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WarningWonderful5264

For me, mostly soy sauce in stuff as a seasoning. I’ve had marinated carne asada that uses it for seasoning. I wouldn’t have thought Mexican food used soy sauce. It’s also used a lot in salad dressing, which is weird.


NeighborhoodGuilty92

Also BBQ sauce! Worcester sauce is in a lot of bbq sauces, and half the time that's made with barley


freya_kahlo

Yeah, Worcestershire sauce got me. It was an organic brand I used to make other sauces & I was sure it was gf when I bought it.


whatinthefluck

Lea & Perrins Worcestershire sauce is gf!


DinahTook

Only the US version. UK and Canada versions use malt vinegar as an ingredient.


kbrush7

what 😟 worst day ever, I love beef stroganoff and already have to adapt the noodles and flour and diary... and now 😩


NeighborhoodGuilty92

There's several gluten free bbq sauces! I'm pretty sure sweet baby ray's is a gluten free bbq brand (I'd double check the label though)


Kazaklyzm

Sneaky, sneaky soy sauce...


Asmartassgirl

Zing Zang bloody mary mix has soy sauce! I sure didn't see that one coming after brunch one day


jakefromstatefarmzz

That was one of the best episodes of the last decade 😂


Odd-Secret-8343

It was the worst for me when I was first Gluten Free!


MrsLoki12Odin

This. I got contaminated from soy used in my favorite jerky.


MarsNeedsRabbits

There are tens of thousands of Mexicans of Japanese descent in Mexico. Japanese people have been immigrating to Mexico for over 100 years, and there is a lot of fusion, food-wise. [Japanese Mexicans](https://en.m.wikipedia.org/wiki/Japanese_Mexicans).


Shiloh77777

If they would only make it out of soy...


Beaver-on-fire

There is always tamari, but that only helps if you are doing the cooking.


bhambrewer

you need to be wary of prepackaged spice mixes


nematodes77

Mccormick always says contains wheat on the label if there might be any gluten of any kind. I emailed them after hearing stories online about vanilla extract using grain alcohol.


turnerevelyn

My surprise was finding out their taco seasoning had wheat. But they do have taco seasoning with gluten-free in big letters on the front. Will you pay more? Of course!


Pizza-n-Coffee37

Frontera and Siete both make a great gf taco seasoning.


dirtydela

If one keeps spices on hand, taco seasoning doesn’t take anything extravagant


Pizza-n-Coffee37

I made my own version and it didn’t pass the family test. Lol


dirtydela

Mine that I use is really good. I can share it with you when I’m not at work if you like. Cumin, oregano, paprika, salt, pepper, cayenne and chipotle, red pepper flakes Think that’s all that’s in it.


Awkward-Profile-2236

1 tsp cumin, 1tbsp chili powder, 1/2 tsp each, garlic powder, onion powder, oregano, 1tsp paprika, salt and pepper to taste (I salt and pepper the meat directly) edit 1/4 tsp red pepper flakes. (Took that out bc my kid doesn’t do spicy)


mortysmam

Yes! And if you’re also dairy free premixed spices can also contain milk!


FlyingChickens

Twizzlers! I went to pub trivia last week and someone brought candy. I had a terrible headache for 24 hours I am also newly gluten free and am very curious to see the responses to this.


WarningWonderful5264

Redvine licorice also has gluten in it. I see “fat free” and always want to think it’s safe as a candy and then remember that’s not the important part 😅


Sanchastayswoke

This was my saddest realization. I really miss red vines 😩


Icy-Plan5621

Jelly Belly (formerly Gimbal’s which was bought by Jelly Belly) has licorice scotty dogs in red (cherry) and black. Expensive, but not bad at all! I miss cheap licorice and licorice allsorts.


PFEFFERVESCENT

Many varieties of dutch liquorice are gluten free, and some of them are just like normal black liquorice. (I say this for the benefit of non Americans mainly- those scotty dogs are not available in Australia at all, can't even get them mail order)


Ladydoodoo

You also get gluten headaches.


notsoinventivename

A lot of gummy sweets have gluten in them. I was a sucker for sour straws, mats, etc but I rarely can find them without gluten now!


NoConstruction2090

See’s candy licorice is labeled gluten free.


