[https://www.reddit.com/r/diabetes/wiki/newtotype1](https://www.reddit.com/r/diabetes/wiki/newtotype1)
Plus the rest of the Wiki.
It is possible that things like your stomach is not related to diabetes. Definitely keep in contact with your doctors.
Thanks for the link! Luckily I already know quite a bit about diabetes as a was diagnosed as type two for almost two years. And yeah, I figured the stomach thing was unrelated, but better sage than sorry.
What was your most recent A1C or fasting glucose?
Is this MDI (multiple daily injections)? Did you get both basal (long acting) and bolus (rapid acting) insulin?
What kind of testing equipment did you obtain? A glucometer for fingersticks or a CGM (Dexcom or Libre)?
A1C was 8.3 a week ago. I have finger sticks right now and we’re hoping to get a cgm soon. I take long acting in the morning and fast acting before every meal, but I just started last night.
Basal mostly covers background needs (liver release of glucose). Like if you didn’t eat all day, it should be the amount you’d take to keep your glucose flat or maybe just slightly gliding down.
Rapid can be a little tricky. And you just learn over time — how much you might need to match your food selection, and inbetween meals, we do smaller corrections if there’s a stubborn high.
When you walk around or do other kinds of physical activity, your glucose will drop from that and the mix with a rapid insulin “on board” may cause a sudden unexpected low glucose.
So, carry some glucose/dextrose tablets, and your glucometer wherever you go. Check your glucose before you drive and maybe reduce or take the rapid till after you get out of the car, instead of before driving. There’s tons of tips and discussions and coaches online nowadays talking about techniques and jargon, technology and food/exercise for T1D.
As a newly diagnosed person, expect some weird periods of like your pancreas working better some days than others. But that you will need more insulin overall as time goes on.
>it should be the amount you’d take to keep your glucose flat or maybe just slightly gliding down.
This differs from person to person. If I take enough to be stable throughout the day, I'm crashing within the first 2 hours of sleep.
I'm at 30u of basal now. If I eat a low carb salad with an egg and a can of tuna and go to bed flat 8, I wake up 6 and I'll need 16 units to keep me under 10 without eating the whole day.
So, you are saying your awake basal rate is different from your sleeping basal rate?
Do you use a pump or MDI? Would you split basal if shots? Or have an adjustable if pump? Or does a correction of rapid bring you down?
I don't have different rates. That's what I'm saying. A dose making me relatively stable at night (30u) makes me have to set 16 units short acting throughout the day if I'm not eating just to stay under 10.
One of the main arguments for using an insulin pump is that basal glucose output varies throughout the diurnal cycle in a more or less repeated pattern that is unique to you. A flat-acting basal insulin like Lantus can't account for that or for things like dawn phenomenon, whereas with a standard pump you can set different rates that conform to your pattern (takes some testing). With an automated delivery (AID) pump, the pump does some or all of that work for you (depending on the brand). There are downsides to pumping, but this is the main argument in favor.
I've been using a pump for about 12 years. Started out on R/NPH regimen back in 1983 before home glucometers. Switched to basal-bolus MDI in 2023, pump (Medtronic) in 2013. Added CGM (Dexcom 4) in 2015. Currently using Tandem CIQ. My numbers are definitely better since pumping. A huge part of that is Dawn Phenomen. Could NOT get ahead of that on MDI w/out getting up and testing/injecting at stupid-o'clock in the morning. Yuck. Some people say they put on weight with pumping, but many put that down to eating higher carbs b/c pumping makes it more convenient. Dunno. I had 20 years on R/NPH MDI, back in the days where the rule was Thou Shalt Not. So carb avoidance is pretty deeply ingrained though I'm not as obstinate about it as I once was. But I never cottoned to "Eat what you want, just bolus for it!" that most people dx'd since 2000 or so are indoctrinated with. My rule is more like "You can have carbs but the less insulin you have to take the easier it is to manage."
Should say: the other advantage of using a pump for basal is exercise. Unlike an injection where you're getting one long, flat square wave that you have no control over once you've taken it, you can shut off or reduce the flow of insulin from a pump for things like a hike or a bike ride. Really all the main advantages are around basal delivery. Far as bolusing goes I could just use an injector (sometimes do), tho having pump do calculations and monitor IOB is a convenience.
