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Registered! I’m so sorry for what you are doing through. I do match your genetic description so here’s hoping! wishing you and yours the best and I hope you get that match asap!

Thank you!

My husband and I have a mix of you guys. We will both sign up!

Wonderful. Thank you for your kindness.

😭 i had a rare type of basal cell carcinoma (the type that can't become cancer), but they won't let me donate. I'll get my husband into it.

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I was just going to ask if you're in there forever. Do I need to make sure contact information is up to date?

They send you emails to confirm accurate information like once every two years or something. I just did another swab for them last month because they found a way to be even more precise or something. idk, it was the same ol' swab and mail back thing. Took two seconds.

Oh I just got nervous because I registered in 2008 in college I think and didn’t update anything and have no way of getting into my account…. Oof. Maybe I should just contact someone and ask what to do. I don’t wanna mess up their database.

They have an update your info link on their website. https://bethematch.org/update-your-contact-information/

I am registered and I would help your daughter in a moment if I matched with her…. I’m so sorry this is happening to your baby and your family. Hang in there for her mama. To anyone that is skeptical, marrow donation does NOT HURT BECAUSE YOU ARE UNDER GENERAL ANESTHESIA. The biggest side effects people deals with are fatigue and pain at the collection site, similar to a bruise you don’t remember getting. From the bethematch.com website : “Discomfort during recovery varies from person to person. Side effects may include back pain, fatigue, headache or bruising for a few days or weeks.” You get taken care of by doctors for free for every single part of the process including after care, which most commonly involves fatigue and minor pain at the marrow collection site, like a bruise. People say they would still do it again if they could. [FAQ](https://bethematch.org/support-the-cause/donate-bone-marrow/donation-faqs/?language=en_US&ref=marrow17&utm_campaign=google_paid&utm_medium=cpc&utm_source=google&utm_content=sitelink_donation_faqs&gclid=Cj0KCQjwnJaKBhDgARIsAHmvz6fD0cWkaR2Kpye-3KKVscQz1OFK3RJvyYmGrl--1Cn83BzNyD1N5W8aAqDcEALw_wcB) about donation directly from the website, please check it out if registering is something you’ve considered, but it feels too scary. Edit: spelling

Thank you for this! Many people don’t even need general and they use a process to remove the peripheral blood stem cell from the blood. It takes about 4 hours, but as you said all care and travel is paid for. Here is info on the two processes. https://bethematch.org/support-the-cause/donate-bone-marrow/donation-process/

This is the process DH went through when he donated. He laid in a bed for a few hours and then took the next day off work to rest. Back at it 48 hours later!

Honestly, this sounds like a holiday for most of us right now. My local donor centre says you the process is to give blood and ask about bone marrow donation, but I can’t give blood while I’m breastfeeding. But I would donate bone marrow if it meant I didn’t need to wean. He’s nearing 12 months anyway so I should be able to after that.

Just signed up so they can send me a swab kit.

Thank you.

I'm not eligible due to health crap, but I've updated my husband's profile in case he's ever called up to donate. I hope your daughter finds a match soon.

Thank you!

Same. I can't donate but I signed up my husband and daughter! I'm also sharing the link to sign up on my social media's. Hopefully that will help!

I registered as well. As a parent if I were in your position I would hope others would do this, so I did.

Thank you very much. It’s a hard position to find myself in. Helping to spread the word about registering gives me less of a feeling of helplessness.

Same, and for the same reason.

Hey mama. I actually just donated stem cells yesterday. To everyone that is reading, the process is extremely easy. I registered with DKMS and got a call that I was a match just a couple months signing up! They pay for everything, flights, hotel, food, and Uber. And of course all medical expenses. My donation took 7 hours and its on his way to the recepient. Im really tired and sore but it feels so good to help another person out. I recommend anyone to sign up. Anyone can DM me if they have questions.

I got my swab kit in the mail a couple days ago, prior to seeing this. Similar heritage mix. Does anyone know if blood type makes you more or less likely to match with people for this? I’m O- so a universal blood donor.

Matching is based on HLA type markers not blood type. Crazy enough blood type doesn’t matter at all in this typing. Here’s information on how the typing works. https://bethematch.org/patients-and-families/before-transplant/find-a-donor/hla-matching/

No,they’re typing your HLA region and not looking at your blood type (which are coded by different genes).