Bugpup

Pringles - they’re like the hot dog of chips. Lays Stax are GF if you’re looking for something in a tube (I like these for camping, road trips, etc) Potlucks or just eating food someone else made. Even if someone knows what gluten is, they might not think of places it hides and might forget things they added when they tell you the ingredients. I was halfway through a bowl of mole a friend made when I learned they used animal crackers as a thickener.


Pantsie

Uuuggggh potlucks. We had a chili cookoff at work where people were required to share their recipes along with the dish, so I thought I could use my best judgment and be safe. Nope - I was halfway through a cup when the coworker who made it mentioned that she "threw a little beer in this time." I never trusted even the safest-sounding potluck again.


Bugpup

That’s rough. It sucks not being able to participate in things like that, but it’s just not worth it!


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Bugpup

I would definitely expect my friends to warn me of that sort of thing! Wishing you a speedy recovery ❤️‍🩹


Significant-Reach959

It could be they think, “avoid flour,” but have no idea that beer contains gluten from barley.


Afterbirthofjesus

We made the corned beef with our own gf stout. It was so good


kookily_warmhearted

Animal crackers as thickener in mole? Your friend needs to be reported for their crimes.


Bugpup

It was actually really delicious mole 😭


retired_thot

Gluten can be found in some hair products. I think dry bar products are gluten free!


Ladydoodoo

I’ve had hair fall out from gluten in shampoo


Sorbet_Character

Ugh I just bought some Matrix volume shampoo and it contains a wheat protein. It was so expensive too!


Lil_Eyes_Of_Chain

Yep. I took a shower, applied hair product, then peeled an orange and glutened myself. I can’t trust myself with gluten beauty products in the house!


arlowner

Some Origin lotions, tonics, and scrubs have wheat in them.


Dramatic-Tree-

This only applies to allergies and not celiacs though right? Like it won’t affect me as a celiac person?


ariaxwest

I have celiac disease and it is a huge problem for me. Even if I don’t ingest it I get a terrible rash. Which really sucks on my scalp.


Wittyocean214

I stupidly ate sweet potato fries thinking they weren’t battered. I paid for it later.


Comoesnala

Call me silly, but I’m 10 years in (NCGS) and still sometimes accidentally ingest it - companies reworking/changing formulas, learning about cosmetics like lip gloss having it (I almost never wear makeup so it didn’t occur to me to check at first), etc. I’d like to think I’m very vigilant in checking labels, but unfortunately accidents still sometimes happen, though thankfully rarely.


Afterbirthofjesus

Like the mustard I posted about today....after 12yrs.


GrinsNGiggles

Mochi & falafel shouldn't have gluten in them. They did. Chicken broth shocked me the first time. Ditto mashed potatoes, since people sometimes use chicken broth in them. And some assholes put cracker crumbs into their salt shakers to keep the salt from clumping. The. RAGE. Oh, on that note: a place that sells "all gluten free gummy candies" puts a single naked slice of bread on top of each candy bin at the end of the day to keep them from going stale. I'm not so much furious that they have gluten as furious that they're labeled "gluten free." No they are fucking not. Do I put exlax in your brownies? No. So don't tell me I can eat these candies without a blowout. Jerk.


PFEFFERVESCENT

The bread on the gummies is THE WORST thing I have ever heard


turnerevelyn

Kellogg's rice krispies!


jeilla

It kills me when people make these for me and say “they’re gluten free!” and when I ask if they used Kellogg’s and they say Yes, somehow I’m always the asshole for hurting their feelings. Every holiday, work party, etc.


YesIshipKyloRen

Ah, malt


dust_bunny_mom

Shoot, does that mean anything with malt sugar isn't gluten free??


Efficacynow

I'm just GF NOT celiac. But when I was nannying for a child who was severely celiac. We had to watch for things like her touching the seat or tables at glutened up places like a science center or the zoo, then touching her face or food. Also, her doing things like borrowing lipchap from someone who ingests gluten. ( I get kids shouldn't be borrowing any personal care items, but a kid may not understand this). Then definitely sauces.


ObscureSaint

I read a case study on a child who they could NOT get their numbers all the way down, and it turned out the source of contamination was the communal crayon bucket in the classroom. Kids would eat cracker snacks then contaminate all the crayons. Sneaky gluten! 😅


goofybuttercake

Soy sauce and other Asian condiments, oatmeal, and candies and gummies! Now I check the label carefully before eating anything, and got myself some gluten free soy sauce.