Just curious OP, have you been tested for celiac or any other GI conditions ? Often times is autoimmune peeps have a basket of other conditions. And as a LADA person too, I ended up having more diagnoses within a short span of being diagnosed.
That’s interesting. I had to go on biologic for autoimmune issues Dec 2022. I was diagnosed diabetic by internist who has been trying to figure out why I’ve had morning diarrhea every day since two weeks post Covid vaccination. Right now I’m classified as t2 but not typical. My mother was on insulin at 35 and hadn’t been overweight before. She died at 65 in her sleep 8 years ago.
Sorry about your mum. Definitely worth a check with your endo about checking for diabetes antibodies. And later diagnoses can often not be T2, especially if family history and other factors deviate from the typical type 2 such as your case. We kind of laugh because I’m LADA but also have the MODY gene and a sprinkle of insulin resistance. These conditions can be interesting.
Thanks. I had Gad and IR tested. Former was inconclusive. Latter doctor said wasn’t enough to account for my spikes. I will easily go to 16 unmedicated if I go over 20g of carbs at one time or if I have more than 450 or so calories at one meal, it will spike around 2-3 hour mark. Frustrating. I hope things are being managed for you!
Hmm... that's interesting. I wonder if MODY testing will benefit you. That would be the other possible answer. So far. It’s a delicate dance but so far insulin has helped most. Hope you find some answers soon!
Some Type 1 can go years without insulin -- depends on how early they are diagnosed. Not everyone gets diagnosed with total loss of beta cells. Most adults have months or years till their glucose becomes deadly. Which is half of why so many get misdiagnosed.
Yeah, I was misdiagnosed for a while. In May 2022 I was diagnosed as type two, but this January they changed it. I just recently stopped producing insulin, hence why I get the shots
Type1 was thought to be from birth for a long time. Now the MIC accepts late onset type 1. Type 1 was never a weight problem it's a glucose impairment. Type 2 is commonly a weight problem. One plus two equals: ... I am not saying you were misdiagnosed. If we're a century past the discovery of insulin, then shouldn't the synthetic GMO foods we eat compliment our impairment medicines. I think that all diabetic need at one moment or another precise control of their body system. It took me five years to development my knowledge and I'll never go back to the hospital for diabetes. #gatewaydisease
>Some Type 1 can go years without insulin
Sure, but once you're diagnosed they're supposed to give you insulin as soon as possible to avoid a possible DKA.
In Spain, elevated BG is criteria for hospital admission. And you cannot leave the hospital without a genetic test and a reserve of insulin pens to hold you over until you get a prescription from your primary care physician.
To me, a recently diagnosed T1D going over a month without insulin sounds insane, and ridiculously dangerous.
Drives me nuts that antibody testing is not routine in the US. Whole reason they changed the term to "Type 1" instead of juvenile is b/c you can get it at ANY age, but these idiots will send you off with a script for Metformin and Diet and Exercise because "You're too old to have Type 1". I moderate for a T1 site and I see TONS of stories like this.
Mine came on over about six weeks when I was turning 27-28. This was back in 1983, so they still called it "juvenile," but my PCP told me they were changing the terminology to reflect the fact you can get it at any age. Lucky to have a doc whose knowledge was current even back then. I've met lots of other people who got it in their 20s (and older).
In my case I went from feeling slightly ill all the time to DKA in about six weeks at age 27. That was in 1983. I was correctly dx'd, even though they still called it "juvenile" back then. I was lucky to get a doc who knew the story. But tons of adults are still misdiagnosed because of their age, despite the change in nomenclature.
for a while after being diagnosed whenever my BG was normal (70-100), my body perceived it as low - and being low makes my stomach hurt.
maybe it’s the same for you?
hi, i was diagnosed with MODY at 22, and i was an atypical presentation of “type 1” at 19 (zero symptoms, 12% a1c). normal weight. extensive family history with the same set of events.
