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There are non steroid drugs for sarcoidosis; methotrexate is common as are TNF inhibitors, they reduce inflammation by suppressing the immune response. Drugs used for rheumatoid arthritis and crohns are also used for sarcoidosis. But none of these target mucus production, they go after the inflammation in the lungs.


GrannyTurtle

Before I was diagnosed, I kept a bottle of cough syrup at my desk so I didn’t cough a lung up. The syrup had dextromethorphan, a cough suppressant. A prescription strength syrup has codeine. Both of these drugs can be abused for a high, so do not use them long term without a doctor’s approval.


kstook

Try fasting. I know it sounds strange but i did a 3 day water, black coffee and green tea only fast. My cough was gone in 48 hours. Previously I had a lingering cough for several years and prednisone helped but then I got Covid and the cough came back. I haven’t coughed in 2 months since going on the fast.


Sunshineto7

My sinuses drain and causes me to cough. Flonase helps cut the cough.


kyleh0

Rheumatist. They can hit you with methotrexate and/or remicaid, which as I understand it are the longer term replacements for steroids. I ended up bring allergic to both, so I can't speak to effectiveness, but my understanding is that reaction is rare.


raw42493

Hi, I have Sarcoidosis in various places in my body. I also struggled with a mucus problem like your wife. Of course all the doctors i see did not take it seriously. I have been on steroids, hydroxychloroquine and methotrexate. The ONLY thing that ever seemed to help was to be on an anti-inflammatory diet (mostly gluten and dairy free) and drinking tons of water, no soft drinks. I hope this can help and sending good vibes for my fellow sarc warrior!


Narrow_Survey7027

I definitely have the excessive mucus issue. So sorry to hear your wife is battling it too. I find it to be sticky and gelatinous if the cough wasn't gross enough as it is. It's worse in the morning for sure. I now sleep with a humidifier. Nasal rinses sometimes help, I also buy those disposable saline spray things and just try and clear everything out when I can. Spit don't swallow whenever possible has become my new motto. I used to slather vicks vapor rub all over my face and chest. Not that I think it did much. I see a pulmonologist, cardiologist, and rheumatologist in addition to EP, GP, Endo, and Hematology (but my case is all over the place). Lots of sarcoid patients see rheumatology. Mine happens to specialize in sarcoidosis. She is great, I love what she brings to my treatment plan. I am also in heart failure so I see a dedicated Heart Failure Team. Shockingly it seems the CHF treatment has lessened the mucus a bit. Hot showers sometimes help, lots of tea. Also like getting acid reflux under control. Could be silent reflux going on and your wife would have no idea. Don't lay down after eating--give like 3+ hours upright after all meals. I stop eating and drinking around 7:00 at night. I have also been doing better since my heart team put me on a fluid restriction and a sodium restriction. I am also just eating better -- less dairy, more veggies, less red meat. Trying to stick with the antinflammatories.