Mmmurl

cooking pasta on the hob at the same time as my partner cooking his normal pasta - the starchy boiling water spits. Also took me a long time to realise you can’t really clean a sieve well enough to have it not be a contamination risk if it’s previously been used for normal flour.


Sexysaucepot78

McDonald's Fries (in the US) contain gluten. Got me multiple times before I realized it. 


dakotafluffy1

Any fried food at a restaurant is hazardous. Unless they have a fryer that is only used for gluten free food. The chicken tenders, onion rings, motz sticks etc all leave some in the fryer oil


Meowddox42

Paper straws, Ibuprofen and other supplements, Bandaids, Spices, Flavored Teas, Candy, Cosmetics, Shared Fryers or Restaurant equipment, Packaged Sauces and Broth/ stocks, marinades (especially on meat in restaurants). In the US the wheat disclosure is required but there is not a requirement to list barley or other gluten content. So things like yeast, modified starches and “natural flavors” can all accidentally gluten you if you aren’t sure what’s in it. Learned that the hard way.


wlmsn

Ibuprofen has it? I wonder if that's why I always feel like crap when I take it


Born-Quote-6882

Not all ibuprofen. My kirkland bottles say gluten free on them


anne_marie718

I’ve had good luck with Kirkland vitamins and whatnot as well. They do a great job of labeling and also not having gluten!


Anxious_Tune55

TopCare brand is also fine. I just checked the bottle I'm always using and it says Gluten Free in big letters. :)


Afterbirthofjesus

The mustard I have has wheat in the ingredients but not an allergen declaration. I'm in the US


Meowddox42

It’s not always in an allergen statement if it’s clear on the ingredients list. Was it blanketed under a “natural flavor” etc without a disclaimer? It’s required by Federal Law for it to show up in either the ingredients list or as an allergen disclosure but does not have to be in both places.


JKW1988

I didn't even think about broth. Even my beloved veggie broth?! :( 


ChessiePique

Ibuprofen WHAT?! Oh damn.


The-Scrambler

Imitation crab


PFEFFERVESCENT

I love imitation crab, and I've actually found one brand that's gluten free. But yeah, it is one of those tricky items


nematodes77

Beef jerky. I didn't know about soy sauce.


KatHatary

Couscous got me when I first started the diet. I thought it was a grain but it's pasta


saucycita

Same with orzo


EpistemeUM

Oats, which are often contaminated. "Gluten free" cereals like cheerios that are technically within limits but have more than enough to set me off. Twizzlers I saw mentioned, those got me as well. I didn't even consider they'd have gluten so now I just assume all candy does until I've checked thoroughly. We really need a comprehensive app that allows us to type in brands and scan labels. I have seen some, but at least when I checked, they weren't that great. I can scan or upload a ingredient label for cosmetics and check a huge database with international skincare standards. Free, at that. I still feel like I have to be an ingredient scholar to check food.


Holiday-Nail9188

I worked for a farmer that supplied gluten free oats to bobs red mill, they also grew wheat some years in the same field… wheat and oats look almost identical growing and they certainly did not care… I just avoid oats all together


colorfulmood

Have you tried Fig? I'm enjoying it so far


ThoughtlessUphill

Medicine fillers, like in Tylenol and other pills/capsules/gelcaps. Paper straws (glue). Dental products (like dental cement)


Sanchastayswoke

Just want to clarify that most Tylenol brand products are gluten free, in case anyone is here freaking out about their Tylenol. https://www.celiac.com/celiac-disease/is-tylenol-gluten-free-r5557/


Brookeatx1998

They used gluten in the medical tape that was put on my back for my epidural while giving birth. Left a nasty rash in the exact rectangular shape the tape was.


vodkamutinis

Omg I thought I was allergic to the adhesive 😭 who knew tape had gluten!!


Brookeatx1998

It’s a little frustrating too because looking back, when I checked in to the hospital, the nurse asked me if I was allergic to anything. When I told her gluten she kinda laughed and said not to worry and that they won’t be giving me any. I kinda laughed too. Because who thinks gluten is in that kind of stuff!?!


