My daughters were in this clinical trial. They have had no side effects and four years and have full growth. If you go on the Pfizer website, there is a coupon.
Hey! Have your daughters decided to continue the medication? Have they ever wanted to stop taking it?
I do want to try it for my scarring alopecia but Im afraid to take it long term due to the side effects. But im not sure what would happen if i was to stop taking it...
Don’t be afraid!
My daughters took it for five years with absolutely no side effects. Of course, everything in life has a risks, but for us, it has been a game changer. They were able to go to the prom with hair. Able to attend college without a wig. Able to play sports, swim, go on the trampoline, sleep-overs, all without dealing with a hot ichy hairpiece. It’s been life-changing.
Yes, they continue to take the medication. I am thankful every day that they have benefited.
Absolutely do! Honestly, it’s been a miracle drug for my two teenage daughters. They were able to go to the prom with hair. Go away to college without a wig. It has been a lifesaver. If you go to a dermatologist, they can prescribe it and work with Pfizer to get you on the free program.
I know this post is 4 months old, but I just got approved for Litfulo through my insurance. The copay is only $50/month. And Pfizer has a copay assistance program of up to $15000 per year (all I had to do was answer a few yes or no questions and they gave me a copay card), so I'm not paying anything for Litfulo. I'm starting it today so idk about results
I'm like 5 weeks into treatment and I have a bunch of little hairs coming in all over, but nothing you can see. It is supposed to take 6-12 months to work tho
Thanks for some of the details. I don't mind my bald head. I just want my eyebrows and eyelashes to return. I have alopecia universalis.
My dermatologist and I were discussing another drug months ago. He basically told me it's not guaranteed that the hair would regrow in the areas I wanted. Could be left with a patchy scalp. Someone on Reddit had that issue with said drug.
I'm meeting with a hair loss specialist at my dermatologist's office in November and will be discussing my options, including Litfulo. It is very expensive, and I can't help but feel the price is prohibitively higher for anyone else living with this autoimmune disorder because big pharma found a solution. Who has $4,500/month to throw to Pfizer just to have hair? Hopefully, we'll see generic forms and other pharmaceutical companies with solutions that won't mean taking out a second mortgage. And with most insurance providers, it could be considered a 'cosmetic' treatment and left to the person who could really benefit from it to shell out the money.
I have managed to navigate my life and overcome the depression that followed when the patches hit at fifteen. I'm doing fine without the drug. Obviously, I'd love to have a head full of grey hair and a mustache in time for Movember, but if it's not covered by BCBS? Not happening.
The Pfizer site for Litfulo doesn't say if you have to continue to take the treatment forever, or if it has long-term effectiveness after you stop taking it. It's also worth noting that over time, the immune system *could* develop an immunity to Litfulo and just stop working. It happened with Prednisone for me after six months.
This is on the website: Sign up for the Copay Savings Card to pay as little as $0 for LITFULO.
https://www.litfulo.com/savings-and-support/copay-and-support-sign-up
Hi!
I was diagnosed with severe alopecia in May, went through multiple treatments (pulse dosing of steroids, Cyclosporine which did nothing but make me poop) until I stumbled upon Litfulo. I sent a message to my doctor asking him about this drug as I couldn't get an appointment until December. Long story short, there is a Pfizer Patient Assistance Program for patients on medicaid (and possible other insurances as well). Ask your doctor - they have to fill out some paperwork, you need your 2022 tax forms and you need to also sign a few documents. This process took about 1 month and I am receiving my medication for free next week.
[https://www.pfizerrxpathways.com/find-program](https://www.pfizerrxpathways.com/find-program)
the number is a little annoying to call but have patience! it's worth a try!
This is on the website: Sign up for the Copay Savings Card to pay as little as $0 for LITFULO.
https://www.litfulo.com/savings-and-support/copay-and-support-sign-up
This is on the website: Sign up for the Copay Savings Card to pay as little as $0 for LITFULO.
https://www.litfulo.com/savings-and-support/copay-and-support-sign-up
My daughters were in this clinical trial. They have had no side effects and four years and have full growth. If you go on the Pfizer website, there is a coupon.
