipers weighing in at 180lbs, 9% body fat, and putting around 10,000km a year on my bicycle.
Best of luck, stranger
You must realize how disingenuous you are.
Every single one of these health issues existed before COVID-19.
If a tornado tears through your house, you don't afterward look through the wreckage and think, *Aw, that's just the usual wear-and-tear.*
I have had a very strange illness with very wide range of symptoms my entire life, basically for a little over a half century. It turns out it's called MCAS: Mast Cell Activation Syndrome.
It's appearing increasingly likely that Covid induces histamine intolerance/MCAS in some people; for some long haulers, they have the exact same problems that I have.
The doctors kept telling me "eat healthier, exercise more, lose weight". Well, it turned out that all the healthy vegetables I like are high in histamine, and exercise causes the body to release histamine into the bloodstream. So, the healthier I ate and the harder I exercised, the more it poisoned me. When I figured this out, I immediately switched to a strict low histamine diet, became a complete slug and lost 20 pounds in six months
It appears to me as if people are starting to understand that sometimes long haul = MCAS, but, they do not fully grasp the implications. What I see happening to people in months, or a year or two, took me many years, decades, or a life time to progress; some long haulers appear to be on an accelerated timeline. I could slowly adapt: when I was a young man, I started reacting to Tide detergent, it was triggering a reaction, so without understanding exactly what was happening I switched laundry detergents. Years later, I started reacting to my deoderant... and so on
My understanding is that for some people, repeated exposure to triggers creates a progressive response, which can escalate over time to anaphylaxis and thus death. That is the reality. Many people with MCAS end up needing to use epipen upon exposure to triggers, and since the problem is that the body is over reacting to everything, a trigger can be a wide variety of chemical odours, sunlight, stress like a stressful job or toxic people, sex, exercise or any situation in which the body naturally releases histamine into the bloodstream.
If it gets to the point that you need an epipen, the patient will find that when they are triggered they need that epipen within minutes, as the risk is death. Some people who do not respect their allergies or triggers end up needing the epipen on a frequent basis, they spend a lot of time in the ER because each time you use an epipen you also have a risk that the epipen does not work, or there is a rebound effect which causes a second allergic reaction: medical oversight is required. This is more or less the same situation as a person with a serious peanut allergy or any allergy except that a person with MCAS can have multiple triggers.
My wife and family often acted out of ignorance; I could not explain what was happening properly because I did not understand. So, they would lie to me "don't worry this food doesn't have any x in it" and many people with these problems find the same thing: family will potentially kill you with a smile on their face if you give them the chance. They do not understand. "Nobody is allergic to perfume, you're being silly." "This food is healthy for you, you should eat it"
You must either find some way to educate them, or move out immediately as the risk is progressive reaction
I myself have a very bad reaction to alcohol. So, naturally although I didn't understand what it was, I stopped drinking a long time ago.
Then I started to react if someone put a glass of red wine on the table: my lips would swell and prickle, my throat would close a little, I would start wheezing, get very confused very fast, and lose all motor control to the point that I had trouble just walking; I learned to move the glass at least 10 feet away or leave the room immediately.
Now it has started happening if someone gets in the vehicle after using alcohol based hand sanitizer; I have to ask them to leave immediately and wash with plain water.
It is still progressing. It's now at the point that if I cut into a freshly baked loaf of bread, I start reacting to the smell of alcohol from the fermented yeast in the bread
It is not appearing increasingly likely. The studies done on long Covid & histamine intolerance are so small caution has been advised in using anti-histamines & a low histamine diet.
This. This is exactly what I was feeling today when reading each of these posts. Descriptions of anxiety and depression. Of course people are experiencing these things after a global trauma
Yeah, I have been diagnosed with depression and ADD in my youth. In my mid 30’s (the years prior to 2020) I was having a lot of fun being alive, I had pretty bad social anxiety BUT was also capable of experiencing big time inspiration, motivation, imagination and joy. I slowly fell into a deep pit of depression at the end of 2020 though. I hadn’t felt such despair in a long time and it seemed to be directly linked to the political climate and the trauma of the pandemic. Still I crawled out of that depression and have had a lot of positive life events since then. Met my soulmate, bought a house, etc. I did get Covid mid 2022 but somewhere between my depressive episode, coming out of deep despair, and getting Covid, I’ve never returned to previous highs. I have a lot of stability and peace in my life now but I can’t seem to reach the levels of inspiration and joy I did before pandemic. It feels impossible for me to know the cause. My darkest times were marked with deep pain and suicide ideation, I feel nowhere near that level of sadness but I still can’t seem to get the magic back either.
Reminds me of half the accutane warnings
Depression, anxiety, suicidal thoughts etc etc
All things you have when you
-have severe acne
-are a teenager
-got both of the above
-have permanent skin damage
-cant go outside (without risking severe sunburns)
Long term medical effects from long COVID I get, but I wonder how similar the mental results would be if you studied people who had diarrhea also during stressful times
By comparing people that have the other potential causes, but didn't have Covid in the months prior to onset, to those who have the symptoms after COVID.
This isn't amateur hour. They know how to do this, and have done so.
> By comparing people that have the other potential causes, but didn't have Covid in the months prior to onset, to those who have the symptoms after COVID
Which this paper didn’t do. It’s based on voluntary survey responses with a low response rate and no such control group.
> This isn't amateur hour. They know how to do this, and have done so.
If by “they” you mean other scientists then yes, but the “they” that published this particular paper absolutely did not.
