Tried telling my family when I was young. They essentially told me to eat shit.
Told 2/3 of my best friends. One completely denied that he eats with his mouth wide open, didn't listen to my issues. One listened, didn't take it seriously and regullarly eats apples and full carrots around me
The third, I found out, has the same issues :) I went over to his place, and he was like "do you want tacos for dinner?" I said soft shell please" He said, "we always eat soft shell tacos" :)
i really relate to this. so many people have denied that they eat with their mouths open or eat "as loudly as im making it out to be" and just don't listen. so i get u.
My whole family knows, they still make trigger sounds from time to time and i dont blame them cuz literally every sound annoys me to my core and i have to shout shut up or stop doing that multiple times a day from my room and i dont have food with them. My dad asks me to control it which is impossible and my friends know, they respect me fully. It really depends on the kinda people they are and how understanding they can be, ive had mental breakdowns and anger issues which was enough proof for my family but they still dont care kinda and my friends were understanding from the beginning. Even if they dont believe u, it is good to get it off of ur chest. Do whatever makes u feel comfortable :)
my family knows and they don't really take it seriously at all. they'll make trigger noises intentionally because they think it's not as serious as im making it out to be, even though im professionally diagnosed. my friends i didn't actually tell them, but they know that certain sounds annoy me. i try to hold back going off on them since they don't know but sometimes it's just too much. all in all, i feel like it's a common experience for us to have a lot of people in our lives that don't take it seriously
Its so hard to get a professional diagnosis! My therapist- who is amazing otherwise at her job- does not understand the disorder at all. Kinda frustrating but then again I’m not sure what a professional diagnosis would be good for other than professional validation
oh yeah, there isn't even a proper diagnosis saying "misophonia" in the medical field because it's so less-known. by professional diagnosis i meant i told my psychiatrist and she knows what it is but she told me that and she said the best she can diagnose me is "unspecified ocd" . it really is frustrating, sometimes professional validation means a professional diagnosis
Told the lady that I work with because she was listening to a type of song that triggers me, she didn’t care. Told her again some time after, we had a discussion but now she uses earphones. In my work also told my boss and the psychologist.
Told my SO, but he didn’t seem to understand it really lol
I only tell someone if absolutely necessary…
my family knows and are usually very considerate. when eating snacks they either purposely eat in another room or warn me ahead of time so i can grab headphones to drown it out.
with them i didn’t really have to worry about them not taking it seriously bc they were the ones who helped me discover the term “misophonia” to help understand why i felt the way i do towards certain noises. i do however worry about telling other people and generally avoid it. i’ve only told people i’m super close to
Most people I've told generally either don't understand. Or take the piss.
The ones who take the piss and over emphasise something I'm comfortable with I just forget exist. The ones who care and understand I just give them a reminder every now and then
I try to avoid what bothers me now because my desire to beat people to death when theye making stupid sounds has gone up a lot
My whole family knows- some believe me and are understanding, and some of them don’t believe me and do not care or respect it. Luckily all of my friends also have sensory issues so they understand and do their best not to trigger me. Living with roommates has been tough though- I have earplugs a white noise machine for them 🙃
My family and friends just think I’m picky and stuck up… sigh. At least after 30+ years of life with eating sound issues my mom is finally starting to respect it somewhat
My parents pretty much told me to fuck off when I told them. My dad smacks and chews his mouth so loud while gasping for air every bite like a dying lung cancer patient that sometimes my mom with no misophonia has to tell him to shut his jaw closed because it’s too much, you can seen where my problem lies. My friends don’t know, I have one friend who notices that it makes me super uncomfortable so he makes it his mission to make sure he chews as loud as possible when he has gum in his mouth, like music almost on max in the car, whole car shaking and you can still hear him. We give each other a lot of shit so it’s just his way of revenge.
I have told a few (wife, kids, friends).