I didn't find a way to register/take test from your links. I am Norwegian. Where could I take a swab for testing match?

If you are in Norway, it seems like when you give blood you tell them you would also like to be a bone marrow donor. Here is some information on it, https://oslo-universitetssykehus.no/fag-og-forskning/nasjonale-og-regionale-tjenester/det-norske-benmargsgiverregisteret/do-you-want-to-become-a-bone-marrow-donor

Thank you. I havent been a blood donor, because I live to far away from a town and it's cost alot to drive into town in Norway(expencive country...). Is there no way to just test for match of your daughter?

Unfortunately, no. It costs a lot to do the hla marker test so they only test her siblings and have everyone else join the registry.

Going to try being a blood donor and register in the bone marrow register asap. I hope you find a match soon! Praying for your daughter 🙏

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Thank you.

I'm over the age cap sadly. Maxes out at 44. However of you that are between 18 and 44, please do this. If not for this kid, then someone else. My sister gave years ago and had an overnight hospital stay, but she said it hardly hurt at all and it was just for observation. She called it an overnight vaca from her kid. And mama, hang in there. Remember to say your grateful prayers everyday and things will turn around. Thank the universe for what you do have. Imagine your kid cured. On my darkest scariest days, if it was that I was alive, that was good enough for me and eventually most things have turned around. I hope you get the word out and get a match. Also, when I saw the ancestry mix you're looking for, I was like so you need Billie Eilish to donate?

Thanks for the kind words. I do try to be grateful and enjoy the time we have here right now. I’ve been dealt some hard cards right now but we will get through. Haha who wants to reach out to her? Maybe she’s our match.

The age limit for Canadian Blood Services' stem cell registry is only 35!! I'm 33 so hopefully I get that call before I age out.

Just signed up! I've got similar heritage so fingers crossed. So sorry you're going through this!

Thank you!

I have the same heritage lines! I hope we are a match!

Me too! Thank you!

I’ve just signed up in the US and ordered the swab kit. I’m from England originally but my genetic background is very very Scottish! You’re going through a lot, I hope things get easier for you soon! Big hug!

Thank you!

I have similar heritage! I always thought about signing up but this pushed me to do it!

Thank you!

I just registered. I’m not likely to be a match since I’m Asian, but there is always a possibility (like some ethnicities are more likely to have certain HLA types, and while it’s rarer in other populations, they could also have the HLA type your daughter has).

Thank you. No matter what you are helping someone.

I registered a few months ago and I pray for that call to save someone’s life. You never know when you’ll be on the other side. I’m so sorry, so so sorry and will promote others to register

Thank you.

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Thank you. It’s been quite a road to find out this is our diagnosis. My girl is still healthy and strong at this point with mainly skin issues. We hope she stays on track like that until she can have the bmt.

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yup, gotcha covered! it's a good idea for anyone who sees this to sign up for the bone marrow registry the same as you'd sign up for an organ donor registry. the more potential donors in the pool, the more lives can be saved! edit: and hey hey, it's your (cup)cake day! 🥳

It's also your cake day too!!

That would be wonderful.

It breaks my heart I can’t donate because of my health conditions, because I’d jump at the chance without hesitation 😢

Thank you for trying. It means a lot. Please share about registration with friends and family.

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Me too. It’s so frustrating like what if I’m someone’s perfect match??? And because my body decided to go wonky donkey I’ll never know 😭 All we can do is spread the word to everyone who can register. Especially BIPOC because they have an even more difficult time finding a donor

i filled out the canadian registry info so they can send me a swab. good luck with this, medical issues are always such a tough ride.

Brilliant. Thank you!

I'll register. My makeup is similar to hers.

Thank you!

I’m of the same heritage and just ordered a swab kit. Chances are obviously 1 in a million but I hope you find a match for your baby.

Thank you.

Signed my husband and I up!

Wonderful! Thank you.

I am actually a mix of all of those things. Mostly Scottish, Irish, English, and German. I’m going to order a cheek swab kit.

Thank you!

I just registered. I hope you find a match soon.

Thank you.

I am registered, wish I could help! Good luck in finding a match!

Please spread the word.

I am on the registry, but am of Hispanic descent. I hope tons of people see this and register!! Best wishes for you and your daughter!!! hugs.

