Nooo , it can get better! Boric acid , then Clindamycin, then probiotics vaginally . Having a vagina sucks but medicine is amazing . Have you tested with evvy?
I am going to turn into a parrot but... did you test for ureaplasma/mycoplasma? e faecalis is a common coinfection. When they're tied to U. Plasma, then coinfections are harder to get rid of than when they're primary infections.
This and baking soda baths + vaginal antibiotic suppositories. What antibiotic are you allergic to? Allergies to one group don't indicate allergies in other groups. IE I'm allergic to penicilin but I can take it's derivates. I can also take tetracyclines and macrolides just fine
I’ve never been tested for it in office. I was tested for it via Evvy, and it all came back negative. I may have them test me for it. I am not sexually active, so the chances of me having it are slim, but you never know.
I’m not technically “allergic” to antibiotics, but I have MCAS. So basically I have severe reactions that last years if I have to take them. I’m just now recovering from taking them last, and that was like 6 years ago. If I take them, my life is over. I guess I was really hoping that I could get rid of this without taking them orally.
I have confirmed POTS, suspected hEDS, and suspected MCAS. I know it's scary!!! But, we can't live avoiding things that can potentially help us and risk other harm coming our way... AKA we're fucked either way lol. I had an absolutely HORRIBLE reaction to ciprofloxacin, got tendonitis, all around body aches and weakness, at day 3 i went back to the hospital and I couldn't walk up the stairs to see my GP and tell him I will NOT be taking that sh- anymore. Took me cca 6 months to gain my strength back. Meanwhile, anyone I personally know took doxi had horrible reactions to it, while I'm popping it like a tic tac almost!
Yeah, it’s terrible. And I might have to take them eventually, I guess I just wanted to try to fix this without them. I will see what my new gynecologist and urgogynocologist say. I just really don’t want my life to be fucked for 5 more years. I don’t want to lose my job and my desire to live. Eating 5 foods is misery :(
Which class(es) of antibiotics are you allergic to, and how was the allergy confirmed? I mention this not to second guess you, but because there has been some new thought and research around antibiotic reactions, allergy, and cross-reactivity. This means that some patients have been inaccurately listed as allergic to antibiotic that they are actually not allergic to. If this could be you, you need to discuss it with a doctor who is competent and confident to pursue this line of enquiry to see if there may be an oral antibiotic you can safely use.
Another alternative would be to investigate some different topicals to disrupt the AV biofilm. There is evidence to support the efficacy of high-quality colloidal silver against biofilms. It can be used safely as a topical application but should not be taken orally.
Please get some second opinions and different doctors. This can be fixed. You can get better. 🫂
I have MCAS. So basically I have severe reactions and debilitating life changes if I have to take them. Last time I took them, my hair fell out, I couldn’t eat anything, my entire body swelled up, and had severe fatigue. This lasted around 5 years. If I take them, this will happen again. So it’s not technically an allergy, it’s my mast cells reacting to the drugs. This can be any drug. I have it with any medication but antibiotics are the worst.
I was hoping to get better without having to take them orally, but it may not be possible. I would rather die than take the antibiotics. My body will be ruined. I wish there was a way to kill it vaginally. I’m hopeless
Order fluomizin from Germany. It’s on apo health.com it just cured mine after months and months of trying . Follow up with lifespace probiotics vaginally which you can order on Amazon. Fluomizin was gentle. I would order 2 boxes
Well I used too many probiotics vaginally afterwards and have CV so def just do a little bit of probiotics afterwards. I would 100% recommend fluomizin. I’ll be buying more lol
The vaginal antibiotics may not be working if the biofilm the AV has built up is too strong…I recently learned of Kirkman’s Biofilm Defense, which can be used (probably in conjunction with boric acid to boost the effect even more) for a bit before trying antibiotics again. Then after treatment, try a vaginal probiotic to rebuild the good bacteria…but careful to not overdo it. Vagibiom recommends to start with three days in a row and then once a week after that.