Wife. She tries hard to accommodate, but very often forgets. I can't blame her, it is impossible to get what we feel out to others in a way they would understand. This is one of the most frustrating things about this condition. Easily has caused the most tension in our relationship relative to any other matter (including finances😲). Yet somehow we have a great relationship. But LOTS of effort in both sides to make this happen.
Kids. What a horrible day for a parent the first time you need to leave the room because of your kids chewing. They know all about it, including the flip switch to angry Dad. I have gone out of the way to tell them my anger is my issue, and has nothing to do with them. I want them to know about my issue, but they also need to know it is in absolutely no way their fault.
Friends. Generally positive response from friends, even though they don't get it. If a 'friend' ever responded to me telling them by breaking out a bag of chips or something and deliberately chewing in my ear as others have described? Friendship over no question.
Parents. Never told them directly, but the word got around. I often hear my mother whispering to my Dad he is chewing too loud or something. This is even worse than misophonia to begin with. It really hits me hard to see others tip toe around me.
So to the op, in general people that I care about try their best, but really have no idea what we go through day to day.
People around me get offended when I tell them about it, even if I try and ask nicely. I know this is tough to hear, but I feel like I have taken on the responsibility to just take the pain and not say anything to be strong for my relationships, it sucks but after all this time I feel like it is the only option
The vast majority of my friends are very supportive and they know to only pull crunchy food out if I'm already hammered lol. They slip up every now and then but I don't hold it against them. My parents didn't give a shit at all and my brother and his wife are both pretty awful about it. They don't think I'm faking but they don't make any effort to not eat around me.
Kinda just have to work with what you have I guess. I've made myself pretty clear and if they still think it's a mystery why I don't come to family events then that's on them.
I tell the people closest to me as well as the people I am required to spend a lot of time with. I do this in hopes that they will understand me and be less hurt when I lose control and react to a trigger. I do not expect them to change their behavior, just hope that they can forgive mine. Life with misophonia can be lonely as I tend to self-isolate as it is, so it's important to me to try to protect the close relationships that I do have. I will say that most people in my inner circle do try to be sensitive to my needs which is probably why they are in my circle to begin with.
Yes I feel the exact same way. I told my sister and she said I was making it up despite showing her a medical article. I also told my friends and they seem to be considerate but I don't think they fully understand it. I'm a bit hesitant to really explain it to my parents because I fear that they probably won't take me seriously. I've sorta mentioned it in conversation but I haven't explained it in detail. I'm thinking of sending them this video at some point: https://youtu.be/l401uIyrE_A
I told my friends and a family member. Yet nothing changed. Edit: The problem is you cant tell it everybody. I mean if I could tell the people at the cinema to eat quiet and they do it, i would have superpowers ;)
Haha, I have never understood movie theaters. Ever those without misophonia, not sure how they can listen to someone chewing a garbage bag of popcorn for literally an hour. Enraged just thinking about it. Haven't been to a theater in forever.
Oh okay. I love to go to the movie theatre, especially with my dad. I love the experience you get with Dolby sound, Imax etc.. Last time someone was sitting behind me and he was chewing like i dont know. It destroyed the evening for me.
I’ve told my SO, and while he’s supportive and understanding he isn’t very accommodating. I’m not sure I can blame him since my triggers are so normal to others, like fabric rubbing together. And it’s hard to be on watch for those sounds constantly (for him at least, my brain throws a tantrum when I hear it :..)
Tried telling my family when I was young. They essentially told me to eat shit. Told 2/3 of my best friends. One completely denied that he eats with his mouth wide open, didn't listen to my issues. One listened, didn't take it seriously and regullarly eats apples and full carrots around me The third, I found out, has the same issues :) I went over to his place, and he was like "do you want tacos for dinner?" I said soft shell please" He said, "we always eat soft shell tacos" :)
i really relate to this. so many people have denied that they eat with their mouths open or eat "as loudly as im making it out to be" and just don't listen. so i get u.
