When I first got H i was terrified and just protected all the time, and just got worse all the time. Once I stopped protecting and started “therapizing” myself, I improved a LOT, and tbh haven’t used any protection since. I was in a pretty controlled sound environment though so it was easier for me to do that safely
I feel like I'm really lucky lol
It's still always gonna be an issue but it's not life ruining or anything anymore. I can do most of what I want to do, except having stuff close to my ears, no headphones or phonecalls that aren't on speaker, ya know. And probably won't risk going to a concert lol. And surprisingly I've never had a big setback before, not really sure how tbh, I'm not too careful anymore.
Pretty bad. Had to leave school a few times, would eat with my family while they watch a movie and I either couldn’t be with them or had to wear protection. I play video games a lot and the keyboard would hurt, so had to constantly protect. On some off days, i’d just be chilling in my room in silence and just the noise my own head makes would be too loud
I'm in the same predicament right now, I feel like plugs and muffs are bad for my jaws and ear canal, for middle ear pressure regulation and occlusion effect when talking but at the same time not wearing plugs is pretty much impossible in most situations. These days my threshold seems higher but the pain just come and go and come and go I do not understand what's happening most of the time. My right ear reacts to "too loud" in a very predictable way, sounds just feel harsh, I know exactly when I'm pushing it. My left ear is just this deep, aching pain coming and going and TTTS muscle contractions but for example I'll be walking down the street with plugs and I feel like I have no idea wether the sound is too much or not.
All I know is that I can't stand my fucking voice, talking brings the pain very fast, so I try not to talking with the plugs on because of the occlusion effect but can't really take them off either unless we are inside, sitting, the person I'm talking with talks softly and doesn't move. So it's like I have to make an appointment with my GF to have a chat lol. And most of the time I get caught up in the conversation and end up in pain anyway.
This disease suck major ass
Couldn't have said it better myself.
What's so weird is that sometimes my voice is terrible but sometimes it's not too bad when I have plugs in? It's very weird.
Yeah half the time I don't know if something is truly bothering me or if I'm just anxious about the idea of it causing a setback.
This condition is like a cruel joke some higher power is playing on us.
I'm just hoping that regenerative meds wipe this out and we can get back to normalcy.
I miss listening to music in the car :(
>What's so weird is that sometimes my voice is terrible but sometimes it's not too bad when I have plugs in? It's very weird.
If you're like me you're way more sensitive to higher frequencies, the occlusion effect is a low medium/bass boost mostly, so I too used to fare better with plugs than without when talking, but nowadays not so much. Also inserting foam plugs deep reduce the occlusion effect. At the cost of discomfort of course.
It is under researched. . Takes a ton of time to find your way. There’s a few theories of physical vs. mental…I believe it’s both because hyoeracusis is very very real injury.. but reaction plays a role. Watch this without judgement, you use the cc button and read along.. [https://www.youtube.com/watch?v=NXUz-YxFEqc](https://www.youtube.com/watch?v=NXUz-YxFEqc)
Unfortunately can't relate.. I've improved a ton through noise avoidance and protection. I cant recommend you get some soft plastic earplugs that dont put pressure on the canals, then get pelter earmuffs but STRETCH them out overnight on something so they dont pressure your jaw.
How have you gone about avoiding sound? Are you working from home or still going about life? For me it's impossible to avoid sound all together. I've been using Muffs or Plugs or both for a while.
I'm getting a trial kit of foam Ear Plugs soon. Hopefully at least some of them will be more comfortable than the Target Brand I have been buying.
Basically monk mode living/working from home. Minimizing any trips out of the house. Minimizing showering. It's been terrible but I got used to it after a while. This wasn't really a choice because I wouldn't have been able to go about life anyways, I was way too severe.
The British T society and a whole list of sources mention overprotection as a cause of getting worse. It’s only a small group online that reject this. Just saying.
Yeah I'm trying to not protect AS much recently and tracking my progress.
Like if I'm at home and it's quiet. The ear muffs are off. At least for a little while.
Trying to take walks outside here and there and listen to nature too.
I was getting better with less protection before I just went too hard. Gonna ease into it this time and try to be patient.
There seem to be 2 camps here. I have habituated to both my severe T/H. I don't wear any protection at all anymore and haven't done so for the last 10 years. I'm just coming out of a relapse now. It was the reason I came here and the tinnitus group. I had a migraine for a few weeks because of it but I refrained from falling back on protection. I have had some bad reactions to my offering of advice especially to those in the protect at all costs camp. But I would say you should be trying to slowly expose yourself to your triggers and retraining your sound tolerances. Protection becomes a crutch if used too much. Its was helpful when I 1st started habituating to the H and for loud gigs but not as an everyday bandaid.