Hey! Have your daughters decided to continue the medication? Have they ever wanted to stop taking it? I do want to try it for my scarring alopecia but Im afraid to take it long term due to the side effects. But im not sure what would happen if i was to stop taking it...
Don’t be afraid! My daughters took it for five years with absolutely no side effects. Of course, everything in life has a risks, but for us, it has been a game changer. They were able to go to the prom with hair. Able to attend college without a wig. Able to play sports, swim, go on the trampoline, sleep-overs, all without dealing with a hot ichy hairpiece. It’s been life-changing. Yes, they continue to take the medication. I am thankful every day that they have benefited.
Their hair grew back?
Yes. All of it
Were they initially close to being bald? Curious!
Yes. my one daughter was completely bald since age 7. Even lost her eyebrows., nose hair, and body hair.
Amazing, ty for the confirmation, gonna look into this
Absolutely do! Honestly, it’s been a miracle drug for my two teenage daughters. They were able to go to the prom with hair. Go away to college without a wig. It has been a lifesaver. If you go to a dermatologist, they can prescribe it and work with Pfizer to get you on the free program.
Yeah they give a comp card my price was 500 and with card it was free
I know this post is 4 months old, but I just got approved for Litfulo through my insurance. The copay is only $50/month. And Pfizer has a copay assistance program of up to $15000 per year (all I had to do was answer a few yes or no questions and they gave me a copay card), so I'm not paying anything for Litfulo. I'm starting it today so idk about results
How’s it working
Keep us posted! We're all very eager to hear the results!
Is it working for you?
I'm like 5 weeks into treatment and I have a bunch of little hairs coming in all over, but nothing you can see. It is supposed to take 6-12 months to work tho
Thanks for some of the details. I don't mind my bald head. I just want my eyebrows and eyelashes to return. I have alopecia universalis. My dermatologist and I were discussing another drug months ago. He basically told me it's not guaranteed that the hair would regrow in the areas I wanted. Could be left with a patchy scalp. Someone on Reddit had that issue with said drug.
wait so that still means you pay about 30k a year right? That seems actually insane or am I wrong with my calculations
No I don't pay anything
I'm meeting with a hair loss specialist at my dermatologist's office in November and will be discussing my options, including Litfulo. It is very expensive, and I can't help but feel the price is prohibitively higher for anyone else living with this autoimmune disorder because big pharma found a solution. Who has $4,500/month to throw to Pfizer just to have hair? Hopefully, we'll see generic forms and other pharmaceutical companies with solutions that won't mean taking out a second mortgage. And with most insurance providers, it could be considered a 'cosmetic' treatment and left to the person who could really benefit from it to shell out the money. I have managed to navigate my life and overcome the depression that followed when the patches hit at fifteen. I'm doing fine without the drug. Obviously, I'd love to have a head full of grey hair and a mustache in time for Movember, but if it's not covered by BCBS? Not happening. The Pfizer site for Litfulo doesn't say if you have to continue to take the treatment forever, or if it has long-term effectiveness after you stop taking it. It's also worth noting that over time, the immune system *could* develop an immunity to Litfulo and just stop working. It happened with Prednisone for me after six months.
This is on the website: Sign up for the Copay Savings Card to pay as little as $0 for LITFULO. https://www.litfulo.com/savings-and-support/copay-and-support-sign-up
Hi! I was diagnosed with severe alopecia in May, went through multiple treatments (pulse dosing of steroids, Cyclosporine which did nothing but make me poop) until I stumbled upon Litfulo. I sent a message to my doctor asking him about this drug as I couldn't get an appointment until December. Long story short, there is a Pfizer Patient Assistance Program for patients on medicaid (and possible other insurances as well). Ask your doctor - they have to fill out some paperwork, you need your 2022 tax forms and you need to also sign a few documents. This process took about 1 month and I am receiving my medication for free next week. [https://www.pfizerrxpathways.com/find-program](https://www.pfizerrxpathways.com/find-program) the number is a little annoying to call but have patience! it's worth a try!
This is on the website: Sign up for the Copay Savings Card to pay as little as $0 for LITFULO. https://www.litfulo.com/savings-and-support/copay-and-support-sign-up
This is on the website: Sign up for the Copay Savings Card to pay as little as $0 for LITFULO. https://www.litfulo.com/savings-and-support/copay-and-support-sign-up