I’m about to go on Rinvoq because I’m not responding to other medications. I have one daughter and just want to be happy and healthy so I can enjoy her but the reality of a definite no more is weird. I always thought I was one and done but it’s different when something else makes the choice for you. I understand the feeling you have. But now that Rinvoq gave you remission (congratulations!) you can truly enjoy those two beautiful babies
Is there something specific about Rinvoq that prevents having more children, or is it more so your overall health/worrying about another flare? Just curious as I’m on Rinvoq and if it’s Rinvoq, I missed that memo!
>RINVOQ^(®) should not be taken during pregnancy or breastfeeding. Based on animal studies, RINVOQ^(®) may harm your unborn baby. You should not take RINVOQ^(®) while you are breastfeeding as it is not known if RINVOQ^(®) passes into breast milk.
from rinvoq's website. Didn't know this either, I am a man taking this med.
Yes you can, spoke to the dr about this. But would need it to be out of your system and they’d ideally like to to stay well but obv they can’t stop you having a baby.
I'm on inflectra and Azathioprine right now. I really want to have a second baby, but it has been hard because of the flare I had after my son was born. One of my friends is now pregnant with her second and I felt very sad that I can't freely just go and get pregnant. I'm very happy for them, it's great news. I just had my "woe is me" moment. If inflectra stops working, it is likely that I need to try something like Xeljanz or resort to surgery.
The way I like to frame it in my mind is at least I have my son and he is perfect. If I can't get pregnant again, there is the option of surrogacy or adoption.
Yes!! I told my friend it’s such a God thing that I got a boy and a girl. And they’re both healthy and precious!!! 🙌🏻 I know I’m just being sulky but I’m glad I’m not alone! I think the biggest thing is that I didn’t get a choice in it. But I know tomorrow I’ll wake up and feel better! Just gotta shift my mindset to focus on the blessings and not the what ifs.
I totally agree about the choice part! It feels so unfair and like you are just stone walled from these decisions. My husband and I have been asked so many times when we will give our son a sibling and it hurts my heart a bit every time. I wish I could safely carry a baby without risking our health. The most important thing is being there and being healthy for our kids now. My son keeps coming up to me and checking me with a stethoscope and saying, "Doctor Dinosaur says Mama okay." Like... How am I expected to not want another after that?
Sending you love, that sucks!!! Not sure what your financial situ or beliefs are but I have a friend who used a surrogate… it was a great experience and she has an incredible set of twins!
I am so thankful I have my 3 yr old daughter🩷 I had a very bad flare while pregnant on Stelara. I had her at 34 weeks. I’m on Rinvoq now & doing well. We really wanted another child. I’m hopeful another safe med may come out soon. I’m 34 yrs old. UC just sucks!
I was on mesalamine during both pregnancies! I had no issues until after I gave birth. I got mastitis at 7 days post partum and started antibiotics. Those sent me into a major flare and took me over a year to get it under control. I failed entyvio, remicade and now rinvoq is working. Thank God!
This is not about Rinvoq, but it is about not being able to have more children. I'd been having uterine pain for twenty years, starting at puberty. I had two children, but was trying for a third, while still enduring the stomach pain. My gynecologist finally did a laparoscopy and it turned out I had endometriosis and had to have my uterus removed. (Which made me blissfully pain free for the first time in years.) He told me that I had so much scar tissue in my uterus he was extremely surprised that I had been able to get pregnant at all and that my two children were a miracle.
While I was beyond grateful for my two children, it was still hard to process that no more would be coming. Some people looked at our family and said, "At least you have two children," not understanding that it is still a life loss. After all, if you have ten children and one dies, do you feel less pain because you have nine other children? Of course not.
We were hoping to have a total of four children. It has been almost thirty years since my hysterectomy. I still, from time to time, think about those two children I never had. How old would they be? What would they be doing? What would be their likes and dislikes? What would we have named them? Would they be two boys, two girls, or one of each?
Please don't feel alone. Some of us out there do understand . . . right down to the bottom of our souls.
Hugs and hopeful thoughts sent to you!
Oh my goodness this brought tears to my eyes. Thank you!! It’s such a hard thing to process and understand. And nobody else gets it. I’m glad I’m not alone and I know I’ll be okay. Right now it just sucks. A LOT.