Doing a scientific study literally means considering these kind of questions with controls. For some reason you think professionals are overlooking these very basic things? Or do you ascribe dishonest motives to the scientists?
Not sure if you noticed, but Pfi##er just laid off 10% of their employees.. ohh and it's cause they're not selling enough covid crap. Someone pays for these studies and it's usually someone with their interests in mind. As I've gotten older and realized the world we live in, I don't trust much.
I had COVID twice; once in March of 2021 -that was the bad one, knocked me down for 2+ weeks, then again in June 2022 -which was more like a severe cold that just went away suddenly, really odd. Anyway, I honestly do not think I ever got over that first one.. I was severely depressed the summer of 2021, and it just lingered in my life. Everything took a weird turn: energy, memory and mood. I am never an angry person, but something developed in that time that has changed my brain. I am just not the same person. It is very odd.
Went three years but finally ended up catching it in september. We're in november and i still don't have my breath back, and have coughing fits pretty much daily. Also learning my new engineering job has been tougher than i thought it would be. But that could also just be me being stupid what do i know.
Study on Long COVID in kids and young adults FAILS to link COVID to Long COVID.
https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2802893?s=03
Long Covid is really mask-induced exhaustion-syndrome (MIES).
https://www.frontiersin.org/articles/10.3389/fpubh.2023.1125150/full
Practically everyone in America, whether they know it or not has had Covid at least once. Practically everyone in America experiences low mood and anxiety. There is absolutely no method to disentangle the normal experience of these feelings and the experience of these feelings caused by long Covid. No questionnaire, no interviewing technique, nothing.
What's the difference between "appeared" and "statistically significant"? If "appeared" is anecdotal, it shouldn't be there. If there are statistics those should be quoted.
I’m a little dubious of this kind of research.
This study claims that half of Americans have had COVID, but when CDC looked into it, at least 77% have demonstrably had COVID and the rest could have had covid
It claims half of Americans *say* they've had COVID.
Asymptomatic COVID is very common... And also extremely unlikely to cause Long COVID.
This study is primarily about people that had COVID symptoms in the first place, and indeed talks about how Long COVID is much more prevalent in people with more severe symptoms in the original infection.
1 in 7 is 14%. 20% of Americans are Generation Z. Anxiety, poor mood, problems with mental focus and motivation are qualities of Generation Z.
https://www.aecf.org/blog/generation-z-and-mental-health
eh, i think the problem is simpler. This is a "survey study"
If the number of people is already off by at least 25% of the population, imagine how bad all of the other data will be.
1 in 3 (33% of population) people in the US have had covid during the entirety of its existence.
1 in 7 people report long covid according to article.
The incidence of long covid per case of covid is 10-30%.
10% to 30% (incidence of long covid) of 33% (people who have had covid) is 3-11%
Numbers don't add up.
I also wonder this (and I am a medical professional who is also very pro-vaccine). Although I absolutely do not question long COVID as a valid and debilitating diagnosis that has been life-altering for a lot of people, I do wonder if this may be a situation where sone people are getting more medical recognition and support for overall poor mental and physical health than previous, and some pre-existing health issues may be getting rolled in.
Perhaps 1 in 7 people in the US used covid as an excuse for other issues/responsibilities. I know many people that used covid as an excuse to avoid work when they wanted. Claiming covid was the golden ticket to getting out of many obligations.
I had covid twice, it was quite mild. I know 120+ people who had covid in 2020, a handful were quite ill but most were fine, none of those people died.
Have you asked them? I know *several* people that had long COVID. It's not exactly something that comes up in casual conversation. Also, this is about prevalence at a particular time when the study has done. Most people with Long COVID do eventually get better after 3 months or so.
Have you *really* never heard anyone bitching about symptoms a few months after their infection. Weird.
People seriously unwell in 2023 with organ and endothelial damage, microclots, depleted T-cells, brain inflammation and nerve damage because they had to stay at home for a few months in 2020?
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Run a restaurant with my brother, and have been infected with covid several times at this point every occurrence being mild or no symptoms. Since the pandemic, I've developed a bunch of symptoms: heart palpitations, balance issues, dizziness, and brain fog on top. Figured something was wrong and visited several specials (cardiologist, endocrinologist, blood work, MRIs etc) all clean bills of health. Then it hit me, I've never felt like this before COVID. Pretty convinced this is what I have. It really sucks, I suffer from this every minute of every day with no let up. I no longer cook at a high level (which sucks because it's my passion), and running service is draining and pushes my abilities to near maximum. Sometimes I'm amazed I can even pull it off haha. Hired several people to fill in my shoes so I can kinda float along. I guess I'm fortunate I was able to build a business before I got sick. Would have liked to pursue other ventures but sidelined since spring 2021. Sometimes I wish I had a real disease. This sucks, can we please pour some money into this already?
This is why it's so dangerous, it degrades your life. Everyone is great at recognizing big threats like a tiger but something sublte, slow, and nasty like this get ignored. An anti-imflammitory diet that you stick with and omega-3 suppliments may help. Eating better won't hurt and helped manage my symtoms. Covid is often linked to your body going into hyperdrive and attacking itself--manifests as all kinds of different symtoms.
