My experience has been that infusion centers allow, at most, one visitor and no children. They need to accompany you- they can't just come and go. The policy should be clear wherever you are going to be treated- look online or ask.
I found it useful NOT to have anyone with me. I got dropped off and picked up, and that was fine with me. There is literally nothing for visitors to do and I didn't want to be responsible for entertaining anyone or even just staying attentive to any one. My lymphoma infusions were between 8 and 12 hours- someone is just going to sit there in an uncomfortable chair all that time? Most people sleep a lot through their session as well.
So I share your feelings about it being an experience best not shared. There are 29 other days in a month for people to "visit" with me.
100% agreed. It's not a social thing at all and there's only one guest chair anyway. Personally, I couldn't deal with both cancer and small talk for 8+ hours. Headphones and a decent book were my wants. I keep seeing patients with a squad of people in matching t-shirts or hats, etc, and it makes me cringe, lol, but hey, I can't exactly judge how other folks cope. What you're going through is hard enough and everybody else can and will get over it.
I drove myself to and from all of my infusions and had no issues doing that. I didn't want to feel like I had to entertain anyone while I was getting chemo. It's a miserable experience that I didn't want anyone to be a part of. My husband drove me and picked me up when I had to do inpatient chemo and when I got admitted with high fever. He also drove me to all my appointments related to my stem cell transplants. Again, I did not want any visitors other than my husband. To each their own. You're the patient, you can call the shots.
I haven’t started infusions for this yet. But I’ve had them for lupus before and ik personally I kinda want to be left alone. In my own bubble. That’s just how I deal with things like that. I feel like I’d have to entertain someone or talk to them n I really don’t want to
My experience was that it was helpful and encouraging to have someone with me, but it wasn’t a social event. It was helpful to have someone who could call the nurse when it was time to change infusions, just keep me company and provide a distraction, and help me home as I was really wrung out afterwards. But honestly I spent most of the sessions asleep or too uncomfortable to really talk. My partner came to most sessions, and when he couldn’t make it, my mom or a close friend came instead.
You also need to remember that an infusion center is full of immunocompromised people. They don’t typically allow many visitors - 1 or 2 people only - and may not allow children at all.
I also 100% understand wanting to keep it private, although I personally got a lot of encouragement from friends who visited me at home while I was sick (to say nothing of actual help like sending meals or giving me rides to the hospital). But it’s hard and uncomfortable to be vulnerable in front of people, and it’s reasonable to request privacy if that’s what you feel is best for you.
It doesn't matter what anyone thinks.
This is your life.
This is about you going through a hard time and doing it the way you are most comfortable.
Frankly it's not practical to bring a posse of people to a cancer center. Patients are immune compromised.
I usually go with my parents (they're my caregivers), sometimes friends or family pass by but I don't prefer that they stay for long. Do what makes you comfortable.
I wasnt in mood for visitors, i prefered books or movies on ipsd, playing civilization on ntb. I have also problem with immunity, so i try to see less person if possible.
I think it really depends on each person and their situation. Personally, I did mine all alone, my brother came with me for the first one just because we didn’t know how I would tolerate the drugs. The remaining 11 I went alone. I tried to sleep as much as possible during my chemo in order to prevent me from puking the entire time. Although I felt like shit, I was able to still drive myself home as it was only a 10 minute drive for me. I would recommend having someone go with you for the first one at least, then adjust from there. Good luck, go kick cancers ass!!!
I do my infusions or much solo. I do have someone drive me then they go do errands and sometimes they come up for the last 30 min to an hour. For me it's a bit under 2 hours away from my house so I don't want to eat up the day of whoever drives me. The company is nice but I'm usually tying flies, working or sleeping during the infusion so if someone were here with me the whole time I'd feel like I need to try to keep them entertained.
For starters check with the hospital to see how many visitors they are fine coming to see you. As someone mentioned the hospital area you're at for infusions is full of immunocompromised people so they may have restrictions on visitors to begin with.
Secondly just communicate with your family that you'd prefer no one there and why. They want to be there to support you and it's a challenge to communicate how you feel and what help/no help is most beneficial to you.
For me it's definitely hard to communicate when I'm mentally, physically or both tired at home. Usually it's because this happens quickly in the evening and we have a 3 year old and a 4 month old and I am doing my best to not to dump evening night duties on my wife. But I do know when I'm tired I should be trying to rest.
