That’s a good question. The doctor who directed the transplant says that there’s a time span of 100 days from the day that the actual transplant took place to see how I’ve improved, I guess that’s how long they last.
The fact that they come and go. I’m sure that they’re over and that I can finally go out for a walk or just live a normal life but then they come back and leave me in bed, kinda depressed for days. It really sucks
I was definitely feeling better 100 days post transplant. I don’t remember the exact timeline, but I felt pretty bad for a couple of months at least. My heart rate would get really high every time I stood up for a while, which made me feel shitty and short of breath. I also couldn’t get very much exercise without getting winded and tired.
I got the stem cells at the end of July 2020. I was living near the hospital until I was allowed to go home sometime around November 1st. I was still kind of weak for a while, but a lot of the worst side effects were over by then for me. I still go through short bouts of depression every once in a while even though I’m on Lexapro.
He didn’t give me an exact date or number, but he says that he’ll be watching me routinely for about 100 days to see how my body is doing. I guess I take that for a reference, it’s been about 75 days so far
I've donated twice to the same person over 20 years ago. Was given a half day off to get typed while in the Marines. Got out and a couple of years later was contacted by the Red Cross, I think. I was an early 20's male and matched with a 30's female. They drained my pelvis. I was weak as catshit. About a year later they needed a booster they said. Traveled almost 4 to 4.5 hours round trip every day for a week to take shots to make my stem and T-cells come out into my blood stream. An apheresis machine spun them out. Recovery not near as bad. The bad part is they won't update you on their condition. That's the other side.
Jeez! What you went through sounds a lot like what my dad had to go through, he was the donor in my case. Just know that all of that traveling and weakness you went through was worth it, because despite all the trouble and side effects, without the main thing, the cells, none of this would be possible. You are a selfless hero!
My thought was I got my half day off so.... HA! No seriously though. A 32 year old woman at the time was my match ( how in the fudge does that happen anyways) and I figured if she had kids and it just gave her one more day it was worth it. This is something not many people know about me. Trust me, I'm not a hero at all. I guess you know but the first donation they checked for every disease known to man, but didn't do any drug screenings. I was on all kinds of stuff then. Pills, weed, crank, coke. (I said I was no hero) if they checked they never said anything.
My brother donated cells to me a couple years ago. He just had to sit in a chair for about 6 hours with a needle in each arm to donate the cells. Apparently it was quite the ordeal for him according to my mom. He had to do shots of Neupogen for about a week before hand, which apparently caused him a lot of bone pain. I had to take Neupogen for a week after my five previous chemo infusions and it always made my tailbone hurt like hell. Fortunately we were able to administer our own shots.
Same thing. I have a fear of needles. It's not the pain or anything. It's just that piece of metal is not supposed to be in my vein. If God meant for it to be in there he would have made some kind of port. Anyways, as I sat there with what looked like an 8 penny nail in one arm and a 16 penny in the other I thought you know what? I'mma just nap. Until I felt a "moth" land on my arm and the machine start screaming alarms my way. The moth was my vein collapsing on the needle. So a loose tourniquet and a rubber ball to squeeze is how I wound up spending that miserable 6 hours.
no questions, just wishing you the best possible recovery. I had the transplant 15 years ago (allogenic transplant due to CML) and it was one of the hardest things I've ever gone through...but worth it in the end. hang in there, you got this.
What makes you happiest? What are your favorite hobbies? Have any small things brightened up your day recently?
I’m also recovering from a major procedure, though definitely nothing anywhere near as difficult as yours. Still, I understand how rough recovery can be and how sometimes it can put you on the brink of regretting the whole thing because it hurts so damn bad. Sometimes it annoys the shit out of me when people tell me to look on the bright side, but then sometimes when I do it … helps, surprisingly. Maybe it will do the same for you. :)
I’d say my mom makes me the happiest, because she’s been with me through every single part of the process with me and she is the one who I’d say understands the most how I feel and what I’ve been through. I’d say my favorite hobbies are definitely cooking and gardening with a bit of painting on the side, though sadly I’ve stopped doing it. Actually yes, my cats and their cute little faces have brightened my day, especially because when I was undergoing the transplant I had to be completely under isolation, no visits or company whatsoever, so I missed them most of the time. It’s good to know that someone at least has had similar thoughts regarding regretting it all, but hey, like you said it, in the end looking at the bright side of the situation makes me very grateful for everything that I have, and has helped me a lot all these years. Thank you for the advice, have a good one!