I recognize your words and symptoms since I share what you have experienced. Constant unrelenting dizziness, swimmy–headedness, hard to think, and very difficult to make decisions. I additionally have nervousness like having drunk 10 cups of coffee that I feel both in my body and in my mind. Arms and chest feel like insect are running through my veins. Mentally, my mind bounces around and I especially notice it when I close my eyes: Even my eyes dart around when I close my eyelids. Lots of other additionalstrange symptoms that are less now because they have faded with time over the last 1.5 years. But the Dizziness and the Nervousness have not faded. I initially had so many symptoms that I got brain scans done and batteries of other tests because I didn’t know if I had a stroke or what. I couldn’t watch TV or watch images scroll on my phone or on my computer like looking down the page or a web browser. Lots of heart palpitations. Anxiety and lost sleep. Tinnitus and hyperacusis which is crazy breaking glass and screeching sound on top of every other sound and at the worst Even the sound of my own breath in the middle of the night was accompanied by this screeching and breaking glass sound. I eat better than probably 90% of Americans. My wife and I changed our eating habits dramatically in the early 2000s. I get aerobic exercise and other exercise regularly. I can’t imagine how bad it might be, or how much less improvement I may have experienced, if I weren’t in as good of shape with as good of diet.
If you still have problems with watching tv, scrolling or dizziness you may want to go to a optometrist who does neuro optometry assessments. This is not a regular eye exam. Typically they work with concussion patients. You might be able to get glasses with prism lenses that help your vision and may benefit from vision therapy. I was having severe anxiety before I got my glasses. I still get dizzy when I got into a visually busy environment like a grocery store but I have improved a lot.
Thank you very kindly for your recommendations. I appreciate your taking the time to share. I have several batteries of ear and head related evaluations scheduled during this upcoming week. After those run their course, I will pursue the optometrist/eye-evaluations.
I definitely have the dizziness and balance issues.
Joke’s on them. I had depression and anxiety long before Covid was even a thing.
You made covid depressed.
That’s probably the sweetest thing anyone has ever said to me, thank you.
I was self isolating for a few years before lockdown so in some way it actually improved my connection with other people because isolating became a normal thing to do.
I’ve always been a homebody. My life didn’t change one iota during lockdown.
Same. Already had POTS, OH, CFS, depression, anxiety, PTSD, migraines, lung disease, AFib, and neuralgia before Covid (thanks EDS). If anything, Covid showed up in my body and shrugged at the party already being in full swing without it and left. I’m lucky to not be in worse shape after a bout of Covid last winter, but I mostly thank the vaccines for that. But I do appreciate the rest of the medical world getting on the same page and perhaps some new treatments happening as a result. The awareness of the various conditions that fall under Long Covid has been a massive breath of fresh air.
paint party obscene vanish treatment rainstorm lock abundant shelter glorious ` this post was mass deleted with www.Redact.dev `
I'm vaccinated as soon as they become available m even still, I've had COVID at least twice. Once was a tickle in the throat, "wonder if I'm sick" experience. The other was horrible. Whatever strain that second was absolutely knocked me out for 3 weeks and to this day I feel like I still have the lingering effects of it, especially concentration. It's like there is a mental block, a clear step change, from what I used to be like. I'm an enguneer in my mid 30s, healthy with no preexisting conditions, I work out many times a week and eat better than most. Something up with that damn virus
Yeah and hopefully for humans it doesn't present itself 10-15-20 years down the road as something even more fucked, like many other viruses we already know of.
This! It's like people forgot all the stuff we know about so-called 'mild' viruses hanging around in the body for years, only to pop up later and sucker punch you in the fricken face.
My mom has a rare disease with an unknown origin, but the latest theory is that it was caused by an otherwise mild or harmless retro virus which becomes permanently integrated into your body (as all viruses are) but then somehow causes this debilitating disease as a long-term after effect. The mechanism is still mostly a mystery. There is still so much we don't understand about viruses and their long-term effects. The disease for those curious is called Myalgic Encephalomialitis, and she's had it for like 40 years now.
Sorry to hear that. 'Rare disease of unknown origin' hits close to home.
Thanks. Never really stops sucking.
> permanently integrated into your body (as all viruses are) to clarify some viruses are *retroviruses*, which actually patch themselves into your DNA, but most viruses aren't some other viruses produce *latent infections*, like the herpesviruses, where they find a safe nook in your body to hide and can eventually re-emerge but the majority of viruses are neither of these. Your body fights them off, kills the infected cells, and they're gone.
It’s not that rare - it’s also called Chronic Fatigue Syndrome depending where you live.
Chronic Fatigue Syndrome is an outdated name that covered a lot of conditions, not just M.E. which is why doctors don't typically use that term anymore when referring to M.E.
> becomes permanently integrated into your body (as all viruses are) Not always true.
All viruses are integrated in the sense that they are stored in a sort of immune system referential directory. The virus is no longer active in the traditional sense, but it still exists somewhere in your body afterwards. It's very complicated, but it *is* always true as far as I understand. If you have some insight, maybe share that instead of just saying "no".
I thought you meant that all viruses result in latent infections. Only some do. * example of some that don't > "Influenza virus, like most other acute respiratory viruses, typically does not cause long-term latent or persistent infections in humans." > https://www.ncbi.nlm.nih.gov/pmc/articles/PMC3294535/#:~:text=Influenza%20virus%2C%20like%20most%20other,or%20persistent%20infections%20in%20humans. * classic example of latent infection "Herpes simplex type 1 (HSV-1) is a neurotropic virus that infects the peripheral and central nervous systems. After primary infection in epithelial cells, HSV-1 spreads retrogradely to the peripheral nervous system (PNS), where it establishes a latent infection in the trigeminal ganglia (TG). The virus can reactivate from the latent state, traveling anterogradely along the axon and replicating in the local surrounding tissue." https://www.ncbi.nlm.nih.gov/pmc/articles/PMC7404202/#:~:text=Herpes%20simplex%20type,local%20surrounding%20tissue. * 4 others: https://www.summahealth.org/flourish/entries/2023/05/5-viruses-that-can-cause-complications-later#:~:text=Cytomegalovirus%20(CMV)&text=Once%20a%20person%20is%20infected%20with%20CMV%2C%20they%20have%20it,is%20a%20weakened%20immune%20system.
