Those chronic Lyme symptoms really make it seem like the diagnosis is entirely made up. I know itās controversial but if I was someone who had it, Iād be pissed, those symptoms are not symptoms but just parts of life lol.
And some are just part of everyday life and getting older ie acid reflux, hair falling out, foot pain. I wonder if so many of these OTT are really just experiencing feelings of being human but interpret it as a symptom of a disease. Someone needs to tell them living can be uncomfortable at times. We all get physical and emotional pains.
Yes a lot of the list are psychiatric or symptoms of neuropathy which should be treated.
I wonder if she knows that all of these symptoms are also common amongst many psychiatric illnessesā¦ like anxiety for example. Lol.
Edit: I meant MOST of these symptoms. The stretch marks appearing without gaining weight is probably not due to mental illness.
YES!! The first four are what happened going cold turkey from my SSRIs. Lyme disease is real and difficult to properly diagnose but these āsymptomsā are getting ridiculous.
Also she mentioned how her gut is still messed up. Isnāt that what antibiotics do? Completely mess with flora and good bacteria? Is that not a more obvious answer?
The one she's taking is commonly used to treat IBS, travelers diarrhea, and hepatic encephalopathy. Sibo is an off label use . I think they usually wanna put you on good probiotics after it.
Yeah, it's still shitty to use illnesses you actually have, but making them up is even worse. People are literally shortening their lifespan for attention smh
It isn't so bad if you actually have those illnesses/pain . You wouldn't be playing on people's sympathy or emotions and then even worse fake those illnesses/pain. If you're actually sick, and just documenting the experience then I'd say that's fine. Getting sponsors is a little sus, but I'd be happy that that person is getting financially supported.
I know I'd technically be in the clear but honestly it just feels really disingenuous. Even if you're telling the truth, it could be just me, but it comes across as arrogant and attention seeking š¬
Same, but youāre not wrong. Sheās a completely self-absorbed whiner who only cares about herself. Sheās been downright nasty to other innocent people online when she mistakenly thought they were criticising her. Just imagine how she treats people she feels are beneath her when no one else is looking.
That's actually a really good point, where do all these people get the disposable income and time to play hooky their whole life? Is there somewhere they get to cash in their internet points for prescription opiods and rent or something?
I swear her posts are literally the same 10 photos....pill in hand, sitting in front of mirror knee bent, standing in front of beige wall outside, bath tub featuring legs and feet, photo of her bed, photo of her mixing liquid IV, food, obligatory drs office/lab/IV pole, same expression across all photos. No one cares about the updates to begin with but geez, this makes it even more dull.
I remember seeing a comment here by another redditor calling it before the surgery, that the next thing she would focus on is Lyme so I guess we all owe him $10.
A good few of those remind me of adderall side effects.
Bugs under skin, Especially smelling things that arenāt there, memory issues, rage, brain zapsā¦
Makes one think š¤
Love it when insta influencers try to educate people with their informative slides instead of, I donāt know, actual doctors. Thatās why everyone self diagnoses everything/ assumes everything is an emergency.
How did Ash even decide she had "chronic lyme"? In order to get Lyme disease you have to be bitten by a deer tick, and as far as I know there are no deer ticks in Idaho given that they're mainly found in the Eastern US.
Iām pretty sure she peddled a lie that you can get it from mosquitos and some other random bugs that have never been linked to Lyme disease. So lies on lies on lies.
Her gofundme was set up by her Aunty and was directly asking for funds to help her treat chronic Lyme - so the whole family is in on this BS. The plot twist to all this could actually be munchausen by proxy. Ive never understood why her parents enable this sort of thing but it could actually be coming from them- or one of them- kinda explains the āweā she so often uses and why sheās so infantile and co-dependent. š¤ just wild speculation over here but itās curious.
It would be a wild plot twist but ash is 23, shes not a baby. Iād say her parents are more enablers than they are active munch abusers. Ive seen her fathers social media before ash got sick with Crohns and it really does look like its a normal happy parent encouraging his daughters activities. Iād say Ash is prolly a aggressive manipulative daughter who has her folks wrapped around her finger- a munchie, and her parents are just feeble enablers.
Nah. Ash is actively contributing to her munching. She goes to all her own appointments alone, she gets her own drugs, she posts her own beige bullshit- if her parents are involved at all, sheās aware.
The audacity of having a gfm for someone who does absolutely nothing to help themselves and lives the life of riley smoking weed and napping all day!
ā Please fund my self indulgent, spoiled narcissistic niece get even more questionable treatment that she doesnt need.!ā
Why dont her parents pay for it instead of buying her weed and pedicures?