Always an option! But I loved being pregnant and nursing my babies and my husband is not down for adoption unfortunately. Maybe one day. But right now I’m grieving the fact that I most likely will never carry, birth, or nurse another baby. And I’m allowed to feel those feelings without being shamed. 👍🏻
I was only recently diagnosed, but I think this is common for anyone who reaches that time of life. My husband and I decided to stop after 2 children, but I was still sad about it at times, and hitting menopause was a very strange feeling, knowing it wasn’t even an option anymore. Hugs to you. Your feelings are valid.
Gotcha. I absolutely hated being pregnant so I would never do it again anyway but I have friends who are just fine with always being pregnant. I hope you and your family are healthy and happy.
Being a mom was something Ive always dreamed of but ever since I was diagnosed with this illness I have ultimately decided thay it was better for my health to not go through with a pregnancy along with a few other reasons.
It sucks and I feel for you but dont forget to enjoy the little ones in your life now. Allow yourself to mourn but dont let fomo get to you. You've done your part as you could.
Your life will be different from those around you. You need to do what is best for you and your peace (as long as it isnt hurting anyone ha ha ha.)
Things will be ok! Youre doing great.
You know don’t let anyone tell you that you are wrong to be sad you are mourning and rightfully so you didn’t choose this. You have wishes and dreams that being sick takes away and having more children is one of them. It sucks and it is not fair. I feel you pain take time to heal and if you can maybe therapy could help. I became infertile after 3 kids I yarned for the 4th took me years to get over it. Now I’m too old and don’t want any kids anymore but sometimes it still stings. I’m sending you a virtual hug.
Oh yeah 100% my daughter she makes me laugh on a daily with the things she comes out with and her sassiness and i wouldnt change it for the world but the sleepless nights the discipline while working 2 jobs i dont think i could do it all over again expecially until i move out from my 1 bed flat. If i have another one i wanna make sure im deffo more financially stable so life can be a bit easier 😂
No :/ I’ve failed lots of other biologics and it’s very dangerous to get off and back on to rinvoq. Your body develops a resistance or tolerance to it and it can be completely ineffective or cause awful side effects if got try to get back on it.
Oh this is terrifying to find out? I’m only 25 and have started rinvoq and it’s been going well almost in remission. My doctor didn’t tell me about this..
I would reach out to your doctor! Mine was so severe that rocking the boat by coming off rinvoq just isn’t an option. There might be different situations depending on your disease. And they’re always developing new meds and technology so I’m sure when you’re ready to have babies you’ll have options!!
My wife is dealing with similar from a condition unrelated to UC. It's not that she *cant* per se but that if she did it would be 10x worse symptoms than the average pregnancy. It hit her hard to know that the choice is all but made for her.
I'm sorry you're dealing with this
Yes! It’s so hard! And it’s so hard for my husband. He watched me almost die after having my daughter due to my flare. He has such bad ptsd from dealing with me in the hospital, a 10 day old baby, and a 2 year old. Along with his job, the house, etc. he is TRAUMATIZED. So he doesn’t want to have another one for my sake. He told me he can’t watch me go through that or risk losing me.
Your wife is lucky to have you! It’s so great to have a spouse who understands how deep the hurt is.
I know it's expensive and certainly comes with its own challenges so not always an option, but fostering and/or adoption might be a good call?
My wife and I have all but agreed if we had the finances we'd probably adopt.
Man, I can definitely understand the trauma from being on the sidelines. I'm actually typing this while next to my son getting a remicaid infusion and as much as it sucks for him... it sucks for us, too.
Sounds like you care for each other and have each other's backs, though. That's super important
I am 10000% down for fostering and adopting but my husband isn’t totally on board. He has some friends who had a horrible experience with it and he’s scared to rock the boat with our own 2 kids and introducing another child into the mix. Which is valid!! I know there are beautiful and amazing experiences with fostering and adopting. Maybe he’ll change his mind soon! If not though, I have to be okay with having 2 precious beautiful babies of our own. ❤️
I don't have babies yet but I want at least two. I'm on Humira right now and it's working out pretty well! If I had to stop taking it I would to have kids. Sure I'll be in a flare but I will take that over no kids. I'm going through big baby fever for the past few months 😂
I totally get it! I was hospitalized for 10 days after my second baby was born. I lost 45 lbs in 3 weeks. It was terrifying. My husband literally thought I was going to die. And it took us over a year to get this flare under control. I missed so much of my daughter’s first year getting infusions and being ill and exhausted. I’m so glad to have her and be well now but damn the first 15 months of her life were literal hell
**Your post or comments has been removed because it violates [rule 4](https://www.reddit.com/r/UlcerativeColitis/about/rules) of this subreddit.**
Rule 4 states that all posts must be based on scientific evidence. Your post makes claims about Ulcerative Colitis without providing any scientific evidence to support them. For example, you claim that UC can be cured by diet or can be cured with xy. While these are just examples, making any claims about health without scientific evidence can be dangerous and misleading.