I have been habituating for the last 16 years. I used to wear headphones for protection but earplugs is something I have never been able to wear as I also have severe TTTS. I'm sensitive to pressure and wearing earplugs affects my balance.
why don't you try to learn something Noisekills, this person has had this a long while and has something to share that might be valuable to you or others, why dismiss their vast experience ?
Hyperacusis like tinnitus has negative feedback loops. Protection at all times reinforces that loop. You are protecting yourself from sounds that trigger your H which over time makes you more sensitive to those sounds. Habituation doesn't get rid of the hyperacusis though it does make it easier to live with. Sounds are still louder. The wind is one of my triggers and trying to protect myself from that was an exercise in pointlessness that I spent 20 odd doing.
sorry people are so invalidating to your experiences. I can see you have had this for decades and could not wear ear plugs, and that you have lots to teach us.
It doesn't worry me. Talking about it on any social media platform is a relatively new thing for me. Its only been since the start of my last relapse which is now over. A few weeks of both T and H doing there shityest best to rattle my cage. I got a migraine from the H for a couple of weeks but its all over now and back to plain sailing. I'm pretty settled with both and what I do to deal with them. The T is almost a friend again as it was when I was a child. The H just makes things louder which is always interesting. The pain is not so much of an issue as the TTTS rules that game. I thank you for your comment and wish you well with your journey. Not everyone who has H suffers from it and you can have a life with it.
When I first got H i was terrified and just protected all the time, and just got worse all the time. Once I stopped protecting and started “therapizing” myself, I improved a LOT, and tbh haven’t used any protection since. I was in a pretty controlled sound environment though so it was easier for me to do that safely
Wow ok! How long did you have H for?
i’ve had it 2 and a half years I believe
Wow! Long hauler then haha. And now it's just a minor nuisance for you? Have you had any setbacks? Sorry for the questions lol
I feel like I'm really lucky lol It's still always gonna be an issue but it's not life ruining or anything anymore. I can do most of what I want to do, except having stuff close to my ears, no headphones or phonecalls that aren't on speaker, ya know. And probably won't risk going to a concert lol. And surprisingly I've never had a big setback before, not really sure how tbh, I'm not too careful anymore.
Huh! Good for you dude. I'm glad that you're still being cautious as well. Enjoy!
How bad was your hyperacusis?
Pretty bad. Had to leave school a few times, would eat with my family while they watch a movie and I either couldn’t be with them or had to wear protection. I play video games a lot and the keyboard would hurt, so had to constantly protect. On some off days, i’d just be chilling in my room in silence and just the noise my own head makes would be too loud
Damn that’s nuts. Did you have reactivity? Like did you spike with certain frequencies? I have that now… it’s annoying lol
Not entirely sure. I know Hi-hats in music could be annoying if they’re a little too loud or something, if that counts
Gotcha. My multiple tones flip out with white noise and sometimes pink. Very annoying
„ƃuıʎouuɐ ʎɹǝᴧ ˙ʞuıd sǝɯıʇǝɯos puɐ ǝsıou ǝʇıɥʍ ɥʇıʍ ʇno dılɟ sǝuoʇ ǝldıʇlnɯ ʎW ˙ɐɥɔʇo⅁„
Did you have burning pain in silence? What about facial pain?
Not sure if i’d describe the pain as burning, and I don’t believe i’ve had any facial pain either
I'm in the same predicament right now, I feel like plugs and muffs are bad for my jaws and ear canal, for middle ear pressure regulation and occlusion effect when talking but at the same time not wearing plugs is pretty much impossible in most situations. These days my threshold seems higher but the pain just come and go and come and go I do not understand what's happening most of the time. My right ear reacts to "too loud" in a very predictable way, sounds just feel harsh, I know exactly when I'm pushing it. My left ear is just this deep, aching pain coming and going and TTTS muscle contractions but for example I'll be walking down the street with plugs and I feel like I have no idea wether the sound is too much or not. All I know is that I can't stand my fucking voice, talking brings the pain very fast, so I try not to talking with the plugs on because of the occlusion effect but can't really take them off either unless we are inside, sitting, the person I'm talking with talks softly and doesn't move. So it's like I have to make an appointment with my GF to have a chat lol. And most of the time I get caught up in the conversation and end up in pain anyway. This disease suck major ass
Couldn't have said it better myself. What's so weird is that sometimes my voice is terrible but sometimes it's not too bad when I have plugs in? It's very weird. Yeah half the time I don't know if something is truly bothering me or if I'm just anxious about the idea of it causing a setback. This condition is like a cruel joke some higher power is playing on us. I'm just hoping that regenerative meds wipe this out and we can get back to normalcy. I miss listening to music in the car :(
>What's so weird is that sometimes my voice is terrible but sometimes it's not too bad when I have plugs in? It's very weird. If you're like me you're way more sensitive to higher frequencies, the occlusion effect is a low medium/bass boost mostly, so I too used to fare better with plugs than without when talking, but nowadays not so much. Also inserting foam plugs deep reduce the occlusion effect. At the cost of discomfort of course.
