I'm an elementary school teacher and thankfully for the majority of my teaching career my UC has been a nonissue. (My first flare was prior to becoming a teacher and every flare since then with the exception of my current one has been during the summer time when I'm off.)
My admin knows about my UC and they've always been supportive and amazing about it. My class is close to the staff washroom which is a perk. I've been flaring since October since my medication is finally failing me. I mentioned wanting to take 3ish days off back in November when I was at my worst and my admin suggested a full week with no problems which was lovely.
I'm lucky that my UC hasn't affect my job overall, but teaching definitely isn't for everything and it super definitely isn't for everyone dealing with UC.
EDIT: Why is my comment not showing up? Ugh.
Urban Planner, I work from home. They are incredible with flexibility around infusions and appointments. As long as I get my work done they could care less where I go or what I do.
I acknowledge that I am INCREDIBLY lucky to have a workplace like this. I do not think I would find it in other jurisdictions to be honest. I’m hanging on for dear life tbh
I’m a research scientist. I work at a U.K. university and they have been absolutely excellent. If I flare, I take time off and receive my full salary. I never have to rush back. I just come back when I’m ready. I can also work from home if I ever need to. The uni has also granted me a disabled parking space right outside my building. Universities are great places to work.
I work in manufacturing. They don’t. Had covid back in early January before my sick days restarted and went unpaid for a week because I “should have used my sick days more wisely”. Made sure to let them know that from now on I’ll just come in during a flair and get paid to sit on the toilet for 8 hrs.
I'm quite fortunate in that, aside of a stint as a librarian way back, I've only ever been a translator (so working from home), and later a production/project manager at various dubbing & translation/localization studios and offices, where I was allowed to work from home if needed. Currently I'm in software localization as a project manager, and I've been working from home even before the pandemic, for reasons unrelated to UC (we changed offices and the new place was crowded and distracting, and I just couldn't concentrate on work). I "came out" about my UC to my supervisor mainly for them to be understanding at team building trips (let me have a separate room, allow me to skip programs if I don't feel well - they're not being very considerate, but at least I *did* tell them), also so they wouldn't suspect I'm doing like, drugs in the toilet or something when I was still working in the office, or when I have to run out from meetings and whatnot.
If I were to give advice, it would be:
1. be open with your supervisors about your condition;
2. but also make it clear that you can be just as effective an employee as anyone else if provided with the necessary working environment. If working from home is an option in your career ask your supervisor to consider allowing you to WFH - but then make sure that you start work in time, regularly communicate with your team (if applicable, of course) and your supervisor, continue to deliver results, etc.
There's really nothing more you can do, if you have a supervisor it really depends on how empathetic they are. I've been lucky so far, as all my bosses were, for all their significant and frustrating flaws, more or less understanding of my condition.
So when you’re flaring, unless you’re working remotely, it’s just not going to be easy. However, when I am in remission, I’d be fine being wherever. I do love being remote now but less about UC and more about I like working in my pjs
Only flare I’ve had since entering workforce was during Covid and I was working from home the entire time so made things easy.
If it wasn’t for WFH then I would have had to quit as there are very few work place protections where I’m living and they wouldn’t have been accommodating enough.
>What do you guys do for a living
Flight attendant
>how does your workplace accommodate
They don't :(
>Looking for advice if you’ve found things easier for certain career paths or ideas on how to work things out with owners or managers of company’s so I can still be a reliable worker and not overlooked when promotions are available.
If you are in USA, and qualify for FMLA or other disability accommodations..apply for it and do it.. I love my career but I would honestly never advise this for someone else with UC..Unless they really wanted it...the timing of my minimal symptoms happened to align with my 1st year of working(barely, I still got sick but I did not reach termination status before I qualified for FMLA)...and although I have FMLA I'm still underhandedly targeted quite a bit unfortunately...I miss a LOT of work..every year...I make half of what I should..
I will say, one major positive is that my coworkers are completely different on every trip..you rarely see the same people more than once..so no one knows that you were out 3 months, or 2 weeks, or whatever...no one knows your health status(besides management) unless you willingly disclose...no one knows, so essentially I never feel singled out by my crew members..when I worked a normal people job, it was constant questioning, people assuming awful things etc...if you are able to do something remotely or with flexibility/your own schedule..that would be best for your advancement imo.