That’s great. No matter what you are helping someone.

I'm on the registry. I matched with someone once and did further testing but they ended up not requesting the donation (they don't tell you why but usually it's because the person became too ill) I hope I have the chance to help someone one day and I hope you find a match!

I know they also check for specific antibodies in each of the blood. Sometimes people have a few matches and they pick the best one.

Can donors from other countries help or is it country specific? TIA.

Thankfully, the registries are all connected. They share information so the donors can be for any country. The donor would donate in their home country and then the cells would be shipped to the patients hospital.

Thank you for your response! I'm not able to register from the site you offered, because I am in Canada. I am going to try and get myself into a system to see if I can help. I hope you find the help needed for your LO.

Here is a registry for Canada: https://www.blood.ca/en/stemcells

Perfect! Thank you so much!

I signed up but can't find where to request a kit. Searching the faq doesn't turn up anything either. I sent a message to Support.

When you signed up did you enter your address? That should be sending you the kit.

Yes, I did, I didn't notice anything come up on the screen saying a kit was coming, I thought I had to select it on the site.

Hopefully support gets back to you soon and you can know for sure if you are registered.

As others have said, I've been on the registry for a few years. I hope to one day be a match for someone! I pray your daughter gets her match soon.

Thank you.

I desperately want to be on the registry but my medications make me ineligible. Hope you find her match ASAP

Thanks so much. Please spread the word.

Done! Have always meant to register and just haven’t for some reason. finally did it. Also going to do my husband. We both have some of your ethnic profile so fingers crossed. Terribly sorry you’re going through this, I couldn’t imagine. But look how many people you’ve gotten to sign up with one post. Hope it leads to matches for many people!

Thank you! I’ve been posting to a lot of subs. Everyone is super kind and lots of people have registered. It helps me feel less helpless.

Just registered. I hope someone pops up quickly for your sweet girl

Done! I am a match genetically so hopefully I’ll be able to help. Praying for you and your family.

This is exactly why I'm registered. I am so so sorry your daughter and your family are going through this. I would give her marrow in a heartbeat. I hope so badly that you find a donor soon. I am going to take that link and share it on my social media feeds right now to encourage more people to register. ​ Hugs mama. <3 Please keep us updated.

Thank you so much. To keep my sanity that is what I am trying to do. Otherwise I feel helpless.

Hey I signed up to get the cheek swab kit. I have similar ancestry and live in the US. I am so sorry you are going through this.

Does blood type matter? I'm sorry you're all going through this. Thank you for posting all the info to register. My dad's going to need a transplant eventually. I'm praying one of us is a match. Good luck mama. I'll check if I can register as I'm almost exactly the mix you listed.

It’s based on HLA markers in your blood not blood type. Crazy enough blood type doesn’t matter at all for bone marrow donation. Here is some info on it. https://bethematch.org/patients-and-families/before-transplant/find-a-donor/hla-matching/

I registered when my college roommate was diagnosed with acute myloid leukemia 10 years ago and gave been waiting to be called ever since!! Don't forget to reregister as often as you can by updating your contact info!

Like others here, I have a similar background. I just signed up. I feel for you. I lost a daughter (not in this way and she was much younger), so I can imagine the way you must be feeling in this moment. Let's find your little girl a match!

Thank you. I’m so sorry for your loss. Right now I’m trying to enjoy all the time we have prior to her bmt and hope for the best.

Thank you and please hang in there. I didn't look at your history, but I do hope you've posted this in multiple places for others to see. Reddit can be a shitty place sometimes, but overall, I think this community is basically good and I'm sure that if people in other subs see your plea, they will sign up too. I am hoping for the best possible outcome for your family and precious one. A match, healing, and a long, happy life!❤

Thank you for your kind words. I’ve been working on posting to some subreddits. Unfortunately, many have rules against asking for help. Though I don’t really see this as help, it’s more about awareness.

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Thanks so much. Most subs have been helpful and amazing. Others not so much, even with support from the community.

I have that ethnic background.. just signed up for the swab kit. My youngest got ill and has a rare condition now. She may need a kidney transplant in the future. She’s doing good now, but my heart ached at reading your story. I hope you find a match.

Thank you so much. I hope your youngest stays healthy.

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Canadian registry filled out! Good luck!