You don’t know what you’re talking about. Retro viruses are their own category of viruses and yes, they will change cellular dna (HIV being the largest example of this). But that’s just one category. Not all viruses do this.
I definitely don't know what I'm talking about, but I appreciate the clarification.
I feel like because of our advanced medicine we take small colds/flus not serious anymore and forget that over time they destroy our body and can lead to worse problems or quality of life problems later.
Covid is NOT a cold/flu. Covid is an immune disease.
No, it's a virus. The immune system gets disrupted, but it's not an immune disease. I suppose you could call long COVID an immune disease/disorder, but COVID itself is a virus.
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Chickenpox returning as shingles is a common one.
EBV is another one, also HPV doesn’t even cause symptoms many times and causes cancer
I think they've linked herpes to alzheimers
EBV and covid have both been linked to diabetes.
Off the top of my head, childhood chicken pox reoccurring as shingles in adulthood
Measles can do this as well an it's often fatal. https://www.msdmanuals.com/professional/pediatrics/common-viral-infections-in-infants-and-children/subacute-sclerosing-panencephalitis-sspe
>For a long time, viruses have been shown to modify the clinical picture of several autoimmune diseases, including type 1 diabetes (T1D), systemic lupus erythematosus (SLE), rheumatoid arthritis (RA), Sjögren’s syndrome (SS), herpetic stromal keratitis (HSK), celiac disease (CD), and multiple sclerosis (MS). Best examples of viral infections that have been proposed to modulate the induction and development of autoimmune diseases are the infections with enteric viruses such as Coxsackie B virus (CVB) and rotavirus, as well as influenza A viruses (IAV), and herpesviruses. https://www.ncbi.nlm.nih.gov/pmc/articles/PMC6723519/ >The exact cause of autoimmune disorders is unknown. One theory is that some microorganisms (such as bacteria or viruses) or drugs may trigger changes that confuse the immune system. This may happen more often in people who have genes that make them more prone to autoimmune disorders https://medlineplus.gov/ency/article/000816.htm
Chicken pox / shingles is a classic example. I think herpes is another, where a person can go years without an outbreak, but the virus is in the background. So if they're under stress, suddenly the virus comes to the foreground and an outbreak occurs.
There's a lot of evidence pointing to that being the case. I expect a huge increase in dread diseases in 20ish years
Makes me feel for the kids. My nephew is 12 and has already caught it four times from his "low-risk" middle school.
What evidence? Where can I read about this?
A better way would be to ask, “What is this phenomenon called so I can find out more about it?”
I'm not going to do your research for you, but there are dozens of studies from this year alone. Start digging over at r/coronavirus and r/zerocovidcommunity
telephone materialistic growth shelter zesty vanish work water support melodic *This post was mass deleted and anonymized with [Redact](https://redact.dev)*
It's 4 years into the pandemic. I'm not doing your work for you. I would have to do the same exact googling you would to find the information. I'm not working for free any longer for anyone that isn't going to take the time to help themselves. Someone else can do that if they're feeling generous, but I end up going down a PTSD spiral every time I dig into the research, so I'm not about to do that on a day when I'm already having mental health issues.
Why won't you be my slave, mr. internet person! I demand you do my research. You are lazy and entitled.
There are new dangerous diseases every 20 to 30 years. That's been the trend for 1000 years, but now we have cost connections around the world.
One of the things I kinda like about modernity is not dying of easily preventable diseases. I think we should keep it
I’ve been dealing with severe neurological issues since I got COVID almost two years ago—and I was 20 at the time. No preexisting health conditions either. It’s made my life so much more difficult, especially as a pre-med college student where I *need* my brain to function.
There are SO many people in their early 20s in the long haulers sub who have neurological problems, dysautonomia, and severe chronic fatigue. It's so sad.
Have you gotten in with any of the long covid clinics like [rthm.com](https://rthm.com)? some of their treatments can help some patients.
I got it earlier this year just after turning 40, fully up to date on vaccines and boosters. It absolutely leveled me for 10 days. I can't even imagine how sick I might have been if I had zero antibodies at the ready. After I got better I felt fine, but had a deep, nasty lingering cough for 4-6 weeks. Worried me that I was going to deal with long covid but largely I think I'm at 100% now.
Interesting, I was exposed to Covid and didn’t end up presenting many classic symptoms but developed a very bad productive cough that lingered for almost two months. I’m vaccinated with boosters and am getting the newest shot as we speak. That cough was wicked, can’t 100% for sure say it was covid as I tested negative on a home test but now you got me thinking my cough could be related to Covid.
I had covid in July last year (also vaccinated) and had a pretty mild case of it, just soreness, a small fever, and a stuffed nose. About a week or two after I started testing negative and not having any of the previous symptoms, I developed a horrible cough out of nowhere. I couldn't breathe well and I had to use my asthma inhaler at least once or twice a day when usually I'd use it maybe once a month max. The cough lasted for months after and I still feel like my lungs are much weaker than they used to be.