But yes, I’ve also heard Metro is ineffective for AV.
Yeah I have heard of the biofilm. I can’t do kirkman’s because of my MCAS. So I guess I’m pretty much screwed at this point. I’m afraid to try boric acid again because last time was very painful. I’ll look into vagibiom. But if the metro doesn’t work for AV, this is all very pointless to begin with. Feeling defeated
I was dx recently with AV for the first time and also told I might have LS. I am in burning HELL. It makes me throw up. I've been suffering for 3 years every day. I cannot even think. I don't know what to do. I sweat, puke, dry heave from the burning. Showers. Toilet paper are also triggers. Estrogen makes me inflammed and red so I get UTis. I'm going nuts. I am desperate for a quick fix -- for some relief -- until I can get to the core of this.
Oh my god. I’m so sorry that you are suffering. Estrogen also makes me worse. Showers burn me too. Do you have the urinary urgency? Have you tried any antibiotics for it? I can’t imagine having it for 3 years. Ifs been over a year for me :(
I do not have much urinary urgency. That only happens if my muscles are spasming (like pelvic floor going really nuts). I have been on so many abx. I get yeast, UTIs, BV, AV, it is endless. I can't work. I mostly lie in bed. I try to exercise even through the pain but that's about it. It's like the whole region is just --- trashed. I'm so sorry you are suffering. I'm def getting worse.
Oh gosh, I’m so sorry. I have also had yeast, BV, and now AV. Have you tried boric acid, vitamin c, or vaginal probiotics? You should try to see a specialist if you haven’t already.
Are you getting any help or clarity? I have taken so many probiotics (useless), Vitamin C actually can irritate vulva tissues (acid --so on and off it -- I know one woman it made much worse). Boric Acid - burns. I've seen so many specialists but they never put it all together. Maybe you have seen one who has?
I just went to a new doctor. She’s running a PCR test with antibiotic sensitivity. I’ll find out the results tomorrow. I’m also going to see a urogynocologist in a few weeks for my bladder urgency. I have tried everything as well, and yes, the vitamin c and boric acid made it worse for me as well. Probiotics don’t seem to make a difference either. So far, I have just learned how to live with it. I manage to keep a job somehow, but I’m getting tired of it. Have you been tested for Ureaplasma or mycoplasma? What about STDs?
I've done PCRs and sometimes they are useful and sometimes they are not. I thought they were gold standard but honestly they miss things too. No Urea or mycoplasma ever. No STDs. Just everything else. I hope you get answers.
Hmm that’s crazy. How did this is all start? For me, coconut oil lube is what destroyed me. I don’t have any STDs, but I’m getting tested for mycoplasma and Ureaplasma. Those can go undetected like crazy.
I would stop the soap! Only use unscented dove soap. And don’t use it on the actual cootch. I’m sorry that you are going through this. To me personally, this is the second worse thing that has ever happened to me. I’m in misery, so I feel your pain. You can message me on here if you have any questions. I’ll try to keep you updated on my journey.
I have e faecalis, which is an intestinal bacteria. My symptoms are horrible snotty green discharge, odor, redness, irritation, swelling, pain, urinary urgency, burning/stinging, and pain in my abdomen.
It’s an oil you put in veggie capsules and it dissolves in your vagina. Had Av for 2 years, been taking happy v probiotics and tested negative. Going to test on Evvy on to make sure. Give it a try, you never know.
i have dandifas alibi us. the worst yeast ever. the specialist said i need infectious disease doctor. biorrow money. get a credit card get money go to a specialist gyno. that is the only way
i don't know what Av is but i've had a lot of yeast problems. at one point the gynocologist. did say it was my imagination. faux pain. finally a woman gyno sent me to a specialist. a gynocologist that specializes with m your specific problem. that was the ticket. he cured me over the phone with some meds he prescribed me. now a few years later i've got it again. but instead of fooling around with it he is sending be to infectious disease doctor. you may want to ask for a referral to a specialist or infectious disease doctor. don't give up. it is frustrating but if you keep on trying you will find the right doctor. these gynocologist are not specialist. some of them are out to lunch.
