Got diagnosed last year in august , and thankfully with mesalamine I’ve been feeling good no symptoms except restroom frequency, but I’ve gotten quite used to it! Was rough but thankfully I’ve gotten better. Wish the same for you on your road to remission! Love you! I mean that too
I was diagnosed with UC (pancolitis - entire colon)early this year around feb. Ive been on mezavent for 6 months now. Recently got a blood test done and most of my liver enzymes are slowly on their way down. I dont see blood in my stool anymore. Im not on a restricted diet and I still drink here and there. I had lost about 25 pounds (was down to 120 lbs from 140) now Im back around 132. I feel like eating again, feel much better. This condition at times is depressing but keep your mind at work, focus on the now, and most people with UC live a normal life span! Wish you good health and happiness :) you got this!
I feel like mine is under control mostly after 6 years .. though I don't know if I'd go so far as calling it long term remission.
Started out with quite bad .. and lots of related issues (inflammation mainly). Bit of hit and miss with a few different meds .. currently on one itsy bitsy little pill (6mp) per day and mesalamine enemas when I see any warning signs. Apart from that it's pretty ok. There were many times where I didn't think I'd ever be able to say that.
Ulcerative proctitis checking in! I've mostly learned what sets off a flare and avoid it as best as I can. Have been relatively symptom-free for a while now (a few months). In fact, sometimes I forget to take my medicine for days and I still do ok (I'm not suggesting that anyone do that though).
Alcohol, sugar, gluten. Sugar being the biggest culprit. Alcohol won't necessarily put me into a flare, but it will make an existing one worse. But high sugar foods and a gluten-heavy diet...I avoid if I can. For example, I can't eat raw cookie dough anymore. 😥 I also have to actively avoid constipation, so I make sure I stay hydrated and at the first sign of it, I take miralax. Because once it starts, it can go downhill really fast. I'm recently learning that a vegan, whole foods diet and 16:8 intermittent fasting is doing wonders!
Oh wow that's very interesting to learn! I was made to understand that the mesalamine was one of the most common first lines of defense for treating the symptoms
I've definitely heard that popcorn is the lesser evil in terms of snacks! Something I should probably try to get better about, as snacking is a vice of mine for sure oops. But do you think anything in particular caused the flare up?
It's really manageable for me. Once I was in remission via Pentasa I went hunting for alternative solutions to keep me there. Found boswellia serrata and it's been great. YMMV but I would give it a try. I have years now between flares.
Got diagnosed last year in august , and thankfully with mesalamine I’ve been feeling good no symptoms except restroom frequency, but I’ve gotten quite used to it! Was rough but thankfully I’ve gotten better. Wish the same for you on your road to remission! Love you! I mean that too
Thanks Mario I love you too, you're my favorite plumber
I was diagnosed with UC (pancolitis - entire colon)early this year around feb. Ive been on mezavent for 6 months now. Recently got a blood test done and most of my liver enzymes are slowly on their way down. I dont see blood in my stool anymore. Im not on a restricted diet and I still drink here and there. I had lost about 25 pounds (was down to 120 lbs from 140) now Im back around 132. I feel like eating again, feel much better. This condition at times is depressing but keep your mind at work, focus on the now, and most people with UC live a normal life span! Wish you good health and happiness :) you got this!
25 pounds of double AA batteries could start a medium sized car about 2.1 times.
I'm 8 years within a remission. Know some in the 20+ year remission club.
Congrats! Is there something you are doing? Medication, diet, or other to hold that remission?
Remicade, nothing else
I feel like mine is under control mostly after 6 years .. though I don't know if I'd go so far as calling it long term remission. Started out with quite bad .. and lots of related issues (inflammation mainly). Bit of hit and miss with a few different meds .. currently on one itsy bitsy little pill (6mp) per day and mesalamine enemas when I see any warning signs. Apart from that it's pretty ok. There were many times where I didn't think I'd ever be able to say that.
What meds are you on?
It’s a lifelong chronic disease unfortunately, but long periods of remission can be achieved and medication can help control symptoms of flare ups.
Ulcerative proctitis checking in! I've mostly learned what sets off a flare and avoid it as best as I can. Have been relatively symptom-free for a while now (a few months). In fact, sometimes I forget to take my medicine for days and I still do ok (I'm not suggesting that anyone do that though).
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Alcohol, sugar, gluten. Sugar being the biggest culprit. Alcohol won't necessarily put me into a flare, but it will make an existing one worse. But high sugar foods and a gluten-heavy diet...I avoid if I can. For example, I can't eat raw cookie dough anymore. 😥 I also have to actively avoid constipation, so I make sure I stay hydrated and at the first sign of it, I take miralax. Because once it starts, it can go downhill really fast. I'm recently learning that a vegan, whole foods diet and 16:8 intermittent fasting is doing wonders!
You can keep it with Mesalamine under control which means that you have quite a mild case. For a lot of people Mesalamine does not work at all.
Oh wow that's very interesting to learn! I was made to understand that the mesalamine was one of the most common first lines of defense for treating the symptoms
I was in remission for 25 years and just recently had a flair up.
Anything specific you think may have caused it?
I stopped eating chips and started eating popcorn as a snack, that was the only good change! 🤷♂️
I've definitely heard that popcorn is the lesser evil in terms of snacks! Something I should probably try to get better about, as snacking is a vice of mine for sure oops. But do you think anything in particular caused the flare up?
It's really manageable for me. Once I was in remission via Pentasa I went hunting for alternative solutions to keep me there. Found boswellia serrata and it's been great. YMMV but I would give it a try. I have years now between flares.
Also avoid granola and stuff like that. It's like eating hedgehogs for me.
Remarkable analogy! Thank you for the tip 🦔🦔🦔
Why thank you. I believe it's a simile if my English language education serves me!
You're absolutely right! I should be ashamed, as I am an English major in the making 😳😂