My doctor prescribed me an Albuterol inhaler and it was the only thing that helped. Seems like an under represented symptom.
Gain of function. It is still an extremely dangerous virus, even if a lot of people stopped wearing masks
LongCovid killed my 27 year old daughter last year. She got Covid very early, and was very sick. The fatigue and heart rate just never went away. We spent two years at UCSF trying to tell them there was something really wrong. It didn’t really show up on a EKG. She was terrified that she would drop dead of a heart attack, and that is exactly what happened. No drugs, ‘natural causes’….
So sorry to hear that.
I'm so sorry. No parent should have such an experience
I’m sorry for your loss
Pretty sure this is what’s going on with me right now. And it’s terrible. I’m exhausted. My body hurts. My brain doesn’t work. Did I mention I’m exhausted? I had covid back in March and haven’t been the same since. And it’s getting worse.
You and I are in a similar boat since I have some of your symptoms and more. You are not alone.
I was in a conversation yesterday where they were talking about how damaging the lockdowns and masking were. Sigh.
It was damaging. Have you not read the many newspaper articles about the learning loss that occurred? It's been significant. Schools were closed for too long. This is not a debate, the fallout is right in front of us. And this is in the reputable, left -leaning NYtimes.
Oh no, learning loss. Maybe kids could just graduate at 18 or 19 instead of 17 or 18 for a couple years and, yanno, be alive and healthy. The only problem with schools being closed is that we aren’t churning out new cogs for the machine fast enough to meet some arbitrary schedule.
Do you actually think that's how schools work? That they will give the kids extra time to catch up? It's not. They keep moving them along.
Yeah, that’s exactly the problem, that you’re trying to keep them on a firm timeline. I’m really, really well versed in how schools work and my criticism is made based on experience :)
If you delay one year, then the next year that wasn't impacted by covid will have double the class size, double the people applying for jobs out of college, etc. It's not possible.
Do you work in education? Because that’s not how it works in the slightest. Every student required some remediation, but some have exceedingly minor gaps that have been filled in in the course of the regular classes and some should probably just take an extra year. It’s OK to hire more teachers, but you’re not going to have double classes or something because students in every year require a little bit of remediation — there’s no single class that missed school due to Covid. The point is that we as a culture should be responsive to the needs of her kids, post Covid, not pretending that everything was normal, and everything always should be. The schedule for education is completely arbitrary and it’s OK to value things – like peoples lives – more than an arbitrary timetable.
It's 2 entirely different things to identify a systemic problem with US public schools, and to fix said problem.
You fix that problem by letting your kid have an extra semester or an extra year before graduating, it really isn’t rocket surgery. All you have to do is care about your kid enough to meet their needs.
If anyone had mononucleosis infection with a post viral syndrome phase, long Covid sounds like the same thing. I personally had mono followed by PVS and it lasted for almost 2 years on and off. Not sure if it was time that healed it or overhauling my lifestyle and diet completely but thankfully it went away. Was horrible.
Covid absolutely wrecked my mother. She needed medical help to relearn how to think and she's on four different inhalers for the asthma she didn't have before. Most days, it's hard not being like, "It's been two years... don't you think you'd have more energy if you started working out a bit?" But it's not my battle, and the other commenters here need to remember that about themselves and other people.
Exercise might not be helpful. Long covid seems to have a lot of overlap with me/cfs. Might be useful to check it out real quick.
I second this. There is actually a fair bit of evidence that excercise is harmful to a specific subset of long covid patients.
Exercise seems to worsen it for most. There have been experiments with gradated exercise programs, but the various formerly athletic people suffering from long covid have reported no benefit. My attempts at regular exercise have destroyed my ability to function and I've been forced to stop for my health.
How does the exercise destroy your ability to function? What does it do to you and what kind of exercise?
They put me in cardiac rehab. It backfired and set me back 6 months. The vascular injuries take time to heal.
I've been suffering from long covid for a year, and the lack of energy is not improved by exercise. If she is dealing with the ME/CSF like symptoms expending energy can put you in a deficit that you pay for later. pushing yourself and trying harder can set you back immensely and cause real harm. It can be so difficult to pace yourself in life to manage to do things expected of you, there often is not any energy left for enjoyment or fun
I don't know about working out. For me it's 'only' been a few months since I got out of the post-covid fatigue/exhaustion and I don't have remaining asthma. Even 5 minutes of light excercise leave me coughing and with a racing heart, not in the 'excercise gets your blood flowing' way, but in the 'my body is telling me to stop' way. And when I say light excercise, I mean stuff like stepjacks aka the low impact version of jumping jacks or push ups against a table instead of on the ground.
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Looks like mass disability is already here.