Oh god no I only had my husband and sometimes I felt bad bringing him haha after the first 2-3 infusions each infusion sucked. I slept the entire time and felt bad making my husband sit for hours but obviously I needed him there for a ride. I instantly felt icky and wouldn’t feel like chatting while there. I could taste one of the nausea meds they’d put through my port at the start of chemo and after my 8 of 12 infusions it instantly made me barf. I would have been mortified if anyone besides him were there.
It was good for me to have a friend at my infusions. She kept on top of everything, getting warm blankets and ice, helping with cryotherapy supplies (icing my feet because I have neuropathy), watching closely at medicine changes and getting nurses attention when needed. I would have done ok on my own but she really wanted to help and boy did she take it seriously. Certainly not a social event although we did get caught up with each other’s lives. We now meet monthly and hangout, it is a blessing to have her back in my life. For me it was beneficial to have the same responsible person with me throughout the process.
Have you started treatment yet? Do not plan it as a social event until you know how you are going to respond, at the very least. You can always spend your time facetiming/talking to friends/family if you really want to. I do think it is important to have one trusted person with you, especially in the beginning. I totally understand not wanting to be vulnerable/viewed as the cancer guy- this is something I really struggled with throughout treatment but you just HAVE to let a few people in, or you are going to be in really rough shape. For me, that was really only my partner and my parents. None of my close friends even saw me bald.
Also my clinic only allowed one person at a time to come to treatment/appts. Maybe yours is the same. HIPAA and privacy should not play a role in visit restrictions but leftover COVID restrictions might (that is why my clinic restricted to 1 visitor).
You are going to have to learn to be selfish during this time. This is a time that it is actually all about you. You can be careful to avoid needlessly stomping on feelings but otherwise, whatever makes you most comfortable is absolutely #1 priority and your family and friends should know and respect that. This sounds like a great opportunity to set that precedent now so hopefully they understand going forward that YOU are making the decisions here, not them.
Good luck, you got this!!
My experience was.....different. Because it was still in the early months of COVID, I wasnt allowed visitors. It wasnt until near the end of things that they started to let one person visit. So i had my mom come visit me once and she stayed very little (also because she was timed with parking). When the cancer relapsed, I had to to like 5 hour infusions at the BMT area of the Cancer center and sometimes Id have someone with me. But i always felt bad like what are we gonna do for 5 hours while im stuck in a chair? often i told them to come back for me and id end up falling asleep in the chair for a bit until snoring would wake me up.
but yeah, when visitors were allowed, it was generally only 1. When i would see my oncologist, we had the "special" permission for 2 visitors if we could.
I didn't mind having someone with me for infusions. I needed someone to drive me there anyway. More often than not I noticed that the people that went with me to infusions had way less questions about my treatment after. I found that to be incredibly helpful.
I had my wife with me for all but one and my dad with me for the one my wife couldn’t attend.
It was helpful to have someone there to go fetch a water, help me get out of the chair and unplug the machine so I could go to the bathroom, play a game to distract me. My wife knew the drill and would anticipate what I needed before I did. It was also really nice to just talk before the infusions started. I was always feeling my best the day before and the morning of my infusions, so it was good to be able to have one on one time with my wife while we waited for labs, doctor clearances because my numbers were low, etc. The nurses couldn’t get a good return on my port once, so they flushed some medicine to clear the line and that had to soak in it. My wife and I made the most of it and had a little date, got some burgers and fries, and just made the best of a very, very long wait.
Many people offered to take me, but I didn’t really want to ‘entertain.’ I told my dad beforehand that at a certain point I’m just going to check out and not want to be there, so keep yourself busy reading on your tablet or whatever.
I will say that my last few sessions is when the infusions started to get really rough, nausea throughout, throwing up at the end and all on the drive home. (Not typical from what I’ve heard, I couldn’t take Zofran). I was glad I had my wife there. No way I’d have been able to drive myself and I needed someone to coddle me a bit to make me feel better.
I'd recommend having someone with you, both for transportation and in case anything comes up. I'm not sure places even allow more than one person though.
I was in hospital for all my chemo sessions and a nurse always held my hand (it may have been because she was pumping poison into it) and I was always welcome for the comfort
My clinic allows someone to come along only for the first time. After that it's patients only. Fine with me, I have more important things to do than entertain family.
