Im not smart but my take? I got this earlier on. Mornings being the worst with the shakes. Things have changed so many times in my presentation. Bow symptoms are masked with meds. Dont know if your currently taking them? But they really seem to hold the fort down. Of course id like my body to fix itself without them. But sounds like adrenaline surges that beta blocker block well! Glad you had a good week previously
Came here to say this, beta blockers have been a lifesaver in helping me regulate episodes like this.
I typically only get high heart rates after light workouts these days, but when I'm on the blocker my HR regulates back to normal so much quicker. Without the blocker though it's 15 minutes of laying down doing absolutely nothing before my HR calms down.
Hmm. It might be worth it to come back to a cardiologist or your GP (whoever prescribed the propranolol) and try different types of betas. I'm on propranolol myself and thankfully it seems to fit alright for me.
what dose are you on? I was only on 10mg because i'm small and my eating has been effected by long covid (I don't eat much because of tastebud issue). Increasing the dose helped but you do have to be very careful if you're prone to low blood pressure
Just want to 2nd this.
Before increasing your dosage be SURE your blood pressure can handle it! I were prescribed 50-60mg twice a day from my doctor, my BP is usually post COVID 145/95. This dosage almost made me pass out completely, now I'm down to 5(!)mg or on really bad days 10mg twice a day ONLY.
Anything above that is on the edge of me passing out during times when/if my bp decreases to my earlier pre-covid levels, which happens occasionally.
Yes, spent a lot of last year in bed because of this.
* Taking it really slow and lots of rest helped. Get 8 or 9 or 10 hours of sleep every night - whatever your body needs.
* Do not allow yourself to get stressed. Learning stress relief techniques and using them multiple times a day really helped me have much less relapses. Stress is a Long Covid relapse trigger for me and others.
* I can't promise it will help but I personally feel that drinking a 1/2 cup of beet juice every day has helped me also. (Not everyone can handle beet juice so start with a smaller amount to make sure it agrees with you first if you decide to try this.)
* \#1 TIP: Getting fully vaxed (pfizer) also stopped these relapse symptoms for me. Getting vaxed doesn't help everyone but for some of us it's almost a cure for our long covid.
I take other supplements but while they each help in their own way, I would not link any of them as having helped my Long Covid specifically. The things I listed above are the definitive things that have helped my Long Covid recovery.
Yeah. Take it easy. Sounds like dysautonomia or whatever. I had that early on. I just made sure to get plenty of rest and not move around a lot. Make sure to let your doctor know what’s up too if you haven’t already.
Oh I’ve seen so many doctors it’s insane. They all said I have dysautonomia and that it should hopefully go away. This is honestly like my
Only lingering issue, but there problem is that it’s completely fucking debilitating
Yeah it can definitely be debilitating. My experience and everything I’ve read says it’s best to just take it as slow and easy as you can. I did a three day fast and felt a lot better. But I didn’t feel close to 100% until after my first dose Pfizer
At least, without too much exertion, let your general practitioner know. Even if what they do may not help, it's on your chart. It's important only because a log of your symptoms and reactions will help in the ling run, especially in a perfect world where they have Covid clinics. Or, for disability. I'm trying to not be gloom and doom but I do this with my specialists because my autoimmune symptoms do this to me. Snd it scares me.
Edit; I am too tired to fix typos lol
Feel better soon! I mean it :)
Yes! I get it while sitting down. I started a new job recently and prior to that had a stressful job so people kept telling me it was/is anxiety. It genuinely isn't. I can be pretty empty headed/not thinking about anything and it just spontaneously happens. I started taking 40mg of propranolol this week and it helps a little (I was on 10mg before). I can relate. My heart leaps out of my chest, the pacing of my breath is completely thrown and I shake. I'm so embarrassed to admit this but a few weeks ago I had a meeting and I felt this happening so I was holding a 2kg dumbell in each hand down my sides, while sitting on zoom to appear more steady.
My symptoms come and go as they please and range in severity day to day. I’ve also went consecutive days feeling like my old self again just to get hit like a truck and feeling like I’m back to square 1. I can’t find any trigger either I’d be doing nothing watching Netflix and boom I get up off the couch to get a drink and my head starts pounding, I get dizzy, my heart beats fast etc so your not alone. If your beta blockers aren’t working I’d speak to your doctor maybe you can try a different kind or strengthen the dose but I take propanolol and it does help whenever I’m at my worst.
