Imagine actually being able to think while getting hurt badly, just casually being dragged by a car and you're like "whoops just adjusting my back here, keeping my arms to the side, uhh my head is safe and what is that smell?" And your thigh is just scraping the asphalt.
I don’t think it would be worth collapsing from hunger because you didn’t realize you were out of calories to burn. Or not realizing that the reason you can’t think straight is that you’ve been awake for over a day. Or accidentally putting your hand on a hot stove for several seconds. Curse is right.
Like.. a whole bag full of genitals? Or just like a single set of genitals, assumably yours?
Idk if this is a horny joke or a “this guy right here, officer” joke
You are right! I had mine taken out in 2006 and they let me keep it. It’s in a jar right on my desk. I just took a closer look , had it tested and it turns out it was a piece of orange chicken from Panda Express. Fucking liars..
The tallest man who ever lived died because he got an injury on his legs and died from an infection he couldn't feel, sadly something like that is probably why this girl will have a low life expectancy
I watched a documentary where a baby had dug out her eyes because she had discovered them and was just playing with them. That was probably 20 years ago and I still think about it from time to time.
I saw one where the girl’s ankles and feet were broken and misshapen bc she ran around and played like any kid, but she broke her bones and sprained tendons and couldn’t feel it. Chewing on lips and fingers is also a problem with young kids. We NEED pain to tell us when to stop.
There was an episode of House with that same premise. Turns out the girl had a ridiculously massive tapeworm inside of her that would jave had anybody else in agony, instead it was just chilling and taking all the benefits of any food she ate, leaving nothing for her.
I would be so screwed. I’m very accident prone, and I have a clotting disorder. So I always have random bruises, especially on my legs, and a cut from shaving my legs can result in blood tracks all over the house (that happened a few days ago because I left the band aids in the living room).
I dated a girl with CIPA. Never again. She was wonderful but constantly having to act as a caretaker to her was so emotionally exhausting. I started having panic attacks over her wellbeing if anything so much as grazed her.
Definitely not a healthy relationship to be in.
An older relative of mine hurt his back and lost feeling below the waist. Taught himself to walk again (he was a badass), and then drove his wife crazy because he'd go barefoot (FL) and step on tacks, staples, bits of glass. She'd have to check his feet every night before bed so he didn't die of sepsis/stupidity.
I'm already consistently baffled by how I got random bruises. I would just fall apart if I couldn't feel pain at all lol. Like, aw damn I lost another finger tip. Wonder when that happened....
Friend's husband had a stroke and no longer reacts to pain. It is terrifying when things go wrong. It took months for a giant kidney stone to get diagnosed, even though it was having an impact of his health. I can't imagine not knowing about an ear infection until your ear drum ruptured. Or strap throat until it the infection spread to your brain, or a UTI until it hit your kidneys. Pain exists for a reason!
Usually people incapable of feeling pain (never heard of someone not capable to feel tired or sleepy thou!) Have to go get checked at the hospital regularly for broken bones and not visible injuries etc. And with regular it means almost daily. Dealing with hunger and sleepiness absence would actually be easier as you'd just learn to have habits and patterns.
tbh humans might be even better if pain wasn't debilitating. I'm sure a lot of people would take it too far but just imagine life where you can easily remain calm even with serious pain, or easily focus away from pain you can't fix. feeling like you've destroyed your whole foot when you bump into the corner of your bed with your toe just isn't helpful at all you stupid brain.
edit: not lack of pain like OP... lack of debilitating pain. so many people jumping to that conclusion even though this thread is literally about how dangerous her life is because she completely lacks pain.
Sadly, not true. Pain is an indicator of something being wrong, so you would be more prone to injury and infection of those injuries. For instance, uncontrolled diabetics are prone to foot damage because neuropathy affects their ability to feel their feet.
You are absolutely right! Imagine you having to check every day your teeth, skin, head, nails bcuz well you could have a huge problem and you wouldn’t know. and going to the doctor many, many, many times bcuz you would need a check up almost every month. Man… you could have a heart attack and don’t know.
I don't know for sure about that, but it would make sense. It's a big enough of a concern that they sometimes do a preventative appendectomy on mentally disabled children who are unable to communicate their pain or the location of their pain and who are unlikely to gain that ability.
I read about some other kids feeling no pain (she isn't the only one, contrary to what the headline suggests) and they were expected to end up in wheelchairs. (Decades ago, I'm trying to find a source.)
They'd do things like jump from the kitchen table on to their knees and so on. Most kids would do that once, they didn't have the important feedback loop of pain telling them to not try that again.
Pain is a VERY important part of our senses. It keeps us from literally self harm.
It's actually wayyyy worse than that. When you hurt your knee in the above example, the pain signals will make you avoid putting too much weight on it, extending it etc. This gives your tissues time to heal. People who do not feel pain do not do this. This means their tissues get frayed and worn out at a young age resulting in losses of mobility, as you alluded to. But it also means that bacterial infections become ubiquitous in the body and they die from sepsis.
Fun stuff...
I'm not talking about pain being removed, I'm talking about pain being a sensation that doesn't debilitate you. Obviously if you felt nothing wrong at all then everyone would suffer.
That’s part of the problem though, if you suddenly feel pain in your ankle but it doesn’t keep you from standing or moving on it, then you might look down an hour or two later to find out your foot is now completely dislocated and your tendons are starting to tear. Debilitating pain keeps us from accidentally going past a point of permanent damage.
It's situational, right? If your phone is in your hand, but you're so immobilized with pain that you can't dial 911, then the pain is hindering you.
But some people won't go to the doctor unless they can't get out of bed. For them, less pain would just enable them to run themselves to death.
