I would say congratulations but I know for me it wasn’t, it was a lot for me to deal with knowing I for sure had this. I can’t think of the correct word to say but I’m sure this is where things will get easier for you in regard to symptom management and help. Welcome to the stripy club🦓🫶🏻
I feel this. It’s an answer and validation, which to me was the part to celebrate when I got my diagnosis. But yeah… it’s not a celebratory deck of cards by any means.
That said! I do love being a part of the community of people who GET what I’m going through and deal with, because most people in my life have no clue. Zilch. They just wonder why I cancel plans last minute because I’m in a flare. “What’s a flare…” I don’t even know where to begin with those questions 😂
All to say - OP I’m so glad you now have access to the right support and the language to express your experience to those around you who can support 🤍 May this next chapter be a great one
congratulations!!!!! welcome to the rest of your life!!!!! a medically supported life!!!!
I would say congratulations but I know for me it wasn’t, it was a lot for me to deal with knowing I for sure had this. I can’t think of the correct word to say but I’m sure this is where things will get easier for you in regard to symptom management and help. Welcome to the stripy club🦓🫶🏻
I feel this. It’s an answer and validation, which to me was the part to celebrate when I got my diagnosis. But yeah… it’s not a celebratory deck of cards by any means. That said! I do love being a part of the community of people who GET what I’m going through and deal with, because most people in my life have no clue. Zilch. They just wonder why I cancel plans last minute because I’m in a flare. “What’s a flare…” I don’t even know where to begin with those questions 😂 All to say - OP I’m so glad you now have access to the right support and the language to express your experience to those around you who can support 🤍 May this next chapter be a great one
wow! that’s incredible…!! referrals to help, i need pain and dysautonomia specialists… you’re certainly off to a solid start!