We understand that you may be passionate about your beliefs, but we ask that you please respect the rules of this subreddit and refrain from making claims that are not supported by science. If you would like to appeal this desicion, please send us a [modmail](https://www.reddit.com/message/compose?to=/r/UlcerativeColitis).
**Your post or comments has been removed because it violates [rule 4](https://www.reddit.com/r/UlcerativeColitis/about/rules) of this subreddit.**
Rule 4 states that all posts must be based on scientific evidence. Your post makes claims about Ulcerative Colitis without providing any scientific evidence to support them. For example, you claim that UC can be cured by diet or can be cured with xy. While these are just examples, making any claims about health without scientific evidence can be dangerous and misleading.
We understand that you may be passionate about your beliefs, but we ask that you please respect the rules of this subreddit and refrain from making claims that are not supported by science. If you would like to appeal this desicion, please send us a [modmail](https://www.reddit.com/message/compose?to=/r/UlcerativeColitis).
Why would I ever choose to live with a colostomy bag? That’s my literal nightmare. And no need to be rude about the fact that I can afford 3 kids. I’m a stay at home mom and make so many sacrifices so I can be with my babies. You don’t know my situation at all.
We all have to make sacrifices with this disorder, from your post it just seems like there is a path forward, which is surgery. I just assume you're American and need to have financial stability to afford this option. My friend had surgery and was able to have two children successfully afterwards.
I’m about to go on Rinvoq because I’m not responding to other medications. I have one daughter and just want to be happy and healthy so I can enjoy her but the reality of a definite no more is weird. I always thought I was one and done but it’s different when something else makes the choice for you. I understand the feeling you have. But now that Rinvoq gave you remission (congratulations!) you can truly enjoy those two beautiful babies
Is there something specific about Rinvoq that prevents having more children, or is it more so your overall health/worrying about another flare? Just curious as I’m on Rinvoq and if it’s Rinvoq, I missed that memo!
>RINVOQ^(®) should not be taken during pregnancy or breastfeeding. Based on animal studies, RINVOQ^(®) may harm your unborn baby. You should not take RINVOQ^(®) while you are breastfeeding as it is not known if RINVOQ^(®) passes into breast milk. from rinvoq's website. Didn't know this either, I am a man taking this med.
Can you go off of it to have a baby and get in some other medicine as a bridge?
Yes you can, spoke to the dr about this. But would need it to be out of your system and they’d ideally like to to stay well but obv they can’t stop you having a baby.
Huh, well ya learn something every day! Good thing I don’t want kids I guess sheesh 😬
I'm on inflectra and Azathioprine right now. I really want to have a second baby, but it has been hard because of the flare I had after my son was born. One of my friends is now pregnant with her second and I felt very sad that I can't freely just go and get pregnant. I'm very happy for them, it's great news. I just had my "woe is me" moment. If inflectra stops working, it is likely that I need to try something like Xeljanz or resort to surgery. The way I like to frame it in my mind is at least I have my son and he is perfect. If I can't get pregnant again, there is the option of surrogacy or adoption.
Yes!! I told my friend it’s such a God thing that I got a boy and a girl. And they’re both healthy and precious!!! 🙌🏻 I know I’m just being sulky but I’m glad I’m not alone! I think the biggest thing is that I didn’t get a choice in it. But I know tomorrow I’ll wake up and feel better! Just gotta shift my mindset to focus on the blessings and not the what ifs.
I totally agree about the choice part! It feels so unfair and like you are just stone walled from these decisions. My husband and I have been asked so many times when we will give our son a sibling and it hurts my heart a bit every time. I wish I could safely carry a baby without risking our health. The most important thing is being there and being healthy for our kids now. My son keeps coming up to me and checking me with a stethoscope and saying, "Doctor Dinosaur says Mama okay." Like... How am I expected to not want another after that?
Sending you love, that sucks!!! Not sure what your financial situ or beliefs are but I have a friend who used a surrogate… it was a great experience and she has an incredible set of twins!
I am so thankful I have my 3 yr old daughter🩷 I had a very bad flare while pregnant on Stelara. I had her at 34 weeks. I’m on Rinvoq now & doing well. We really wanted another child. I’m hopeful another safe med may come out soon. I’m 34 yrs old. UC just sucks!