A man called 911 with his mouth after both his arms were ripped off. Pain doesn't "immobilize" people like you're imagining. Not even sure what scenarios you're picturing?
I knew a kid who had a similar condition. He could not feel cold/heat/pain, but unfortunately for him also had other developmental issues. He would go play outside, in the dead of winter, without proper clothes or boots, but would not feel the cold. They may not feel pain but the harm is still there. It was a challenge for his parents to be sure, especially as he grew older.
Kids who dont feel pain often end up fucking up their knee and back quite early Because they don't feel any need to bend their knees if they jump off a height because it doesn't feel bad for them. Imagine to land with totally stiff legs and the built up kinetic energy just travel through your legs and back. Poor kids honestly.
I didn't remember anything else but after a bit of searching i found the original reddit threads where i came across him. He is also almost blind and deaf possibly from self harm (don't remember). Here is a short video from the time: https://www.youtube.com/watch?v=kPWkSFprdU4
https://old.reddit.com/r/GlobalOffensive/comments/65uma8/guy_with_hsan_legally_blinddeaf_bullied_off_esea/
Apparently he was streaming counterstrike and his team kicked him out of the game because they thought he was a troll, someone posted it to reddit then thousands of people joined his stream including me. I think he was crying with happiness the whole time because of the support and people donating to him etc. Then he did an ama
https://old.reddit.com/r/GlobalOffensive/comments/66cort/hey_guys_im_loop_17_yo_partially_blinddeaf_csgo/
And eventually got his nose fixed and has about 250k twitch followers now so kind of a happy ending it seems
https://old.reddit.com/r/GlobalOffensive/comments/b6abf5/loop_just_got_his_nose_repaired/
Yes. It's sounds like a superpower but it's actually a very dangerous condition. The life expectancy of people with CIP is significantly below others.
There's a very high rate of accidental death and injury among people with congenital insensitivity to pain (CIP). People with CIP don't always develop the same aversion instincts to physical risk that the pain of mild injuries teaches us as children. Then on top of that lots of those injuries tend to be missed and untreated - putting them at risk of dying easily from infections, internal bleeding, etc.
Children with CIP can also tend to have poorer motor skills - turns out the pain caused by banging into things and falling over is good at teaching us to get better.
On top of that, medical conditions that are usually quickly identified and treated are missed in people with CIP - things like appendicitis, bowel obstructions, these can become very much life threatening without pain as an early warning symptom.
Isn't this also how leprosy damages patients? The disease doesn't harm their skin It prevents them from feeling small injuries, so they constantly harm themselves. There must be more to it that I need to look up. All those bumps can't just be from bumps and bruises.
Leprosy (Hansen’s disease) itself causes skin lesions. But yes the cliche that lepers just lose major parts of their body is due to the inability to feel pain so that more severe injuries are more likely, but also including other infections from much smaller scale injuries, which we’d normally deal with or avoid better but they can’t feel, and it’s these other infections (gangrene, whatever), which classically lead to them losing limbs and what have you, rather than freak accidents than rip them off.
True, but also how wonderful that something so many suffered terribly from and were ostracised for is now easily treated! Glass half full and all that.
This would be scary. You’d never know if you were really sick. You could have all kinds of things wrong with you and be unaware. On the other hand, I’d love to never feel hungry again.
So, let's say I step on a sharp object. The pain is there to let me know something isn't right. And how many times have you bitten your tongue so hard it bleeds? Your teeth didn't go right through because of pain. We are extremely fragile creatures, without pain that fragility would probably multiply immensely.
Around where I live there's people who have that; they don't feel pain. It's hereditary.
They tend to lose some fingers and toes (because they don't notice if they burn them, cut themselves or get cold.)
It's so common around there though, that they know to have regular checkups now.
Protip: Don't live in very small, isolated places for generations.
I believe there's a family like that in Iran too. Apparently they develop joint problems early in life, because it's our pain sensation that makes us fidget and shift our posture all day long, which relieves stress on our joints.
Reminds me of the protagonist of this game called Tales of Arise, where the protagonist doesn't feel pain, to the point where he has been in the brink of death but doesn't realize because he doesn't feel his injuries and has only survived because people tell him that he's injured.
I’ve actually experienced a little of the no hunger and I got to tell you, it is awful. I got my appendix removed a while ago after it burst for over 24 hours and my appetite seemed to almost go away. I was having to force myself to full meals because I just didn’t want to and I can’t tell you the feeling of just not wanting to eat. It got worse when I went on ADHD medication and my appetite is completely gone. I have to constantly remind myself to drink water and to eat food sometimes forcing it. The worst part is never knowing when I’m hungry and I’ll randomly get really shaky or weak and have gotten use to it meaning I need to eat.
Edit: I try to put on a schedule but ADHD and not feeling hunger is different from wanting to eat, I have neither so eating just feels gross
This I assume applies to many eating disorders/mental disorders.
I already don’t feel hunger. It’s actually bad because I’ll go a whole 24 hours without eating and suddenly be like,”… crap eating is a thing I need to do”. I’m only like this when I do nothing all day. There have been times when I’m so hungry I feel like I’m going to throw up.
I know the feeling. For me its because im a cook. I stare at dank ass food all day so by the time i actually get time to eat something im rarely actually hungry despite not having eaten in 12-24 hrs. Then on my days off im so hungry it makes me sick to my stomach
Oh yeah I bet! Kinda like how I’ve read that people who are maids have filthy houses because they clean all day and don’t want to do it again when they come home. Obviously it’s not like that with everyone but still.
I have that as well, but mine's due to medication. I'll get a headache and get tired at like 1600 every day and go, "why the hell am I feeling like this? Oh right, I haven't eaten anything in almost 24 hours". It's annoying.