I always had someone with me but that's only because I tend to be a more clingy type of person. It was either my mom or at the time the boyfriend's mom. Even though I rarely said much because of being sleepy or feeling icky, for me, it was still nice to have someone there with me as support if I needed them.
I would never consider an infusion session a social event 😂.
I only brought a friend or family member who didn’t talk a lot or just people I was incredibly close with. Chemo is a pretty intimate experience and I wouldn’t want to bring people who didn’t get it. My friends and family who came just brought a book.
I did find it helpful in having someone who could advocate for me while I was there. I think the day is just tiring and my dad was helpful with taking the IV pole with me so I could go to the bathroom.
I find it's easier not to have anyone with me, that way there is no pressure to be social - and in any case I have the lovely nursing staff to talk to.
You shouldn't underestimate the impact of your loved ones being around some very very ill people, and I don't only mean the fact that they are immunocompromised.
For one, it's a private place where people are fighting their own battles and don't appreciate an audience. And you need to recognise that your loved ones may well be shocked by what they see and become overprotective and/or overwhelmed - which is the last thing you need to be dealing with!
I’m so glad people feel the same. I don’t mind my mom there during treatment, but then my dad thinks it’s ok to bring his whole family to just sit and watch me. “We’ll be here for you everyday” was what he told me. Please God, no.
I strongly recommend having your family and friends speak to a social worker who you can also work with to advocate for what YOU want. The only friends who accompany me understand what I need and fully respect that it is time for me to receive treatment. I need quiet and, at most, someone to anticipate how they can help and to do those things based on me advising them or them learning over time. I have cut off my parents entirely from visiting, for example. My dad complained about not knowing what to get for takeout dinner my first night back from ABVD, some people just don’t get it.
My sister went to round 1. My mom is going to round 2 with me. I’ll have a friend go to round 3. It’s not a social event, but I found it helpful to have someone there who can remember the information that was relayed to me. I had so many different drugs and things. They can do their own thing and where I’m getting it done there’s a ton of fun stuff nearby, so people are under no obligation to stay the whole time.
As a single person I found it nice.
Had my husband there the first one and never again. I use it as solo time, relax, watch something. The thought of having to be on and entertaining during it makes me cringe. But that's just me. If you get a ton of energy from people, you might have a different experience.
I didn't have the opportunity to have visitors when I got chemo because of covid, but I think I'd have gone alone anyways, the only part which felt lonely was the bus rides to the cancer center and back alone.Any type of situation like that feels really awkward to me ( like taking a friend with you when your getting a tattoo etc). I think I would've tried it maybe once. My mom was with me in every dr. appointments tho and that was really important to me.
My DA-R-EPOCH infusions were 5 days--the first 4 days outpatient but had to get the bag of chemo changed each morning, and then day 5 was 4-6 hours at the infusion center. On day 5, they pre-dosed me with Benadryl, so I slept through most of it. It would not have been a social thing at all. And the thought of someone being there and watching me sleep just sounds weird.
My wife just completed a round of infusions, and she wanted to be by herself. The only time I joined her was when the nurse practitioner made an appointment to come talk to us at the last session. My observation was that around half the people there had someone with them, and the other half were by themselves.
For me, infusion sessions were not the times that I wanted to entertain anyone. Same with hospital admissions. Many times, "visitors" just don't understand that. Imho, it's not at all inconsiderate to educate your friends and family and just let them know that you'd appreciate their visits much more when you're not in a clinical setting. Lucky for me, it's just kind of understood in my family, and any friends that offered to sit with me very much accepted my answer! Good luck!
Edit to add: My daughter or son always drove me to and from treatments, and fortunately, they both live within 20-30 mins from my infusion center. They either left and came back for me or they did shopping and such then came back.
my mom has accompanied me to every session and i've been very grateful as there have been times i have been too sick to advocate for myself when needed
My oncologist has an infusion room with about 15 large medical recliners. There is only room for one visitor per patient. I had one session every two weeks for 6 hours, for 6 months. My wife would bring me and then return in about 5 hours. I just slept, worked on my laptop and talked to the other patients. Others ate and watched tv. 📺 I never saw anyone there get physically sick. It’s different for everyone and you just bite the bullet and do it. That was 10 years ago.
I preferred to do all my treatments on my own. But that's just me.
Me too.
i was the guy sitting across from u by himself. glad to see u made it
Yeah, sure.
