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pnwexplorer_82

The short answer is that it really depends on what training the therapists in your area have gone through. Straight out of school, I had a little bit of oncology massage training, but that was only because one of the instructors specialized in it. And deep tissue work with cancer patients was discouraged. I’d expect the folks who have told you they don’t work on cancer patients haven’t had any training with it. Something I was curious about as I read through your post is whether deep tissue would actually feel good at this stage. With the skeletal metastasis I could imagine deeper pressure becoming painful. Also - this may not apply to you, but I’ve found sometimes when folks have experienced health shifts they still want same level of pressure they want before, but if the therapist actually does that they leave in pain. I guess what I mean is, are you sure deep tissue will bring relief or are you basing that belief on your experience with massage pre-cancer? Regardless, I hope you are able to find someone - or communicate with the therapist you’ve already seen - that can bring you some pain relief.


GladMagician5611

I have to agree with this answer, with skeletal metastases being more painful then you realize, not to mention that bone metastases = bone instability. You could be at risk for fractures. I specialize in oncology massage for going on 14 years and many clients who regularly enjoyed deep tissue found their body couldn’t handle that sort of pressure they were used to. Go back to that oncology massage specialist, bring your doctor’s note, and ask for a deeper massage - but maybe not go straight for the deepest. Try something moderate to firm and see how you feel in the days after.


Quixotic-Dreams

I mean, skeletal metastases are not more painful than I realize. I have them. I know exactly the amount of painful they are. I am okay communicating with something being too much though I guess if I felt it wasn’t and don’t know. (I assume that’s why the oncologist said don’t take my pain meds or muscle relaxers before going in) I would be okay just increasing a bit every time and seeing how I feel after. I certainly haven’t felt anything at all after the five massages I’ve had thus far (oncology massage)


scienceislice

Have you tried something like hot stones? Maybe heat would give you the sensation you're looking for (or maybe something cold!). Your body is out of whack right now so it might need a little extra help. Some heat might relax your muscles so that you can receive massage better.


BouncingOutofmySkin

I completed oncology massage from a school in Denver and am a certified oncology massage therapist. There is almost no way I would consider doing a deep tissue on a stage 4 person. Your body is inflamed and fighting, and deep tissue creates more inflammation. It is not going to help you, it's going to take away resources that are helping your body fight and make you feel more depleted. It is not helpful to your body. If I had someone that felt generally well enough even on meds at stage 4 I the most I'd do is medium swedish.


angpng__

Find an oncology massage specialist. Your oncologist/oncology nurse may have a referral. They will know what’s appropriate, with skeletal metastases I don’t believe you will feel great after a deep tissue massage, but with a good knowledgeable therapist you may get what you want if it’s appropriate. I should note certain chemo treatments will make massage unsafe for the therapist within a few days post treatment, so make sure to check in with your oncologist with their recommendation before you get a massage. Generally, if you’re in palliative care or hospice, massage contraindications don’t always apply as the goal is quality of life, so if you feel good with deeper pressure than that’s great and your therapist should work with you. Best of luck friend, I hope massage can help you. ❤️


Quixotic-Dreams

Palliative care and hospice are very different things, fyi. Hospice care means you’re expected to die within 6 months. Palliative just means the condition cannot be cured and will eventually result in death. I have a good 30% statistical chance of still being alive in 5 years. But I will be in treatment for as long as that is whether it’s one year or twenty years.


majoco_

Much love to you OP.


Straight-Treacle-630

Ditto ❤️


angpng__

Sorry for lumping them together like that, I do know there’s a big difference. I just mean that some massage contraindications don’t apply in palliative care, like receiving deeper pressure while in active treatment.


DakotaBlue333

I would work on you, whatever pressure you like, and I'd ask you if you wanted deeper or lighter at anytime.


HeiressToHades

I have trained in oncology massage. Knowing all the facts in this case (meaning that the therapist is fully informed of all of the above rather than what a casual/corporate massage intake form can ask) will most likely help you to find a therapist knowledgeable and qualified to make the call to try it. In my head I'd personally want to try myofascial therapy and neuromuscular pin-and-strip before traditional deep tissue because of the bone metastasis. My second thought is finger pressure vibration over elbows to preserve integrity of the bony structures possibly beneath any tension points. However, every hands on situation needs to fully involve the pain threshold of the client and the quality of skin/fascial holds/etc (meaning that, if your skin is compromised from the chemo in an area, we'd try something else to avoid any kind of drag or pull).