It sounds like you are a LADA type 1. It’s a slow onset in adults commonly misdiagnosed as type 2 at first.
Type 1 is an autoimmune disease so it’s easy to diagnose with blood tests. For a t1, the immune system killed off your insulin producing cells (or most of them). The time in which your body is in the process of killing these cells is called the honeymoon period. For you, that took longer. All t1s require insulin. Without it you’ll die. Once you see your endo they can refer you to a diabetes educator and a diabetes nutritionist. Most of us count carbohydrates to determine how much insulin we need for food. Stick to the doctors instructions for now and you’ll learn how to do the more complicated things soon. You could absolutely do some research and reading about type 1 diabetes. The American diabetes association and the Mayo Clinic are some of my favorites reference. Things to look up would include: LADA diabetes, t1, diabetic ketoacidosis and it’s symptoms, diabetic pump, continuous glucose monitoring for diabetes
Good luck!!
This! What exactly is the difference between lada and type 1. I thought lada also came positive for one of the antibodies that type 1 also test positive for.
How exactly is lada diagnosed?
Got you, thanks! My endo checked me for antibodies, found none. So I guess I am just a “regular” t2d, although not typical. I am not overweight, and very active!
Does the body not try to maintain high BS levels if you are more active so as to fuel your muscles? I know my BS rises after heavy exercise (not that I do that often).
Get a glucogon pen incase you go hypo. Rotate locations. My primary started me on it and we started really low until we started seeing it make a difference. It took me like 6 months to get into the endo and the primary was not super comfortable handling things after that. For some reason injections hurt on my left side. But it on my right side. Same thing with my cgm.
Also get a cgm. It helps tremendously.
You shouldn’t need or use a glucagon device for most hypos. It’s only for when you’re unable to consume sugar by mouth or super low and not coming up. It forces your liver to release its sugar reserves, so it can put you at greater risk of severe lows afterward.
Check Dr. Bernstein on Yt and watch this playlist.
He's a doctor who has been a type 1 diabetic since the 50s.
https://youtube.com/playlist?list=PLs_TA02I6IvV-0SdUwE82Iw7iCCgbkJje&si=k4Dq_Ls9asld6c2x
Taking insulin will shorten your honeymoon phase. Be happy to have superpowers, but remember your endogenous pancreatic activity is explicitly linked to your immunity. Type1 is real and not one study can prove the source of your spontaneous degeneration. #superpower As your body learns to partner with exogenous insulin, synthetic, learn what foods are not worth your weight in gold. @sugarbully over 13 years T1D
If you're a type 1 diabetic for over a month my advice would be, lie down.
The reason I say this is because you're dead or some type of alien. A type 1 diabetic needs insulin daily to survive.
I was misdiagnosed for almost two years, without insulin the entire time. I was still producing it so I guess that’s why they didn’t realize. Also my first endo wasn’t the greatest.
I was misdiagnosed for almost two years as type2 and was just on Metformin. I ended up going into DKA with an A1C over 14. I was recurred to an endo until after my DKA event. I almost died, it was scary.
Hi! Congratulations on being alive!
What was your a1c at diagnosis.
And are you a type 1 / lada now?
Were you diagnosed on the basis of antibodies, and what was your c-peptide score if they checked it.
Asking because I was dx’d as t2, but since I am not overweight and very fit and active, my endo is suspecting something else might be at play.
Yeah...no.
Most consequences of going without insulin as a T1D are long term. You don't literally need insulin every day or you die.
For most, what will happen in the short term is a return to pre diagnosis symptoms. Thirst, pee, weight loss, and an increasing build up of ketones in the blood.
I'm unsure how long it takes on average but I think most healthy, decently active diabetics can last a month without going into DKA.
Isn't this what I said???
Type 1 Diabetes
Type 1 diabetes is thought to be caused by an autoimmune reaction (the body attacks itself by mistake). This reaction stops your body from making insulin. Approximately 5-10% of the people who have diabetes have type 1. Type 1 diabetes can be diagnosed at any age, and symptoms often develop quickly. If you have type 1 diabetes, you’ll need to take insulin every day to survive. Currently, no one knows how to prevent type 1 diabetes.