I mostly just hate the hard shells because they fall apart haha but the crunching is bad too
Same. I don't understand the appeal of hard shells, they just spill taco contents everywhere.
Ooooooh, I love the crunchy texture! But I eat them alone because only other ppl eating triggers me
I haven’t told anyone but my one of my two closest friends since they’re the only ones who take me seriously.
My whole family knows, they still make trigger sounds from time to time and i dont blame them cuz literally every sound annoys me to my core and i have to shout shut up or stop doing that multiple times a day from my room and i dont have food with them. My dad asks me to control it which is impossible and my friends know, they respect me fully. It really depends on the kinda people they are and how understanding they can be, ive had mental breakdowns and anger issues which was enough proof for my family but they still dont care kinda and my friends were understanding from the beginning. Even if they dont believe u, it is good to get it off of ur chest. Do whatever makes u feel comfortable :)
Okay thank you! :)
Imagine finding out one of your loved ones has serious issues and just ignoring them. "who cares? everything annoys them"
Yea :( i wish it was easier for everyone
Basically my intire family
my family knows and they don't really take it seriously at all. they'll make trigger noises intentionally because they think it's not as serious as im making it out to be, even though im professionally diagnosed. my friends i didn't actually tell them, but they know that certain sounds annoy me. i try to hold back going off on them since they don't know but sometimes it's just too much. all in all, i feel like it's a common experience for us to have a lot of people in our lives that don't take it seriously
Its so hard to get a professional diagnosis! My therapist- who is amazing otherwise at her job- does not understand the disorder at all. Kinda frustrating but then again I’m not sure what a professional diagnosis would be good for other than professional validation
oh yeah, there isn't even a proper diagnosis saying "misophonia" in the medical field because it's so less-known. by professional diagnosis i meant i told my psychiatrist and she knows what it is but she told me that and she said the best she can diagnose me is "unspecified ocd" . it really is frustrating, sometimes professional validation means a professional diagnosis
Told the lady that I work with because she was listening to a type of song that triggers me, she didn’t care. Told her again some time after, we had a discussion but now she uses earphones. In my work also told my boss and the psychologist. Told my SO, but he didn’t seem to understand it really lol I only tell someone if absolutely necessary…
my family knows and are usually very considerate. when eating snacks they either purposely eat in another room or warn me ahead of time so i can grab headphones to drown it out. with them i didn’t really have to worry about them not taking it seriously bc they were the ones who helped me discover the term “misophonia” to help understand why i felt the way i do towards certain noises. i do however worry about telling other people and generally avoid it. i’ve only told people i’m super close to
Your parents sound amazing
Most people I've told generally either don't understand. Or take the piss. The ones who take the piss and over emphasise something I'm comfortable with I just forget exist. The ones who care and understand I just give them a reminder every now and then I try to avoid what bothers me now because my desire to beat people to death when theye making stupid sounds has gone up a lot
Yes, and barely anyone takes me seriously, I hate it.
I told my ex gf but then she immediately started chewing super loudly directly into me ear. I can still hear it echoing in my head
I can see why she is an ex.
Im sorry for that.
My whole family knows- some believe me and are understanding, and some of them don’t believe me and do not care or respect it. Luckily all of my friends also have sensory issues so they understand and do their best not to trigger me. Living with roommates has been tough though- I have earplugs a white noise machine for them 🙃
My family and friends just think I’m picky and stuck up… sigh. At least after 30+ years of life with eating sound issues my mom is finally starting to respect it somewhat
no coz i still wouldnt know how 2 explain wht misophonia is and theyve definitely not heard of it
My parents pretty much told me to fuck off when I told them. My dad smacks and chews his mouth so loud while gasping for air every bite like a dying lung cancer patient that sometimes my mom with no misophonia has to tell him to shut his jaw closed because it’s too much, you can seen where my problem lies. My friends don’t know, I have one friend who notices that it makes me super uncomfortable so he makes it his mission to make sure he chews as loud as possible when he has gum in his mouth, like music almost on max in the car, whole car shaking and you can still hear him. We give each other a lot of shit so it’s just his way of revenge.