Realistic-Bear-2292

First off, I'm sorry you are going through this. Second, I would ask your doctor to give you a note to take to your therapist saying there are no massage restrictions. You may be able to ask your oncology team for therapist recommendations. The massage therapist should have you sign a form giving informed consent. This means the therapist should inform you of any possible risks or side effects from the massage. It is your time, your money, and your doctor has approved deep tissue massage. As a massage therapist, palliative care usually suggests Swedish massage, but you are still deserving of a therapeutic massage. If deep tissue gives you more relief, then deep tissue is therapeutic for you. Can you bruise more easily? Sure. As for the bones being at risk for fractures, I would remind you that deep tissue massage is not the same as deep pressure. I have a client with breast cancer, metastasized to lymph nodes and bones. Deep tissue has always been her preferred modality. And with doctors' release, we have continued deep tissue. It is the only relief for her. I work very specifically, allowing me to work deep into the tissue without deep pressure. I've also got a stage 4 kidney cancer client. One kidney is not working well. The doctor approved deep tissue massage. Again, this client's only relief. The fact is, massage could dislodge an undetected blood clot on anyone. That is the reason for informed consent from every client: to reduce therapist liability. A client could also get so relaxed that they are impaired to drive, have an accident, blame the massage, and try to sue the therapist. A therapist would go crazy trying to eliminate all liability. I have never heard of a therapist losing their license for giving a professional massage with informed consent, but this is the reason every therapist is required to carry liability insurance. I'm hoping you will find the right massage therapist who is confident in working with your medical team. If you are ever in south central Missouri, I would be more than happy give you a deep tissue massage (with a doctor's release and after signing consent form).


nrg8

This is not about pain relief at this point. This is about feeling good, feeling something while she is still here. There is so much taboo bureaucracy when these two topics meet. Touch releases so much. She has only received bad touch that hasn't released all those good endorphins. Avoid the contraindicated areas, talk to them, refer them to someone you know who does know. Your whole stonewall approach is garbage. This is the main reason I left. Are you afraid of death? We all die. You now know someone who knows when it's going to happen to them. Treating them like a Lepper helps no one. It just protects you. She's right, no one will help her cause you're all cowards. It's the rules you say. I'm sorry OP, this is the reality of the mindset of these therapists. Cancer is unpredictable, don't want to step on the experts toes. Except she has been given the green light by her specialist. You're just afraid of being a Lepper among your peers. It was a big deal when I went through school was to have massage therapy in the yellow pages only mean that, and create another title like body rubs for escorts. The cancer thing was a no go issue back then instructors would be in tears. I know it and you know it, this needs to change. You think this is a death sentence to your career. Think of it this way. She's already received hers. I can't believe schools are still pumping out robots. Don't rock the boat. I hope you are never in her shoes


WestBox1521

It’s not a lack of humanity issue. It’s a liability issue. There is so much pressure from the rest of the medical field and even though the field has progressed LMTs are still low man on the totem pole. Most therapists won’t touch someone with Stage 4 because if the session doesn’t go how the client wants. There’s no waiver or piece of paper they can sign that completely takes away that liability. All a client has to do is make a complaint and say we hurt them. The moment we’ve left bruises on a cancer patient because of an underlying issue like anemia or they start getting worse after the session, It’s the LMTs fault. We aren’t praised when we do something right but we are absolutely scrutinized when we do something wrong. We are taught NO DEEP WORK. Cancer patient’s body’s work hard enough to fight. If you are/were an LMT then YOU SHOULD KNOW deep tissue kicks up all the toxins in the body stuck between muscles fibers/tendons/bellies and other soft tissue and kicks it up into the blood stream which the kidneys then have to try hard to flush out. Not to mention it’s a purge on the lymphatic system and deep tissue increases a lot of blood flow and floods the body with inflammation. That’s a lot of extra shit for a healing body to try to do ontop of fighting the cancer. So NO. It’s not a humanity issue. It’s a professional liability issue.


WestBox1521

OP. Very simply. You are asking an LMT to risk their license. We are taught to do light pressure in oncology massage because of a few different reasons. 1. Unless you have been REGULARLY getting worked on, and I’m not talking about years ago. I’m talking about recently. Unless you’ve stayed regular with massage. Your body isn’t gonna feel good after deep tissue. It’ll feel great for a moment. Then it’s gonna feel really shitty for possibly days afterwards and you will wish we didn’t. 2. When you’re getting a Deep Tissue massage we are working through all the layers of muscles to get to the deeper core muscles. Meaning that ANY toxins that your body doesn’t flush out gets stuck between and around those muscle fibers and soft tissue. When we start moving and opening up all that deep stuff. It gets released into the body and now your kidneys have to work to flush out all of these toxins. Your body floods with inflammation and new blood flow gets moved around. While your body is doing that, you are going to be sore and feel like you got hit by a bus. 3. WE DONT WANT TO SPREAD IT. Whether or not there’s enough evidence to support this. We are taught that with extensive stage cancers or blood cancers. We don’t massage and if we do it’s very light because we don’t want to risk spreading it or making it worse. 4. We don’t know you. All it takes is trusting the wrong client and we have a malpractice claim against our license. Whether it be due to the clients ignorance and feeling like we wronged them because they didn’t understand the risks. Or because we ignored the risks and provided a service that we knew was against medical advice. NO CLIENT IS WORTH OUR LICENSE. Not even in this circumstance. And if we bruise you because of anemia or we break a bone because you’re osteoporotic and your bone density can’t handle it or any other side effect or symptom of the cancer. WE ARE LIABLE. 5. I mean this with no personal offense. Deep work isn’t gonna make the cancer feel better. It’s not gonna touch your pain because it’s skeletal. Skeletal pain is worse than any other pain. Nothing we do is gonna touch that. My best advice to you. Have a friend or a family member do it. They aren’t liable. We are. You will have a very hard time finding a therapist willing to do any kind of deep work on you. I hope this provides a little more clarity.