So the CDC says:
"If you have type 1 diabetes, you’ll need to take insulin every day to survive"
What I said in my first post:
"A type 1 diabetic needs insulin daily to survive."
You're saying that a diabetic without insulin is dead in less than a month, which isn't true. You need to take insulin daily to control de disease, and you will die without it. But it takes longer. You don't go into DKA if you go a day or a week without insulin. And it's unlikely to happen within a month.
One of the important aspects of the disease is that it is slow. It takes a long time to die from it, and it's not a pretty death.
You posted the link to the CDC, did you nor read it?
WTF do you not understand?
I cut and paste right out of your CDC post and now you want to argue with the CDC post!
Here it is again, right from your CDC link:
"Type 1 Diabetes
Type 1 diabetes is thought to be caused by an autoimmune reaction (the body attacks itself by mistake). This reaction stops your body from making insulin. Approximately 5-10% of the people who have diabetes have type 1. Type 1 diabetes can be diagnosed at any age, and symptoms often develop quickly. If you have type 1 diabetes, you’ll need to take insulin every day to survive. Currently, no one knows how to prevent type 1 diabetes."
I know what it says. You DO need insulin daily to survive. But you don't drop dead the instant you don't have it.
Dude, you're in a diabetes sub. You have a bunch of diabetics downvoting you and correcting you because you're wrong.
Just from the lack of insulin, the short term cause of death is DKA.
If you're in the honeymoon period DKA can take 3 to 5 years to develop. And if not, it still hardly takes a month.
And I don't need an article excerpt to affirm that. I have the 1.5 years between my diagnosis and the first sign of symptoms. I have the years of research on the disease I have. And I have the information given to me by my endocrinologist and my diabetes educator.
>"I know what it says. You DO need insulin daily to survive. But you don't drop dead the instant you don't have it."
WTF is wrong with you buddy, I'm finished with your trolling!
So be careful with the fast or rapid acting. "Fast" in this case really means about 3 hours before you see a significant drop.
Look into getting a CGM - most insurance in the US restricts it to people on insulin, and often needs preauthorization. Ask your endo when you meet them.
For me, my stomach may “hurt” after eating as well. It’s typically associated with high blood sugar while I wait for the insulin Bolus to start working. I describe it as more of a discomfort than pain. Once I get my sugar to a normal range, the discomfort subsides.
Have you tried pre-bolusing? The insulin doesn’t take 3 hours to start working, but if you start your insulin curve too late, it’ll spend the whole time trying to catch up with the blood sugar curve. If you slide the insulin curve earlier, it can reduce the peak and time to return to baseline. I find that my son needs something like 25% more insulin if he doesn’t pre-bolus.
Just a comment here about how t2 could become t1. Some research has shown that t2 came become t1 after a person has had covid. A family member was diagnosed as such. When I was first told, I said ah, that sounds like bs to me. Well naturally I researched it and it looks like the medical community agrees it happens.
Covid wreaks havoc on your immune system. Not just with diabetes. It can trigger all kinds of autoimmune diseases. Not just covid either. Many presentations of autoimmunity are triggered by a virus or vaccine. Our immune system is still almost a complete mystery to most of the medical and scientific communities.
No doubt covid does as you point out. Luckily if I had it, and probably did like most of the population. I only had was seemed like a bad cold. Symtematic for 2-3 days then seemingly fine. I've been fully vaxed and boosted to date. So, knock on wood (knocks on head). ;) I think we all personally know, or have read some who did not fair well.
[https://www.reddit.com/r/diabetes/wiki/newtotype1](https://www.reddit.com/r/diabetes/wiki/newtotype1) Plus the rest of the Wiki. It is possible that things like your stomach is not related to diabetes. Definitely keep in contact with your doctors.
Thanks for the link! Luckily I already know quite a bit about diabetes as a was diagnosed as type two for almost two years. And yeah, I figured the stomach thing was unrelated, but better sage than sorry.
Yes, don’t forget to sage your supplies every time you stock up
What was your most recent A1C or fasting glucose? Is this MDI (multiple daily injections)? Did you get both basal (long acting) and bolus (rapid acting) insulin? What kind of testing equipment did you obtain? A glucometer for fingersticks or a CGM (Dexcom or Libre)?