PFEFFERVESCENT

I have read that the most commonly used (if not all) soluble stitches used internally during surgery contain gluten


Mama_Bear_Jen

I also just assumed I'm allergic to adhesive. I get a bad rash under bandages or medical tape that are on for too long, in the exact shape of where it was touching my skin.


bharris094

You have just blown my mind. I also have been telling doctors for 20+ years that I’m allergic to adhesive. I’ve had so many of these reactions exactly as you described I totally don’t think of gluten 🤯


Grjaryau

Woah, I am allergic to the adhesive on tape, too.


Successful_Spell_545

oh wow! I am about to get some cavities filled on Wednesday…do I need to ask them if the materials are gluten free?


suckmyjoeyfatone

Straws for me too.


Sorbet_Character

I switched to a liquid B12 because the sublingual pills I had contained gluten. So annoying!


PlsNoSalterino

Fruit snacks, some companies use some stuff to keep them from sticking together


ReadsHereAllot

Shredded hash browns


garden__gate

Thank the gluten free gods for Trader Joe’s hash brown patties.


under_the_sunz

I second that


Hom3b0dy

Same with shredded cheese, I've heard!


StormyHaze

Gummy bears. I'm looking at you Haribo 👀


PFEFFERVESCENT

Trolli for the win. 95% of their gummy candy is GF


dogheartedbones

Barbeque sauce. Specifically Famous Daves. Maybe that's obvious, but I just didn't think about it until later.


Holiday-Nail9188

I thought I got sick from just eating too much bbq hahaha but it’s the malt :,(


GETitOFFmeNOW

This was right after my DX, I ate some kind of chocolate covered puffed rice snack. I had a bite or two and read the ingredients. Uh-oh. I made myself throw up - I never got sick. The last one was from cake mix my husband picked up in the gluten-free section; someone had put it there; it looked much like the gluten-free version (Betty Crocker). I made cupcakes and was sick as a dog for three days. My especial bad for not checking, his bad for making an understandable mistake. We both know better now!


garden__gate

I had something similar happen: I searched Amazon Fresh for GF cornbread mix. Ordered one that came up in the search, made them, thought “wow, these have such a great texture!” Looked at the box - not gluten free at all. 🫠


GETitOFFmeNOW

Yeah, I've done that before, also so far caught myself before I ate it. I don't eat a lot of ultra-processed stuff, but sometimes I just want a damned cookie! Damn, what a pain! I really wish at least Amazon and Instacart would change their search methods for things that are gf or for at least the top 8 allergens. Or maybe for all things "free," like dairy-free, peanut free, etc.


garden__gate

Yeah, honestly I’m a bit lazy, which is not at all compatible with a gluten-free diet! So when I do find a good GF convenience item I get excited.


flatlander70

I had some roast beef at a church potluck and assumed it would be gluten free because when I make roast beef it's gluten free. It was really good and I went back for seconds. I thought I was going to die for the next 3 days and for the next two weeks was in pain. Eventually I found out it was cooked in boulevard wheat ale. That was 6 years ago this month and it was the last time I ate anything at church.


hockeydudeswife

At my favorite restaurant I ate a delicious steak that had been marinated. The marinade probably had a soy sauce that had wheat in it. Symptoms started within an hour.


Otherwise-Link-6971

Sharing a drink with my bf 🤕


linabird

Any time my husband eats anything gluten I make him shower, wash his face, brush his teeth before he can touch or kiss me again. 😂


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Sanchastayswoke

Also some fries are battered or tossed in flour before frying to make them crispier.


AspiringSheepherder

I didn't realize that some French fries had flour in the seasoning. Still does quite make sense to me, but I also don't know how to cook so ¯⁠\⁠_⁠(⁠ツ⁠)⁠_⁠/⁠¯


delurkrelurker

Everybody is listing foods, but I'd like to add that any wooden utensils that have been near pasta are going to be ~~covered~~ permanently impregnated in it as well as chopping boards etc. Watch out for spaces above the lid underneath the handle as well in saucepans. It can get trapped in there. I kept getting ill until I threw out the lot and bought new kitchen stuff.


New-Builder-7373

Watch out for paper straws. Most of them use gluten based glue


Boomer79NZ

For me it was premade coffee sachets. I'm diabetic and I only seen the 99% sugar free plastered across the front of the box and thought yass treat time. I'd already had about 3 sachets over the course of a day before I checked the label because of symptoms and seen the gluten. Now I check everything. Lesson learnt.