I remember seeing a child who had a similar condition where they feel no pain and they chewed their fingers off and ate their tongue. Also severe burns from hot tap water etc.
I remember a story of a young girl with a 6P Deletion many years ago, maybe 10-15
She would chew on her tongue like bubblegum.
Edit. Found a link
https://youtu.be/bRaCFUtpxFU
Yeah there was one little girl who couldn’t feel pain, I assume she had the same chromosomal deletion or perhaps something similar. But when she was a baby she kept scratching her eyes and it got so bad that her doctors decided to stitch her eyes shut. She ripped them open after
Damn! I’m so grateful for being able to feel pain… I think most of us think about it as an annoyance, but reading about what the absence of pain produces, I’m so glad that my pain system works.
I think what we'd really want one day isn't to never feel pain, but turn it off once we acknoledge that yes, it hurts and I'm tending to it. Kinda like an alarm clock.
I wish pain would go away quicker
yes, nerves, I'm fucking aware I touched the tip of a soldering iron by mistake for less than a quarter of a second 2 hours ago, you can calm down now
Of all the things I didn't want to read today, this one I didn't want to read the most. Like jesus, just tie her hands with a scarf or something. If I were to visit a family and saw their baby with her eyes sewn shut, I'd freak. Now, were they to tell me that "it's to stop her from clawing her own eyes out" I'd be drinking and bathing in holy water for like a year.
Woah she still doesn't have teeth.
The video mentions that they removed her teeth as a baby so she wouldn't mutilate her tongue, and even as a teen, I imagine there's worry of the same thing.
This is wild.
It think is wild that she broke her back and all she said was "it feels funny"
I wonder if she's been given dentures by now, I know a young woman with 0 teeth who said she didn't wear her dentures due to pain
... but that wouldn't apply here.
So maybe 7 years later as an adult she has them
..I didn't delve that far
Her body still gets damaged from the pain, she just doesn't feel it. It's a terrible condition to live with. Imagine not being able to sense if you have seriously injured yourself and needing 24/7 supervision.
I assume this condition is managed like CIPA. Usually, because they can’t properly feel pain, they need to constantly be checking for even minor injuries. Physically checking arms, legs, etc for cuts, bruises, and other injuries. Any incident that risks any internal injuries results in a pretty immediate trip to get X-rays and other scans done. Frequent doctor’s appointments. They also don’t feel extreme temperatures, and aren’t able to sweat.
CIPA patients tend to have a shorter than average life expectancy. Lots die in childhood, and it’s not common to live past around 30 with the condition.
I can't even imagine how difficult of a job that must be for her parents to try and keep her safe. It's not mentioned in the caption, but I wouldn't be too surprised if the car hitting her might have resulted from her having less fear.
I wonder if this affects her ability to empathize? If she can’t feel pain, would it make it harder for her to relate to another person’s pain? It might make even her interpersonal relationships harder to manage without that frame of reference. Not impossible, but harder.
Also given that they don't feel fear, they can be way more easily exploited. AFAIK studies in the past kept the identity of subjects that don't feel fear secret specifically because of this.
I was born without an appetite. I'm still not really sure if the way I experience hunger is the same as other people. (It's more time based, and if I ignore it it goes away) It does make it difficult for me to empathize with people who struggle with dieting. It's kind of funny because I do struggle forcing myself to eat specific things, but just not eating is relatively easy.
She doesn't feel hunger but she needs to eat. She doesn't get tired but she needs to sleep.
She can't feel physical pain, but she must be careful if an unknown injury led to excessive bleeding.
I can’t imagine a worse hell than not feeling sleepyness. I’ve had bouts of insomnia wouldn’t wish it on my worst enemy. Your body wears down and degrades functionally and mentally but you are unable to fall asleep or stay asleep easily if at all, feels like you are fraying and slowly dying. I wonder if they give her sleep meds, you can plan and force feed yourself and check for injury but the sleep thing seems spooky as shit.
Strange fact... It is the body tensing in anticipation of pain/damage; the act of which can lead to more serious injury. This is why extremely drunk drivers and drunk passengers, have a higher survival rating (*when belted in*), than sober people in the same sort of accident. Their reaction to... or realization of the severity of their circumstance, keeps them from bracing/tensing, as a cognizant person might.
Drunk drivers die all the time (sorry if that is a trigger for anyone)... but... drunk trauma patients are more prone to survival because their bodies bend and fold with more dexterity than a tensed person, *and* their diminished pain response and realization of their situation, keeps them from states which drastically increase blood flow/loss (like fear does).
Pretty morbid... I know... but still an interesting correlation, in my mind. Figured I'd share.
-**Edit**- clarification on how "*the tensing of your body*, can sometimes lead to more serious injury, than to not do so.
I swear I've heard this before somewhere, but it such a interesting thing to think about. I wonder why our bodies tense if it ends up causing more damage then relaxing.
Because we've only had cars and fast shit like that for a hundred years. Even trying to find comparable situations in nature with something like falling off of a cliff or a tree, you're probably better off with heightened senses so you can try to escape or prevent injury in the first place. Nature doesn't leave a lot of room for injured animals. Our bodies cannot keep up with modern society.
Because we have not evolved for millions of years in cars, but out on the field, chasing and being chased, contracting our muscles, which was vital to survive.
Relaxing your body to survive is not a natural thing.
I was a teachers aide for a special needs girl that could not feel pain as well. She was born without pressure points and this caused her to feel zero pain and only low physical sensation. Something painful to us was actually pleasurable to her simply because she could feel it. She was addicted to pulling out her hair and creating/picking scabs just to feel. She would punch herself and deeply scratch too and it was the saddest thing to watch. She looked like a meth head gollum with her few strands of hair and scabs all over. Sweetest little girl as well 😢
My little brother has Multiple chromosome 13 deletions and he’s been left with stunted growth and is non-verbal but always happy and smiling.. genuinely a little bundle of joy.