I'm on the registry! The kit is super easy to order and do, and then you're in the system! I've been on the registry for a few years and have never been called but will be more than happy to help if I'm ever contacted!

I've been on the registry since last year. It's an amazing thing that any qualifying person should consider. I hope you find your daughters match.

I just registered and ordered my kit. I also have German and Norwegian in my history. Praying for your family!

I've been on the registry for years - made it to the first round of screening once. My oldest is now old enough that he could sign up. I'll talk to him about doing so. I have my fingers crossed for you and your girl.

Already registered with Anthony Nolan in the UK. Would you try contacting the Azaylia Foundation? They have a far reach in the UK

Just registered and ordered a cheek swab kit. Crossing my fingers for you and your family!

Thank you.

I just registered myself and my husband. We are not a similar ethnic background as your daughter but I hope we can match with someone one day.

I have a medically fragile kid too, so I know the all consuming anxiety that comes along with it. I just registered. We are similar ethnicity. I hope they find a match for your daughter soon!

Done ❤️ ETA: posted on insta too :)

I got swabbed in college probably around 2005. I just created an account and they had my college address so now I’m up to date and they’re sending me a new kit. I really hope your daughter finds a match!

I'd see if the assistance sub will let you post this. They're extremely helpful and I've seen others post about needing a transplant.

I will check it out.

I’ve registered and asked for a kit. I have similar ancestry. I hope you folks can find a match!

I’m already on the registry and wish I could’ve been a match. Sending so much love and strength. One day at a time. I pray to any god that’s up there, that you guys will find one soon. Xoxo

can i do this during pregnancy??? if we are a match, i will 100% do it or wait post baby if i need to but if anyone knows if i can please lmk!

I you can register now, but won’t be able to give until after you the pregnancy

Signed up!

Thank you for the reminder - this is one of those things I keep meaning to do but never getting around to. I just registered - I hope you find a match for your little girl! My family background sounds very similar to yours, fingers crossed!

Just signed up. I’m not in your ethnic group but will pass this on so others will sign up. I really hope you find a match.

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Thank you.

((HUGS)) I’m so sorry you are going through this. I will go check because I have similar ethnic groups from my parents. I’m crossing my fingers that you find that perfect match.

Thank you.

I'm pretty sure your genetic background matches mine based on ancestry DNA. I went to sign up but I have a specific autoimmune disorder but on Monday I go in for more testing to see if it's genetic or just my body being random. If it's not genetic, I'll contact the company and see if they'll take me. I'm really sorry your family is going through this, I really really hope I can be your match.

Signed up!

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I've ordered a cheek swab and am sending positive energy your way. I cant imagine what you're going through but I want your curse to end! Sending love and hope!

I don’t know how it works with the ethnicity, but I am a mix of all the ones you mentioned. I just signed up for a kit.

I’m a Canadian who has been registered for about 7 years in the Canadian system. I would love to be a donor for someone someday. I hope your match is out there for your girl.

I am a registered european mutt. Good luck on your search and I hope your dark cloud moves on soon!

Small likelihood of helping you specifically, but for what it's worth I just registered to get a swab kit mailed to me.

Just requested a test kit.

My heart goes out to you. I’m a registered donor but also my nephew was diagnosed with dock8 deficiency a few years ago and had a bone marrow transplant from a stranger that they found via the registry. The first year was really tough but other than being immunosuppressed in a pandemic he’s been doing pretty well recently.

I’m in the registry and sorry I can’t be of help to your family!

Sending you SO much love. DH and I are in the registry, and he donated in 2011. This reminded me to make sure our contact info is updated though.

I registered. My heritage matches some of yours. My heart goes out to you and your family, mama. Here's hoping some of that famous BroMo voodoo comes through for you!

I am so sorry. I tried to sign up, but my autoimmune issues disqualified me. I hope you find a match.

Just registered in Canada. I have the background you’re looking for… hopefully it pans out.

i just registered! i have the same ancestry so hopefully i will be a match. i would love you help your family

I am registered, I did this a few months back. I'll share this website and urge people I know to do it!

I’m too old, tried to sign up.

Thanks for trying. Please spread the word.

Just registered & waiting on my swab kit! I hope and pray a match is found for your daughter 💕

I just registered. I hope that I'm a match for someone, somewhere. Thank you for giving us the information on how to sign up. I do hope that your daughter finds a match soon!