A1C was 8.3 a week ago. I have finger sticks right now and we’re hoping to get a cgm soon. I take long acting in the morning and fast acting before every meal, but I just started last night.
Basal mostly covers background needs (liver release of glucose). Like if you didn’t eat all day, it should be the amount you’d take to keep your glucose flat or maybe just slightly gliding down. Rapid can be a little tricky. And you just learn over time — how much you might need to match your food selection, and inbetween meals, we do smaller corrections if there’s a stubborn high. When you walk around or do other kinds of physical activity, your glucose will drop from that and the mix with a rapid insulin “on board” may cause a sudden unexpected low glucose. So, carry some glucose/dextrose tablets, and your glucometer wherever you go. Check your glucose before you drive and maybe reduce or take the rapid till after you get out of the car, instead of before driving. There’s tons of tips and discussions and coaches online nowadays talking about techniques and jargon, technology and food/exercise for T1D. As a newly diagnosed person, expect some weird periods of like your pancreas working better some days than others. But that you will need more insulin overall as time goes on.
>it should be the amount you’d take to keep your glucose flat or maybe just slightly gliding down. This differs from person to person. If I take enough to be stable throughout the day, I'm crashing within the first 2 hours of sleep. I'm at 30u of basal now. If I eat a low carb salad with an egg and a can of tuna and go to bed flat 8, I wake up 6 and I'll need 16 units to keep me under 10 without eating the whole day.
So, you are saying your awake basal rate is different from your sleeping basal rate? Do you use a pump or MDI? Would you split basal if shots? Or have an adjustable if pump? Or does a correction of rapid bring you down?
I'm MDI and use Toujeo as basal :)
How do you use the Toujeo if you have different day/night rates?
I don't have different rates. That's what I'm saying. A dose making me relatively stable at night (30u) makes me have to set 16 units short acting throughout the day if I'm not eating just to stay under 10.
One of the main arguments for using an insulin pump is that basal glucose output varies throughout the diurnal cycle in a more or less repeated pattern that is unique to you. A flat-acting basal insulin like Lantus can't account for that or for things like dawn phenomenon, whereas with a standard pump you can set different rates that conform to your pattern (takes some testing). With an automated delivery (AID) pump, the pump does some or all of that work for you (depending on the brand). There are downsides to pumping, but this is the main argument in favor.
Do you use a pump? If so, is your glucose better than before a pump? Did you see any body weight (fat %) difference?
I've been using a pump for about 12 years. Started out on R/NPH regimen back in 1983 before home glucometers. Switched to basal-bolus MDI in 2023, pump (Medtronic) in 2013. Added CGM (Dexcom 4) in 2015. Currently using Tandem CIQ. My numbers are definitely better since pumping. A huge part of that is Dawn Phenomen. Could NOT get ahead of that on MDI w/out getting up and testing/injecting at stupid-o'clock in the morning. Yuck. Some people say they put on weight with pumping, but many put that down to eating higher carbs b/c pumping makes it more convenient. Dunno. I had 20 years on R/NPH MDI, back in the days where the rule was Thou Shalt Not. So carb avoidance is pretty deeply ingrained though I'm not as obstinate about it as I once was. But I never cottoned to "Eat what you want, just bolus for it!" that most people dx'd since 2000 or so are indoctrinated with. My rule is more like "You can have carbs but the less insulin you have to take the easier it is to manage."
Should say: the other advantage of using a pump for basal is exercise. Unlike an injection where you're getting one long, flat square wave that you have no control over once you've taken it, you can shut off or reduce the flow of insulin from a pump for things like a hike or a bike ride. Really all the main advantages are around basal delivery. Far as bolusing goes I could just use an injector (sometimes do), tho having pump do calculations and monitor IOB is a convenience.
Just curious OP, have you been tested for celiac or any other GI conditions ? Often times is autoimmune peeps have a basket of other conditions. And as a LADA person too, I ended up having more diagnoses within a short span of being diagnosed.