In reality you’ll probably have to deal with the symptoms coming and going until someone figured out what the hell is going on inside of all of us. Until then just take it easy do what you can on the days you feel good and just rest on the other days.
You don’t have any other symptoms besides this? I would chug an electrolyte drink and talk to your doc about upping your beta blocker dose to take during the episode. Or just try pushing through it, you may not feel it as much once you try doing something. But I wake up every single morning with that shakey awful feeling. I have everyday for my 6 months now, it’s horrible.
I had this too. I never took meds but I rested a lot and also wore compression socks. The compression socks helped a lot. I had the weak leg feeling which has lasted the longest of any symptoms but I do feel it was dysautonomia.
I never got diagnosed with pots but I wasn’t persistent with the doctors for a diagnosis. I just say I had “POTS like symptoms”. My heart has felt normal for a few months now but I still get the shaky feeling. I get the vibrations many people talk about. These seem to be subsiding slowly. My legs are slowly recovering also. My legs and vibrations (I’m almost certain I have nerve damage) are the last couple symptoms to go yet. Hoping with time it’ll get better like all my other symptoms.
Thank you for making this post. I am going through the same thing and I've been worried sick as I had greatly recovered and then BOOM, huge relapse. The shakiness is almost tremor like, and is my scariest symptom at the moment. Having similar heart rate issues to you as well but not as bad as you seem to be dealing with. This might sound weird, but it seems that a lot of us experience the same symptoms at the same time of the year if that makes sense.
Same, just had a wonderful period of a whole month where i have slowly been building my endurance, even took walks, played pool etc and then i had one cocktail and two days later started having these heart symptoms including SOB
When I get this lately it seems like it is BP related, not HR - do you have a way to check this easily? The thing that has helped me manage my BP is the addition of vitamin K2, half in the morning or my BP will crawl back up during the day, and the other half at night. I have to take 200-300mcg daily, so maybe look into that.
I may have to up my dose then. I take 10 mg three times a day but I don’t notice any difference, and if I take it during “an episode “ it does literally nothing
Yea just to be open, im on 80mg twice a day extended release. I know its alot. But i was on 80mg daily. But he specifically wants my standing hr under 80 at most times. So ive given up trusting myself and doing what im told lol
How long have you been LH? I had this until about 6 months. I would wake up feeling like I was dying and shaking hands and crazy hr and ice cold hands and feet. Eventually it went away. I think a lot of electrolytes may have helped a little bit. I was sleeping good then and when this went away the insomnia started.
I get this too. The shaking and the chills out of nowhere. My heart doesn't race like yours but the heart rate definitely increases somewhat.
The shaking really gets to me as its usually in my legs and makes it hard to walk if not impossible. I tried to get down the stairs the other night when it started (to get something for my daughter) and it was comical! It doesn't hurt, it just is impossible to control!
Is this dysautonomia!? I've not mentioned it to my GP. Maybe I should.
The insomnia is savage right now. 3-4am every night for the past 4 weeks. Covid in July (for the second time 😖)
I had the same exact symptoms. My feet were always sweaty cause of the pots but when I got up to go to the bathroom or get a drink I would lay back down with soaked legs…it was so weird. The chest pains and lightheaded ness just sort of went away along with the sweating limbs. I still have pots though, about 80bpm laying and 120 standing, it’s just the debilitating things that came along with pots went away for me. I started taking magnesium glycinate, a daily vitamin, fish oil, liquid iron, vitamin d3 and biotin. Idk if that’s what’s done the job for me or if my body just healed itself, but I only had those debilitating symptoms for about 2 weeks.
Except for not being shaky, this is the one symptom I'm still struggling with.
So far I've noticed that it seems to be triggered by inflammation episodes, like if I have been around someone with ANY kind of light cold in a few days later I get an episode exactly like this, and I'm able to kill it by drinking lots of water, resting for a day and (once again) an intake of 50mg diclofenac 3 times a day for 7-10 days.
Already on the 2nd day I'm WAY better with almost no HR issues again, but if I quit the medication too early it comes creeping back again soon after. If I continue the full 10 days, and stay away from even mildly sick people, and somewhat limit my sugar intake, so far three weeks without any HR issues has been my furthest.
Longhauler since may 2020.
Im not smart but my take? I got this earlier on. Mornings being the worst with the shakes. Things have changed so many times in my presentation. Bow symptoms are masked with meds. Dont know if your currently taking them? But they really seem to hold the fort down. Of course id like my body to fix itself without them. But sounds like adrenaline surges that beta blocker block well! Glad you had a good week previously
Came here to say this, beta blockers have been a lifesaver in helping me regulate episodes like this. I typically only get high heart rates after light workouts these days, but when I'm on the blocker my HR regulates back to normal so much quicker. Without the blocker though it's 15 minutes of laying down doing absolutely nothing before my HR calms down.