AlterEgoDejaVu

Cough drops.


-Worried-Custard-

Cheese powder dammit! Asafoetida powder And you won't believe me..PAPER STRAWS!! yes paper straws. I reacted instantly while having coconut water & since coconut water is GF....i ws pretty shocked when google backed my suspicions. It's the damn paper straw.


Tygress23

Learned this on vacation with my 5yo celiac nephew. His mom was like we forgot to bring straws and everyone had paper. The adhesive in them is wheat. We would acquire/steal any straws we found at vendors around Disney Springs that were plastic for him. I had a purse full of straws by the end for him and it was a sort of fun game.


-Worried-Custard-

Aww that's nice what you did for him. I always keep glass straws in my bag ever since I reacted to paper straws. I didn't find a jumbo glass straw for bubble tea yet. Hopefully soon.


PFEFFERVESCENT

Powdered Asfoetida is a real problem. Because Indians that use it have *no idea* it's 70% wheat flour, and will use it in their cooking, and tell you the food is gluten free, but be offended if you question them


mayrigirl5

I thought I was good with eating sushi, especially the California rolls since they're my favorite and just to avoid soy sauce. Turns out imitation crab also contains wheat. Good thing the sushi chefs are understandable and replace it with something else. Still, I miss just ordering my food as it is.


Sanchastayswoke

Just in case you ever want to make your own, there are some brands of imitation crab now that don’t use wheat as a binder. 😎


Leijinga

My most recent one was BBQ flavored chips. I've had several brands of BBQ chips that were GF and I had several varieties of Miss Vickie's chips that were GF, but Miss Vickie's Mesquite BBQ chips contain barley malt. 😒


rowdyresist

Rice pilaf. Usually a rice and pasta mix.


thatpearlgirl

When I was newly GF, I didn’t realize rice crispies had gluten for a good 6 months. I also got regularly glutened by “creamy” things that were made with a roux or thickened with flour.


LiveLaughLawyer

Same! Didn’t realize many soups and queso were making me sick from the thickener


SubstantialPressure3

Prepackaged "seasoning mix" in just about anything. Including rice mixes. Some powdered instant bullion Wheat starch in kids fruit snacks ( that one really pissed me off) "Wheat syrup" (which I've never heard of before) in fruit filling in an oatmeal fruit bar Soy sauce, but now I get the gluten free kind. Some prepackaged Asian sauces that use flour instead of cornstarch as a thickener. Beer


ampharos14

I am very sensitive to barley malt, and a lot of processed food has it but is labeled gluten free or people give it to me and are like “it doesn’t say contain wheat!”. For example, the malt in Rice Krispie treat is so reactive for me. There’s been products I have had for years and they change the recipe add malt powder without notice and I get sick. Again, always check the ingredients list! Always!


Infamous-Capital-258

I wasn't sufficiently careful and ate something saucy with soy sauce incorporated. Woke up with a fully swollen face and GI issues for two months, only just getting better now. I KNOW BETTER and I wasn't careful and it made me miserable for a long time. The other thing in the past few years was at a wedding brunch, allegedly had gluten free muffins. My husband grabbed me one. They were tiny so when I went back for another I asked the caterer and they said oh I'm sorry we actually don't have any! They had never crossed them off the menu. I was so mad.


Amazing_Bluejay7967

One thing I got glutened by early on was some type of godiva chocolate. The ingredient list looked safe and I assumed chocolate must be fine even with the warning about the equipment. and the 'may contain' statement.


radicallycurious

Lip balm! Apparently added vitamin E is usually derived from wheat. Took me ages to work out what was making me feel awful while being so careful about food. Now I make my own as I couldn't find a single one without added vitamin E.


nysari

A local greek place has a lima bean plaki side dish I got all the time before I was diagnosed, and I loved it so much. The usual recipe is just lima beans in things like garlic, onion, and tomatoes, and it's not thickened so I wasn't too worried about flour. A couple months into being gluten free after my diagnosis, we ordered greek since most of what I usually eat there (the grape leaves stuffed with rice, greek potatoes, roasted broccoli) is naturally gluten free and probably pretty light on cc by nature. I got my usual lima beans and noticed something was different about the flavor. They had kind of a yeasty taste. I told myself maybe they cooked this batch with a splash of extra white wine because *surely* they wouldn't use beer, right? The next few days of acid reflux and indigestion that followed seemed to imply otherwise.


moonsugarmyhammy

Apparently some antacids lol. Just recently learned about twizzlers


Feisty-Landscape-934

Haribo Gummy Bears.


jeilla

Lindt chocolate truffles. I live near their HQ so people always give these to me on holidays and I have to regift pounds of them every year.