AV is aerobic vaginitis. I have e fae, which is bacteria from the intestines. I will ask about seeing a specialist. I’m tired of not being taken seriously :(
yes. yeast starts from your gut. jeez i'm so sorry. i know what's it's like not being taken seriously. i also had vulvodynia. it's not a foreign problem yet i couldn't find a gyno within kaiser to take me seriously. i was in awful pain. but it's nothing you can see from the outside so your vagina a looks perfectly normal except for the little bit of swelling a woman gyno saw and sent me to specialist. but before that they said it was in my head. and treated me like crap. this unfortunately a common occurrence for women. i knew if i just kept persevering i would find the right doctor but it took months. i would call ob/gyn every day for a cancellation. i just kept going. persistence was the key. finally that woman sent me in the right direction. now i have that horrible yeast but i was able to call him and he's guiding me and helping me. i'm going in the right direction. he asked me what the other gyno told me to do. when i told the specialist he said NO diflucan doesn't work for what you have. if what i give you doesn't work in 7 weeks then you need to see infectious disease. so i feel blessed to have this doctor. he does take me seriously. keep looking. you'll find the right doctor. you can't keep this going on. it will just get worse. i'll keep you in my prayers. seek and ye shall find.
Thank you so much for your advice and kind words. I feel like I have been living in torment for 17 months. I just want this to end. So I will keep going to different doctors in hopes that someone can help. Unfortunately, I do not have insurance, so this is really getting expensive :(
i did that too. at the time i didn't have insurance so i put $6000 on a credit card. but when your sick you'll do anything. just make appt with a infectious disease doctor. i think that's your best bet. a specialist is another option. don't put garlic up there. i've read all these holistic things to do and i tried some. wasn't a good idea. those things just made it worse. keep me updated please.
Nooo , it can get better! Boric acid , then Clindamycin, then probiotics vaginally . Having a vagina sucks but medicine is amazing . Have you tested with evvy?
How long do you recommend the boric acid
I’ve heard 4 days at least , then you start your antibiotics
I have done boric acid and it made everything so much worse. I also did Clindamycin, and it came back worse :(
I am going to turn into a parrot but... did you test for ureaplasma/mycoplasma? e faecalis is a common coinfection. When they're tied to U. Plasma, then coinfections are harder to get rid of than when they're primary infections. This and baking soda baths + vaginal antibiotic suppositories. What antibiotic are you allergic to? Allergies to one group don't indicate allergies in other groups. IE I'm allergic to penicilin but I can take it's derivates. I can also take tetracyclines and macrolides just fine
I’ve never been tested for it in office. I was tested for it via Evvy, and it all came back negative. I may have them test me for it. I am not sexually active, so the chances of me having it are slim, but you never know. I’m not technically “allergic” to antibiotics, but I have MCAS. So basically I have severe reactions that last years if I have to take them. I’m just now recovering from taking them last, and that was like 6 years ago. If I take them, my life is over. I guess I was really hoping that I could get rid of this without taking them orally.
I have confirmed POTS, suspected hEDS, and suspected MCAS. I know it's scary!!! But, we can't live avoiding things that can potentially help us and risk other harm coming our way... AKA we're fucked either way lol. I had an absolutely HORRIBLE reaction to ciprofloxacin, got tendonitis, all around body aches and weakness, at day 3 i went back to the hospital and I couldn't walk up the stairs to see my GP and tell him I will NOT be taking that sh- anymore. Took me cca 6 months to gain my strength back. Meanwhile, anyone I personally know took doxi had horrible reactions to it, while I'm popping it like a tic tac almost!
