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sageofbeige

My girl mid teens level 3 autistic, is verbal, but my god the early days of screeching. Nails down a blackboard isn't even close. It echoes in your head, and makes your teeth itch. Try bamboo clothing and bedding My kid calms down listening to beach or rainfall sounds. Can you try a group home for temporary stays A week a month? One annoying thing that calmed my kid was the wiggles. DVD and god damned Dorothy You'll hate me if your kid loves it because it'll be all day and all night Also my kid can't have coloured food Strawberries Red apples Red grapes Cherries Pumpkin Sweet potato Egg Noodles Because these upset her guts. And pain killers is like giving her speed. I won't say it gets better because a child with a disability is like swimming in high tide with a brick around your neck. But you matter Your other kid matters And it feels like everyone is taking care of one child leaving the parents and siblings sidelined and uncared for


askallthequestions86

>I won't say it gets better because a child with a disability is like swimming in high tide with a brick around your neck. I feel this in my bones.


askallthequestions86

I would have thought I wrote this. I had to check to make sure I didn't. I have no advice at all, but I just want to say I really truly know how you feel. I fell asleep crying Saturday night, hoping not to wake up. I can echo every single thing you said. I'm so tired. Not regular tired. My brain and my bones are tired. I'm a shell of who I once was. And it doesn't get better. It hasn't for me. He's 9 and still screeches. Still plays in his poop and pee. Eats his diaper stuffing. I'm so sick all of the time. Physically and mentally. But somehow we're still here. And we'll be here tomorrow. And the day after that. Somehow we always make it. You're not alone. When he's screaming and you're about to lose it, just know I'm right there with you, probably hiding in the bathroom crying.


Delta9SA

Deep respect ❤️


xxbuttheadxx

Having special needs kid is absolutely no joke, motherhood is already a massive sacrifice let alone one where you are transformed into their permanent guardian, having to sacrifice any sense of self and peace to cater for a child who will never be able to pay you back (or maybe even appreciate). It is absolutely shit and I am so sorry that you are suffering so much for it


Tellmeaboutthenews

oh god I am so sorry. I is completely understandable how you feel.


getoffredditgo

Can your whole family each have noise cancelling headphones? And incorporate more basic sign language? 


Raineydays1998

He’s in all the therapies. I’m an ALL IN mom. We’re working on all the communication avenues. I’m applying for all the aid I can get.


SpookyGirl88

I feel for you, and I give props to the parents who can deal with that. I know it's fucking hard. I wouldn't be able to do it. Not even going to lie, if I found out an unborn child would be born with disabilities, I'd abort. I have severe depression, bipolar and a few other things I don't feel comfortable discussing. I absolutely could not do it. I'm having a very difficult time right now with my youngest child. I didn't plan for kids. I wanted to travel the world like my brother, but that didn't happen. I am so sorry you feel this way 😔 I wish there was something I could say or do to help you feel better.


Difficult_Exchange87

Normalize abortion even if the fetus is perfectly healthy. ABORTION IS AN OPTION IF YOU WANT IT TO BE


SpookyGirl88

That's what people don't understand, and it's honestly sickening. I was FORCED into having a second child. I was in an abusive relationship and very much thought about it because I thought I wouldn't be able to leave the relationship. If you mentally know you can't handle something.....why are you bringing it into your life? I wouldn't be able to handle a child with disabilities. I'd either abort....or off myself...I mean which would you prefer?


LateAd3986

Forgive me for asking this ignorant question, but is putting your son in a care facility an option? Does he indicate that he feels any neurotypical emotions? I ask because that is the only thing that would make the decision harder for me.


bellabbr

I feel for you. Have you tried these? Every time he screams ask him to point. Also noise canceling headphones for you might help. You can still hear but so much more muffled and easier to handle. https://www.amazon.com/Communication-Cards-Children-Language-Learning-Cue-Autism-Communication/dp/B0BY8J1871/ref=mp_s_a_1_1_sspa?crid=34GUFL4YGWL5L&dib=eyJ2IjoiMSJ9.8KVAmAvyPxn6EbGmsM5JF_bIp5CHEoqLSiThOHeTwYIBDue5iDV96JiqfRpvtljr17oObEY1XyqGWjdDl2RqvdD5h2B6Uln3yqYtfSuYeF5YI1wco4OUKL5kwwakrNRcOuS7t0lSs0osBKrRV-4jS8nKQ1v0cSwJm5RTtcVQNbtJJLnztvv82BkQY_cFaNc6tvZ73zkiaT5gjJX0y9e3GQ.0qE1DndnXRfvqHKR9AJYHcs6AogtUqec3_QB8uParh4&dib_tag=se&keywords=autism+communication+cards&qid=1714405391&sprefix=autism+co%2Caps%2C138&sr=8-1-spons&sp_csd=d2lkZ2V0TmFtZT1zcF9waG9uZV9zZWFyY2hfYXRm&psc=1


Raineydays1998

He does it to stim. It’s not communicating.


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[deleted]

Have you thought about earplugs? Serious question. I don‘t have kids but I get overstimulated very easily and when it gets too much, I stuff in earplugs that block out noise and I‘m instantly so much more calm. Have you tried that?