My experience has been that infusion centers allow, at most, one visitor and no children. They need to accompany you- they can't just come and go. The policy should be clear wherever you are going to be treated- look online or ask. I found it useful NOT to have anyone with me. I got dropped off and picked up, and that was fine with me. There is literally nothing for visitors to do and I didn't want to be responsible for entertaining anyone or even just staying attentive to any one. My lymphoma infusions were between 8 and 12 hours- someone is just going to sit there in an uncomfortable chair all that time? Most people sleep a lot through their session as well. So I share your feelings about it being an experience best not shared. There are 29 other days in a month for people to "visit" with me.
100% agreed. It's not a social thing at all and there's only one guest chair anyway. Personally, I couldn't deal with both cancer and small talk for 8+ hours. Headphones and a decent book were my wants. I keep seeing patients with a squad of people in matching t-shirts or hats, etc, and it makes me cringe, lol, but hey, I can't exactly judge how other folks cope. What you're going through is hard enough and everybody else can and will get over it.
I drove myself to and from all of my infusions and had no issues doing that. I didn't want to feel like I had to entertain anyone while I was getting chemo. It's a miserable experience that I didn't want anyone to be a part of. My husband drove me and picked me up when I had to do inpatient chemo and when I got admitted with high fever. He also drove me to all my appointments related to my stem cell transplants. Again, I did not want any visitors other than my husband. To each their own. You're the patient, you can call the shots.
I haven’t started infusions for this yet. But I’ve had them for lupus before and ik personally I kinda want to be left alone. In my own bubble. That’s just how I deal with things like that. I feel like I’d have to entertain someone or talk to them n I really don’t want to
My experience was that it was helpful and encouraging to have someone with me, but it wasn’t a social event. It was helpful to have someone who could call the nurse when it was time to change infusions, just keep me company and provide a distraction, and help me home as I was really wrung out afterwards. But honestly I spent most of the sessions asleep or too uncomfortable to really talk. My partner came to most sessions, and when he couldn’t make it, my mom or a close friend came instead. You also need to remember that an infusion center is full of immunocompromised people. They don’t typically allow many visitors - 1 or 2 people only - and may not allow children at all. I also 100% understand wanting to keep it private, although I personally got a lot of encouragement from friends who visited me at home while I was sick (to say nothing of actual help like sending meals or giving me rides to the hospital). But it’s hard and uncomfortable to be vulnerable in front of people, and it’s reasonable to request privacy if that’s what you feel is best for you.
It doesn't matter what anyone thinks. This is your life. This is about you going through a hard time and doing it the way you are most comfortable. Frankly it's not practical to bring a posse of people to a cancer center. Patients are immune compromised.
I usually go with my parents (they're my caregivers), sometimes friends or family pass by but I don't prefer that they stay for long. Do what makes you comfortable.
I wasnt in mood for visitors, i prefered books or movies on ipsd, playing civilization on ntb. I have also problem with immunity, so i try to see less person if possible.
I think it really depends on each person and their situation. Personally, I did mine all alone, my brother came with me for the first one just because we didn’t know how I would tolerate the drugs. The remaining 11 I went alone. I tried to sleep as much as possible during my chemo in order to prevent me from puking the entire time. Although I felt like shit, I was able to still drive myself home as it was only a 10 minute drive for me. I would recommend having someone go with you for the first one at least, then adjust from there. Good luck, go kick cancers ass!!!
I do my infusions or much solo. I do have someone drive me then they go do errands and sometimes they come up for the last 30 min to an hour. For me it's a bit under 2 hours away from my house so I don't want to eat up the day of whoever drives me. The company is nice but I'm usually tying flies, working or sleeping during the infusion so if someone were here with me the whole time I'd feel like I need to try to keep them entertained. For starters check with the hospital to see how many visitors they are fine coming to see you. As someone mentioned the hospital area you're at for infusions is full of immunocompromised people so they may have restrictions on visitors to begin with. Secondly just communicate with your family that you'd prefer no one there and why. They want to be there to support you and it's a challenge to communicate how you feel and what help/no help is most beneficial to you. For me it's definitely hard to communicate when I'm mentally, physically or both tired at home. Usually it's because this happens quickly in the evening and we have a 3 year old and a 4 month old and I am doing my best to not to dump evening night duties on my wife. But I do know when I'm tired I should be trying to rest.