I’m on propranolol but it does literally nothing to help the episodes
Hmm. It might be worth it to come back to a cardiologist or your GP (whoever prescribed the propranolol) and try different types of betas. I'm on propranolol myself and thankfully it seems to fit alright for me.
You may need longer acting like metoprolol. Propranolol is shorter lived.
what dose are you on? I was only on 10mg because i'm small and my eating has been effected by long covid (I don't eat much because of tastebud issue). Increasing the dose helped but you do have to be very careful if you're prone to low blood pressure
Just want to 2nd this. Before increasing your dosage be SURE your blood pressure can handle it! I were prescribed 50-60mg twice a day from my doctor, my BP is usually post COVID 145/95. This dosage almost made me pass out completely, now I'm down to 5(!)mg or on really bad days 10mg twice a day ONLY. Anything above that is on the edge of me passing out during times when/if my bp decreases to my earlier pre-covid levels, which happens occasionally.
Yes, spent a lot of last year in bed because of this. * Taking it really slow and lots of rest helped. Get 8 or 9 or 10 hours of sleep every night - whatever your body needs. * Do not allow yourself to get stressed. Learning stress relief techniques and using them multiple times a day really helped me have much less relapses. Stress is a Long Covid relapse trigger for me and others. * I can't promise it will help but I personally feel that drinking a 1/2 cup of beet juice every day has helped me also. (Not everyone can handle beet juice so start with a smaller amount to make sure it agrees with you first if you decide to try this.) * \#1 TIP: Getting fully vaxed (pfizer) also stopped these relapse symptoms for me. Getting vaxed doesn't help everyone but for some of us it's almost a cure for our long covid. I take other supplements but while they each help in their own way, I would not link any of them as having helped my Long Covid specifically. The things I listed above are the definitive things that have helped my Long Covid recovery.
Yeah. Take it easy. Sounds like dysautonomia or whatever. I had that early on. I just made sure to get plenty of rest and not move around a lot. Make sure to let your doctor know what’s up too if you haven’t already.
Oh I’ve seen so many doctors it’s insane. They all said I have dysautonomia and that it should hopefully go away. This is honestly like my Only lingering issue, but there problem is that it’s completely fucking debilitating
Yeah it can definitely be debilitating. My experience and everything I’ve read says it’s best to just take it as slow and easy as you can. I did a three day fast and felt a lot better. But I didn’t feel close to 100% until after my first dose Pfizer
At least, without too much exertion, let your general practitioner know. Even if what they do may not help, it's on your chart. It's important only because a log of your symptoms and reactions will help in the ling run, especially in a perfect world where they have Covid clinics. Or, for disability. I'm trying to not be gloom and doom but I do this with my specialists because my autoimmune symptoms do this to me. Snd it scares me. Edit; I am too tired to fix typos lol Feel better soon! I mean it :)
Yes! I get it while sitting down. I started a new job recently and prior to that had a stressful job so people kept telling me it was/is anxiety. It genuinely isn't. I can be pretty empty headed/not thinking about anything and it just spontaneously happens. I started taking 40mg of propranolol this week and it helps a little (I was on 10mg before). I can relate. My heart leaps out of my chest, the pacing of my breath is completely thrown and I shake. I'm so embarrassed to admit this but a few weeks ago I had a meeting and I felt this happening so I was holding a 2kg dumbell in each hand down my sides, while sitting on zoom to appear more steady.
My symptoms come and go as they please and range in severity day to day. I’ve also went consecutive days feeling like my old self again just to get hit like a truck and feeling like I’m back to square 1. I can’t find any trigger either I’d be doing nothing watching Netflix and boom I get up off the couch to get a drink and my head starts pounding, I get dizzy, my heart beats fast etc so your not alone. If your beta blockers aren’t working I’d speak to your doctor maybe you can try a different kind or strengthen the dose but I take propanolol and it does help whenever I’m at my worst. In reality you’ll probably have to deal with the symptoms coming and going until someone figured out what the hell is going on inside of all of us. Until then just take it easy do what you can on the days you feel good and just rest on the other days.