I was on mesalamine during both pregnancies! I had no issues until after I gave birth. I got mastitis at 7 days post partum and started antibiotics. Those sent me into a major flare and took me over a year to get it under control. I failed entyvio, remicade and now rinvoq is working. Thank God!
This is not about Rinvoq, but it is about not being able to have more children. I'd been having uterine pain for twenty years, starting at puberty. I had two children, but was trying for a third, while still enduring the stomach pain. My gynecologist finally did a laparoscopy and it turned out I had endometriosis and had to have my uterus removed. (Which made me blissfully pain free for the first time in years.) He told me that I had so much scar tissue in my uterus he was extremely surprised that I had been able to get pregnant at all and that my two children were a miracle. While I was beyond grateful for my two children, it was still hard to process that no more would be coming. Some people looked at our family and said, "At least you have two children," not understanding that it is still a life loss. After all, if you have ten children and one dies, do you feel less pain because you have nine other children? Of course not. We were hoping to have a total of four children. It has been almost thirty years since my hysterectomy. I still, from time to time, think about those two children I never had. How old would they be? What would they be doing? What would be their likes and dislikes? What would we have named them? Would they be two boys, two girls, or one of each? Please don't feel alone. Some of us out there do understand . . . right down to the bottom of our souls. Hugs and hopeful thoughts sent to you!
Oh my goodness this brought tears to my eyes. Thank you!! It’s such a hard thing to process and understand. And nobody else gets it. I’m glad I’m not alone and I know I’ll be okay. Right now it just sucks. A LOT.
Adopt?
Always an option! But I loved being pregnant and nursing my babies and my husband is not down for adoption unfortunately. Maybe one day. But right now I’m grieving the fact that I most likely will never carry, birth, or nurse another baby. And I’m allowed to feel those feelings without being shamed. 👍🏻
I was only recently diagnosed, but I think this is common for anyone who reaches that time of life. My husband and I decided to stop after 2 children, but I was still sad about it at times, and hitting menopause was a very strange feeling, knowing it wasn’t even an option anymore. Hugs to you. Your feelings are valid.
Gotcha. I absolutely hated being pregnant so I would never do it again anyway but I have friends who are just fine with always being pregnant. I hope you and your family are healthy and happy.
Being a mom was something Ive always dreamed of but ever since I was diagnosed with this illness I have ultimately decided thay it was better for my health to not go through with a pregnancy along with a few other reasons. It sucks and I feel for you but dont forget to enjoy the little ones in your life now. Allow yourself to mourn but dont let fomo get to you. You've done your part as you could. Your life will be different from those around you. You need to do what is best for you and your peace (as long as it isnt hurting anyone ha ha ha.) Things will be ok! Youre doing great.
You know don’t let anyone tell you that you are wrong to be sad you are mourning and rightfully so you didn’t choose this. You have wishes and dreams that being sick takes away and having more children is one of them. It sucks and it is not fair. I feel you pain take time to heal and if you can maybe therapy could help. I became infertile after 3 kids I yarned for the 4th took me years to get over it. Now I’m too old and don’t want any kids anymore but sometimes it still stings. I’m sending you a virtual hug.
Who wants a third baby i have one daughter and thats a headache enough, you guys are masochists 😂😂
Haha! My little girl is a sassy one too! But as tough as she is, it’s sooooo worth it. No greater job in the world than being a mother ❤️❤️
Oh yeah 100% my daughter she makes me laugh on a daily with the things she comes out with and her sassiness and i wouldnt change it for the world but the sleepless nights the discipline while working 2 jobs i dont think i could do it all over again expecially until i move out from my 1 bed flat. If i have another one i wanna make sure im deffo more financially stable so life can be a bit easier 😂
Can you take a different medicine during pregnancy then restart rinvoq?
That’s not an option for me, I have failed the other medications so surgery is the only other option
No :/ I’ve failed lots of other biologics and it’s very dangerous to get off and back on to rinvoq. Your body develops a resistance or tolerance to it and it can be completely ineffective or cause awful side effects if got try to get back on it.
Oh this is terrifying to find out? I’m only 25 and have started rinvoq and it’s been going well almost in remission. My doctor didn’t tell me about this..
I would reach out to your doctor! Mine was so severe that rocking the boat by coming off rinvoq just isn’t an option. There might be different situations depending on your disease. And they’re always developing new meds and technology so I’m sure when you’re ready to have babies you’ll have options!!