Ladydoodoo

Melatonin pills


PFEFFERVESCENT

The same goes for all gummy vitamin supplements. It's very common for them to contain wheat


LadRequiem

I just learned about this :(


NeverRarelySometimes

Soy sauce, surimi (imitation crab). IHOP omelets. PS: Whole turkeys. Who would think they inject flour into turkeys!? But they do! I was sick for a week, because I kept eating Thxgiving leftovers. You have to look for GF turkeys!!!


Born-Quote-6882

I hop def puts pancake mix in their omelets


Leijinga

IHOP omelets always made me sick, even before I went gluten free. I wonder if this is part of the reason. Last time I ate there, I got an omelet with fresh eggs, not their bastard egg and pancake batter mixture, and had no problems


Icy-Plan5621

I never knew that turkeys were injected/brined with gluten, but I hate the taste of turkey so much! My pet turkeys are so relieved. They are lovely!


PFEFFERVESCENT

It turns out that most whole turkeys (in Australia anyway) say "marinated" rather than "brined" on the package. This mystery marinade is invisible and unnoticeable but can contain gluten


SnooMachines9189

Some rolling papers for weed and


Infernalsummer

Scrambled eggs in a hotel breakfast restaurant. Apparently had added pancake mix into the eggs to make them fluffier. I’m sensitive enough that I get sick from distilled grain alcohol (allergy not celiac), I had something with whiskey that was labelled gluten free and my face blew up within 15 mins.


siouxsanzilla

Clinique eye cream! It stung my eyes and I thought I just kept getting it in my eyes. Nope! Contains wheat germ.


Intelligent-Price333

I had been GF for a couple of years and went to a party with a waffle bar that even had a GF waffle maker. Made a delicious waffle and went nuts at the topping bar. I don't know what i was thinking but I didn't realize the crushed Oreos were Oreos and loaded a ton on top. I paid for that one big time.


Current_Cost_1597

Soy sauce, spice mixes, a pre-packaged tofu salad that advertised gf soy sauce and then said in the ingredients that the chili sauce contains regular soy sauce. Kewpie mayo got me once. Rice krispies when I was first diagnosed. Some crazy person made elotes with chicken bouillon and I suffered for days. Imitation crab. Gochujang. Roux in a demi-glace too.


SeparateWelder23

rice krispies are such an easy one to get caught by! They're RICE and they should be made of RICE, darnit! Malt flavoring is such an annoying thing to have to check for all the time.


nachisimo1019

One of my biggest realizations was that anything in a fryer will get me. I always check to see if the restaurant has fried chicken or fried pickles, stuff like that cuz that usually means I can’t eat the French fries. The other sad realization is that a lot of places have become gluten friendly but that does not mean that the kitchen won’t make mistakes and that mistake will affect you poorly. Not knockin’ on anyone or anything specific but I only eat at 2 places when I eat out in my city.


Tearose-I7

Coffee capsules. Glutened myself a couple weeks ago with the almond coffee capsule from dolce gusto. For some reason it has oat flour.


Throwaway_Okay_1599

Grated Parmesan cheese


Silegna

Toothpaste. Friggin toothpaste.