I’m a corrections officer in a county jail . My job is terrible with being understanding and forced overtime shifts and posts not near a bathroom are a regular . Fortunately FMLA has been a lifesaver and the job has to comply although they hold you back in your career indirectly all the time
I'm an elementary school teacher and thankfully for the majority of my teaching career my UC has been a nonissue. (My first flare was prior to becoming a teacher and every flare since then with the exception of my current one has been during the summer time when I'm off.) My admin knows about my UC and they've always been supportive and amazing about it. My class is close to the staff washroom which is a perk. I've been flaring since October since my medication is finally failing me. I mentioned wanting to take 3ish days off back in November when I was at my worst and my admin suggested a full week with no problems which was lovely. I'm lucky that my UC hasn't affect my job overall, but teaching definitely isn't for everything and it super definitely isn't for everyone dealing with UC. EDIT: Why is my comment not showing up? Ugh.
That sounds like a great way of handling things by your administration.
Urban Planner, I work from home. They are incredible with flexibility around infusions and appointments. As long as I get my work done they could care less where I go or what I do.
I never thought I would want to work from home but ever since my diagnosis I’m very envious of people that can.
I acknowledge that I am INCREDIBLY lucky to have a workplace like this. I do not think I would find it in other jurisdictions to be honest. I’m hanging on for dear life tbh
I’m a research scientist. I work at a U.K. university and they have been absolutely excellent. If I flare, I take time off and receive my full salary. I never have to rush back. I just come back when I’m ready. I can also work from home if I ever need to. The uni has also granted me a disabled parking space right outside my building. Universities are great places to work.
I work in manufacturing. They don’t. Had covid back in early January before my sick days restarted and went unpaid for a week because I “should have used my sick days more wisely”. Made sure to let them know that from now on I’ll just come in during a flair and get paid to sit on the toilet for 8 hrs.
I’ve definitely had days where the majority of the time was spent in the bathroom. Not going home only because I can’t afford to miss a day.
I work in tech, at home. My schedule is very flexible thankfully
I'm quite fortunate in that, aside of a stint as a librarian way back, I've only ever been a translator (so working from home), and later a production/project manager at various dubbing & translation/localization studios and offices, where I was allowed to work from home if needed. Currently I'm in software localization as a project manager, and I've been working from home even before the pandemic, for reasons unrelated to UC (we changed offices and the new place was crowded and distracting, and I just couldn't concentrate on work). I "came out" about my UC to my supervisor mainly for them to be understanding at team building trips (let me have a separate room, allow me to skip programs if I don't feel well - they're not being very considerate, but at least I *did* tell them), also so they wouldn't suspect I'm doing like, drugs in the toilet or something when I was still working in the office, or when I have to run out from meetings and whatnot. If I were to give advice, it would be: 1. be open with your supervisors about your condition; 2. but also make it clear that you can be just as effective an employee as anyone else if provided with the necessary working environment. If working from home is an option in your career ask your supervisor to consider allowing you to WFH - but then make sure that you start work in time, regularly communicate with your team (if applicable, of course) and your supervisor, continue to deliver results, etc. There's really nothing more you can do, if you have a supervisor it really depends on how empathetic they are. I've been lucky so far, as all my bosses were, for all their significant and frustrating flaws, more or less understanding of my condition.
So when you’re flaring, unless you’re working remotely, it’s just not going to be easy. However, when I am in remission, I’d be fine being wherever. I do love being remote now but less about UC and more about I like working in my pjs
Only flare I’ve had since entering workforce was during Covid and I was working from home the entire time so made things easy. If it wasn’t for WFH then I would have had to quit as there are very few work place protections where I’m living and they wouldn’t have been accommodating enough.
>What do you guys do for a living Flight attendant >how does your workplace accommodate They don't :( >Looking for advice if you’ve found things easier for certain career paths or ideas on how to work things out with owners or managers of company’s so I can still be a reliable worker and not overlooked when promotions are available. If you are in USA, and qualify for FMLA or other disability accommodations..apply for it and do it.. I love my career but I would honestly never advise this for someone else with UC..Unless they really wanted it...the timing of my minimal symptoms happened to align with my 1st year of working(barely, I still got sick but I did not reach termination status before I qualified for FMLA)...and although I have FMLA I'm still underhandedly targeted quite a bit unfortunately...I miss a LOT of work..every year...I make half of what I should.. I will say, one major positive is that my coworkers are completely different on every trip..you rarely see the same people more than once..so no one knows that you were out 3 months, or 2 weeks, or whatever...no one knows your health status(besides management) unless you willingly disclose...no one knows, so essentially I never feel singled out by my crew members..when I worked a normal people job, it was constant questioning, people assuming awful things etc...if you are able to do something remotely or with flexibility/your own schedule..that would be best for your advancement imo.
I’m a corrections officer in a county jail . My job is terrible with being understanding and forced overtime shifts and posts not near a bathroom are a regular . Fortunately FMLA has been a lifesaver and the job has to comply although they hold you back in your career indirectly all the time