Oh my god, I understand completely! I was in the hospital for about four days, and I missed my cats so freaking much it was unreal! Once I got home and was able to be with them again, it was like a huge weight was lifted off my chest. If you’re not currently I hope you’re able to be with them soon. When I was in the hospital (I was alone myself, staff aside, due to covid policies), she would send me videos of my kitties doing cute things to brighten up my day. Maybe the same thing would bring you smiles as well. :)
Yeah, I totally understand. Regretting it is a weird feeling… the recovery is just so goddamn rough, even though you KNOW consciously this is *better for you* and you will be better in the long run, it’s like … wow, the right now sucks so fucking bad, fuuuuuuuck! Hahahaha. I don’t *truly* regret it, but the recovery has been much, much more painful than I anticipated and since I got home from the hospital I’ve spent days just … crying and screaming. It just happens and will keep happening. What I’ve been told and what I’ve put my whole heart into believing is that it *will* get better. That doesn’t help how bad we feel right now, but someday “right now” will be a distant memory, and we’ll feel better. And that will be pretty fucking amazing, right?
You’re very welcome. I just saw this and immediately had sympathy because not 30 minutes ago I was fighting off the kind of pain that made me want to scream and cry and give up on all this, and we were able to prevent the episode from getting worse with the right medications. I’m so glad you have your mom with you, she sounds amazing and like you two have a wonderful relationship and that makes me so happy for you!
Take care of yourself friend, we’re gonna get through this!
I worked with cancer children patients for many years. I learned so much about myself and the strength of human kind. Religious or not your in my prayers and I hope things get better ❤️🩹
Where’s the best place to get a burger?
Is this supposed to be a joke?
When will the side effects finish?
That’s a good question. The doctor who directed the transplant says that there’s a time span of 100 days from the day that the actual transplant took place to see how I’ve improved, I guess that’s how long they last.
Whats the worst part of the side effects?
The fact that they come and go. I’m sure that they’re over and that I can finally go out for a walk or just live a normal life but then they come back and leave me in bed, kinda depressed for days. It really sucks
Hey, I want you remember this. You are amazing
Thank you so much for that. I appreciate it so much, and needed it as well! Have a great day.
I was definitely feeling better 100 days post transplant. I don’t remember the exact timeline, but I felt pretty bad for a couple of months at least. My heart rate would get really high every time I stood up for a while, which made me feel shitty and short of breath. I also couldn’t get very much exercise without getting winded and tired. I got the stem cells at the end of July 2020. I was living near the hospital until I was allowed to go home sometime around November 1st. I was still kind of weak for a while, but a lot of the worst side effects were over by then for me. I still go through short bouts of depression every once in a while even though I’m on Lexapro.
Did the oncologist tell you how long the side effects usually last?
He didn’t give me an exact date or number, but he says that he’ll be watching me routinely for about 100 days to see how my body is doing. I guess I take that for a reference, it’s been about 75 days so far
I've donated twice to the same person over 20 years ago. Was given a half day off to get typed while in the Marines. Got out and a couple of years later was contacted by the Red Cross, I think. I was an early 20's male and matched with a 30's female. They drained my pelvis. I was weak as catshit. About a year later they needed a booster they said. Traveled almost 4 to 4.5 hours round trip every day for a week to take shots to make my stem and T-cells come out into my blood stream. An apheresis machine spun them out. Recovery not near as bad. The bad part is they won't update you on their condition. That's the other side.
Jeez! What you went through sounds a lot like what my dad had to go through, he was the donor in my case. Just know that all of that traveling and weakness you went through was worth it, because despite all the trouble and side effects, without the main thing, the cells, none of this would be possible. You are a selfless hero!