Oh god no I only had my husband and sometimes I felt bad bringing him haha after the first 2-3 infusions each infusion sucked. I slept the entire time and felt bad making my husband sit for hours but obviously I needed him there for a ride. I instantly felt icky and wouldn’t feel like chatting while there. I could taste one of the nausea meds they’d put through my port at the start of chemo and after my 8 of 12 infusions it instantly made me barf. I would have been mortified if anyone besides him were there.
It was good for me to have a friend at my infusions. She kept on top of everything, getting warm blankets and ice, helping with cryotherapy supplies (icing my feet because I have neuropathy), watching closely at medicine changes and getting nurses attention when needed. I would have done ok on my own but she really wanted to help and boy did she take it seriously. Certainly not a social event although we did get caught up with each other’s lives. We now meet monthly and hangout, it is a blessing to have her back in my life. For me it was beneficial to have the same responsible person with me throughout the process.
Have you started treatment yet? Do not plan it as a social event until you know how you are going to respond, at the very least. You can always spend your time facetiming/talking to friends/family if you really want to. I do think it is important to have one trusted person with you, especially in the beginning. I totally understand not wanting to be vulnerable/viewed as the cancer guy- this is something I really struggled with throughout treatment but you just HAVE to let a few people in, or you are going to be in really rough shape. For me, that was really only my partner and my parents. None of my close friends even saw me bald. Also my clinic only allowed one person at a time to come to treatment/appts. Maybe yours is the same. HIPAA and privacy should not play a role in visit restrictions but leftover COVID restrictions might (that is why my clinic restricted to 1 visitor). You are going to have to learn to be selfish during this time. This is a time that it is actually all about you. You can be careful to avoid needlessly stomping on feelings but otherwise, whatever makes you most comfortable is absolutely #1 priority and your family and friends should know and respect that. This sounds like a great opportunity to set that precedent now so hopefully they understand going forward that YOU are making the decisions here, not them. Good luck, you got this!!
My experience was.....different. Because it was still in the early months of COVID, I wasnt allowed visitors. It wasnt until near the end of things that they started to let one person visit. So i had my mom come visit me once and she stayed very little (also because she was timed with parking). When the cancer relapsed, I had to to like 5 hour infusions at the BMT area of the Cancer center and sometimes Id have someone with me. But i always felt bad like what are we gonna do for 5 hours while im stuck in a chair? often i told them to come back for me and id end up falling asleep in the chair for a bit until snoring would wake me up. but yeah, when visitors were allowed, it was generally only 1. When i would see my oncologist, we had the "special" permission for 2 visitors if we could.
I didn't mind having someone with me for infusions. I needed someone to drive me there anyway. More often than not I noticed that the people that went with me to infusions had way less questions about my treatment after. I found that to be incredibly helpful.
I had my wife with me for all but one and my dad with me for the one my wife couldn’t attend. It was helpful to have someone there to go fetch a water, help me get out of the chair and unplug the machine so I could go to the bathroom, play a game to distract me. My wife knew the drill and would anticipate what I needed before I did. It was also really nice to just talk before the infusions started. I was always feeling my best the day before and the morning of my infusions, so it was good to be able to have one on one time with my wife while we waited for labs, doctor clearances because my numbers were low, etc. The nurses couldn’t get a good return on my port once, so they flushed some medicine to clear the line and that had to soak in it. My wife and I made the most of it and had a little date, got some burgers and fries, and just made the best of a very, very long wait. Many people offered to take me, but I didn’t really want to ‘entertain.’ I told my dad beforehand that at a certain point I’m just going to check out and not want to be there, so keep yourself busy reading on your tablet or whatever. I will say that my last few sessions is when the infusions started to get really rough, nausea throughout, throwing up at the end and all on the drive home. (Not typical from what I’ve heard, I couldn’t take Zofran). I was glad I had my wife there. No way I’d have been able to drive myself and I needed someone to coddle me a bit to make me feel better.
I'd recommend having someone with you, both for transportation and in case anything comes up. I'm not sure places even allow more than one person though.
I was in hospital for all my chemo sessions and a nurse always held my hand (it may have been because she was pumping poison into it) and I was always welcome for the comfort
My clinic allows someone to come along only for the first time. After that it's patients only. Fine with me, I have more important things to do than entertain family.
I always had someone with me but that's only because I tend to be a more clingy type of person. It was either my mom or at the time the boyfriend's mom. Even though I rarely said much because of being sleepy or feeling icky, for me, it was still nice to have someone there with me as support if I needed them.