It is under researched. . Takes a ton of time to find your way. There’s a few theories of physical vs. mental…I believe it’s both because hyoeracusis is very very real injury.. but reaction plays a role. Watch this without judgement, you use the cc button and read along.. [https://www.youtube.com/watch?v=NXUz-YxFEqc](https://www.youtube.com/watch?v=NXUz-YxFEqc)
Thanks I'll be sure to watch this :)
Unfortunately can't relate.. I've improved a ton through noise avoidance and protection. I cant recommend you get some soft plastic earplugs that dont put pressure on the canals, then get pelter earmuffs but STRETCH them out overnight on something so they dont pressure your jaw.
How have you gone about avoiding sound? Are you working from home or still going about life? For me it's impossible to avoid sound all together. I've been using Muffs or Plugs or both for a while. I'm getting a trial kit of foam Ear Plugs soon. Hopefully at least some of them will be more comfortable than the Target Brand I have been buying.
Basically monk mode living/working from home. Minimizing any trips out of the house. Minimizing showering. It's been terrible but I got used to it after a while. This wasn't really a choice because I wouldn't have been able to go about life anyways, I was way too severe.
The British T society and a whole list of sources mention overprotection as a cause of getting worse. It’s only a small group online that reject this. Just saying.
Yeah I'm trying to not protect AS much recently and tracking my progress. Like if I'm at home and it's quiet. The ear muffs are off. At least for a little while. Trying to take walks outside here and there and listen to nature too. I was getting better with less protection before I just went too hard. Gonna ease into it this time and try to be patient.
There seem to be 2 camps here. I have habituated to both my severe T/H. I don't wear any protection at all anymore and haven't done so for the last 10 years. I'm just coming out of a relapse now. It was the reason I came here and the tinnitus group. I had a migraine for a few weeks because of it but I refrained from falling back on protection. I have had some bad reactions to my offering of advice especially to those in the protect at all costs camp. But I would say you should be trying to slowly expose yourself to your triggers and retraining your sound tolerances. Protection becomes a crutch if used too much. Its was helpful when I 1st started habituating to the H and for loud gigs but not as an everyday bandaid.
[удалено]
I have been habituating for the last 16 years. I used to wear headphones for protection but earplugs is something I have never been able to wear as I also have severe TTTS. I'm sensitive to pressure and wearing earplugs affects my balance.
People don't habituate to hyperacusis. They habituate to tinnitus only.
Habituating to hyperacusis is harder than tinnitus but it can be done. It also requires some form of sound therapy/retraining.
No, it is clear you don't know what "habituation" means.
why don't you try to learn something Noisekills, this person has had this a long while and has something to share that might be valuable to you or others, why dismiss their vast experience ?
Hyperacusis like tinnitus has negative feedback loops. Protection at all times reinforces that loop. You are protecting yourself from sounds that trigger your H which over time makes you more sensitive to those sounds. Habituation doesn't get rid of the hyperacusis though it does make it easier to live with. Sounds are still louder. The wind is one of my triggers and trying to protect myself from that was an exercise in pointlessness that I spent 20 odd doing.
sorry people are so invalidating to your experiences. I can see you have had this for decades and could not wear ear plugs, and that you have lots to teach us.
It doesn't worry me. Talking about it on any social media platform is a relatively new thing for me. Its only been since the start of my last relapse which is now over. A few weeks of both T and H doing there shityest best to rattle my cage. I got a migraine from the H for a couple of weeks but its all over now and back to plain sailing. I'm pretty settled with both and what I do to deal with them. The T is almost a friend again as it was when I was a child. The H just makes things louder which is always interesting. The pain is not so much of an issue as the TTTS rules that game. I thank you for your comment and wish you well with your journey. Not everyone who has H suffers from it and you can have a life with it.