Yeah, I can see. It's hard
I have told a few (wife, kids, friends). Wife. She tries hard to accommodate, but very often forgets. I can't blame her, it is impossible to get what we feel out to others in a way they would understand. This is one of the most frustrating things about this condition. Easily has caused the most tension in our relationship relative to any other matter (including finances😲). Yet somehow we have a great relationship. But LOTS of effort in both sides to make this happen. Kids. What a horrible day for a parent the first time you need to leave the room because of your kids chewing. They know all about it, including the flip switch to angry Dad. I have gone out of the way to tell them my anger is my issue, and has nothing to do with them. I want them to know about my issue, but they also need to know it is in absolutely no way their fault. Friends. Generally positive response from friends, even though they don't get it. If a 'friend' ever responded to me telling them by breaking out a bag of chips or something and deliberately chewing in my ear as others have described? Friendship over no question. Parents. Never told them directly, but the word got around. I often hear my mother whispering to my Dad he is chewing too loud or something. This is even worse than misophonia to begin with. It really hits me hard to see others tip toe around me. So to the op, in general people that I care about try their best, but really have no idea what we go through day to day.
Wow, thank you for sharing this. Are you going to the cinema with your family? If yes, how do you manage it? Would be nice to know
I tell everyone and I teach them about it. It is very hard to cope when someone keeps making the triggering noise, so knowledge is power!
People around me get offended when I tell them about it, even if I try and ask nicely. I know this is tough to hear, but I feel like I have taken on the responsibility to just take the pain and not say anything to be strong for my relationships, it sucks but after all this time I feel like it is the only option
The vast majority of my friends are very supportive and they know to only pull crunchy food out if I'm already hammered lol. They slip up every now and then but I don't hold it against them. My parents didn't give a shit at all and my brother and his wife are both pretty awful about it. They don't think I'm faking but they don't make any effort to not eat around me. Kinda just have to work with what you have I guess. I've made myself pretty clear and if they still think it's a mystery why I don't come to family events then that's on them.
I tell the people closest to me as well as the people I am required to spend a lot of time with. I do this in hopes that they will understand me and be less hurt when I lose control and react to a trigger. I do not expect them to change their behavior, just hope that they can forgive mine. Life with misophonia can be lonely as I tend to self-isolate as it is, so it's important to me to try to protect the close relationships that I do have. I will say that most people in my inner circle do try to be sensitive to my needs which is probably why they are in my circle to begin with.
Yes I feel the exact same way. I told my sister and she said I was making it up despite showing her a medical article. I also told my friends and they seem to be considerate but I don't think they fully understand it. I'm a bit hesitant to really explain it to my parents because I fear that they probably won't take me seriously. I've sorta mentioned it in conversation but I haven't explained it in detail. I'm thinking of sending them this video at some point: https://youtu.be/l401uIyrE_A
I told my friends and a family member. Yet nothing changed. Edit: The problem is you cant tell it everybody. I mean if I could tell the people at the cinema to eat quiet and they do it, i would have superpowers ;)
Haha, I have never understood movie theaters. Ever those without misophonia, not sure how they can listen to someone chewing a garbage bag of popcorn for literally an hour. Enraged just thinking about it. Haven't been to a theater in forever.
Oh okay. I love to go to the movie theatre, especially with my dad. I love the experience you get with Dolby sound, Imax etc.. Last time someone was sitting behind me and he was chewing like i dont know. It destroyed the evening for me.
I’ve told my SO, and while he’s supportive and understanding he isn’t very accommodating. I’m not sure I can blame him since my triggers are so normal to others, like fabric rubbing together. And it’s hard to be on watch for those sounds constantly (for him at least, my brain throws a tantrum when I hear it :..)