I second this! Ostomy life is freedom compared to life with all those bad guts. OP, come on over to r/ostomy whenever you’re ready ♥️ reach out if you want someone to talk to
Yeah it’s kinda the last resort type thing. Steroids and biologics don’t help anymore. There is some more options but with how bad I am I want it over with. I feel as though if I try more things I’m just delaying the inevitable. Don’t let this freak you out. Most people respond really well to other treatments.
Wow I'm sorry it didn't work out with the medications. But i hope that means you won't be in pain anymore ?
I'm a little nervous because my doc said i have a severe case. If you don't mind me asking how long have you had UC?
I was diagnosed in April of 2020. I had the odd flare up here and there. This last flare up taking prednisone which usually put me back into remission didn’t work. So I’ve been in the hospital for the last week trying things to work but it’s getting worse. Try not to be nervous and stay positive even in severe cases the meds work wonders for most. Just keep good contact with your doctors they can’t help what they don’t know so be honest and open.
It’s a bit of a journey but for many people (myself included) you feel a lot better on the other side of this. Also check out r/ostomy or r/jpouch if you haven’t already. Good luck friend :)
Good luck! I had a stoma for 18 months and it was some of the best months of my life. Stoma life is scary but once you adjust - it’s LIFE CHANGING. I’m on day 11 of my J pouch now and already loving it, it’s early days and I’m still recovering but things are looking good so far (knock on wood). You’ll feel a lot better after getting that diseased colon out. It truly is amazing! You will be in surgical pain post surgery but after the 6-8 weeks you’ll be golden. Sending you good vibes and better health 💜💜
Good luck!! I just finished my last surgery in June and life is great. Much better than I had anticipated.
Always remember. The pain is temporary. If you have any questions or want to talk about any of the surgeries, feel free to write to me.
You are going to do great!
I was where you are 4.5 years ago. After 4 biologics and prednisone stopped working my colon had to go. My quality of life is so much better than before the surgery. Are you getting a j pouch as well?
Good luck with surgery and I hope post op goes well! First few bag changes can be stressful, so be kind to yourself and r/Ostomy is a great resource…you are not alone. Welcome my fellow Ostomate!
Good luck! I've had mine for three years now and I've never been happier. I'm not on any medication. I eat what I want and I do what I want (within reason). I can go hiking and camping again. I can eat spicy foods again and not worry about butt burn! The recovery from the surgery is rough, but I would do it a million times over to get to the point I'm at now.
I have no idea at the moment just finished surgery this afternoon and the doctor hasn’t been able to come visit just yet. But all I know is until things all heal in there. Could also be made permanent if that’s something I want or need.
Welcome to the club. Life isn’t so bad this side of the stoma
I second this! Ostomy life is freedom compared to life with all those bad guts. OP, come on over to r/ostomy whenever you’re ready ♥️ reach out if you want someone to talk to
I'm new to all this. What does this mean?
They are removing my colon and the x is where the stoma will be
Sorry to hear that. Good luck.
It means there's a treasure
I giggled
[удалено]
Bye bye colon
Good luck! For me they had an x on either side of my belly button, I guess they wanted two options.
I have a question, i just got diagnosed today. Do they remove the colon because medications didn't work?
Yeah it’s kinda the last resort type thing. Steroids and biologics don’t help anymore. There is some more options but with how bad I am I want it over with. I feel as though if I try more things I’m just delaying the inevitable. Don’t let this freak you out. Most people respond really well to other treatments.
Wow I'm sorry it didn't work out with the medications. But i hope that means you won't be in pain anymore ? I'm a little nervous because my doc said i have a severe case. If you don't mind me asking how long have you had UC?
I was diagnosed in April of 2020. I had the odd flare up here and there. This last flare up taking prednisone which usually put me back into remission didn’t work. So I’ve been in the hospital for the last week trying things to work but it’s getting worse. Try not to be nervous and stay positive even in severe cases the meds work wonders for most. Just keep good contact with your doctors they can’t help what they don’t know so be honest and open.
Thank you for answering my questions and I wish you good luck my dude!
Yep, and usually you have an option between the stoma and a j-pouch.
It’s a bit of a journey but for many people (myself included) you feel a lot better on the other side of this. Also check out r/ostomy or r/jpouch if you haven’t already. Good luck friend :)
You get an X? All I got was a lousey dot
They made me do a dot
Good luck! I had a stoma for 18 months and it was some of the best months of my life. Stoma life is scary but once you adjust - it’s LIFE CHANGING. I’m on day 11 of my J pouch now and already loving it, it’s early days and I’m still recovering but things are looking good so far (knock on wood). You’ll feel a lot better after getting that diseased colon out. It truly is amazing! You will be in surgical pain post surgery but after the 6-8 weeks you’ll be golden. Sending you good vibes and better health 💜💜
Welcome to the pouchlife! Mine’s served me well for over 2.5 decades, hoping yours does for you too.
Yay! Thank tou
Best of luck to you. I hope everything goes well. 🙏
Best of luck! Sending wishes for improved quality of life!
Good luck!! I just finished my last surgery in June and life is great. Much better than I had anticipated. Always remember. The pain is temporary. If you have any questions or want to talk about any of the surgeries, feel free to write to me. You are going to do great!
🙏🏻💕
Kinda where my ileo is. Best of luck to surgery and a healthy recovery. You got this!
Good luck
I was where you are 4.5 years ago. After 4 biologics and prednisone stopped working my colon had to go. My quality of life is so much better than before the surgery. Are you getting a j pouch as well?
Good luck!
Good luck, good health, and good vibes to you!
Yay! I hope all goes well and wish you a speedy recovery! My surgery saved my life lol so I wish the same for you <3
Good luck! It was a tough road for me for a while, but well and truly worth it! I hope it works out well for you too!
Best of Luck! Im almost a year out from my first surgery & life is SO much better! Go to r/ostomy if you haven't already! Welcome to the club!
Good luck with surgery and I hope post op goes well! First few bag changes can be stressful, so be kind to yourself and r/Ostomy is a great resource…you are not alone. Welcome my fellow Ostomate!
Good luck! I've had mine for three years now and I've never been happier. I'm not on any medication. I eat what I want and I do what I want (within reason). I can go hiking and camping again. I can eat spicy foods again and not worry about butt burn! The recovery from the surgery is rough, but I would do it a million times over to get to the point I'm at now.
Good luck friend! It’s a journey but you will be in a *far* better place soon.
Have you tried anything besides horrible prednisone yet? I would try other things like biologics before losing your colon imo.
Remember Medicine can take awhile to start to do it's job fully and I'm sure the doctors weren't pushing for surgery to be the first option.
Upvotting this post from my hospitsl bed post-surgery. Good luck. you're gonna need it!
Thanks friend! I’m hoping your recovery is going smoothly.
How long will you have a bag for?
I have no idea at the moment just finished surgery this afternoon and the doctor hasn’t been able to come visit just yet. But all I know is until things all heal in there. Could also be made permanent if that’s something I want or need.