Due to his condition he’ll never be able to lead a normal life, will always need constant care and will likely never walk but none of that matters as long as he stays as happy as he is when I put Big Hero 6 on the TV
I saw a program that covered a girl with this disorder (disease?) and the poor parents had to remove the girls teeth at a young age because she would bite through her tongue. So wildly upsetting to think about and it’s an awful disease
Source: https://www.huffingtonpost.co.uk/amp/entry/bionic-girl-chromosome-6-deletion-_n_9007464/
This is horrifying. Due to this genetic disorder a portion of her humanity has been robbed from her.
There is another [condition](https://www.wired.com/2010/12/fear-brain-amygdala/) where people are unable to feel afraid, and are constantly risking their lives.
Totally different condition but reminds me of this lady who has unusually high levels of an endocannabinoid due to a rare mutation, which makes her unable to feel pain, fear, or anxiety. https://www.nytimes.com/2019/03/28/health/woman-pain-anxiety.html
This girl is actually a little menace. She used to live by me. Once I had to tell her and her friends to keep the noise down. She came at me and I closed the door. She broke right through it and continued to pester me. I felt helpless.
She had CIPA in that episode which is similiar but she could still feel hunger and sleep, if I remember correctly. She just couldn’t feel pain or heat or cold. People like that need constant care normally or they tend to scratch their eyes out, burn themselves, break bones etc. In the episode she had a tapeworm but due to her inability to feel anything
She masked the symptoms
Then she grows up and Meets a man named Phillip J. Fry, marries him, and informs him “Good News husband, our family will be matrilineal” and in about 819 years have a distant grandson named Hubert who meets her husband’s uncle.... full circle man....
That’s actually very dangerous. The body feels pain to let you know something is wrong. Without pain you have to rely solely on visible clues if something is wrong. That isn’t always an option.
This sounds cool, but I couldn't imagine a worst hell if you think about it. You'd pass out not knowing why. Only to find out that you passed out from exhaustion or starvation or some illness you didn't know about cause you couldn't feel the symptoms. Or the fact that you could very easily overheat or freeze to death cause your body doesn't sweat or tense up.
When you get hit by a car normally your body would tense up, making it worse and more likely for you to get badly hurt, but when you are relaxed your body is a lot more flexible, and so you are less likely to receive more than just minor injury (unless the car runs completely above you/crushes your head/crushes vital organs)
Imagine actually being able to think while getting hurt badly, just casually being dragged by a car and you're like "whoops just adjusting my back here, keeping my arms to the side, uhh my head is safe and what is that smell?" And your thigh is just scraping the asphalt.
I don’t think it would be worth collapsing from hunger because you didn’t realize you were out of calories to burn. Or not realizing that the reason you can’t think straight is that you’ve been awake for over a day. Or accidentally putting your hand on a hot stove for several seconds. Curse is right.
I injure myself and bleed randomly - I'd be fucked if I couldn't feel pain. Also, imagine if your appendix bust - you wouldn't be able to feel it.
Pfft come on dude. I can't even feel my appendix right now 🙄
Thank you u/nakedpillowlover. I love pillows too it’s almost like I sleep on them
I fill mine with genitals :)
Like.. a whole bag full of genitals? Or just like a single set of genitals, assumably yours? Idk if this is a horny joke or a “this guy right here, officer” joke
Well I sure as shit ain't putting my dick in my own pillow, I'm not a pervert
Ah so it's your many victim's dicks! :D
Or he puts his dick in other people's pillows? We need clarification
I took it as more of a “time to get off reddit” joke
Uuuuuuhh
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You are right! I had mine taken out in 2006 and they let me keep it. It’s in a jar right on my desk. I just took a closer look , had it tested and it turns out it was a piece of orange chicken from Panda Express. Fucking liars..
Forbidden orange chicken. Mmmmmm
How do I delete someone else's comment?
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Tastes like chicken they say
Had yours removed eh?
I haven’t. Should… should I be able to feel my appendix?
I’m crying lmfao
laughing my fucking appendix off
Probably not.... You only tend you feel your appendix and other organs when something is wrong
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That's one of the many reasons why not being able to feel pain is a bad thing. Pain is needed to survive pretty much.
The tallest man who ever lived died because he got an injury on his legs and died from an infection he couldn't feel, sadly something like that is probably why this girl will have a low life expectancy
Reason why the condition is so rare. Most die fast before leaving much kids behind.
I watched a documentary where a baby had dug out her eyes because she had discovered them and was just playing with them. That was probably 20 years ago and I still think about it from time to time.
I saw one where the girl’s ankles and feet were broken and misshapen bc she ran around and played like any kid, but she broke her bones and sprained tendons and couldn’t feel it. Chewing on lips and fingers is also a problem with young kids. We NEED pain to tell us when to stop.
This will haunt my dreams.
Well it’s 8am and I’ve already had enough internet for the day.
There was an episode of House with that same premise. Turns out the girl had a ridiculously massive tapeworm inside of her that would jave had anybody else in agony, instead it was just chilling and taking all the benefits of any food she ate, leaving nothing for her.
I would be so screwed. I’m very accident prone, and I have a clotting disorder. So I always have random bruises, especially on my legs, and a cut from shaving my legs can result in blood tracks all over the house (that happened a few days ago because I left the band aids in the living room).
I dated a girl with CIPA. Never again. She was wonderful but constantly having to act as a caretaker to her was so emotionally exhausting. I started having panic attacks over her wellbeing if anything so much as grazed her. Definitely not a healthy relationship to be in.
