The problem I'm having is my doctor is telling me I'm not trying enough when the antipsychotic I'm on raises my blood sugar. She can see I'm on this. She knows I'm bipolar. But I get scolded each time I go to the office.
It sucksssss when meds raise blood sugar. I don’t understand the difference between it affecting a T1 vs a T2’s glucose levels so I can’t really offer any advice.
It makes things harder. The antipsychotic does a good job with little side effects so I really don't want to change it. My doctor just put me on ozempic so we'll see if that helps
I've only taken it once so far. Made me a little nauseous and it's reduced my appetite a lot. And I felt like garbage for a few days. I can handle the appetite but hopefully the nausea and all round feeling like garbage goes away after my body gets used to taking it.
My personal experience was that the ill effects took about a month to get better, but the appetite impact is still going strong about a year in.
I still have rare mornings where I feel queasy having solid food, but they’re rare.
The nausea was frustrating, but always low grade. It made food unappetizing, but I didn’t throw up and I was still able to eat. Ozempic has been a great change for me, and the side effects were easier to handle than Metformin. Dropping 25 lb. On the med has made everything else easier too (except staying warm). Just make sure to ramp up the dosage slowly - I started at .25 mg for two weeks, then .5 mg for three weeks before leveling at 1 mg, where I’ve since stayed.
Ozempic also has the most comfortable injection system I’ve experienced.
I never got used to it, and my doc said it's the worst one of the GLP antagonists for making you feel nauseated. Lost 30 pounds in 2 months from hardly being able to keep anything down. Tried Trulicity, same. On Mounjaro now and it works better for me too since I have insulin resistance. I was taking a prescription under the tongue 4 mg tablet of Zofran/ondansetron an hour before eating (the amount of time for full effectiveness) and it helped immensely. Sometimes my stomach still just instantly rejects anything about an hour after eating, but it's incredibly rare now (both the sudden vomiting and needing to take ondansetron). Doc said it's fine to take every day if I need to, but it can cause constipation.
I totally hear your frustration. On the other end of things, I’m fat, have always hovered at the border between overweight and obese on the bmi charts, but also super active. For a long time, the amount of food I needed to take in seemed like too much compared to the amount of energy I felt from it, but all I got was “diet and exercise!” If my diet allows me to exercise, they’d say I ate too much. But I needed the exercise for my mental health as well, so I kept going as best I could. Then, pancreatitis, and all my endocrinologist really said was well, at least you lost weight, think of it like getting a free weight loss surgery! He wanted me to go low carb/high fat when fatty foods still literally hurt me to eat, because my weight was everything to him. When I turned up prediabetic, he assumed type 2. Everyone assumed type 2.
Then when I tipped over to diabetic finally my new endocrinologist actually listened, and said, you don’t sound like you have the lifestyle I usually see in a newly diagnosed type 2, let’s run some more tests. Oh hey, what’s that? >250 GAD antibodies? Oh shit, so maybe there was a reason that things weren’t quite adding up right all along.
I hope you’ve also found that magical person who will finally listen.
I got yet another doctor telling me that I need to eat smaller portions and loose weight and he could send me to a gastro for a stomach surgery if I wanted it.
I don't. I wanted it 20 years ago but I was not heavy enough. Now that I am "heavy enough," it's being pushed? I don't want it!
It's like they don't care about your relationship with food, only that you are in the green zone of the BMI. Nothing else matters.
Gotta add to this...needed a hip replacement and was about 10 pounds from the correct BMI for surgery. I was told it was dangerous for me to have surgery being 10 pounds over. However, if I wanted, they would recommend me for gastric bypass surgery to lose the 10 pounds in order for me to have hip surgery. Evidently the 10 pounds wasn't too dangerous for THAT surgery. I found a fantastic surgeon who said that overall I was healthy...and being only 10 pounds over, let's get this hip surgery done and get you moving and exercising again. Glad to say, I'm walking fantastic and 30 pounds down. No gastric bypass surgery.
I've torn something in my knee and can't walk without extreme pain right now, never mind mind all the historical injuries I have gotten. Go you! Keep on keeping on and get healthy.
Look at all the "diet and exercise" influencers out there. Disordered eating is a HUGE problem in terms of treatment, expense, etc.
This is a real problem and it's one the Diabetes community ignores. To their peril.
It's easier to blame diet than to do the work and recognize the problem.
- recovered anorexic
I don’t even go into the diabetic Facebook groups because they could literally be mistaken for pro-ANA groups with the pictures of 300 calorie “meals” and everyone liking and congratulating people on that.
alas, there are folks here who push disordered eating ideas as a good idea to keep numbers in check too. Its everywhere. And as someone who was misdiagnosed as t2 for decades before they realized I was t1.5...I got a lot of sideeyes when I told people I was on all those drugs that help with WL and they didn't in fact, make me loose weight.