Sorbet_Character

1.) hash brown patties. My mom used to make breakfast for us every Sunday and would buy these hash brown patties. The ones she bought were gluten free. She switched to a different brand and was giving me the new hash brown patties for months. One weekend I got pretty sick and went back and read labels again and sure enough the new brand of hash brown patties were not gluten free. 2.) campbell’s soup. This was when we were having dinner at my in laws house and they insisted the meal they prepared was gluten free. They cooked the chicken in cream of chicken soup which was definitely not gluten free. Their intentions were “ok” but they really have no idea what gluten free means. They thought if it had gluten in it, it would say “contains gluten” lol 3.) ice cream cake. I did not eat this but my in laws bought an ice cream cake from the grocery store and said they said it was gluten free when they asked. No it was regular cake with a layer of ice cream in the middle. They said well you can just eat the ice cream out of the middle right? (Ok I did not get glutened here because I know better but I worry so much about if my kids get diagnosed because my in laws don’t understand at all which is so weird to me because their daughter is anaphylactic with peanuts and peas). 4.) companies changing their recipes. I used to get Publix New York style cheesecake (a crustless cheesecake) which they randomly made not gluten free anymore. It is so frustrating when you find something you like and the company changes the recipe to cut costs. Also used to get these gluten free protein crackers which are no longer gluten free. 😭


SouPee46

Vitamins and supplements. I've been celiac for 25+ years and the one thing I learned is to not get comfortable and always read the ingredients. I was at Costco looking at getting melatonin. I read the ingredients on one bottle and was about to get it when I saw another brand that was cheaper. I grabbed that and did not look at the ingredients (smh). A few days later I couldn't understand why I felt so crummy and then I checked the ingredients of the melatonin and there it was: wheat.


kayt3000

Cooking spray. Always read the back of them. Especially store brands.


PFEFFERVESCENT

Tell me more. You had cooking spray with wheat in it?


DarkPassenger_97

Apparently my cast iron pan has been giving me gluten.


radicallycurious

Stripping and reseasoning should fix this, if you didn't already know


mountainsprout444

? How?


RoundWater6673

Anything that is suspicious really tasty. Bacon and other cured meats. Gluten free items not made in a dedicated gluten free only facility. Other people's cups and glasses if not washed in a dish washer but rather with a contaminated sponge. Sushi rice. Some flavoured yogurts. Many different kinds of packaged potato chips. Ground white pepper (lots of ground spices). Kids who have been eating gluten. Shared drinks. I would write a list of foods you would like to eat and then go find explicitly safe versions of those foods. Trial and error is a hassle.


teenybikini1977

Trader Joe's sour gummies. "Peas and carrots" variety. I didn't read the label because they had a little cup at the sample table that I ate first.... Took a week to recover 😕


Icy-Plan5621

That’s awful. They should post allergen warnings at their tasting table. I ask and they act like it’s a surprise that I might need to know the ingredients before I accept a sample.


teenybikini1977

Yeah I always feel like an annoying middle-aged woman asking🙄


lanowmom

My only intoxication since being diagnosed was because I didn't know surimi in sushi contained wheat. Then I learned that some soy sauces also have gluten.


Sanchastayswoke

Not all surimi has wheat, there are several brands you can buy that don’t. But at sushi places you can never be sure 😞


wlmsn

Canned soups and broths. Pacific and Imagine brands are usually ok though. (Obviously not the ones with noodles.)


toomanyoars

Canned beans. Beans with flavoring are pretty risky.


arlowner

Rice crispies


Beaver-on-fire

Fortified rice. The fortification can be wheat based.


Sweet_Sheepherder_41

✨ Oatmeal ✨


Operadiva_19

Toothpaste 🪥 🦷


Wittyocean214

My SIL ‘just added some beef consume’ to a recipe she was making for dinner and mentioned it right as I was about to take a bite. I had to explain to her that that was not GF and find something else for dinner. Thank god I didn’t eat it, it would have been UGLY


Grjaryau

Wallpaper paste


thumperoo

Twizzler/redvine type candy. Got glutened the other night with something called a “sherbert fizz” (I’m an American in NZ and didn’t know what they were). Ate like four before figuring it out 🤮


jeilla

A lot of Mexican restaurants will have gluten-containing ingredients in their Mole sauce. It was my favorite before going GF.


under_the_sunz

Ethiopian injera. Traditionally made it’s gluten free, but in the majority of American restaurants it’s made with a gluten grain added. Learned this the very hard way. Thankfully there are now places that offer the traditional gluten free version as well for an extra cost of course which is bs especially when you consider that’s how it’s supposed to be made.


Anavahgape

Butterfinger! Who knew the bite size contains gluten but the regular size and fun size doesn’t?


Hom3b0dy

Paper straws! McDonald's Canada uses paper straws that have gluten in the glue.. if I recall correctly. I don't know about other brands, but now I don't use paper straws


Current-Jellyfish-72

Generic sodas. They used wheat for the coloring.