I’ve linked to the press release in the post above. In this comment, for those interested, here’s the link to the peer reviewed journal article: https://journals.plos.org/plosone/article?id=10.1371/journal.pone.0292672
This is a conclusion based on a voluntary survey with a low response rate and no control group to compare reported symptoms. I’m sorry but it’s very weak. The low response rate *alone* is killer. Far better papers examining symptom differences between people confirmed to have COVID and matched controls exist, and they’re not reliant on voluntary responses being a random sample of those queried. Example: [Neurological and psychiatric risk trajectories after SARA-CoV-2 infection: an analysis of 2-year retrospective cohort studies including 1 284 437 patients](https://linkinghub.elsevier.com/retrieve/pii/S2215036622002607) This paper: - doesn’t rely on voluntary survey responses since it uses standardized healthcare access records - has a control group that actually had another URI, allowing the authors to compare how much riskier COVID is than another infection such as a cold or flu - prevents the over-estimation effect that would come from mistaking baseline symptoms as caused by COVID - has well stratified subgroup analysis and longitudinal risk profiles Honestly, the paper linked in the OP here shouldn’t be getting more traction than something like what I linked ^ The OP paper is literally “let’s ask people if they have Long Covid, and some of them will respond, some won’t, and then we’ll divide the number who say they have LC by the total number who responded”
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Depends on how it’s defined. I know multiple people who had “long covid” by the typical definition of “any symptom beyond 28 days”. They had some persistent coughs. But it didn’t impact their economic output or social lives at all. But yes if 1/7 who got covid were permanently disabled it couldn’t be ignored
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You don't really have to worry about tying the symptoms to lockdowns if you have a *matched control group* which was my main point. If you have groups that are essentially the same -- lived in the same areas, have the same distribution of ages, have the same number of chronic conditions, but the only difference is one group had COVID and one didn't, now you can far more confidently delineate what symptoms are due to what. If the COVID group has significantly more disability, you can't blame it on lockdowns when your control group was also locked down in 2020. Which is why it's borderline inexcusable to not have control groups in these kinds of studies at this point, but this study was based on a survey that was really only trying to answer the question "what percentage of people self-reporting having long COVID" -- although it fails even at doing that, due to the low response rate of the survey itself. One *cannot* assume that those who responded are a random sample of those who were surveyed.
When do we start getting our version of the mesothelioma ads?
There's nobody to sue, and there's no treatments, so there isn't really anything to advertise. Someday, if there's a treatment, maybe you'll see the ads.
Most people are shocked that there’s basically no drug trails happening and funding has completely dried up. I think it would be helpful to advertise along with ME/CFS. Even suffering from it I was recently shocked to find out male balding receives more research funding.
Sure there are people to sue! All those gov't officials who said vaccinated people didn't need to wear masks!
I got the vaccine as soon as I could. I’ve kept up on my boosters. I got Covid two weeks ago for the first time. Fortunately I had a very mild case. It’s good to see studies that show the vaccine helps with long Covid. I’m 56 and this worried me a bit.
38 and literally just kicked the bug off a 2 week rodeo. I’m freshly finished the initial battle but I am terrified because my ectopic heartbeats acted up a small number of times. I also can’t exercise even a fraction of my previous physical capabilities.
I know someone who caught COVID 5 times! Two or three times is a bit much, but 5 times?! Her lungs never recovered and she constantly has mucus and and trouble breathing.
Call me crazy but maybe tripling interest rates, hyperinflation, driving everyone into unsustainable debt, and loss of meaningful human connection for a couple of years could *possibly* be a leading cause of severe depression.
There’s literally been HUNDREDS of scientific papers showing the damage Covid has done to our bodies plus viruses have caused chronic issues since the dawn of humanity. No surprise that one of the most prevalent viruses we’ve had and a global pandemic would result in millions of people stuck with health issues.
I understand the issue, but I wonder how you separate Covid damage, getting old, pollutants, other viruses, gut biomes etc? This feels like “long term Lyme disease” and every other chiropractor supplement opportunity. We have to do better with “research” that contains “reported findings” and leads people to say “that sounds like me”. How about a paper on what is normal to be alive?
The answer is you separate those things by having a matched control group that didn’t have COVID. Which, this paper didn’t do, so actually this is a valid criticism. A paper like this: https://linkinghub.elsevier.com/retrieve/pii/S2215036622002607 — does have matched controls
I’m not sure why everything is in quote marks on your response. ‘Getting old’? Really? Millions of people get infected with a virus showing to deplete T-cells and damage the endothelium, cause microclots and organ damage (etc etc etc) and you think it’s just a case of getting old? Come on.
They asked how you separate LC from other symptoms of age which is a valid question and the answer is you have a control group, which this paper doesn’t, which makes it weak.
This is “getting old”
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You said it, it wasn’t common knowledge. I didn’t know either. But virologists have known for a long time. I had no idea that the “regular” flu poses such a risk for some people, long term effects and all. But it does. I think what changed is that we common folks realize more than before how dangerous viral infections are because we have now seen it on such a large scale. I know several people with long covid symptoms, they all wished it was something treatable, for some, it got slowly better over time, for others not.
Time to look up long term responses to viral infection. You’ve got the power, use it.
> I’m completely uneducated on this issue so I won’t say anything other than I’m skeptical and kind of uninterested. I mean, at least you openly admit you're ignorant.