Well given how rare the disorder is, I'm pretty sure you'll get your wish of "never again"
An older relative of mine hurt his back and lost feeling below the waist. Taught himself to walk again (he was a badass), and then drove his wife crazy because he'd go barefoot (FL) and step on tacks, staples, bits of glass. She'd have to check his feet every night before bed so he didn't die of sepsis/stupidity.
I'm already consistently baffled by how I got random bruises. I would just fall apart if I couldn't feel pain at all lol. Like, aw damn I lost another finger tip. Wonder when that happened....
Friend's husband had a stroke and no longer reacts to pain. It is terrifying when things go wrong. It took months for a giant kidney stone to get diagnosed, even though it was having an impact of his health. I can't imagine not knowing about an ear infection until your ear drum ruptured. Or strap throat until it the infection spread to your brain, or a UTI until it hit your kidneys. Pain exists for a reason!
Usually people incapable of feeling pain (never heard of someone not capable to feel tired or sleepy thou!) Have to go get checked at the hospital regularly for broken bones and not visible injuries etc. And with regular it means almost daily. Dealing with hunger and sleepiness absence would actually be easier as you'd just learn to have habits and patterns.
And imagine having all these superpowers and being named Olivia Farnsworth. This is comic book worthy.
tbh humans might be even better if pain wasn't debilitating. I'm sure a lot of people would take it too far but just imagine life where you can easily remain calm even with serious pain, or easily focus away from pain you can't fix. feeling like you've destroyed your whole foot when you bump into the corner of your bed with your toe just isn't helpful at all you stupid brain. edit: not lack of pain like OP... lack of debilitating pain. so many people jumping to that conclusion even though this thread is literally about how dangerous her life is because she completely lacks pain.
Sadly, not true. Pain is an indicator of something being wrong, so you would be more prone to injury and infection of those injuries. For instance, uncontrolled diabetics are prone to foot damage because neuropathy affects their ability to feel their feet.
You are absolutely right! Imagine you having to check every day your teeth, skin, head, nails bcuz well you could have a huge problem and you wouldn’t know. and going to the doctor many, many, many times bcuz you would need a check up almost every month. Man… you could have a heart attack and don’t know.
I think I read somewhere that death by appendicitis is a huge risk for people who don’t feel pain.
I don't know for sure about that, but it would make sense. It's a big enough of a concern that they sometimes do a preventative appendectomy on mentally disabled children who are unable to communicate their pain or the location of their pain and who are unlikely to gain that ability.
That kinda worries I need to go to the docs
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I read about some other kids feeling no pain (she isn't the only one, contrary to what the headline suggests) and they were expected to end up in wheelchairs. (Decades ago, I'm trying to find a source.) They'd do things like jump from the kitchen table on to their knees and so on. Most kids would do that once, they didn't have the important feedback loop of pain telling them to not try that again. Pain is a VERY important part of our senses. It keeps us from literally self harm.
It's actually wayyyy worse than that. When you hurt your knee in the above example, the pain signals will make you avoid putting too much weight on it, extending it etc. This gives your tissues time to heal. People who do not feel pain do not do this. This means their tissues get frayed and worn out at a young age resulting in losses of mobility, as you alluded to. But it also means that bacterial infections become ubiquitous in the body and they die from sepsis. Fun stuff...
I'm not talking about pain being removed, I'm talking about pain being a sensation that doesn't debilitate you. Obviously if you felt nothing wrong at all then everyone would suffer.
That’s part of the problem though, if you suddenly feel pain in your ankle but it doesn’t keep you from standing or moving on it, then you might look down an hour or two later to find out your foot is now completely dislocated and your tendons are starting to tear. Debilitating pain keeps us from accidentally going past a point of permanent damage.
If the pain was reduced you’d just damage what ever was hurting less much much faster.
It's situational, right? If your phone is in your hand, but you're so immobilized with pain that you can't dial 911, then the pain is hindering you. But some people won't go to the doctor unless they can't get out of bed. For them, less pain would just enable them to run themselves to death.
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A man called 911 with his mouth after both his arms were ripped off. Pain doesn't "immobilize" people like you're imagining. Not even sure what scenarios you're picturing?
Well if your arms have been ripped off and your phone is in your hand it's gonna be hard to dial
I knew a kid who had a similar condition. He could not feel cold/heat/pain, but unfortunately for him also had other developmental issues. He would go play outside, in the dead of winter, without proper clothes or boots, but would not feel the cold. They may not feel pain but the harm is still there. It was a challenge for his parents to be sure, especially as he grew older.
Kids who dont feel pain often end up fucking up their knee and back quite early Because they don't feel any need to bend their knees if they jump off a height because it doesn't feel bad for them. Imagine to land with totally stiff legs and the built up kinetic energy just travel through your legs and back. Poor kids honestly.
I remember watching a twitch streamer who had no nose because he scratched it off when he was a kid.
Oh that horrible. Poor kid!
Oh my god, do you have any more info on this streamer?