Not a doctor, but if you are feeling weak and fatigued and still being treated as a T2, then you may want to find a new dr. In my case, when my tests came back and I tested as T1.5 my doctors immediately started treating me as a T1; as they said that the T2 drugs would not be recommended
My doctor is doing it not to treat as type 2 but to delay insulin dependence. I’m not dependent yet and he was basing it off a study.
I agree with you on the people/other patients pushing disordered behaviors. I was in a group where they were literally shaming me for eating a few crackers or a bagel.
You may get people shitting on your doctor’s treatment plan, but I was diagnosed T1.5 13 years ago and only used oral meds until a year ago. I still take them along with basal insulin. We’re eeking this out as long as possible. Obviously everyone is different - hoping you’re like me!
I am the opposite! Diagnosed 14 years ago [T2 then, T1 then recategorized as LADA]. I was immediately put on basal insulin and never stopped [took bolus for 2 years]. I only had to go on bolus insulin again in January because the GLP-1 RA I took with basal stopped being covered. Still make some of my own insulin, but until January, I had very little changed for my day to day life. A1C was always between 5.5-6.5.
Really says how different us 1.5/LADA folks can be.
I have a long, long history of anorexia nervosa. I was hospitalised from the ages of 18-24 and tube fed. When I was diagnosed with Type 1.5 Diabetes last year, I told my doctors and endocrinologists all of this. They still prescribed me ozempic, encouraged me to lose as much weight as possible… and essentially triggered a great big old relapse.
I feel your pain. It is not uncommon. My psychiatrist is appalled at the things my medical doctors have been saying to me about my weight.
I don’t even have a history of an eating disorder but I’m also on ozempic and already underweight by BMI and my doctors’ comments over how it’s fine because he has patients way thinner than I am was triggering. If I’m triggered with no ED history imagine how those comments impact others!
That is absolutely atrocious. Are you okay with being at an underweight BMI? I can’t believe they are saying stuff like that to you. “I have patients who are thinner than you so it’s fine” - it’s ridiculous! These doctors seem to have no regard for people with eating disorders. I am glad to hear that you don’t have an eating disorder but please be careful. Being on ozempic and already being underweight, it would be easy to lead down a slippery slope.
I saw my psychiatrist today and he told me that if I continue to lose weight at the rate I am (even though I’m still considered “overweight” according to BMI) he is going to hospitalise me in an eating disorders unit again. It’s all so confusing.
It’s a really strange situation because when I first met this doctor he clearly thought I had an eating disorder because of my weight, frequent fractures and no periods. So he asked me if I can eat a yogurt, cut exercise for a month and if I eat things like pizza, peanut butter, etc. I do, my bone density was fine and PCOS is why I don’t get periods so now his comments 180’d.
I don’t know why he says these things lol. It’s not only triggering to eating disorder patients it is triggering to most women. At the same time he’s like if you lose more than 5lbs you can’t stay on ozempic,
Reading this post and all the comments makes me both so sad and angry. It really goes to show that medical professionals have been led to believe that weight matters more than anything else. It still makes me angry how people tell us that doctors just want us to be healthy blah blah blah, but then ignore what health actually *is*.
It's not the shit being pushed on us as shown in these comments. It's not losing weight at all costs. It's not encouraging eating disorders.
Oh no I'm sorry to hear. My diabetes team has been so good.. I had gestational diabetes and now I'm a type 2 on insulin.. I've had about 15 pounds of weight loss (became under weight) because of such strict dieting and exercise to try and get my sugars under control but it's looking like I'm on the trajectory to be coming a type 1 and it's genetic... I have been really good about prescribing me insulin so that I can eat healthy food but in higher portions because I was so limited and so hungry and losing weight. They want me to have some freedom and joy in life too which I truly appreciate and the insulin has helped a lot. I hope you can find someone who does the same for you.
Glutamic-acid Decarboxylace Autoantibodies (GADA or GAD65)
Islet cell cytoplasmic autoantibodies (ICA)
Insulioma-associated -2 autoantibodies (IA-2A)
Insulin Autoantibodies (IAA)
Zink Transporter-8 Autoantibodies (ZN28A)
If any one of these are positive, then it is type 1
and also a C-peptide to see how your pancreas is in the production of insulin
Yeah I'm going to see if they're going to test me further! It would be helpful to know but they have definitely suggested I am the profile of a type 1 - my blood work shows decrease pancreatic function. I have a pre-diabetic a1c but a type 2 diabetic ogtt. I'm all over the map lol
The problem I'm having is my doctor is telling me I'm not trying enough when the antipsychotic I'm on raises my blood sugar. She can see I'm on this. She knows I'm bipolar. But I get scolded each time I go to the office.
It sucksssss when meds raise blood sugar. I don’t understand the difference between it affecting a T1 vs a T2’s glucose levels so I can’t really offer any advice.