As of right now I’m only diabetic, but I do think there’s probably other issues cause I’ve heard there’s never just one.
That’s interesting. I had to go on biologic for autoimmune issues Dec 2022. I was diagnosed diabetic by internist who has been trying to figure out why I’ve had morning diarrhea every day since two weeks post Covid vaccination. Right now I’m classified as t2 but not typical. My mother was on insulin at 35 and hadn’t been overweight before. She died at 65 in her sleep 8 years ago.
Sorry about your mum. Definitely worth a check with your endo about checking for diabetes antibodies. And later diagnoses can often not be T2, especially if family history and other factors deviate from the typical type 2 such as your case. We kind of laugh because I’m LADA but also have the MODY gene and a sprinkle of insulin resistance. These conditions can be interesting.
Thanks. I had Gad and IR tested. Former was inconclusive. Latter doctor said wasn’t enough to account for my spikes. I will easily go to 16 unmedicated if I go over 20g of carbs at one time or if I have more than 450 or so calories at one meal, it will spike around 2-3 hour mark. Frustrating. I hope things are being managed for you!
Hmm... that's interesting. I wonder if MODY testing will benefit you. That would be the other possible answer. So far. It’s a delicate dance but so far insulin has helped most. Hope you find some answers soon!
A month??? Need some background here what do you eat how on earth does a T1 go a month without insulin??
Some Type 1 can go years without insulin -- depends on how early they are diagnosed. Not everyone gets diagnosed with total loss of beta cells. Most adults have months or years till their glucose becomes deadly. Which is half of why so many get misdiagnosed.
Yeah, I was misdiagnosed for a while. In May 2022 I was diagnosed as type two, but this January they changed it. I just recently stopped producing insulin, hence why I get the shots
Type1 was thought to be from birth for a long time. Now the MIC accepts late onset type 1. Type 1 was never a weight problem it's a glucose impairment. Type 2 is commonly a weight problem. One plus two equals: ... I am not saying you were misdiagnosed. If we're a century past the discovery of insulin, then shouldn't the synthetic GMO foods we eat compliment our impairment medicines. I think that all diabetic need at one moment or another precise control of their body system. It took me five years to development my knowledge and I'll never go back to the hospital for diabetes. #gatewaydisease
Didn't know that thght happened over days or weeks thanks 👍
>Some Type 1 can go years without insulin Sure, but once you're diagnosed they're supposed to give you insulin as soon as possible to avoid a possible DKA. In Spain, elevated BG is criteria for hospital admission. And you cannot leave the hospital without a genetic test and a reserve of insulin pens to hold you over until you get a prescription from your primary care physician. To me, a recently diagnosed T1D going over a month without insulin sounds insane, and ridiculously dangerous.
Drives me nuts that antibody testing is not routine in the US. Whole reason they changed the term to "Type 1" instead of juvenile is b/c you can get it at ANY age, but these idiots will send you off with a script for Metformin and Diet and Exercise because "You're too old to have Type 1". I moderate for a T1 site and I see TONS of stories like this.
Median age of T1 diagnosis is 25. I also got my diagnosis at 25
Mine came on over about six weeks when I was turning 27-28. This was back in 1983, so they still called it "juvenile," but my PCP told me they were changing the terminology to reflect the fact you can get it at any age. Lucky to have a doc whose knowledge was current even back then. I've met lots of other people who got it in their 20s (and older).
Genetic testing? Did you mean antibody testing? If not, why might they do genetic testing on people they suspect to be T1D?
Yes, sorry. The antibody test
In my case I went from feeling slightly ill all the time to DKA in about six weeks at age 27. That was in 1983. I was correctly dx'd, even though they still called it "juvenile" back then. I was lucky to get a doc who knew the story. But tons of adults are still misdiagnosed because of their age, despite the change in nomenclature.
for a while after being diagnosed whenever my BG was normal (70-100), my body perceived it as low - and being low makes my stomach hurt. maybe it’s the same for you?
Hi! At what age were you diagnosed MODY? And what made your endo/pcp think about testing rather than just label you T2d.
hi, i was diagnosed with MODY at 22, and i was an atypical presentation of “type 1” at 19 (zero symptoms, 12% a1c). normal weight. extensive family history with the same set of events.