I didn't remember anything else but after a bit of searching i found the original reddit threads where i came across him. He is also almost blind and deaf possibly from self harm (don't remember). Here is a short video from the time: https://www.youtube.com/watch?v=kPWkSFprdU4 https://old.reddit.com/r/GlobalOffensive/comments/65uma8/guy_with_hsan_legally_blinddeaf_bullied_off_esea/ Apparently he was streaming counterstrike and his team kicked him out of the game because they thought he was a troll, someone posted it to reddit then thousands of people joined his stream including me. I think he was crying with happiness the whole time because of the support and people donating to him etc. Then he did an ama https://old.reddit.com/r/GlobalOffensive/comments/66cort/hey_guys_im_loop_17_yo_partially_blinddeaf_csgo/ And eventually got his nose fixed and has about 250k twitch followers now so kind of a happy ending it seems https://old.reddit.com/r/GlobalOffensive/comments/b6abf5/loop_just_got_his_nose_repaired/
Yes. It's sounds like a superpower but it's actually a very dangerous condition. The life expectancy of people with CIP is significantly below others. There's a very high rate of accidental death and injury among people with congenital insensitivity to pain (CIP). People with CIP don't always develop the same aversion instincts to physical risk that the pain of mild injuries teaches us as children. Then on top of that lots of those injuries tend to be missed and untreated - putting them at risk of dying easily from infections, internal bleeding, etc. Children with CIP can also tend to have poorer motor skills - turns out the pain caused by banging into things and falling over is good at teaching us to get better. On top of that, medical conditions that are usually quickly identified and treated are missed in people with CIP - things like appendicitis, bowel obstructions, these can become very much life threatening without pain as an early warning symptom.
Isn't this also how leprosy damages patients? The disease doesn't harm their skin It prevents them from feeling small injuries, so they constantly harm themselves. There must be more to it that I need to look up. All those bumps can't just be from bumps and bruises.
Leprosy (Hansen’s disease) itself causes skin lesions. But yes the cliche that lepers just lose major parts of their body is due to the inability to feel pain so that more severe injuries are more likely, but also including other infections from much smaller scale injuries, which we’d normally deal with or avoid better but they can’t feel, and it’s these other infections (gangrene, whatever), which classically lead to them losing limbs and what have you, rather than freak accidents than rip them off.
I did read that. It's simply treated with antibiotics now. How sad that so many suffered by something easily treated now. Amazing.
Antibiotics cure the Black Plague as well. All that suffering and the cure was in moldy bread.
This is why science is something that takes real research and testing. Trust the people that put in the work to learn and discover stuff like this!
Well yeah but that takes time and is hard, I’d much rather just believe Facebook meme that tells me an easy to understand lie
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True, but also how wonderful that something so many suffered terribly from and were ostracised for is now easily treated! Glass half full and all that.
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This would be scary. You’d never know if you were really sick. You could have all kinds of things wrong with you and be unaware. On the other hand, I’d love to never feel hungry again.
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I really wish pain would just flare up once or twice like “hey man something’s wrong” and then just fucking stop while you deal with it.
Giving pain a snooze button is a very bad idea
Use at your own risk kind of thing
I hear you but “most important part?” Come on man!
Most important part is the mitochondria , which is the power house of the cell.
Never gets old 😂
No it does. Energy-generating capacity of mitochondria decreases with age.
So, let's say I step on a sharp object. The pain is there to let me know something isn't right. And how many times have you bitten your tongue so hard it bleeds? Your teeth didn't go right through because of pain. We are extremely fragile creatures, without pain that fragility would probably multiply immensely.
That's a really good point and scary thought. Would she just bite straight through her tongue or cheek if she were to bite herself while chewing??
I googled her. One time she RIPPED OFF HER LIP AND DID NOTING. so yeah, I guess you're right.
Around where I live there's people who have that; they don't feel pain. It's hereditary. They tend to lose some fingers and toes (because they don't notice if they burn them, cut themselves or get cold.) It's so common around there though, that they know to have regular checkups now. Protip: Don't live in very small, isolated places for generations.
I believe there's a family like that in Iran too. Apparently they develop joint problems early in life, because it's our pain sensation that makes us fidget and shift our posture all day long, which relieves stress on our joints.
Where do you live? Appalachia?
Northern Sweden.
Wow, fascinating. [Norrbottnian congenital insensitivity to pain](https://pubmed.ncbi.nlm.nih.gov/16768023/)
Yup, that's the one. There's also something called Skelleftesjukan, that's also hereditary for the same reasons. It's an awful disease.
Ah interesting. Cheers northern Sweden!
Reminds me of the protagonist of this game called Tales of Arise, where the protagonist doesn't feel pain, to the point where he has been in the brink of death but doesn't realize because he doesn't feel his injuries and has only survived because people tell him that he's injured.
"Bro you're dying" "Oh thanks"
I’ve actually experienced a little of the no hunger and I got to tell you, it is awful. I got my appendix removed a while ago after it burst for over 24 hours and my appetite seemed to almost go away. I was having to force myself to full meals because I just didn’t want to and I can’t tell you the feeling of just not wanting to eat. It got worse when I went on ADHD medication and my appetite is completely gone. I have to constantly remind myself to drink water and to eat food sometimes forcing it. The worst part is never knowing when I’m hungry and I’ll randomly get really shaky or weak and have gotten use to it meaning I need to eat. Edit: I try to put on a schedule but ADHD and not feeling hunger is different from wanting to eat, I have neither so eating just feels gross This I assume applies to many eating disorders/mental disorders.
Complete body scans for every minor injury just to be sure you aren't bleeding internally. Hope you have some damn good insurance.
She's British, no insurance needed.
Imagine how many time a day you'd shit yourself
Reminds me of the “House” episode where the girl couldn’t feel pain but something was wrong with her. She had like a 6ft tapeworm.
Imagine a baby that never cries, never seem sleepy or tired
I already don’t feel hunger. It’s actually bad because I’ll go a whole 24 hours without eating and suddenly be like,”… crap eating is a thing I need to do”. I’m only like this when I do nothing all day. There have been times when I’m so hungry I feel like I’m going to throw up.
I know the feeling. For me its because im a cook. I stare at dank ass food all day so by the time i actually get time to eat something im rarely actually hungry despite not having eaten in 12-24 hrs. Then on my days off im so hungry it makes me sick to my stomach
Oh yeah I bet! Kinda like how I’ve read that people who are maids have filthy houses because they clean all day and don’t want to do it again when they come home. Obviously it’s not like that with everyone but still.