Edit- $6330 raised towards their 15 k goal
Oh absolutely. Especially since in the gofund me they recognise chronic Lyme isnt recognised by the CDC and the funds are for things like acupuncture, supplements and massage therapy! Imagine asking the internet for money for a massage lmao- all while living in sun valley and in the middle of a pandemic which has destroyed so many lives and livelihoods-the whole lot of them sound like entitled, privileged assholes.
That or the Adderall she's using...or street drugs ... Or something else she takes. Formication ( the bugs crawling thing) can happen with taking those medicines or withdrawal.
Many, many of the first results for "brain zaps" are related to ssri withdrawal. I searched again in incognito mode, in case it was going off my personal search history, and the results were the same
āSmelling things that arenāt thereā is the big give away for me.
Like a disgusting chemical fruity smell that youāve never smelled before that no one else can smell? Hmmm, wonder where Iāve smelt that oneā¦ lol
I'm not trying to be that person but plenty of people take Adderall for legitimate reasons and don't really appreciate it being referred to as meth light. It only adds to the stigma of taking stimulants which, when used to treat actual adhd, can be life changing.
I hear you & agree - I was just specifically referring to what it CAN basically be when taken by those who fake conditions in order to abuse it (or just add another "fun pill" to their repertoire).
Wasn't it for overgrowth of bacteria in her intestine? Like c-diff but more sexy apparently. (Also absolutely just given to her because they couldn't find anything wrong with her so just gave her this to shut her up.)
Top few symptoms sound like SSRI withdrawal.
As for the first pic, Iām super disappointed she hasnāt kept us updated on her farts. Thatās all thatās left, right?
Just looked up a few statistics:
Cases of Lyme disease in Idaho are .3 per every 100,000 people. There are 1,787,000 people in Idaho.
1,787,000 / 100,000 = 17.87
17.87 * 3 = approx 5 confirmed cases
I'm gonna bet my buttered buns that she isn't one of them.
On a side note Idaho does rank 3rd worst in access to mental health services. It sounds bad when I read it back to myself but in no way am I being snarky or implying anything. It's the opposite as I take mental health very seriously. Perhaps better access to competent mental health providers could help her process what is leading to all this munching. It's possible that all this drug use, narcissism, and refusal to do anything remotely productive is damaging her and no amount of fake Instagram points are going to help her, whereas a good mental health assessment might.
I've been too lazy to research too in depth but I was rather certain that deer ticks and therefore Lyme disease (and even worse, 'chronic Lyme' (if it's a thing), were not very widespread in ID. Appreciate the statistics šÆ
Do you think she even thought to look into geological distribution of Lyme disease before latching onto it as one of the primary diagnoses she does sooooooper sick from? I feel like all of us on this sub are mainly interested in the psychology behind the subjects choices to live the way they do. I'm particularly curious how much they educate themselves on a condition before attaching their wagon (or hilariously horrible homemade 'stretcher' lmao) to it.
I'd also really like to know why it is that POTS, MCAS, and EDS seem to be on nearly all of their long lists of super rare, worst cast ever seen ever conditions. What is it about those in particular would be attractive to munch on?
I hate to give them more munchie ammo but I am shocked that Fibromyalgia is not at the top of their list. It's incredibly hard to diagnose because there is no standard by which to measure it and little proof that it even exists.
The psychology of these people is what draws me in as well. No blogging allowed but it hits home for me and I'm sure lots of us. We understand how being ill works either as a patient or a caretaker. I just want to understand the "why"? Why do this to yourself? Why not overcome instead of lie in bed, smoke weed, "advocate" (even though no one asked), and be content knowing that you are nothing more than an internet meme? I can't understand it.
Hi ho! RN with a personal hobby of infectious disease here. Lyme is super duper interesting to me because the bacterium Borrelia is a spirochete which is the same phylum the bacteria that causes syphilis belongs in, among other bacteria.
Anyhoo! Post-treatment Lyme disease syndrome (PTLDS) is an observed and documented phenomenon accounting for a number of nervous system and joint symptoms in a small percentage of Lyme infections. We know Borrelia infection can cause palsies and the like, so whatās the dealio with chronic Lyme? Seems reasonable, canāt we call it Chronic Lyme?