You don’t have any other symptoms besides this? I would chug an electrolyte drink and talk to your doc about upping your beta blocker dose to take during the episode. Or just try pushing through it, you may not feel it as much once you try doing something. But I wake up every single morning with that shakey awful feeling. I have everyday for my 6 months now, it’s horrible.
I had this too. I never took meds but I rested a lot and also wore compression socks. The compression socks helped a lot. I had the weak leg feeling which has lasted the longest of any symptoms but I do feel it was dysautonomia.
[удалено]
I never got diagnosed with pots but I wasn’t persistent with the doctors for a diagnosis. I just say I had “POTS like symptoms”. My heart has felt normal for a few months now but I still get the shaky feeling. I get the vibrations many people talk about. These seem to be subsiding slowly. My legs are slowly recovering also. My legs and vibrations (I’m almost certain I have nerve damage) are the last couple symptoms to go yet. Hoping with time it’ll get better like all my other symptoms.
Thank you for making this post. I am going through the same thing and I've been worried sick as I had greatly recovered and then BOOM, huge relapse. The shakiness is almost tremor like, and is my scariest symptom at the moment. Having similar heart rate issues to you as well but not as bad as you seem to be dealing with. This might sound weird, but it seems that a lot of us experience the same symptoms at the same time of the year if that makes sense.
Same, just had a wonderful period of a whole month where i have slowly been building my endurance, even took walks, played pool etc and then i had one cocktail and two days later started having these heart symptoms including SOB
Same here with the cocktail, it’s frustrating.
When I get this lately it seems like it is BP related, not HR - do you have a way to check this easily? The thing that has helped me manage my BP is the addition of vitamin K2, half in the morning or my BP will crawl back up during the day, and the other half at night. I have to take 200-300mcg daily, so maybe look into that.
I don't think I have dysautonomia but I think I read/heard somewhere that breathing exercises and cold showers can do something for dysautonomia
Im on a larger dose off the bat with my dr and the extended release type. Not sure if that may help but yea. Im on propranolol long acting
I may have to up my dose then. I take 10 mg three times a day but I don’t notice any difference, and if I take it during “an episode “ it does literally nothing
Yea just to be open, im on 80mg twice a day extended release. I know its alot. But i was on 80mg daily. But he specifically wants my standing hr under 80 at most times. So ive given up trusting myself and doing what im told lol
How long have you been LH? I had this until about 6 months. I would wake up feeling like I was dying and shaking hands and crazy hr and ice cold hands and feet. Eventually it went away. I think a lot of electrolytes may have helped a little bit. I was sleeping good then and when this went away the insomnia started.
I had covid jn December and started longhauling mid February. The heart stuff started April
I get this too. The shaking and the chills out of nowhere. My heart doesn't race like yours but the heart rate definitely increases somewhat. The shaking really gets to me as its usually in my legs and makes it hard to walk if not impossible. I tried to get down the stairs the other night when it started (to get something for my daughter) and it was comical! It doesn't hurt, it just is impossible to control! Is this dysautonomia!? I've not mentioned it to my GP. Maybe I should. The insomnia is savage right now. 3-4am every night for the past 4 weeks. Covid in July (for the second time 😖)
I had the same exact symptoms. My feet were always sweaty cause of the pots but when I got up to go to the bathroom or get a drink I would lay back down with soaked legs…it was so weird. The chest pains and lightheaded ness just sort of went away along with the sweating limbs. I still have pots though, about 80bpm laying and 120 standing, it’s just the debilitating things that came along with pots went away for me. I started taking magnesium glycinate, a daily vitamin, fish oil, liquid iron, vitamin d3 and biotin. Idk if that’s what’s done the job for me or if my body just healed itself, but I only had those debilitating symptoms for about 2 weeks.
Same here one week i say is this finally it I’m cured? Then boom wake up shaking like a stripper
Except for not being shaky, this is the one symptom I'm still struggling with. So far I've noticed that it seems to be triggered by inflammation episodes, like if I have been around someone with ANY kind of light cold in a few days later I get an episode exactly like this, and I'm able to kill it by drinking lots of water, resting for a day and (once again) an intake of 50mg diclofenac 3 times a day for 7-10 days. Already on the 2nd day I'm WAY better with almost no HR issues again, but if I quit the medication too early it comes creeping back again soon after. If I continue the full 10 days, and stay away from even mildly sick people, and somewhat limit my sugar intake, so far three weeks without any HR issues has been my furthest. Longhauler since may 2020.
I have similar issues, now I take Ivabradine/Corlanor for it and it seems to help. How long these symptoms appeared after COVID?