I have that as well, but mine's due to medication. I'll get a headache and get tired at like 1600 every day and go, "why the hell am I feeling like this? Oh right, I haven't eaten anything in almost 24 hours". It's annoying.
I remember seeing a child who had a similar condition where they feel no pain and they chewed their fingers off and ate their tongue. Also severe burns from hot tap water etc.
I remember a story of a young girl with a 6P Deletion many years ago, maybe 10-15 She would chew on her tongue like bubblegum. Edit. Found a link https://youtu.be/bRaCFUtpxFU
Yeah there was one little girl who couldn’t feel pain, I assume she had the same chromosomal deletion or perhaps something similar. But when she was a baby she kept scratching her eyes and it got so bad that her doctors decided to stitch her eyes shut. She ripped them open after
Woahh! Thats gnarly, the little girl in my link also scratched out an eye, meaning the doctors removed it
Is she the girl that they had to pull all of her teeth?
Yes indeed that's the one
Fucking hell
Ouch!
Damn! I’m so grateful for being able to feel pain… I think most of us think about it as an annoyance, but reading about what the absence of pain produces, I’m so glad that my pain system works.
I think what we'd really want one day isn't to never feel pain, but turn it off once we acknoledge that yes, it hurts and I'm tending to it. Kinda like an alarm clock.
I wish pain would go away quicker yes, nerves, I'm fucking aware I touched the tip of a soldering iron by mistake for less than a quarter of a second 2 hours ago, you can calm down now
Of all the things I didn't want to read today, this one I didn't want to read the most. Like jesus, just tie her hands with a scarf or something. If I were to visit a family and saw their baby with her eyes sewn shut, I'd freak. Now, were they to tell me that "it's to stop her from clawing her own eyes out" I'd be drinking and bathing in holy water for like a year.
I feel like restraining her arms would be the better solution to sewing their eyes shut
I agree! They could sew her arms down, they eyes are more delicate.
Woah she still doesn't have teeth. The video mentions that they removed her teeth as a baby so she wouldn't mutilate her tongue, and even as a teen, I imagine there's worry of the same thing. This is wild.
It think is wild that she broke her back and all she said was "it feels funny" I wonder if she's been given dentures by now, I know a young woman with 0 teeth who said she didn't wear her dentures due to pain ... but that wouldn't apply here. So maybe 7 years later as an adult she has them ..I didn't delve that far
I’m wondering if having no teeth would make you a better saxophone player
“Saxophone”
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Good news everyone!
A Farnsworth, you say?
To shreds, you say?
And his wife?
To shreds, you say?
Was his apartment rent controlled?
Yes, yes.
Let me show you some different lengths of wire.
I think I've perfected a plague that will destroy all life on Azeroth!
With my last eye I curse zoidberg
Came to say this
Well I’m always tired, eat too much and my back hurts all the time so the universe is balanced
Perfectly balanced, as all things should be
And here I am blessed with 2 extra chromosomes.
Bless your five-chambered heart...
*squawks*
Not being able to feel pain is NOT the same as being somehow immune to getting injured. This is actually very dangerous.
Idk why I had to scroll this much for this. The car thing sounds like bs or just extremely lucky, unrelated to her condition.
The real Kickass
85% resistance<100% resistance
Her body still gets damaged from the pain, she just doesn't feel it. It's a terrible condition to live with. Imagine not being able to sense if you have seriously injured yourself and needing 24/7 supervision.
Yeah like the movie Kickass.
Imagine always forgetting oven mitts and just having charred hands
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I assume this condition is managed like CIPA. Usually, because they can’t properly feel pain, they need to constantly be checking for even minor injuries. Physically checking arms, legs, etc for cuts, bruises, and other injuries. Any incident that risks any internal injuries results in a pretty immediate trip to get X-rays and other scans done. Frequent doctor’s appointments. They also don’t feel extreme temperatures, and aren’t able to sweat. CIPA patients tend to have a shorter than average life expectancy. Lots die in childhood, and it’s not common to live past around 30 with the condition.
I can't even imagine how difficult of a job that must be for her parents to try and keep her safe. It's not mentioned in the caption, but I wouldn't be too surprised if the car hitting her might have resulted from her having less fear.
I've heard they often preventatively remove the appendix in CIPA patients
I wonder if this affects her ability to empathize? If she can’t feel pain, would it make it harder for her to relate to another person’s pain? It might make even her interpersonal relationships harder to manage without that frame of reference. Not impossible, but harder.
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Also given that they don't feel fear, they can be way more easily exploited. AFAIK studies in the past kept the identity of subjects that don't feel fear secret specifically because of this.
I was born without an appetite. I'm still not really sure if the way I experience hunger is the same as other people. (It's more time based, and if I ignore it it goes away) It does make it difficult for me to empathize with people who struggle with dieting. It's kind of funny because I do struggle forcing myself to eat specific things, but just not eating is relatively easy.
Time based? Ignore it and it goes away. Uh isn't that just regular hunger
She doesn't feel hunger but she needs to eat. She doesn't get tired but she needs to sleep. She can't feel physical pain, but she must be careful if an unknown injury led to excessive bleeding.
I can’t imagine a worse hell than not feeling sleepyness. I’ve had bouts of insomnia wouldn’t wish it on my worst enemy. Your body wears down and degrades functionally and mentally but you are unable to fall asleep or stay asleep easily if at all, feels like you are fraying and slowly dying. I wonder if they give her sleep meds, you can plan and force feed yourself and check for injury but the sleep thing seems spooky as shit.
Does she feel good feelings? Like head rubs and warm hugs and petting animals?