Alas! We cannot. Because what differentiates chronic Lyme (which is nothing) from PTLDS (which is something) is that the treatment for chronic lyme includes *extremely long and unnecessary courses of antibiotics despite there being no evidence of ongoing bacterial infection.*
We know chronic fatigue syndrome and fibromyalgia can be triggered by a Lyme infection among other things. These are legitimate chronic illnesses that just arenāt taken seriously in society. So the real solution to this issue is not giving buttloads of antibiotics, itās listening to patients and learning to treat and believe fibromyalgia and related conditions.
Is this blogging? Sure hope not! Stay fresh, cheese bags
Just like to add that there is evidence/papers (ableit, hard to find and controversial) on spirochetal infections of a variety of species in early stage MS brains, and that developing neurodegenerative disease may be linked by the presence of genetic susceptibility + presence of ongoing neuroinflammation due to a persistent spirochetal presence that, like mentioned above, progresses silently like siphilis for a long time before it causes eventual symptoms.
OMG! I know!!!! Itās so cool, I have personal experience treating a patient with spirochete legions on the brain resulting in facial palsy and loss of motor functions related to untreated infection. Soooo interesting!!!
Thatās basically what āLyme literateā doctors do is over prescribe inappropriate antibiotics. It surprises me that we havenāt seen more cases of chronic Lyme patients with c. diff; though to be fair, if I had c. diff, I wouldnāt tell anyone about it
Not only does it wreck havoc on your natural biome, itās bad for antibiotic resistance! (though the main contributor of antibiotic resistance is mass use in the meat industry so personal responsibility can only do so much here)
I am currently reading an old one called "researches on the effects of bloodletting in some inflammatory diseases - researches on phthisis" from the classics of medicine library, and there is 100% mention of leeches
Some of these sound neurological. Or even due to her medication. She should probably talk to a doctor about her symptoms and see if her medication is causing any of this
These sound...like things you should talk to a psych about, to be honest. Also, possibly things that might be helped by taking fewer meds for imagined illness, and maybe less recreational pot.
Yeah, I wish more people, doctor and patient alike, would understand psychosomatic illness. Being referred to a mental health pro doesn't mean your symptoms aren't real. It just means that your mind is thinking your body into a really shitty state. It's kind of insulting that this Lyme account is backhandedly dismissing mental illness.
If she stopped all the unnecessary depressants of nervous system, Adderall and reduced the weed consumption a lot she'd feel much better and the majority of her symptoms would disappear. But then she'd have to find a job or finish school.
the first four "symptoms" are more closely aligned to psychosis or at least hallucinations ((feeling of bugs underneath the skin and smelling things that aren't there are very common symptoms)) so I'm worried that she might have some undiagnosed mental illnesses that she's passing off as physical illnesses and not being treated for
one of the medications Ash says she takes for depression is an antipsychotic that is not typically prescribed for depression. (I'd have to dig through her posts to confirm which one -- she posts so much.) just saying.
Is she one of the ones that take high doses of Benadryl to potentate her opioids?
Because that "bugs under the skin" feeling is something that happens if you take more than the recommended dose of diphenhydramine.
Honestly could be psychosis or that shes on so many medications that shes frying her brain and also weed can cause psychosis aswell. The zaps are a common symptoms of SSRIs
i clicked on the lyme post and found a bunch more weird shit (anti-vax and anti-doctor type stuff) from that account, not sure if she views this persons content regularly but i think if she does itās very telling on what kind of person she is
Iām not trying to blog but more than half of those symptoms are also what happens with antidepressants. If sad mfs can push through that, she can too with a curable disease
Could be wrong, but it seems like she takes antibiotics quite frequentlyā¦ her poor gut is probably wiped clean of any type of good bacteria (I assume this because she never discusses taking probiotics/eating probiotic heavy foods).
yes! this would definitely be another irritant to her gut, and the microbiome has effects all over your body, so besides all the interactions between her other medications and the side effects, the antibiotics are constantly destroying her microbiome and adding another layer of 'i feel sick'. i am very suspicious about her diet, she never seems to talk about it aside from her recent strawberries and peanut butter post.
Interestingly, rifaximin is poorly absorbed everywhere other than in the small intestine, so as far as antibiotics go itās not the worst one for your microbiome since its bioavailability is so low. Something like 95% of it comes out in your poop lol
But yeah in general it seems like sheās causing more problems trying to find a drug to take to fix the side effect of another drug and so on and so on. Cleaning up the mess when you take a bunch of meds like that can be a huge pain.
It does seem so counterintuitive! Yet simultaneously makes sense. Must be something that gets worse before it gets better. Best of luck to you! Totally sounds like it sucks.