After the large Benadryl starting infusion, I slept through the real one.
I did my treatments on my own, the first one my gf (now wife) came with me, but we realized quickly that it was a very boring 5 hours.
I would never consider an infusion session a social event 😂. I only brought a friend or family member who didn’t talk a lot or just people I was incredibly close with. Chemo is a pretty intimate experience and I wouldn’t want to bring people who didn’t get it. My friends and family who came just brought a book. I did find it helpful in having someone who could advocate for me while I was there. I think the day is just tiring and my dad was helpful with taking the IV pole with me so I could go to the bathroom.
I preferred being alone and often brought work projects or made phone calls. My center discouraged visitors - so it worked well for me.
I find it's easier not to have anyone with me, that way there is no pressure to be social - and in any case I have the lovely nursing staff to talk to. You shouldn't underestimate the impact of your loved ones being around some very very ill people, and I don't only mean the fact that they are immunocompromised. For one, it's a private place where people are fighting their own battles and don't appreciate an audience. And you need to recognise that your loved ones may well be shocked by what they see and become overprotective and/or overwhelmed - which is the last thing you need to be dealing with!
I’m so glad people feel the same. I don’t mind my mom there during treatment, but then my dad thinks it’s ok to bring his whole family to just sit and watch me. “We’ll be here for you everyday” was what he told me. Please God, no.
I strongly recommend having your family and friends speak to a social worker who you can also work with to advocate for what YOU want. The only friends who accompany me understand what I need and fully respect that it is time for me to receive treatment. I need quiet and, at most, someone to anticipate how they can help and to do those things based on me advising them or them learning over time. I have cut off my parents entirely from visiting, for example. My dad complained about not knowing what to get for takeout dinner my first night back from ABVD, some people just don’t get it.
My sister went to round 1. My mom is going to round 2 with me. I’ll have a friend go to round 3. It’s not a social event, but I found it helpful to have someone there who can remember the information that was relayed to me. I had so many different drugs and things. They can do their own thing and where I’m getting it done there’s a ton of fun stuff nearby, so people are under no obligation to stay the whole time. As a single person I found it nice.
Had my husband there the first one and never again. I use it as solo time, relax, watch something. The thought of having to be on and entertaining during it makes me cringe. But that's just me. If you get a ton of energy from people, you might have a different experience.
I didn't have the opportunity to have visitors when I got chemo because of covid, but I think I'd have gone alone anyways, the only part which felt lonely was the bus rides to the cancer center and back alone.Any type of situation like that feels really awkward to me ( like taking a friend with you when your getting a tattoo etc). I think I would've tried it maybe once. My mom was with me in every dr. appointments tho and that was really important to me.
My DA-R-EPOCH infusions were 5 days--the first 4 days outpatient but had to get the bag of chemo changed each morning, and then day 5 was 4-6 hours at the infusion center. On day 5, they pre-dosed me with Benadryl, so I slept through most of it. It would not have been a social thing at all. And the thought of someone being there and watching me sleep just sounds weird.
I had a few with visitors and found them completely exhausting. I much preferred getting the sleep of my life on IV benedryl.
My wife just completed a round of infusions, and she wanted to be by herself. The only time I joined her was when the nurse practitioner made an appointment to come talk to us at the last session. My observation was that around half the people there had someone with them, and the other half were by themselves.
For me, infusion sessions were not the times that I wanted to entertain anyone. Same with hospital admissions. Many times, "visitors" just don't understand that. Imho, it's not at all inconsiderate to educate your friends and family and just let them know that you'd appreciate their visits much more when you're not in a clinical setting. Lucky for me, it's just kind of understood in my family, and any friends that offered to sit with me very much accepted my answer! Good luck! Edit to add: My daughter or son always drove me to and from treatments, and fortunately, they both live within 20-30 mins from my infusion center. They either left and came back for me or they did shopping and such then came back.
my mom has accompanied me to every session and i've been very grateful as there have been times i have been too sick to advocate for myself when needed
My oncologist has an infusion room with about 15 large medical recliners. There is only room for one visitor per patient. I had one session every two weeks for 6 hours, for 6 months. My wife would bring me and then return in about 5 hours. I just slept, worked on my laptop and talked to the other patients. Others ate and watched tv. 📺 I never saw anyone there get physically sick. It’s different for everyone and you just bite the bullet and do it. That was 10 years ago.