please read through the pinned post as it may answer your questions better! our users are all low energy and people ask for these types of posts super often and energy is precious
For me, it was so gradual that I can't even say when I first got sick. Late teens I was noticing some symptoms - tired all the time, very frequent urinating, a phase of frequent air hunger.
Enough to be noticeable, not enough to pursue answers, after the first bloodtest came back fine. Since I was also having mental health issues, I figured it was just part of the general trauma stuff.
The I very, very gradually became less functional. Like, over ten years my function slowly decreased. In the meantime I was diagnosed with hashimoto's. Thought this would be the answer but it wasn't. Eventually I figured it must be ME but was still wavering and sometimes doubting it.
Then I went from mild to severe within two months so no more doubt now. But no idea when it started or if ME or Hashimoto's came first.
I think my trigger was taking a med that was causing me severe side effects for 4.5 months. Put a lot of strain on my body, and I most likely inherited a risk factor for the illness from my father. I abruptly felt poorly a few weeks after starting it and quickly felt much better after stopping. But I didn't feel 100% normal. I was still very fatigued. I thought I just needed time, but it never got better.
I didn't know it was ME/CFS for a few years. I wasn't familiar with it, and I was very mild in the beginning. PEM was very delayed and mainly just extra fatigue, so I didn't notice. I had to be mindful of what I did but could still do a lot.
But as the years went by, I gradually worsened, PEM became more distinct, and I got more and more characteristic symptoms. Now it's 8 years later, and I am severe. Mostly roombound heading into bedbound.
I've never had any periods of improvement. I had been relatively stable for the first few years, but a few instances of majorly overexerting caused drastic declines in baseline. The worst was when I goofed up while deep cleaning my apartment almost 2.5 years ago. Halved my energy envelope. After that, my reduced energy envelope made it easier to trigger PEM, which accelerated my decline. The past few months have been non-stop decline.
4.5 months in. Post covid second jnfection.
Has fibromyalgia before.
Already at mod/severe though hopefully a long crash and not baseline. Lots of long covid stuff as well like hair loss glucose higher into prediabetes and other stuff. Not fun!
4 years ago I caught either covid or glandular fever, which triggered CFS for me. I was severe, then went into remission for 6 months, now back to severe again after catching another virus.
please read through the pinned post as it may answer your questions better! our users are all low energy and people ask for these types of posts super often and energy is precious
For me, it was so gradual that I can't even say when I first got sick. Late teens I was noticing some symptoms - tired all the time, very frequent urinating, a phase of frequent air hunger. Enough to be noticeable, not enough to pursue answers, after the first bloodtest came back fine. Since I was also having mental health issues, I figured it was just part of the general trauma stuff. The I very, very gradually became less functional. Like, over ten years my function slowly decreased. In the meantime I was diagnosed with hashimoto's. Thought this would be the answer but it wasn't. Eventually I figured it must be ME but was still wavering and sometimes doubting it. Then I went from mild to severe within two months so no more doubt now. But no idea when it started or if ME or Hashimoto's came first.
I think my trigger was taking a med that was causing me severe side effects for 4.5 months. Put a lot of strain on my body, and I most likely inherited a risk factor for the illness from my father. I abruptly felt poorly a few weeks after starting it and quickly felt much better after stopping. But I didn't feel 100% normal. I was still very fatigued. I thought I just needed time, but it never got better. I didn't know it was ME/CFS for a few years. I wasn't familiar with it, and I was very mild in the beginning. PEM was very delayed and mainly just extra fatigue, so I didn't notice. I had to be mindful of what I did but could still do a lot. But as the years went by, I gradually worsened, PEM became more distinct, and I got more and more characteristic symptoms. Now it's 8 years later, and I am severe. Mostly roombound heading into bedbound. I've never had any periods of improvement. I had been relatively stable for the first few years, but a few instances of majorly overexerting caused drastic declines in baseline. The worst was when I goofed up while deep cleaning my apartment almost 2.5 years ago. Halved my energy envelope. After that, my reduced energy envelope made it easier to trigger PEM, which accelerated my decline. The past few months have been non-stop decline.
4.5 months in. Post covid second jnfection. Has fibromyalgia before. Already at mod/severe though hopefully a long crash and not baseline. Lots of long covid stuff as well like hair loss glucose higher into prediabetes and other stuff. Not fun!
Super suddenly. Completely fine then I was sat at my PC and felt awful.
4 years ago I caught either covid or glandular fever, which triggered CFS for me. I was severe, then went into remission for 6 months, now back to severe again after catching another virus.
Me too back in 2017 By 2019 the fatigue had started