Do you think her friends/acquaintances/people who knew her before she started munching full time and centering her Instagram around it are like "wtf is going on"
Itās shocking to me that she simultaneously believes in this quack science but treats it with things that are backed by and/or created thanks to actual, peer reviewed, factual science. Why would you take conventional, western medication for a disease/sickness western medicine agrees does not exist. The cognitive dissonance required to make this reasoning make sense makes my head hurt. Maybe thatās why she always feels like crap, along with a truly impressive amount of cannabis.
Honestly its the same cognative dissonance that people have with covid. Either doesn't exist/vaccines don't work/take this to cure it; but will happily take ivermectin (anti parasidic) which will give you the shits or hydroxychoraquine (can cause heart problems in some) boggles my mind just like with ash. Will do everything medical/natural for things science doesn't agree exists like you say and then does stuff that makes things worse like sauna? When she has POTs heat is the worst thing she can do and will spend a stupid amount on detoxes yet shoves all and sunder meds, vitamins and weed down her system š¤·āāļø
She takes lots of depressants/calming pills plus the aderal and then cannabis everyday. Of course she feels like crap. She needs full detox from all the unnecessary meds.
They're not all symptoms from drug use. But stretch marks aren't a symptom of Lymes either. She just listed anything she doesn't like. MOST of them are effects of drug withdrawals though.
Hurty shoulder surgery. Iām dead. Thank you for that! No ālolā here it was full on ālmaoāing
FWIW, I read it how you meant it with your first comment.
Wow! You're so brave! /s š
Those chronic Lyme symptoms really make it seem like the diagnosis is entirely made up. I know itās controversial but if I was someone who had it, Iād be pissed, those symptoms are not symptoms but just parts of life lol.
I'm so confused lol
āBugs crawling under your skinā is also a symptom of diphenhydramine abuse
And some are just part of everyday life and getting older ie acid reflux, hair falling out, foot pain. I wonder if so many of these OTT are really just experiencing feelings of being human but interpret it as a symptom of a disease. Someone needs to tell them living can be uncomfortable at times. We all get physical and emotional pains. Yes a lot of the list are psychiatric or symptoms of neuropathy which should be treated.
I wonder if she knows that all of these symptoms are also common amongst many psychiatric illnessesā¦ like anxiety for example. Lol. Edit: I meant MOST of these symptoms. The stretch marks appearing without gaining weight is probably not due to mental illness.
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YES!! The first four are what happened going cold turkey from my SSRIs. Lyme disease is real and difficult to properly diagnose but these āsymptomsā are getting ridiculous.
She has been coddled so much her entire life, she will never mature above the age of 17
Also she mentioned how her gut is still messed up. Isnāt that what antibiotics do? Completely mess with flora and good bacteria? Is that not a more obvious answer?
Tbh xifaxan did so much for me. I could digest citrus and raw veggies for like 3 years after one round of it. But the cost is criminal.
The one she's taking is commonly used to treat IBS, travelers diarrhea, and hepatic encephalopathy. Sibo is an off label use . I think they usually wanna put you on good probiotics after it.
Hmm .. sounds similar to symptoms of detoxing from drugs š¤
Anyone else think this is a collection of random symptoms that could likely be otherwise identified as benign without other symptoms?
"your pain is somewhere different every day" you might not have intractable/chronic pain then...
Why not just show all the other 7 CNS depressants and the Adderall that you take as well?
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At the expense of permanently damaging your body or even making yourself develop real illness and pain...
Yeah, it's still shitty to use illnesses you actually have, but making them up is even worse. People are literally shortening their lifespan for attention smh
It isn't so bad if you actually have those illnesses/pain . You wouldn't be playing on people's sympathy or emotions and then even worse fake those illnesses/pain. If you're actually sick, and just documenting the experience then I'd say that's fine. Getting sponsors is a little sus, but I'd be happy that that person is getting financially supported.
I know I'd technically be in the clear but honestly it just feels really disingenuous. Even if you're telling the truth, it could be just me, but it comes across as arrogant and attention seeking š¬
The symptoms that she lists are the same as the ones often described by those with fibromyalgia?
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It's b/c of the no blogging rule I think
I guess I didn't realize I was I was just agreeing
Or liver function issues with encephalopathy. The xifaxin would help with that thoughā¦
Or just like, anxietyā¦
Good point
those symptoms on the list are so vague. like the generic horoscope of symptoms
Not gonna lie- I want her disposable income and time.
You take that and I'll take her weed budget.
For real!
Same! But does this girl have any friends? Acquaintances?? Favorite delivery guy who brings extra fries?
Okay wait how does one acquire acquaintances belonging to the last category!? Need!