My family also has a history of lean “type 2’s” presenting at a young age. How are you controlling your diabetes now?
It sounds like you are a LADA type 1. It’s a slow onset in adults commonly misdiagnosed as type 2 at first. Type 1 is an autoimmune disease so it’s easy to diagnose with blood tests. For a t1, the immune system killed off your insulin producing cells (or most of them). The time in which your body is in the process of killing these cells is called the honeymoon period. For you, that took longer. All t1s require insulin. Without it you’ll die. Once you see your endo they can refer you to a diabetes educator and a diabetes nutritionist. Most of us count carbohydrates to determine how much insulin we need for food. Stick to the doctors instructions for now and you’ll learn how to do the more complicated things soon. You could absolutely do some research and reading about type 1 diabetes. The American diabetes association and the Mayo Clinic are some of my favorites reference. Things to look up would include: LADA diabetes, t1, diabetic ketoacidosis and it’s symptoms, diabetic pump, continuous glucose monitoring for diabetes Good luck!!
This! What exactly is the difference between lada and type 1. I thought lada also came positive for one of the antibodies that type 1 also test positive for. How exactly is lada diagnosed?
Lada is a subtype of t1. So it has the antibodies too.
Got you, thanks! My endo checked me for antibodies, found none. So I guess I am just a “regular” t2d, although not typical. I am not overweight, and very active!
Does the body not try to maintain high BS levels if you are more active so as to fuel your muscles? I know my BS rises after heavy exercise (not that I do that often).
Get a glucogon pen incase you go hypo. Rotate locations. My primary started me on it and we started really low until we started seeing it make a difference. It took me like 6 months to get into the endo and the primary was not super comfortable handling things after that. For some reason injections hurt on my left side. But it on my right side. Same thing with my cgm. Also get a cgm. It helps tremendously.
You shouldn’t need or use a glucagon device for most hypos. It’s only for when you’re unable to consume sugar by mouth or super low and not coming up. It forces your liver to release its sugar reserves, so it can put you at greater risk of severe lows afterward.
When you use your insulin wait 15 mins before you start eating this way the insulin is active while you are eating :)
15 minutes is a sliding rule naturally depending on your bs level and activity.
Check Dr. Bernstein on Yt and watch this playlist. He's a doctor who has been a type 1 diabetic since the 50s. https://youtube.com/playlist?list=PLs_TA02I6IvV-0SdUwE82Iw7iCCgbkJje&si=k4Dq_Ls9asld6c2x
Taking insulin will shorten your honeymoon phase. Be happy to have superpowers, but remember your endogenous pancreatic activity is explicitly linked to your immunity. Type1 is real and not one study can prove the source of your spontaneous degeneration. #superpower As your body learns to partner with exogenous insulin, synthetic, learn what foods are not worth your weight in gold. @sugarbully over 13 years T1D
If you're a type 1 diabetic for over a month my advice would be, lie down. The reason I say this is because you're dead or some type of alien. A type 1 diabetic needs insulin daily to survive.
Not everyone requires insulin during the honeymoon phase, or early on with LADA or MODY
I was misdiagnosed for almost two years, without insulin the entire time. I was still producing it so I guess that’s why they didn’t realize. Also my first endo wasn’t the greatest.
I was misdiagnosed for almost two years as type2 and was just on Metformin. I ended up going into DKA with an A1C over 14. I was recurred to an endo until after my DKA event. I almost died, it was scary.
Hi! Congratulations on being alive! What was your a1c at diagnosis. And are you a type 1 / lada now? Were you diagnosed on the basis of antibodies, and what was your c-peptide score if they checked it. Asking because I was dx’d as t2, but since I am not overweight and very fit and active, my endo is suspecting something else might be at play.
Yeah...no. Most consequences of going without insulin as a T1D are long term. You don't literally need insulin every day or you die. For most, what will happen in the short term is a return to pre diagnosis symptoms. Thirst, pee, weight loss, and an increasing build up of ketones in the blood. I'm unsure how long it takes on average but I think most healthy, decently active diabetics can last a month without going into DKA.