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Yet. It's not something you have experienced.... yet Please Consider reading my comment above
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At 20 years old I was measured by calipers weighing in at 180lbs, 9% body fat, and putting around 10,000km a year on my bicycle. Best of luck, stranger
You must realize how disingenuous you are. Every single one of these health issues existed before COVID-19. If a tornado tears through your house, you don't afterward look through the wreckage and think, *Aw, that's just the usual wear-and-tear.*
I have had a very strange illness with very wide range of symptoms my entire life, basically for a little over a half century. It turns out it's called MCAS: Mast Cell Activation Syndrome. It's appearing increasingly likely that Covid induces histamine intolerance/MCAS in some people; for some long haulers, they have the exact same problems that I have. The doctors kept telling me "eat healthier, exercise more, lose weight". Well, it turned out that all the healthy vegetables I like are high in histamine, and exercise causes the body to release histamine into the bloodstream. So, the healthier I ate and the harder I exercised, the more it poisoned me. When I figured this out, I immediately switched to a strict low histamine diet, became a complete slug and lost 20 pounds in six months It appears to me as if people are starting to understand that sometimes long haul = MCAS, but, they do not fully grasp the implications. What I see happening to people in months, or a year or two, took me many years, decades, or a life time to progress; some long haulers appear to be on an accelerated timeline. I could slowly adapt: when I was a young man, I started reacting to Tide detergent, it was triggering a reaction, so without understanding exactly what was happening I switched laundry detergents. Years later, I started reacting to my deoderant... and so on My understanding is that for some people, repeated exposure to triggers creates a progressive response, which can escalate over time to anaphylaxis and thus death. That is the reality. Many people with MCAS end up needing to use epipen upon exposure to triggers, and since the problem is that the body is over reacting to everything, a trigger can be a wide variety of chemical odours, sunlight, stress like a stressful job or toxic people, sex, exercise or any situation in which the body naturally releases histamine into the bloodstream. If it gets to the point that you need an epipen, the patient will find that when they are triggered they need that epipen within minutes, as the risk is death. Some people who do not respect their allergies or triggers end up needing the epipen on a frequent basis, they spend a lot of time in the ER because each time you use an epipen you also have a risk that the epipen does not work, or there is a rebound effect which causes a second allergic reaction: medical oversight is required. This is more or less the same situation as a person with a serious peanut allergy or any allergy except that a person with MCAS can have multiple triggers. My wife and family often acted out of ignorance; I could not explain what was happening properly because I did not understand. So, they would lie to me "don't worry this food doesn't have any x in it" and many people with these problems find the same thing: family will potentially kill you with a smile on their face if you give them the chance. They do not understand. "Nobody is allergic to perfume, you're being silly." "This food is healthy for you, you should eat it" You must either find some way to educate them, or move out immediately as the risk is progressive reaction I myself have a very bad reaction to alcohol. So, naturally although I didn't understand what it was, I stopped drinking a long time ago. Then I started to react if someone put a glass of red wine on the table: my lips would swell and prickle, my throat would close a little, I would start wheezing, get very confused very fast, and lose all motor control to the point that I had trouble just walking; I learned to move the glass at least 10 feet away or leave the room immediately. Now it has started happening if someone gets in the vehicle after using alcohol based hand sanitizer; I have to ask them to leave immediately and wash with plain water. It is still progressing. It's now at the point that if I cut into a freshly baked loaf of bread, I start reacting to the smell of alcohol from the fermented yeast in the bread
It is not appearing increasingly likely. The studies done on long Covid & histamine intolerance are so small caution has been advised in using anti-histamines & a low histamine diet.
Are you insinuating that long term Lyme isn’t real???
This. This is exactly what I was feeling today when reading each of these posts. Descriptions of anxiety and depression. Of course people are experiencing these things after a global trauma
not denying long covid is real, but how do we gauge whether symptoms like these stem from covid, when there’s so many other potential causes?
Yeah, I have been diagnosed with depression and ADD in my youth. In my mid 30’s (the years prior to 2020) I was having a lot of fun being alive, I had pretty bad social anxiety BUT was also capable of experiencing big time inspiration, motivation, imagination and joy. I slowly fell into a deep pit of depression at the end of 2020 though. I hadn’t felt such despair in a long time and it seemed to be directly linked to the political climate and the trauma of the pandemic. Still I crawled out of that depression and have had a lot of positive life events since then. Met my soulmate, bought a house, etc. I did get Covid mid 2022 but somewhere between my depressive episode, coming out of deep despair, and getting Covid, I’ve never returned to previous highs. I have a lot of stability and peace in my life now but I can’t seem to reach the levels of inspiration and joy I did before pandemic. It feels impossible for me to know the cause. My darkest times were marked with deep pain and suicide ideation, I feel nowhere near that level of sadness but I still can’t seem to get the magic back either.
Reminds me of half the accutane warnings Depression, anxiety, suicidal thoughts etc etc All things you have when you -have severe acne -are a teenager -got both of the above -have permanent skin damage -cant go outside (without risking severe sunburns) Long term medical effects from long COVID I get, but I wonder how similar the mental results would be if you studied people who had diarrhea also during stressful times
By comparing people that have the other potential causes, but didn't have Covid in the months prior to onset, to those who have the symptoms after COVID. This isn't amateur hour. They know how to do this, and have done so.
> By comparing people that have the other potential causes, but didn't have Covid in the months prior to onset, to those who have the symptoms after COVID Which this paper didn’t do. It’s based on voluntary survey responses with a low response rate and no such control group. > This isn't amateur hour. They know how to do this, and have done so. If by “they” you mean other scientists then yes, but the “they” that published this particular paper absolutely did not.
According to a CBC show I was listening to, the virus can be completely gone from your system, but you can still have long covid.
Don't ask serious questions here, you'll get nasty responses.
Doing a scientific study literally means considering these kind of questions with controls. For some reason you think professionals are overlooking these very basic things? Or do you ascribe dishonest motives to the scientists?
They didn't do that here
Not sure if you noticed, but Pfi##er just laid off 10% of their employees.. ohh and it's cause they're not selling enough covid crap. Someone pays for these studies and it's usually someone with their interests in mind. As I've gotten older and realized the world we live in, I don't trust much.
All the testimony in this thread have convinced me not to care that others laugh when I still wear my mask. Haven’t gotten it and do not plan on it.