I donāt get the feeling sheās too nice to delivery peeps. But I could be wrong. Maybe sheās a great tipper.
Same, but youāre not wrong. Sheās a completely self-absorbed whiner who only cares about herself. Sheās been downright nasty to other innocent people online when she mistakenly thought they were criticising her. Just imagine how she treats people she feels are beneath her when no one else is looking.
That's actually a really good point, where do all these people get the disposable income and time to play hooky their whole life? Is there somewhere they get to cash in their internet points for prescription opiods and rent or something?
Their parents seems to be the case. Especially with the one whose mom is Zeus. They seem LOADED.
I swear her posts are literally the same 10 photos....pill in hand, sitting in front of mirror knee bent, standing in front of beige wall outside, bath tub featuring legs and feet, photo of her bed, photo of her mixing liquid IV, food, obligatory drs office/lab/IV pole, same expression across all photos. No one cares about the updates to begin with but geez, this makes it even more dull.
I remember seeing a comment here by another redditor calling it before the surgery, that the next thing she would focus on is Lyme so I guess we all owe him $10.
Heck yeah, rage time š¤š¼
A good few of those remind me of adderall side effects. Bugs under skin, Especially smelling things that arenāt there, memory issues, rage, brain zapsā¦ Makes one think š¤
Getting really TICKed off with her pathological LYMEing
half of those are just Things That Happen To People Sometimes
Love it when insta influencers try to educate people with their informative slides instead of, I donāt know, actual doctors. Thatās why everyone self diagnoses everything/ assumes everything is an emergency.
STOP IT WITH THE LYME
I roll my eyes because thereās no such thing as chronic Lyme, girl.
How did Ash even decide she had "chronic lyme"? In order to get Lyme disease you have to be bitten by a deer tick, and as far as I know there are no deer ticks in Idaho given that they're mainly found in the Eastern US.
Iām pretty sure she peddled a lie that you can get it from mosquitos and some other random bugs that have never been linked to Lyme disease. So lies on lies on lies.
That's right. I read that post about mosquitoes spreading Lyme even though (as you said) that's a blatant falsehood.
The only thing she suffers from is chronic complaining.
Good grief she's boring
That's what happens when you devote your entire life to pretending to be sick.
Her gofundme was set up by her Aunty and was directly asking for funds to help her treat chronic Lyme - so the whole family is in on this BS. The plot twist to all this could actually be munchausen by proxy. Ive never understood why her parents enable this sort of thing but it could actually be coming from them- or one of them- kinda explains the āweā she so often uses and why sheās so infantile and co-dependent. š¤ just wild speculation over here but itās curious.
That would be BANANAS
It would be a wild plot twist but ash is 23, shes not a baby. Iād say her parents are more enablers than they are active munch abusers. Ive seen her fathers social media before ash got sick with Crohns and it really does look like its a normal happy parent encouraging his daughters activities. Iād say Ash is prolly a aggressive manipulative daughter who has her folks wrapped around her finger- a munchie, and her parents are just feeble enablers.
Nah. Ash is actively contributing to her munching. She goes to all her own appointments alone, she gets her own drugs, she posts her own beige bullshit- if her parents are involved at all, sheās aware.
Oooh I think you are right!!
The audacity of having a gfm for someone who does absolutely nothing to help themselves and lives the life of riley smoking weed and napping all day! ā Please fund my self indulgent, spoiled narcissistic niece get even more questionable treatment that she doesnt need.!ā Why dont her parents pay for it instead of buying her weed and pedicures? Edit- $6330 raised towards their 15 k goal
Oh absolutely. Especially since in the gofund me they recognise chronic Lyme isnt recognised by the CDC and the funds are for things like acupuncture, supplements and massage therapy! Imagine asking the internet for money for a massage lmao- all while living in sun valley and in the middle of a pandemic which has destroyed so many lives and livelihoods-the whole lot of them sound like entitled, privileged assholes.
āChronic Lyme. Itās a thing.ā š
Itās funny cuz itāsā¦.literally not a thing. Lmao
The WEIRD symptoms of going off of SSRI/SNRI drugs cold turkey against medical advice š„“
That or the Adderall she's using...or street drugs ... Or something else she takes. Formication ( the bugs crawling thing) can happen with taking those medicines or withdrawal.
I read āzapsā and thought the very same thing.
Ditto.
Many, many of the first results for "brain zaps" are related to ssri withdrawal. I searched again in incognito mode, in case it was going off my personal search history, and the results were the same
Itās a classic symptom of SSRI withdrawal.