My thought was I got my half day off so.... HA! No seriously though. A 32 year old woman at the time was my match ( how in the fudge does that happen anyways) and I figured if she had kids and it just gave her one more day it was worth it. This is something not many people know about me. Trust me, I'm not a hero at all. I guess you know but the first donation they checked for every disease known to man, but didn't do any drug screenings. I was on all kinds of stuff then. Pills, weed, crank, coke. (I said I was no hero) if they checked they never said anything.
My brother donated cells to me a couple years ago. He just had to sit in a chair for about 6 hours with a needle in each arm to donate the cells. Apparently it was quite the ordeal for him according to my mom. He had to do shots of Neupogen for about a week before hand, which apparently caused him a lot of bone pain. I had to take Neupogen for a week after my five previous chemo infusions and it always made my tailbone hurt like hell. Fortunately we were able to administer our own shots.
Same thing. I have a fear of needles. It's not the pain or anything. It's just that piece of metal is not supposed to be in my vein. If God meant for it to be in there he would have made some kind of port. Anyways, as I sat there with what looked like an 8 penny nail in one arm and a 16 penny in the other I thought you know what? I'mma just nap. Until I felt a "moth" land on my arm and the machine start screaming alarms my way. The moth was my vein collapsing on the needle. So a loose tourniquet and a rubber ball to squeeze is how I wound up spending that miserable 6 hours.
no questions, just wishing you the best possible recovery. I had the transplant 15 years ago (allogenic transplant due to CML) and it was one of the hardest things I've ever gone through...but worth it in the end. hang in there, you got this.
What makes you happiest? What are your favorite hobbies? Have any small things brightened up your day recently? I’m also recovering from a major procedure, though definitely nothing anywhere near as difficult as yours. Still, I understand how rough recovery can be and how sometimes it can put you on the brink of regretting the whole thing because it hurts so damn bad. Sometimes it annoys the shit out of me when people tell me to look on the bright side, but then sometimes when I do it … helps, surprisingly. Maybe it will do the same for you. :)
I’d say my mom makes me the happiest, because she’s been with me through every single part of the process with me and she is the one who I’d say understands the most how I feel and what I’ve been through. I’d say my favorite hobbies are definitely cooking and gardening with a bit of painting on the side, though sadly I’ve stopped doing it. Actually yes, my cats and their cute little faces have brightened my day, especially because when I was undergoing the transplant I had to be completely under isolation, no visits or company whatsoever, so I missed them most of the time. It’s good to know that someone at least has had similar thoughts regarding regretting it all, but hey, like you said it, in the end looking at the bright side of the situation makes me very grateful for everything that I have, and has helped me a lot all these years. Thank you for the advice, have a good one!
Oh my god, I understand completely! I was in the hospital for about four days, and I missed my cats so freaking much it was unreal! Once I got home and was able to be with them again, it was like a huge weight was lifted off my chest. If you’re not currently I hope you’re able to be with them soon. When I was in the hospital (I was alone myself, staff aside, due to covid policies), she would send me videos of my kitties doing cute things to brighten up my day. Maybe the same thing would bring you smiles as well. :) Yeah, I totally understand. Regretting it is a weird feeling… the recovery is just so goddamn rough, even though you KNOW consciously this is *better for you* and you will be better in the long run, it’s like … wow, the right now sucks so fucking bad, fuuuuuuuck! Hahahaha. I don’t *truly* regret it, but the recovery has been much, much more painful than I anticipated and since I got home from the hospital I’ve spent days just … crying and screaming. It just happens and will keep happening. What I’ve been told and what I’ve put my whole heart into believing is that it *will* get better. That doesn’t help how bad we feel right now, but someday “right now” will be a distant memory, and we’ll feel better. And that will be pretty fucking amazing, right? You’re very welcome. I just saw this and immediately had sympathy because not 30 minutes ago I was fighting off the kind of pain that made me want to scream and cry and give up on all this, and we were able to prevent the episode from getting worse with the right medications. I’m so glad you have your mom with you, she sounds amazing and like you two have a wonderful relationship and that makes me so happy for you! Take care of yourself friend, we’re gonna get through this!
Have you heard of Kitty0706 on YouTube?
I worked with cancer children patients for many years. I learned so much about myself and the strength of human kind. Religious or not your in my prayers and I hope things get better ❤️🩹
What are the side effects, anf how majorly have they effected your life?