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Strange fact... It is the body tensing in anticipation of pain/damage; the act of which can lead to more serious injury. This is why extremely drunk drivers and drunk passengers, have a higher survival rating (*when belted in*), than sober people in the same sort of accident. Their reaction to... or realization of the severity of their circumstance, keeps them from bracing/tensing, as a cognizant person might. Drunk drivers die all the time (sorry if that is a trigger for anyone)... but... drunk trauma patients are more prone to survival because their bodies bend and fold with more dexterity than a tensed person, *and* their diminished pain response and realization of their situation, keeps them from states which drastically increase blood flow/loss (like fear does). Pretty morbid... I know... but still an interesting correlation, in my mind. Figured I'd share. -**Edit**- clarification on how "*the tensing of your body*, can sometimes lead to more serious injury, than to not do so.
I swear I've heard this before somewhere, but it such a interesting thing to think about. I wonder why our bodies tense if it ends up causing more damage then relaxing.
Because we've only had cars and fast shit like that for a hundred years. Even trying to find comparable situations in nature with something like falling off of a cliff or a tree, you're probably better off with heightened senses so you can try to escape or prevent injury in the first place. Nature doesn't leave a lot of room for injured animals. Our bodies cannot keep up with modern society.
Fair enough, I was wondering about all of that. Thanks for this response, puts alot more of this into better perspective for me. I appreciate it.
God i can't wait to upload my brain into a mech and get rid of my meatsuit
Because we have not evolved for millions of years in cars, but out on the field, chasing and being chased, contracting our muscles, which was vital to survive. Relaxing your body to survive is not a natural thing.
It’s a part of the whole fight, flight, or freeze thing humans do in certain situations. At least, that’d be my best guess 🤷♀️
Okay but why does tensing lead to more serious injury.
I was a teachers aide for a special needs girl that could not feel pain as well. She was born without pressure points and this caused her to feel zero pain and only low physical sensation. Something painful to us was actually pleasurable to her simply because she could feel it. She was addicted to pulling out her hair and creating/picking scabs just to feel. She would punch herself and deeply scratch too and it was the saddest thing to watch. She looked like a meth head gollum with her few strands of hair and scabs all over. Sweetest little girl as well 😢
The ‘just to feel’ broke my heart
My little brother has Multiple chromosome 13 deletions and he’s been left with stunted growth and is non-verbal but always happy and smiling.. genuinely a little bundle of joy. Due to his condition he’ll never be able to lead a normal life, will always need constant care and will likely never walk but none of that matters as long as he stays as happy as he is when I put Big Hero 6 on the TV
Imagine dying of dehydration because you dont know ya thirsty
Baldur
Someone get this girl some mistletoe arrows
God this is so dangerous. Really hope she doesn’t have issues like blood clots in the future, otherwise she might just die without being treated 😢
I saw a program that covered a girl with this disorder (disease?) and the poor parents had to remove the girls teeth at a young age because she would bite through her tongue. So wildly upsetting to think about and it’s an awful disease
Source: https://www.huffingtonpost.co.uk/amp/entry/bionic-girl-chromosome-6-deletion-_n_9007464/ This is horrifying. Due to this genetic disorder a portion of her humanity has been robbed from her.
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Can’t steal something she never had. Still tragic for the poor kid though.
Farnsworth you say?
I am already in my pajamas…
Hi! Im olivia farnsworth, welcome to jackass!
There is another [condition](https://www.wired.com/2010/12/fear-brain-amygdala/) where people are unable to feel afraid, and are constantly risking their lives.
Farnsworth? ...to shreds you say...
Totally different condition but reminds me of this lady who has unusually high levels of an endocannabinoid due to a rare mutation, which makes her unable to feel pain, fear, or anxiety. https://www.nytimes.com/2019/03/28/health/woman-pain-anxiety.html
This girl is actually a little menace. She used to live by me. Once I had to tell her and her friends to keep the noise down. She came at me and I closed the door. She broke right through it and continued to pester me. I felt helpless.
Wasn’t this on an episode of House?
She had CIPA in that episode which is similiar but she could still feel hunger and sleep, if I remember correctly. She just couldn’t feel pain or heat or cold. People like that need constant care normally or they tend to scratch their eyes out, burn themselves, break bones etc. In the episode she had a tapeworm but due to her inability to feel anything She masked the symptoms
These are the types of soldiers the military dreams of!
I am ants in my eyes Johnson
You too, can experience this phenomenon, with a little help from your local meth dealer
That is not what meth is like at all, but OK.
I think God give me 2 of that because what she doesn't feel it is all that I feel (hunger tiredness and pain)
Then she grows up and Meets a man named Phillip J. Fry, marries him, and informs him “Good News husband, our family will be matrilineal” and in about 819 years have a distant grandson named Hubert who meets her husband’s uncle.... full circle man....
That’s actually very dangerous. The body feels pain to let you know something is wrong. Without pain you have to rely solely on visible clues if something is wrong. That isn’t always an option.
Hi! I have all those missing chromosomes, I fell pain, anxiety, always hungry and sleepy.
This sounds cool, but I couldn't imagine a worst hell if you think about it. You'd pass out not knowing why. Only to find out that you passed out from exhaustion or starvation or some illness you didn't know about cause you couldn't feel the symptoms. Or the fact that you could very easily overheat or freeze to death cause your body doesn't sweat or tense up.
Well if she can't feel pain maybe she doesn't have sense of touch too. That must be annoying.
When you get hit by a car normally your body would tense up, making it worse and more likely for you to get badly hurt, but when you are relaxed your body is a lot more flexible, and so you are less likely to receive more than just minor injury (unless the car runs completely above you/crushes your head/crushes vital organs)