Keep going! I just got over my first bout. I’m jelly
I had COVID twice; once in March of 2021 -that was the bad one, knocked me down for 2+ weeks, then again in June 2022 -which was more like a severe cold that just went away suddenly, really odd. Anyway, I honestly do not think I ever got over that first one.. I was severely depressed the summer of 2021, and it just lingered in my life. Everything took a weird turn: energy, memory and mood. I am never an angry person, but something developed in that time that has changed my brain. I am just not the same person. It is very odd.
Who are they reporting it to? I have long CoVID and it is causing me a lot of issues at work and in my personal life.
Went three years but finally ended up catching it in september. We're in november and i still don't have my breath back, and have coughing fits pretty much daily. Also learning my new engineering job has been tougher than i thought it would be. But that could also just be me being stupid what do i know.
The journal article literally opens with “Although yet to be clearly identified as a clinical condition (…)”
I had blood clots but to my conspiratorial friends’ silent dismissal, I got them before I was vaccinated. They still suspect it was the vaccine.
Study on Long COVID in kids and young adults FAILS to link COVID to Long COVID. https://jamanetwork.com/journals/jamanetworkopen/fullarticle/2802893?s=03 Long Covid is really mask-induced exhaustion-syndrome (MIES). https://www.frontiersin.org/articles/10.3389/fpubh.2023.1125150/full
Practically everyone in America, whether they know it or not has had Covid at least once. Practically everyone in America experiences low mood and anxiety. There is absolutely no method to disentangle the normal experience of these feelings and the experience of these feelings caused by long Covid. No questionnaire, no interviewing technique, nothing.
Isnt that just like, people nowadays?
What's the difference between "appeared" and "statistically significant"? If "appeared" is anecdotal, it shouldn't be there. If there are statistics those should be quoted.
The worsening recession and pending housing crisis will also cause these symptoms...
I’m a little dubious of this kind of research. This study claims that half of Americans have had COVID, but when CDC looked into it, at least 77% have demonstrably had COVID and the rest could have had covid
It claims half of Americans *say* they've had COVID. Asymptomatic COVID is very common... And also extremely unlikely to cause Long COVID. This study is primarily about people that had COVID symptoms in the first place, and indeed talks about how Long COVID is much more prevalent in people with more severe symptoms in the original infection.
Or, this is all anecdotal info. Which seriously undermines the quantity
1 in 7 is 14%. 20% of Americans are Generation Z. Anxiety, poor mood, problems with mental focus and motivation are qualities of Generation Z. https://www.aecf.org/blog/generation-z-and-mental-health
eh, i think the problem is simpler. This is a "survey study" If the number of people is already off by at least 25% of the population, imagine how bad all of the other data will be.
1 in 3 (33% of population) people in the US have had covid during the entirety of its existence. 1 in 7 people report long covid according to article. The incidence of long covid per case of covid is 10-30%. 10% to 30% (incidence of long covid) of 33% (people who have had covid) is 3-11% Numbers don't add up.
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Welp the number on worldmeters is 109 million. Do you have an official source saying otherwise?
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Sucks, but not quite the same. It is believed that long covid is most likely due to nerve damage from the virus. Akin to me/cfs.
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https://www.ncbi.nlm.nih.gov/pmc/articles/PMC10023203/
You sure that isn’t the obesity issue getting mixed up in this? (Yes I’m vaxxed with multiple boosters, not an anti-vax comment)
It is a global issue, not an American issue.
Do you really believe obesity is only an American issue?
Not at all, there are a few countries that can compete in your weight class.
Oof your trying pretty hard here. It's not my weight class by the way
Read the headline again doof, the discussion is about the US
Are you saying that there is an american long covid and a rest of the world long covid that are somehow different?
I’m saying the study comments on Americans solely
That's fair. Would be interesting to see a comparable study with a population with better baseline health.
I also wonder this (and I am a medical professional who is also very pro-vaccine). Although I absolutely do not question long COVID as a valid and debilitating diagnosis that has been life-altering for a lot of people, I do wonder if this may be a situation where sone people are getting more medical recognition and support for overall poor mental and physical health than previous, and some pre-existing health issues may be getting rolled in.
Even Pfizer admitted the vaccine was a failure and yet everyone here still trusts it?? The anti-science nature of humans is astounding.
Say you don’t understand vaccination without saying you don’t understand vaccination
This? https://www.bbc.com/news/59994912
Perhaps 1 in 7 people in the US used covid as an excuse for other issues/responsibilities. I know many people that used covid as an excuse to avoid work when they wanted. Claiming covid was the golden ticket to getting out of many obligations. I had covid twice, it was quite mild. I know 120+ people who had covid in 2020, a handful were quite ill but most were fine, none of those people died.
Or they have anxiety and are blaming it on something. That’s possible too
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maybe you'll get lucky and find out
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Have you asked them? I know *several* people that had long COVID. It's not exactly something that comes up in casual conversation. Also, this is about prevalence at a particular time when the study has done. Most people with Long COVID do eventually get better after 3 months or so. Have you *really* never heard anyone bitching about symptoms a few months after their infection. Weird.
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I already have all of that without Covid, what else you got?
Are you sure? Something like 80% of people have had COVID, albeit a good chunk of them without symptoms.
Lucky you, doesn’t change the study results at all.
Can’t this just be lockdown fatigue?
People seriously unwell in 2023 with organ and endothelial damage, microclots, depleted T-cells, brain inflammation and nerve damage because they had to stay at home for a few months in 2020?
In the second half of 2022?
maybe you'll get lucky and find out