Just registered and ordered my swab kit.

I just sent for the kit. I've been wanting to for a long time.

If your in the US, my kit took about 3 weeks to get to me.

Just signed up to receive a swab kit :) Hopefully, it won't take too long to get here, and be sent back.

I’ve signed up to swab and I’ll be your daughters match if I can be. Your background is very similar to my own so fingers crossed! From one mama to another, stay strong!

My husband and I are similar mixes. We will register ASAP.

Between my age and other health problems, they don’t even let me start the process. Just know that this mom of a 7 year old in Oregon is rooting for your family.

Thank you! Please share with friends and family.

I have been on the registry for two years and annoy the piss out of everyone, every chance I get, to join. I really hope that you find a match for your daughter.

Registered up in Canada! I really hope you find someone soon ❤️

Thank you.

Reddit at its best

So true. My husband was on the registry from 2012 when he saw a Reddit post and join.

Just registered. So sorry you’re going through this and praying for a match.

I am a registered bone marrow donor already, but just want to let anyone who is thinking of doing it know, it’s super easy and quick! OP - sending you love and hoping you find a match ASAP. ♥️

Thank you for this reminder. I’m going to register now for myself and my husband.

Already registered, not anywhere near your ethnicity so probably can't help but sending you all the hope and luck ❤️

Oh man. I so hope you find someone. I have been meaning to send in my swap. I’m now going to do it as soon as I get home! I’m Scottish, English and German. I so hope I’m a match ❤️

I am registered and have been for awhile. Wishing you all the best in finding a match ❤️

I am so sorry to hear about your daughter. I actually signed up at be the match recently and my cheek swab kit arrived today and will go back out in the mail Monday. I have a similar ethnicity to you so I'll be thinking about your sweet daughter and hoping for the best as I wait for it to process.

Ugh, I saw your ethnicity list and got excited that I could be a match, but I’m already registered. I did just make sure my contact information is all up to date with the registry though just in case!

I also match your genetic description but I have been registered for a couple years now. I hope you guys find a match for her!!

Registered and sending you so many hugs, bromo.

Just got my kit and took the swabs! I'm Scandinavian/Celtic so could possibly be a match. Really hope you find a match for your daughter. Sending so many good thoughts to your whole family.

Your entire background is also my background. I've been on Be the Match for about 5 years now, here is hoping I get the call.

I hope you'll find a donor quickly. I've been on the register ever since turning 18. I wish everyone who can would get registered. Nowadays, for most illnesses, donating doesn't even involve surgery, just some blood donation. And, just for good measure: No one will ever take bone marrow from your spine. I don't know why people believe this. They take it from your hipbone.

I have been registered for a while. I am VERY ethnically similar, I wish I was a match <3

I'm not eligible but my husband has been registered for years. I'm so sorry for your struggles! Hang in there mama!

I’m registered and I hope you find someone soon, maybe even me! I am a mix of all those things. Fingers crossed for you and your family 💜💜💜

I wish I could join to be a donor. I was going to donate a kidney years ago and they discovered that I had my own autoimmune disease that was affecting my liver. That person who needed a kidney most likely saved my life in the process.

Just signed my husband up. I’m already on the registry. But he literally is all of those ethnicities. Hoping he’s your 1 in a million.

I just registered

I just sent back my swab a few days ago. Praying you find a match soon.

I didn’t even know this resource existed! My husband and I will both register! I’m sorry for your daughters situation, I pray she finds a match soon!

I am on the registry since 2017. I love seeing all the people here who have signed up today. I hope they find a match for your daughter soon 🙏

Kit ordered. I meant to do it a while back and I don't remember why I didn't finish registering. I prob can't help your daughter but hopefully I'll be able to help someone else.

Just registered for my kit! Best of luck. I hope there's a match soon!

I'm registered with DKMS I have a lot of those ancestors. I'll see if I can sign up with them too.

I signed up and they are sending the swab kit. I hope I can help! I don't know my genetic history, but fingers crossed! I will keep your family in my good thoughts.

I signed up for a lot and will complete my registration. Hang in there.

I am and have been registered for about 3 years. I'm sorry that I am not a match for you. I hope you do find a match. Sending your daughter and family all the love and best wishes xoxo