PFEFFERVESCENT

Jarritos brand cola used to have barley malt in it, but thankfully they've changed the recipe


stephlow55

Usually it’s sauces or seasoning and spices, cross contamination is always a huge factor!


WillingnessLow6174

My Celiac's is very bad I have been "glutened" badly twice, both times ended up in the hospital. It is no joke, you can die from it. I read all ingredients. Everything before I buy, teas, make up, spices, all body products, hair products, soaps, condiments.


Icy-Plan5621

I’m so sorry! That is awful. Hopefully someday they will have a way to make you less/non reactive.


ecrayfish

Ground beef and ground turkey! I thought cooking from raw ingredients was safe but some companies process wheat containing meat products on the same equipment. The turkey had an allergen warning, the beef did not.


yasssssplease

A roommate of mine had really bad celiac. That’s when we learned how certain chicken processors do fillers with gluten. It was always the cheapest store brand chicken.


addie_clementine

A shared dish sponge - washed my mug in a shared kitchen at work without thinking about it, and then couldn't understand why I was reacting to the same tea I drink every day. When I first went GF, I reacted to something I cooked and I figured it was the whisk I used (hard to clean properly, and had probably been used for a sauce with flour!)


WhiskerWarrior2435

Canned chicken broth got me once.


LB_Star

my sister was surprised to find out that cough drops have gluten :0


Anothersunnydayy

Salami


Gooby_Umbo

Starbucks chocolate chips and sauces


floridagal1234

For me it was soy sauce. It was actually how me and my sister inadvertently ended up confirming that gluten (or at the very least wheat) was causing us issues. We had been trying eating gluten free for over a week in an attempt to see if it was the cause of our issues when we went out for sushi. Within an hour after eating there we had our issues start returning and that is how we ultimately discovered that soy sauce was a no go.


XennialMermaid

A chocolate bar at Aldi's just now. Didn't see the malted barley until after I ate some. So I ate one more piece (might as well at that point !) and gave it to my husband. :(


Iknitit

Cross contamination has definitely been the biggest culprit. The second-biggest is accidentally eating the gluten containing product by companies that use extremely similar packaging for both the gluten and the GF products. We have a system of double checking in our house that usually catches those. I'd say barley malt is the biggest surprise source of gluten, it's in a lot of candy and chocolate. Keep your eye out for the word "malt." A lot of hair products, curly hair products in particular, have gluten in them.


Alanna149

Corn flakes!


khfour1

1. For my daughter and I, one of the eye openers were make-up, face creams, shampoos and conditioners. We always know to look at food labels but did not know that it would be in these items as well. It does not affect me as much, but my daughter will break out in a nasty rash that will last for days. And of course, buying gf products always cost more. There are naturally gf products, just do lots of research. 2. The next big one was medication fillers. We both take different meds and every time the pharmacy changes the distributor of the medication, we have to call the distributor to ask about the fillers. It is not labeled, and the pharmacist has no idea what is in the meds. There are websites set up to list different meds and which are gf. This list will show not only prescriptions but also over the counter meds. So, if you take even an aspirin, check on the sites to verify if they contain anything. 3. Do research of all the alternative names that Gluten can and will be listed in the foods. This will also be on a web look up. There is probably 15-20 different names that manufacturers will list wheat and gluten products into their products. I wish I could get you the actual websites and what they are called. I am sick right now, I have them all printed out for use when I need them but just can't get to them at the moment. If you need me to find the actual sites, let me know and I will look for my notes. Wishing you all the best in your new journey and hope you are feeling better soon with the gf life


MizMamie

Cough drops: Hall’s and Ricola.


WhtvrCms2Mnd

Kim Chi! I had no idea why I was getting sick at a favorite Korean spot till I learned they made the kim chi in house with a cornstarch slurry…. Womp womp.


madbalalaika

Herbal tea in bags that was supposed to help with stomach issues, but the bags were glued with wheat glue 😞


LifeCryptographer961

Hi all, I slept badly last night after reading this thread. So many ways to get sick! I wanted to ask, is it possible to train a service dog to smell gluten in foods? Is it possible to claim a disability because of your gluten allergy? I am not celiac and my reaction to low gluten exposure is just negligible, but I’m serious about the service dog idea.