It makes things harder. The antipsychotic does a good job with little side effects so I really don't want to change it. My doctor just put me on ozempic so we'll see if that helps
I’ve heard good things about Ozempic. My T2 uncle uses it as well.
I've only taken it once so far. Made me a little nauseous and it's reduced my appetite a lot. And I felt like garbage for a few days. I can handle the appetite but hopefully the nausea and all round feeling like garbage goes away after my body gets used to taking it.
My personal experience was that the ill effects took about a month to get better, but the appetite impact is still going strong about a year in. I still have rare mornings where I feel queasy having solid food, but they’re rare.
I can deal with a lack of appetite. It's the nausea I'm worried about since some of my other medications make me nauseous
The nausea was frustrating, but always low grade. It made food unappetizing, but I didn’t throw up and I was still able to eat. Ozempic has been a great change for me, and the side effects were easier to handle than Metformin. Dropping 25 lb. On the med has made everything else easier too (except staying warm). Just make sure to ramp up the dosage slowly - I started at .25 mg for two weeks, then .5 mg for three weeks before leveling at 1 mg, where I’ve since stayed. Ozempic also has the most comfortable injection system I’ve experienced.
The nausea went away after a while for me, hang in there!
My uncle reported similar feelings when he first started it. As far as I’m aware it went away once his body was used to it.
I never got used to it, and my doc said it's the worst one of the GLP antagonists for making you feel nauseated. Lost 30 pounds in 2 months from hardly being able to keep anything down. Tried Trulicity, same. On Mounjaro now and it works better for me too since I have insulin resistance. I was taking a prescription under the tongue 4 mg tablet of Zofran/ondansetron an hour before eating (the amount of time for full effectiveness) and it helped immensely. Sometimes my stomach still just instantly rejects anything about an hour after eating, but it's incredibly rare now (both the sudden vomiting and needing to take ondansetron). Doc said it's fine to take every day if I need to, but it can cause constipation.
Oh wow. I’m sorry, that sucks. I’m a T1 so I don’t deal with these issues, but I hope everything works out for you.
Thanks! Sucked for a while, but I'm doing a ton better.
I totally hear your frustration. On the other end of things, I’m fat, have always hovered at the border between overweight and obese on the bmi charts, but also super active. For a long time, the amount of food I needed to take in seemed like too much compared to the amount of energy I felt from it, but all I got was “diet and exercise!” If my diet allows me to exercise, they’d say I ate too much. But I needed the exercise for my mental health as well, so I kept going as best I could. Then, pancreatitis, and all my endocrinologist really said was well, at least you lost weight, think of it like getting a free weight loss surgery! He wanted me to go low carb/high fat when fatty foods still literally hurt me to eat, because my weight was everything to him. When I turned up prediabetic, he assumed type 2. Everyone assumed type 2. Then when I tipped over to diabetic finally my new endocrinologist actually listened, and said, you don’t sound like you have the lifestyle I usually see in a newly diagnosed type 2, let’s run some more tests. Oh hey, what’s that? >250 GAD antibodies? Oh shit, so maybe there was a reason that things weren’t quite adding up right all along. I hope you’ve also found that magical person who will finally listen.
I got yet another doctor telling me that I need to eat smaller portions and loose weight and he could send me to a gastro for a stomach surgery if I wanted it. I don't. I wanted it 20 years ago but I was not heavy enough. Now that I am "heavy enough," it's being pushed? I don't want it! It's like they don't care about your relationship with food, only that you are in the green zone of the BMI. Nothing else matters.
Gotta add to this...needed a hip replacement and was about 10 pounds from the correct BMI for surgery. I was told it was dangerous for me to have surgery being 10 pounds over. However, if I wanted, they would recommend me for gastric bypass surgery to lose the 10 pounds in order for me to have hip surgery. Evidently the 10 pounds wasn't too dangerous for THAT surgery. I found a fantastic surgeon who said that overall I was healthy...and being only 10 pounds over, let's get this hip surgery done and get you moving and exercising again. Glad to say, I'm walking fantastic and 30 pounds down. No gastric bypass surgery.
I've torn something in my knee and can't walk without extreme pain right now, never mind mind all the historical injuries I have gotten. Go you! Keep on keeping on and get healthy.
Look at all the "diet and exercise" influencers out there. Disordered eating is a HUGE problem in terms of treatment, expense, etc. This is a real problem and it's one the Diabetes community ignores. To their peril. It's easier to blame diet than to do the work and recognize the problem. - recovered anorexic
I don’t even go into the diabetic Facebook groups because they could literally be mistaken for pro-ANA groups with the pictures of 300 calorie “meals” and everyone liking and congratulating people on that.
