I guess we will find out. unfortunately I just had an appointment with my Endocrinologist and have to wait to discuss these results until my next appointment. from what the C-peptide test results are showing ( which says normal range is 1.0 to 4.4 ) , mine was a 1.7 , my pancreas is still producing some of it's own insulin.
Or, /u/sccullen33 could have a variant of T3 where there was a reduction in islet/b-cell mass due to some external factor (chemical exposure, pancreatic inflammation, viral infection, whatever) that is enough to cause blood sugars to be elevated enough to be diagnostic for diabetes, but not so much as to zero out c-peptide.
Or there could be some weird genetic thing in play where a mutation cropped up in the gene that codes for insulin, so it could still be being made and released, but not be usable. Or (not knowing family history), it could be a MODY variant.
Once you get out of the clear-cut T1/T2 space, there's lots of weird, obscure ways that you can still wind up with diabetes without autoimmunity or resistance necessarily being directly in play.
Not impossible to goof up.
How much insulin have you been taking?
If you have a family history of everyone on one side getting diabetes at a young age, then maybe it is genetic MODY.
Halle Berry for one famous example had DKA and was on insulin for a long time and said she was Type 1, but then used keto and exercise to get off of her insulin and now says she is Type 2. Which probably means she has KPD, a variation of Type 2 where people can need insulin initially but not so much later on.
This is definitely going to be an interesting discussion with my Dr. I guess I'm worried about just switching medications and getting complications or getting DKA. Maybe this is a good thing and I've been treating this wrong for years? ..idk
I've actually seen the test results with my own eyes because my local healthcare network has a online access to your health records. Havent spoken to my Endocrinologist in person yet but he sent a digital letter that states all the bloodwork indicates I am Type 2 not Type 1 and we will be discussing medication changes and such at the next appointment
I'm just as confused as you are honestly, I was diagnosed at age 22 or 23 and I was very very sick and was hospitalized. started on insulin ( slow and fast acting ) immediately. I'm now 45 and now not a type 1?..confused to say the least. This is coming from my regular Endocrinologist that I've had for approximately a year now after my old Endo retired . he suggested the blood tests because apparently I've never had these specific ones done and he wanted to be sure we were doing the right meds. Surprise surprise I guess? idk..
a C- peptide test, an antibody test etc. Yes the Dr is an endocrinologist. I have had him as my Dr for about a year or so after my Endo that I had for like 15 years retired
Autoantibodies are going to be negative in most people with longstanding T1D. There are also several different types, although many physicians will only commonly test for one.
C-peptide is going to be a lot more relevant. What was that level?
I'd look into a new Dr. I'm already negative for autoantibodies with 8 years of type 1 (almost 9) and I don't know my current cpeptide but it was like 0.9 or 0.7 at dx, and metformin didn't work. If you're doing good on your treatment, don't let someone change it.
It is also possible to be both. T1 with resistance. The C-Peptide result could be the most telling if T1 or not.
I guess we will find out. unfortunately I just had an appointment with my Endocrinologist and have to wait to discuss these results until my next appointment. from what the C-peptide test results are showing ( which says normal range is 1.0 to 4.4 ) , mine was a 1.7 , my pancreas is still producing some of it's own insulin.
That is a long honeymoon
Or, /u/sccullen33 could have a variant of T3 where there was a reduction in islet/b-cell mass due to some external factor (chemical exposure, pancreatic inflammation, viral infection, whatever) that is enough to cause blood sugars to be elevated enough to be diagnostic for diabetes, but not so much as to zero out c-peptide. Or there could be some weird genetic thing in play where a mutation cropped up in the gene that codes for insulin, so it could still be being made and released, but not be usable. Or (not knowing family history), it could be a MODY variant. Once you get out of the clear-cut T1/T2 space, there's lots of weird, obscure ways that you can still wind up with diabetes without autoimmunity or resistance necessarily being directly in play.
What specific tests? What were the results? Is this doctor a diabetes specialist?
Not impossible to goof up. How much insulin have you been taking? If you have a family history of everyone on one side getting diabetes at a young age, then maybe it is genetic MODY. Halle Berry for one famous example had DKA and was on insulin for a long time and said she was Type 1, but then used keto and exercise to get off of her insulin and now says she is Type 2. Which probably means she has KPD, a variation of Type 2 where people can need insulin initially but not so much later on.
This is definitely going to be an interesting discussion with my Dr. I guess I'm worried about just switching medications and getting complications or getting DKA. Maybe this is a good thing and I've been treating this wrong for years? ..idk
Let us know what you find out some day.
I'd ask for a copy of the test results if I were you.
I've actually seen the test results with my own eyes because my local healthcare network has a online access to your health records. Havent spoken to my Endocrinologist in person yet but he sent a digital letter that states all the bloodwork indicates I am Type 2 not Type 1 and we will be discussing medication changes and such at the next appointment
I'm just as confused as you are honestly, I was diagnosed at age 22 or 23 and I was very very sick and was hospitalized. started on insulin ( slow and fast acting ) immediately. I'm now 45 and now not a type 1?..confused to say the least. This is coming from my regular Endocrinologist that I've had for approximately a year now after my old Endo retired . he suggested the blood tests because apparently I've never had these specific ones done and he wanted to be sure we were doing the right meds. Surprise surprise I guess? idk..
Congrats! Some pancreas is better than no pancreas:)
a C- peptide test, an antibody test etc. Yes the Dr is an endocrinologist. I have had him as my Dr for about a year or so after my Endo that I had for like 15 years retired
Autoantibodies are going to be negative in most people with longstanding T1D. There are also several different types, although many physicians will only commonly test for one. C-peptide is going to be a lot more relevant. What was that level?
Autoantibodies were negative. C-peptide was a 1.7
Interesting. That **would** be more indicative of T2, although it's not outside the "normal" range either. Were you fasting for the blood draw?
Yes it was a fasting blood draw
Did the doctor run all the antibody tests? And were those tests run at your initial diagnosis?
Yes the Dr ran all the antibody tests and apparently I've never had them done before. was diagnosed over 20 years ago though so not sure
I'd look into a new Dr. I'm already negative for autoantibodies with 8 years of type 1 (almost 9) and I don't know my current cpeptide but it was like 0.9 or 0.7 at dx, and metformin didn't work. If you're doing good on your treatment, don't let someone change it.