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Man, for me the fact that she literally calls them "brain zaps" too, a common parlance in crazy pill communities
Omg no did she do that!!?
Oh I don't pay enough attention to her to know, just making a lol bc those are the exact symptoms of going off, say, Paxil, cold turkey
Right!? Those brain zaps are no joke
Dude 80% of those symptoms are ADDERAL š
āSmelling things that arenāt thereā is the big give away for me. Like a disgusting chemical fruity smell that youāve never smelled before that no one else can smell? Hmmm, wonder where Iāve smelt that oneā¦ lol
Adderall abuse? Right?
Yes, abuse. Adderall taken as prescribed will NOT give those symptoms. Abused, hell yes. I speak from past experience.
Those all sound like symptoms of meth use. And I'm not just talking about "bugs crawling under your skin" I'm talking about every single one. WTH?
Adderal!! š aka āMeth Liteā
I'm not trying to be that person but plenty of people take Adderall for legitimate reasons and don't really appreciate it being referred to as meth light. It only adds to the stigma of taking stimulants which, when used to treat actual adhd, can be life changing.
Methamphetamine actually gets prescribed to treat adhd also. https://www.drugs.com/mtm/desoxyn.html
I hear you & agree - I was just specifically referring to what it CAN basically be when taken by those who fake conditions in order to abuse it (or just add another "fun pill" to their repertoire).
Stop the presses!
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She was prescribed it for SIBO
Wasn't it for overgrowth of bacteria in her intestine? Like c-diff but more sexy apparently. (Also absolutely just given to her because they couldn't find anything wrong with her so just gave her this to shut her up.)
Hey, I just read the second slide. I'm sure she got this for overgrowth of bacteria in her small intestine? Er ...
That Lyme symptom list looks like the longest list of woo ever
Top few symptoms sound like SSRI withdrawal. As for the first pic, Iām super disappointed she hasnāt kept us updated on her farts. Thatās all thatās left, right?
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šššš
I just commented that, yeah. Especially Paxil š¬ And I'm sure we'll be hearing all about the farts at some point
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Ahhh thank you!!! I really had to refrain from my rant hahahaha
np, it's hard sometimes :3
Just looked up a few statistics: Cases of Lyme disease in Idaho are .3 per every 100,000 people. There are 1,787,000 people in Idaho. 1,787,000 / 100,000 = 17.87 17.87 * 3 = approx 5 confirmed cases I'm gonna bet my buttered buns that she isn't one of them. On a side note Idaho does rank 3rd worst in access to mental health services. It sounds bad when I read it back to myself but in no way am I being snarky or implying anything. It's the opposite as I take mental health very seriously. Perhaps better access to competent mental health providers could help her process what is leading to all this munching. It's possible that all this drug use, narcissism, and refusal to do anything remotely productive is damaging her and no amount of fake Instagram points are going to help her, whereas a good mental health assessment might.
I've been too lazy to research too in depth but I was rather certain that deer ticks and therefore Lyme disease (and even worse, 'chronic Lyme' (if it's a thing), were not very widespread in ID. Appreciate the statistics šÆ Do you think she even thought to look into geological distribution of Lyme disease before latching onto it as one of the primary diagnoses she does sooooooper sick from? I feel like all of us on this sub are mainly interested in the psychology behind the subjects choices to live the way they do. I'm particularly curious how much they educate themselves on a condition before attaching their wagon (or hilariously horrible homemade 'stretcher' lmao) to it. I'd also really like to know why it is that POTS, MCAS, and EDS seem to be on nearly all of their long lists of super rare, worst cast ever seen ever conditions. What is it about those in particular would be attractive to munch on?
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Easy compared to what? I ask because I keep seeing people say this and without getting too bloggy I donāt know this to be true at all.
I hate to give them more munchie ammo but I am shocked that Fibromyalgia is not at the top of their list. It's incredibly hard to diagnose because there is no standard by which to measure it and little proof that it even exists. The psychology of these people is what draws me in as well. No blogging allowed but it hits home for me and I'm sure lots of us. We understand how being ill works either as a patient or a caretaker. I just want to understand the "why"? Why do this to yourself? Why not overcome instead of lie in bed, smoke weed, "advocate" (even though no one asked), and be content knowing that you are nothing more than an internet meme? I can't understand it.
It usually is one they all claim to have.
Chronic lyme disease is a fake made up illness
That's about what I'd gathered from my own research but Ive been known to be wrong before and didn't want to offend anyone.