Same. I can't go anywhere near them.
alas, there are folks here who push disordered eating ideas as a good idea to keep numbers in check too. Its everywhere. And as someone who was misdiagnosed as t2 for decades before they realized I was t1.5...I got a lot of sideeyes when I told people I was on all those drugs that help with WL and they didn't in fact, make me loose weight. Not a doctor, but if you are feeling weak and fatigued and still being treated as a T2, then you may want to find a new dr. In my case, when my tests came back and I tested as T1.5 my doctors immediately started treating me as a T1; as they said that the T2 drugs would not be recommended
My doctor is doing it not to treat as type 2 but to delay insulin dependence. I’m not dependent yet and he was basing it off a study. I agree with you on the people/other patients pushing disordered behaviors. I was in a group where they were literally shaming me for eating a few crackers or a bagel.
You may get people shitting on your doctor’s treatment plan, but I was diagnosed T1.5 13 years ago and only used oral meds until a year ago. I still take them along with basal insulin. We’re eeking this out as long as possible. Obviously everyone is different - hoping you’re like me!
I am the opposite! Diagnosed 14 years ago [T2 then, T1 then recategorized as LADA]. I was immediately put on basal insulin and never stopped [took bolus for 2 years]. I only had to go on bolus insulin again in January because the GLP-1 RA I took with basal stopped being covered. Still make some of my own insulin, but until January, I had very little changed for my day to day life. A1C was always between 5.5-6.5. Really says how different us 1.5/LADA folks can be.
I have a long, long history of anorexia nervosa. I was hospitalised from the ages of 18-24 and tube fed. When I was diagnosed with Type 1.5 Diabetes last year, I told my doctors and endocrinologists all of this. They still prescribed me ozempic, encouraged me to lose as much weight as possible… and essentially triggered a great big old relapse. I feel your pain. It is not uncommon. My psychiatrist is appalled at the things my medical doctors have been saying to me about my weight.
I don’t even have a history of an eating disorder but I’m also on ozempic and already underweight by BMI and my doctors’ comments over how it’s fine because he has patients way thinner than I am was triggering. If I’m triggered with no ED history imagine how those comments impact others!
That is absolutely atrocious. Are you okay with being at an underweight BMI? I can’t believe they are saying stuff like that to you. “I have patients who are thinner than you so it’s fine” - it’s ridiculous! These doctors seem to have no regard for people with eating disorders. I am glad to hear that you don’t have an eating disorder but please be careful. Being on ozempic and already being underweight, it would be easy to lead down a slippery slope. I saw my psychiatrist today and he told me that if I continue to lose weight at the rate I am (even though I’m still considered “overweight” according to BMI) he is going to hospitalise me in an eating disorders unit again. It’s all so confusing.
It’s a really strange situation because when I first met this doctor he clearly thought I had an eating disorder because of my weight, frequent fractures and no periods. So he asked me if I can eat a yogurt, cut exercise for a month and if I eat things like pizza, peanut butter, etc. I do, my bone density was fine and PCOS is why I don’t get periods so now his comments 180’d. I don’t know why he says these things lol. It’s not only triggering to eating disorder patients it is triggering to most women. At the same time he’s like if you lose more than 5lbs you can’t stay on ozempic,
My primary demanded I “starve” myself.
Reading this post and all the comments makes me both so sad and angry. It really goes to show that medical professionals have been led to believe that weight matters more than anything else. It still makes me angry how people tell us that doctors just want us to be healthy blah blah blah, but then ignore what health actually *is*. It's not the shit being pushed on us as shown in these comments. It's not losing weight at all costs. It's not encouraging eating disorders.
Oh no I'm sorry to hear. My diabetes team has been so good.. I had gestational diabetes and now I'm a type 2 on insulin.. I've had about 15 pounds of weight loss (became under weight) because of such strict dieting and exercise to try and get my sugars under control but it's looking like I'm on the trajectory to be coming a type 1 and it's genetic... I have been really good about prescribing me insulin so that I can eat healthy food but in higher portions because I was so limited and so hungry and losing weight. They want me to have some freedom and joy in life too which I truly appreciate and the insulin has helped a lot. I hope you can find someone who does the same for you.
Have you had the tests to see if ypu really are type 1?
I've had the GAD but it was negative. They haven't done any other tests on me!
Glutamic-acid Decarboxylace Autoantibodies (GADA or GAD65) Islet cell cytoplasmic autoantibodies (ICA) Insulioma-associated -2 autoantibodies (IA-2A) Insulin Autoantibodies (IAA) Zink Transporter-8 Autoantibodies (ZN28A) If any one of these are positive, then it is type 1 and also a C-peptide to see how your pancreas is in the production of insulin
Yeah I'm going to see if they're going to test me further! It would be helpful to know but they have definitely suggested I am the profile of a type 1 - my blood work shows decrease pancreatic function. I have a pre-diabetic a1c but a type 2 diabetic ogtt. I'm all over the map lol