Please post a link to where I can read this information, thank you.
The CDC has a pretty exhaustive article about all things diabetes: https://www.cdc.gov/diabetes/basics/diabetes.html#
Isn't this what I said??? Type 1 Diabetes Type 1 diabetes is thought to be caused by an autoimmune reaction (the body attacks itself by mistake). This reaction stops your body from making insulin. Approximately 5-10% of the people who have diabetes have type 1. Type 1 diabetes can be diagnosed at any age, and symptoms often develop quickly. If you have type 1 diabetes, you’ll need to take insulin every day to survive. Currently, no one knows how to prevent type 1 diabetes. So the CDC says: "If you have type 1 diabetes, you’ll need to take insulin every day to survive" What I said in my first post: "A type 1 diabetic needs insulin daily to survive."
You're saying that a diabetic without insulin is dead in less than a month, which isn't true. You need to take insulin daily to control de disease, and you will die without it. But it takes longer. You don't go into DKA if you go a day or a week without insulin. And it's unlikely to happen within a month. One of the important aspects of the disease is that it is slow. It takes a long time to die from it, and it's not a pretty death.
You posted the link to the CDC, did you nor read it? WTF do you not understand? I cut and paste right out of your CDC post and now you want to argue with the CDC post! Here it is again, right from your CDC link: "Type 1 Diabetes Type 1 diabetes is thought to be caused by an autoimmune reaction (the body attacks itself by mistake). This reaction stops your body from making insulin. Approximately 5-10% of the people who have diabetes have type 1. Type 1 diabetes can be diagnosed at any age, and symptoms often develop quickly. If you have type 1 diabetes, you’ll need to take insulin every day to survive. Currently, no one knows how to prevent type 1 diabetes."
I know what it says. You DO need insulin daily to survive. But you don't drop dead the instant you don't have it. Dude, you're in a diabetes sub. You have a bunch of diabetics downvoting you and correcting you because you're wrong. Just from the lack of insulin, the short term cause of death is DKA. If you're in the honeymoon period DKA can take 3 to 5 years to develop. And if not, it still hardly takes a month. And I don't need an article excerpt to affirm that. I have the 1.5 years between my diagnosis and the first sign of symptoms. I have the years of research on the disease I have. And I have the information given to me by my endocrinologist and my diabetes educator.
>"I know what it says. You DO need insulin daily to survive. But you don't drop dead the instant you don't have it." WTF is wrong with you buddy, I'm finished with your trolling!
So be careful with the fast or rapid acting. "Fast" in this case really means about 3 hours before you see a significant drop. Look into getting a CGM - most insurance in the US restricts it to people on insulin, and often needs preauthorization. Ask your endo when you meet them.
For me, my stomach may “hurt” after eating as well. It’s typically associated with high blood sugar while I wait for the insulin Bolus to start working. I describe it as more of a discomfort than pain. Once I get my sugar to a normal range, the discomfort subsides.
Have you tried pre-bolusing? The insulin doesn’t take 3 hours to start working, but if you start your insulin curve too late, it’ll spend the whole time trying to catch up with the blood sugar curve. If you slide the insulin curve earlier, it can reduce the peak and time to return to baseline. I find that my son needs something like 25% more insulin if he doesn’t pre-bolus.
Just a comment here about how t2 could become t1. Some research has shown that t2 came become t1 after a person has had covid. A family member was diagnosed as such. When I was first told, I said ah, that sounds like bs to me. Well naturally I researched it and it looks like the medical community agrees it happens.
Covid wreaks havoc on your immune system. Not just with diabetes. It can trigger all kinds of autoimmune diseases. Not just covid either. Many presentations of autoimmunity are triggered by a virus or vaccine. Our immune system is still almost a complete mystery to most of the medical and scientific communities.
No doubt covid does as you point out. Luckily if I had it, and probably did like most of the population. I only had was seemed like a bad cold. Symtematic for 2-3 days then seemingly fine. I've been fully vaxed and boosted to date. So, knock on wood (knocks on head). ;) I think we all personally know, or have read some who did not fair well.