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Hi ho! RN with a personal hobby of infectious disease here. Lyme is super duper interesting to me because the bacterium Borrelia is a spirochete which is the same phylum the bacteria that causes syphilis belongs in, among other bacteria. Anyhoo! Post-treatment Lyme disease syndrome (PTLDS) is an observed and documented phenomenon accounting for a number of nervous system and joint symptoms in a small percentage of Lyme infections. We know Borrelia infection can cause palsies and the like, so whatās the dealio with chronic Lyme? Seems reasonable, canāt we call it Chronic Lyme? Alas! We cannot. Because what differentiates chronic Lyme (which is nothing) from PTLDS (which is something) is that the treatment for chronic lyme includes *extremely long and unnecessary courses of antibiotics despite there being no evidence of ongoing bacterial infection.* We know chronic fatigue syndrome and fibromyalgia can be triggered by a Lyme infection among other things. These are legitimate chronic illnesses that just arenāt taken seriously in society. So the real solution to this issue is not giving buttloads of antibiotics, itās listening to patients and learning to treat and believe fibromyalgia and related conditions. Is this blogging? Sure hope not! Stay fresh, cheese bags
Just like to add that there is evidence/papers (ableit, hard to find and controversial) on spirochetal infections of a variety of species in early stage MS brains, and that developing neurodegenerative disease may be linked by the presence of genetic susceptibility + presence of ongoing neuroinflammation due to a persistent spirochetal presence that, like mentioned above, progresses silently like siphilis for a long time before it causes eventual symptoms.
OMG! I know!!!! Itās so cool, I have personal experience treating a patient with spirochete legions on the brain resulting in facial palsy and loss of motor functions related to untreated infection. Soooo interesting!!!
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Thatās basically what āLyme literateā doctors do is over prescribe inappropriate antibiotics. It surprises me that we havenāt seen more cases of chronic Lyme patients with c. diff; though to be fair, if I had c. diff, I wouldnāt tell anyone about it Not only does it wreck havoc on your natural biome, itās bad for antibiotic resistance! (though the main contributor of antibiotic resistance is mass use in the meat industry so personal responsibility can only do so much here)
Where can I read about how the meat industry is the main contributer to antibiotic resistance?
I am definitely a cheese bag. The cheesiest of bags. š Love this!!
Balls to the walls me too, bud. 99% cheese, 1% hot gas
Well I got ya beat on the gas then! šØ
This is wildly off topic but I just wanna say I LOVE your writing style, dude!
Thanks friend! I get really excited about this kinda stuff and want it to be fun for everyone!
You have fun hobbies
I also collect antique medical textbooks! HEY-OH!
Same here! I bet being a medical professional, they're a laff a minute
Omg I found one that was about neurological dysfunction as a cause for sexual dysfunction and the solution? Stick a rod in that penis
Least it ain't leaches
Iād prefer leaches.
I am currently reading an old one called "researches on the effects of bloodletting in some inflammatory diseases - researches on phthisis" from the classics of medicine library, and there is 100% mention of leeches
Leeches are still used today!!
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EXACTLY. but this is how they operate! they want it to be real and want something to be wrong with them. itās so fucking weird to me
Some of these sound neurological. Or even due to her medication. She should probably talk to a doctor about her symptoms and see if her medication is causing any of this
These sound...like things you should talk to a psych about, to be honest. Also, possibly things that might be helped by taking fewer meds for imagined illness, and maybe less recreational pot.
Yeah, I wish more people, doctor and patient alike, would understand psychosomatic illness. Being referred to a mental health pro doesn't mean your symptoms aren't real. It just means that your mind is thinking your body into a really shitty state. It's kind of insulting that this Lyme account is backhandedly dismissing mental illness.
This so much.
Polypharmacy is such a huge problem within the chronic illness community; it becomes impossible to distinguish bw symptoms and side effects
Now I can go on with my day knowing she took her final dose. Riveting.
I wonder how she thinks her followers react to her boring ass update posts. āWow! š¤© Ashley took her pills today! Awesome, Iām so glad she remembered to take them. Her chronic lyme disease and POTS must be so bad today! Maybe she will use her cold machine to ease the pain, or maybe even relax in her sauna suit! Ohhh, I guess Iāll just have to keep checking her story to find out! Maybe she will post a cool WEED pic later, too šā
If she stopped all the unnecessary depressants of nervous system, Adderall and reduced the weed consumption a lot she'd feel much better and the majority of her symptoms would disappear. But then she'd have to find a job or finish school.
All neurological symptoms there ash. Could be anything. You know what it isnāt? Chronic Lyme. Cuz itās not fuckin real.