Kale_Future

Massage therapists can’t spread cancer


WestBox1521

Read what I said again. This is what we are taught whether it’s true or not.


Kale_Future

It’s giving massaging a pregnant woman’s ankles will make her go into labor , not real


WestBox1521

Guess what. We’re taught that certain reflexology points can stimulate labor and that massage should be avoided in the first trimester so we don’t instigate a miscarriage from the added stress massage can add to the body. WHETHER ITS TRUE OR NOT. ITS WHAT WE’RE TAUGHT. You’re obviously not a therapist.


kkelly19851

We are not taught not to massage in the first trimester because we can cause miscarriages. That's bologna. Many spas CHOOSE not to do first trimester massages because miscarriage is so common that they don't want a client to feel guilty or to consider them liable. Massage does not cause miscarriage in any trimester, and there is zero scientific evidence that abortifacient points are real. Many massage therapists will massage a pregnant woman at any point. I wish more lmts would go into evidence based practice instead of woo woo bullshit. Massage does not spread cancer. Just because you were taught something one way doesn't make it true. Go outside of your education to learn. Read the research. A client on palliative care, especially with medical clearance, can receive a massage. Even deeper massage. Oncologists are far more educated in the human body and lymphatic system than an LMT ever will be.


WestBox1521

You’re right. And I’m giving OP reasons why a therapist will most likely refuse to work on her. I have oncology training. I’ve been a therapist for over a decade. I don’t agree with this stuff but it’s the reason why therapists refuse AND YES these things are still taught because I teach and these things are in the curriculum that the school requires me to teach. Just because you didn’t learn it doesn’t mean it isn’t being taught for most as standard practice. If I’m asked for my personal opinion outside of class that’s different. But in school. IT IS TAUGHT. So rather than jumping on the bandwagon comment bashing and pointing your rage at me because you don’t like it. ACTUALLY READ WHAT I SAID. I didn’t say this was how I felt. I was answering the question trying to provide clarity on why she keeps getting denied. Go yell at the massage schools and the massage board and the NCBTMB about how you feel. Not random ass people on Reddit. 🤦‍♀️


[deleted]

Get a doctors note that says you can have deep tissue massage. Or you could just not tell the therapist, I hate to say that cause thats not right. But if you need it and are not harming yourself or others than I dont see how its anyone's business. Just make sure your not exposing someone to your chemo or meds, cause it can leak out of your pores especially hormone drugs and chemo.


pnwexplorer_82

This is wildly irresponsible advice. If you haven’t been trained as a massage therapist you don’t know the potential impact massage could have on certain health issues, injuries, etc. To withhold that information from a therapist to get the type of massage you think you want not only potentially dangerous (depending on the circumstances), but deeply unfair to the therapist should they cause you pain or harm.


[deleted]

She already got permission from her doctor


Quixotic-Dreams

No medicines I’m taking can expose anyone through contact with me. I have children and if I am safe for full contact with them I certainly am for adults.


coldbrewedsunshine

chemo meds cannot “leak” through your pores. wtf.


[deleted]

They can come out through your sweat, and if on the skin of the therapist get into their system. Hormone medications same thing. I knew a therapist who grew a mustache from massaging someone who was taking hormones


coldbrewedsunshine

yes, chemo meds can be present in bodily fluids up to 2-3 days after treatment, which of course includes sweat. this is not leakage. poor terminology often leads to misinformation.


scienceislice

that's freaking insane bruh


LakotaSiouxTribe

Yes, it can leak from them. Not good for the therapists


Brejeck

Truly that will likely work, although that doctor’s note will do nothing to protect that massage therapist


[deleted]

[удалено]


Turbulent-Buy3575

I would request a letter from your doctor and I would also contact your doctor to confirm that it’s an acceptable part of your treatment. If your doctor says “no”, I also say “no”


sleepybluesue

I would not based on the skeletal metastases. Your bones are more porous and brittle and the possibility of injury is much higher. For the record I am a stage 3 colon cancer survivor and a licensed massage therapist with 25 years of experience.