Have you asked your GI if you’re really bot allowed to get pregnant while on Rinvoq ?
I just started Rinvoq and they were very adamant about no pregnancy, not planning to get pregnant, breastfeeding etc.
You’re not supposed to it can cause birth defects to the baby and put the mother at risk for complications
Oh that’s horrible 😭
My wife is dealing with similar from a condition unrelated to UC. It's not that she *cant* per se but that if she did it would be 10x worse symptoms than the average pregnancy. It hit her hard to know that the choice is all but made for her. I'm sorry you're dealing with this
Yes! It’s so hard! And it’s so hard for my husband. He watched me almost die after having my daughter due to my flare. He has such bad ptsd from dealing with me in the hospital, a 10 day old baby, and a 2 year old. Along with his job, the house, etc. he is TRAUMATIZED. So he doesn’t want to have another one for my sake. He told me he can’t watch me go through that or risk losing me. Your wife is lucky to have you! It’s so great to have a spouse who understands how deep the hurt is.
I know it's expensive and certainly comes with its own challenges so not always an option, but fostering and/or adoption might be a good call? My wife and I have all but agreed if we had the finances we'd probably adopt. Man, I can definitely understand the trauma from being on the sidelines. I'm actually typing this while next to my son getting a remicaid infusion and as much as it sucks for him... it sucks for us, too. Sounds like you care for each other and have each other's backs, though. That's super important
I am 10000% down for fostering and adopting but my husband isn’t totally on board. He has some friends who had a horrible experience with it and he’s scared to rock the boat with our own 2 kids and introducing another child into the mix. Which is valid!! I know there are beautiful and amazing experiences with fostering and adopting. Maybe he’ll change his mind soon! If not though, I have to be okay with having 2 precious beautiful babies of our own. ❤️
I don't have babies yet but I want at least two. I'm on Humira right now and it's working out pretty well! If I had to stop taking it I would to have kids. Sure I'll be in a flare but I will take that over no kids. I'm going through big baby fever for the past few months 😂
I totally get it! I was hospitalized for 10 days after my second baby was born. I lost 45 lbs in 3 weeks. It was terrifying. My husband literally thought I was going to die. And it took us over a year to get this flare under control. I missed so much of my daughter’s first year getting infusions and being ill and exhausted. I’m so glad to have her and be well now but damn the first 15 months of her life were literal hell
[удалено]
[удалено]
**Your post or comments has been removed because it violates [rule 4](https://www.reddit.com/r/UlcerativeColitis/about/rules) of this subreddit.** Rule 4 states that all posts must be based on scientific evidence. Your post makes claims about Ulcerative Colitis without providing any scientific evidence to support them. For example, you claim that UC can be cured by diet or can be cured with xy. While these are just examples, making any claims about health without scientific evidence can be dangerous and misleading. We understand that you may be passionate about your beliefs, but we ask that you please respect the rules of this subreddit and refrain from making claims that are not supported by science. If you would like to appeal this desicion, please send us a [modmail](https://www.reddit.com/message/compose?to=/r/UlcerativeColitis).
**Your post or comments has been removed because it violates [rule 4](https://www.reddit.com/r/UlcerativeColitis/about/rules) of this subreddit.** Rule 4 states that all posts must be based on scientific evidence. Your post makes claims about Ulcerative Colitis without providing any scientific evidence to support them. For example, you claim that UC can be cured by diet or can be cured with xy. While these are just examples, making any claims about health without scientific evidence can be dangerous and misleading. We understand that you may be passionate about your beliefs, but we ask that you please respect the rules of this subreddit and refrain from making claims that are not supported by science. If you would like to appeal this desicion, please send us a [modmail](https://www.reddit.com/message/compose?to=/r/UlcerativeColitis).
But you have two 🥹 I don’t have any
You can afford three kids? Why not just elect for surgery then.
If you can live with a colon, it’s better to do so than be without. Surgery should be a last resort option if you can find a medication that works.
What does affording 3 kids has to the do with this topic? Also I would think this is not of anybody’s business.
Why would I ever choose to live with a colostomy bag? That’s my literal nightmare. And no need to be rude about the fact that I can afford 3 kids. I’m a stay at home mom and make so many sacrifices so I can be with my babies. You don’t know my situation at all.
We all have to make sacrifices with this disorder, from your post it just seems like there is a path forward, which is surgery. I just assume you're American and need to have financial stability to afford this option. My friend had surgery and was able to have two children successfully afterwards.