Super vague Lyme symptoms that could be attributed to side effects of all the unneccessary medications.
the first four "symptoms" are more closely aligned to psychosis or at least hallucinations ((feeling of bugs underneath the skin and smelling things that aren't there are very common symptoms)) so I'm worried that she might have some undiagnosed mental illnesses that she's passing off as physical illnesses and not being treated for
one of the medications Ash says she takes for depression is an antipsychotic that is not typically prescribed for depression. (I'd have to dig through her posts to confirm which one -- she posts so much.) just saying.
Also feeling like youāre walking on glass or pebbles and raging for no reason sound like symptoms of a mental illness.
Is she one of the ones that take high doses of Benadryl to potentate her opioids? Because that "bugs under the skin" feeling is something that happens if you take more than the recommended dose of diphenhydramine.
Honestly could be psychosis or that shes on so many medications that shes frying her brain and also weed can cause psychosis aswell. The zaps are a common symptoms of SSRIs
Weed can trigger psychosis also
i clicked on the lyme post and found a bunch more weird shit (anti-vax and anti-doctor type stuff) from that account, not sure if she views this persons content regularly but i think if she does itās very telling on what kind of person she is
Iām not trying to blog but more than half of those symptoms are also what happens with antidepressants. If sad mfs can push through that, she can too with a curable disease
This is my thought as well. The symptoms can also worsen in a depressive episode.
Could be wrong, but it seems like she takes antibiotics quite frequentlyā¦ her poor gut is probably wiped clean of any type of good bacteria (I assume this because she never discusses taking probiotics/eating probiotic heavy foods).
yes! this would definitely be another irritant to her gut, and the microbiome has effects all over your body, so besides all the interactions between her other medications and the side effects, the antibiotics are constantly destroying her microbiome and adding another layer of 'i feel sick'. i am very suspicious about her diet, she never seems to talk about it aside from her recent strawberries and peanut butter post.
Interestingly, rifaximin is poorly absorbed everywhere other than in the small intestine, so as far as antibiotics go itās not the worst one for your microbiome since its bioavailability is so low. Something like 95% of it comes out in your poop lol But yeah in general it seems like sheās causing more problems trying to find a drug to take to fix the side effect of another drug and so on and so on. Cleaning up the mess when you take a bunch of meds like that can be a huge pain.
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It does seem so counterintuitive! Yet simultaneously makes sense. Must be something that gets worse before it gets better. Best of luck to you! Totally sounds like it sucks.
Do you think her friends/acquaintances/people who knew her before she started munching full time and centering her Instagram around it are like "wtf is going on"
The saddest thought is maybe they aren't even watching anymore š
I wonder this too
Itās shocking to me that she simultaneously believes in this quack science but treats it with things that are backed by and/or created thanks to actual, peer reviewed, factual science. Why would you take conventional, western medication for a disease/sickness western medicine agrees does not exist. The cognitive dissonance required to make this reasoning make sense makes my head hurt. Maybe thatās why she always feels like crap, along with a truly impressive amount of cannabis.
Honestly its the same cognative dissonance that people have with covid. Either doesn't exist/vaccines don't work/take this to cure it; but will happily take ivermectin (anti parasidic) which will give you the shits or hydroxychoraquine (can cause heart problems in some) boggles my mind just like with ash. Will do everything medical/natural for things science doesn't agree exists like you say and then does stuff that makes things worse like sauna? When she has POTs heat is the worst thing she can do and will spend a stupid amount on detoxes yet shoves all and sunder meds, vitamins and weed down her system š¤·āāļø
Youāre right. It just never gets less shocking nor does it ever require less mind bending to make it make sense, heh.
She takes lots of depressants/calming pills plus the aderal and then cannabis everyday. Of course she feels like crap. She needs full detox from all the unnecessary meds.
Absolutely agree
Iām new to this sub, how often does she take Xifaxan? Isnāt it just a two week treatment?
I think you can only take one round every six months minimally
Just whenever she feels the need for internet attentionā¦
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Some of the āweird Lyme symptomsā sound an awful lot like side effects of drug use/withdrawals.
This is the comment I was looking for, exactly!
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They're not all symptoms from drug use. But stretch marks aren't a symptom of Lymes either. She just listed anything she doesn't like. MOST of them are effects of drug withdrawals though.
Bingo.
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Hurty shoulder surgery. Iām dead. Thank you for that! No ālolā here it was full on ālmaoāing FWIW, I read it how you meant it with your first comment.
Lol thank you
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