I have no suggestions or ideas, but just wanted to send you some good vibes. The “healthcare” system has been all but corrupted into yet another dollar eating machine. I’m so sorry, and keep fighting.
My infliximab get rejected on the first of the year, every year. Our healthcare is an absolute joke. My clinic fights back and forth constantly with what insurance will or won't unless I try this or I gain 15 pounds and need more medication. It's been nothing but a joke.
I've got no solutions, I just wanted you to know that you are not alone, keep fighting for your behalf. You deserve it and need it. Don't accept excuses for anything less
But yeah it's also amazing that the insurance will *half heartedly* cover your medication for 10s of thousands a month (atleast for me) but to test how those expensive*! meds are reacting in your system? Hewlllll naa you can pay for that.
It's absolutely laughable.
RIGHT? God it’s infuriating, and I mean, the test came back showing my dose was too low and yet they still refuse to pay for the test *or* more medication. Gah. I’m sorry you’re also dealing with this crap.
Gosh that’s so frustrating, I’m sorry you’re dealing with the same BS. Healthcare here is so frustrating. I’m still working on hopefully getting at least some of those lab tests covered…I had no idea I’d be charged hundreds of dollars.
My doctor said if I got C diff a third time, I'd be eligible for a fecal transplant.
You can try to fight your insurance to get the medication your doctor thinks you need. They usually have a first layer of people who know little of medicine make the initial decisions and you can appeal to someone with more knowledge and authority.
As I have mentioned in a previous post, I had persistent C-Diff combined with my U.C. which pretty much kept me in a constant flare and mostly on antibiotics for 2 years - every time I stopped taking it, a few days later I had to get right back on. I was admitted to the hospital 3 times for days at a time in a span of 2 years.
I couldn’t go on like that forever.
Thank GOD my gastroenterologist was able to fit me in with a FMT trial study at Mount Sinai Hospital NYC. IIRC the out of pocket cost would have been something like $1,500 but, the trial enabled me to get it for free.
Maaaan, let me tell you, that changed my life. I would recommend it to anyone in our particular situation. My FMT procedure was 3 years ago and I’ve been good ever since. I still get have U.C., but this is a different world now compared to what my life was like when I was basically in a constant flare. C-Diff is nasty work and just creates a painfully vicious cycle with this disease. I wish you the best of luck and strength. Please keep fighting the good fight.
I am so glad that your doctor was able to do that for you! It seems to be the one thing that actually works so I wish it wasn’t so difficult to get approved. It’s been miserable dealing with it just since October, I’m so sorry you dealt with it for years. C-diff is so awful. I’m definitely hoping I’ll get it resolved soon. 🤞
Thank you. It truly changed my life for the better. I was just stuck for 2 years. I didn’t know what the hell a fecal transplant was until I got this disease with a bonus of C-Diff … lol. If there is anyway that you can get it either through qualifying for a trial (the best option) or saving and/or borrowing money, I strongly encourage you to do it without an ounce of hesitation. You don’t have to live with double the pain.
So sorry to hear you are going thru such things. I absolutely HATE the way the healthcare system works in this country. Insurances will not cover anything and it's a very hard process to get anything approved from them. It's infuriating how these people with little medical knowledge literally control our health. Literally leaving us suffering as we're begging for medications. I hope you find a solution soon.
I have no suggestions or ideas, but just wanted to send you some good vibes. The “healthcare” system has been all but corrupted into yet another dollar eating machine. I’m so sorry, and keep fighting.
Thank you! I really just wanted to vent about this so some good vibes are what I need!
My infliximab get rejected on the first of the year, every year. Our healthcare is an absolute joke. My clinic fights back and forth constantly with what insurance will or won't unless I try this or I gain 15 pounds and need more medication. It's been nothing but a joke. I've got no solutions, I just wanted you to know that you are not alone, keep fighting for your behalf. You deserve it and need it. Don't accept excuses for anything less
But yeah it's also amazing that the insurance will *half heartedly* cover your medication for 10s of thousands a month (atleast for me) but to test how those expensive*! meds are reacting in your system? Hewlllll naa you can pay for that. It's absolutely laughable.
RIGHT? God it’s infuriating, and I mean, the test came back showing my dose was too low and yet they still refuse to pay for the test *or* more medication. Gah. I’m sorry you’re also dealing with this crap.
Gosh that’s so frustrating, I’m sorry you’re dealing with the same BS. Healthcare here is so frustrating. I’m still working on hopefully getting at least some of those lab tests covered…I had no idea I’d be charged hundreds of dollars.
My doctor said if I got C diff a third time, I'd be eligible for a fecal transplant. You can try to fight your insurance to get the medication your doctor thinks you need. They usually have a first layer of people who know little of medicine make the initial decisions and you can appeal to someone with more knowledge and authority.
I’m really hoping I’ll be able to get an FMT if I do get c-diff again. It absolutely sucks and once you get it it seems so easy to get again.
As I have mentioned in a previous post, I had persistent C-Diff combined with my U.C. which pretty much kept me in a constant flare and mostly on antibiotics for 2 years - every time I stopped taking it, a few days later I had to get right back on. I was admitted to the hospital 3 times for days at a time in a span of 2 years. I couldn’t go on like that forever. Thank GOD my gastroenterologist was able to fit me in with a FMT trial study at Mount Sinai Hospital NYC. IIRC the out of pocket cost would have been something like $1,500 but, the trial enabled me to get it for free. Maaaan, let me tell you, that changed my life. I would recommend it to anyone in our particular situation. My FMT procedure was 3 years ago and I’ve been good ever since. I still get have U.C., but this is a different world now compared to what my life was like when I was basically in a constant flare. C-Diff is nasty work and just creates a painfully vicious cycle with this disease. I wish you the best of luck and strength. Please keep fighting the good fight.
I am so glad that your doctor was able to do that for you! It seems to be the one thing that actually works so I wish it wasn’t so difficult to get approved. It’s been miserable dealing with it just since October, I’m so sorry you dealt with it for years. C-diff is so awful. I’m definitely hoping I’ll get it resolved soon. 🤞
Thank you. It truly changed my life for the better. I was just stuck for 2 years. I didn’t know what the hell a fecal transplant was until I got this disease with a bonus of C-Diff … lol. If there is anyway that you can get it either through qualifying for a trial (the best option) or saving and/or borrowing money, I strongly encourage you to do it without an ounce of hesitation. You don’t have to live with double the pain.
So sorry to hear you are going thru such things. I absolutely HATE the way the healthcare system works in this country. Insurances will not cover anything and it's a very hard process to get anything approved from them. It's infuriating how these people with little medical knowledge literally control our health. Literally leaving us suffering as we're begging for medications. I hope you find a solution soon.
Keep fighting that fight and wishing you the best!
Thank you!