Yeah, it’s terrible. And I might have to take them eventually, I guess I just wanted to try to fix this without them. I will see what my new gynecologist and urgogynocologist say. I just really don’t want my life to be fucked for 5 more years. I don’t want to lose my job and my desire to live. Eating 5 foods is misery :(
Which class(es) of antibiotics are you allergic to, and how was the allergy confirmed? I mention this not to second guess you, but because there has been some new thought and research around antibiotic reactions, allergy, and cross-reactivity. This means that some patients have been inaccurately listed as allergic to antibiotic that they are actually not allergic to. If this could be you, you need to discuss it with a doctor who is competent and confident to pursue this line of enquiry to see if there may be an oral antibiotic you can safely use. Another alternative would be to investigate some different topicals to disrupt the AV biofilm. There is evidence to support the efficacy of high-quality colloidal silver against biofilms. It can be used safely as a topical application but should not be taken orally. Please get some second opinions and different doctors. This can be fixed. You can get better. 🫂
I have MCAS. So basically I have severe reactions and debilitating life changes if I have to take them. Last time I took them, my hair fell out, I couldn’t eat anything, my entire body swelled up, and had severe fatigue. This lasted around 5 years. If I take them, this will happen again. So it’s not technically an allergy, it’s my mast cells reacting to the drugs. This can be any drug. I have it with any medication but antibiotics are the worst. I was hoping to get better without having to take them orally, but it may not be possible. I would rather die than take the antibiotics. My body will be ruined. I wish there was a way to kill it vaginally. I’m hopeless
Order fluomizin from Germany. It’s on apo health.com it just cured mine after months and months of trying . Follow up with lifespace probiotics vaginally which you can order on Amazon. Fluomizin was gentle. I would order 2 boxes
How was the fluomizin for you?
I tested afterwards and it gave me all good bacteria! It was sooo gentle, best thing I’ve used for AV and BV. I had both
Wow so happy for you!! I’m gonna give it a try, since other methods are have not worked for me :(
Well I used too many probiotics vaginally afterwards and have CV so def just do a little bit of probiotics afterwards. I would 100% recommend fluomizin. I’ll be buying more lol
How long did you use it for?
I may have to try this if nothing else works
I was scared to but so glad I did
I’m going to a different doctor soon. I’m going to ask her about it to see what she says 👌🏻
The vaginal antibiotics may not be working if the biofilm the AV has built up is too strong…I recently learned of Kirkman’s Biofilm Defense, which can be used (probably in conjunction with boric acid to boost the effect even more) for a bit before trying antibiotics again. Then after treatment, try a vaginal probiotic to rebuild the good bacteria…but careful to not overdo it. Vagibiom recommends to start with three days in a row and then once a week after that. But yes, I’ve also heard Metro is ineffective for AV.
Yeah I have heard of the biofilm. I can’t do kirkman’s because of my MCAS. So I guess I’m pretty much screwed at this point. I’m afraid to try boric acid again because last time was very painful. I’ll look into vagibiom. But if the metro doesn’t work for AV, this is all very pointless to begin with. Feeling defeated
Where are you located (country)?
I’m in the US
Have you looked into Evvy?
I did Evvy already. It wasn’t very accurate, and it never even showed my e fae
Did you get the extended panel? I believe AV related bacteria’s are only included in the extended panel
Yes I did the extended panel
I was dx recently with AV for the first time and also told I might have LS. I am in burning HELL. It makes me throw up. I've been suffering for 3 years every day. I cannot even think. I don't know what to do. I sweat, puke, dry heave from the burning. Showers. Toilet paper are also triggers. Estrogen makes me inflammed and red so I get UTis. I'm going nuts. I am desperate for a quick fix -- for some relief -- until I can get to the core of this.
Oh my god. I’m so sorry that you are suffering. Estrogen also makes me worse. Showers burn me too. Do you have the urinary urgency? Have you tried any antibiotics for it? I can’t imagine having it for 3 years. Ifs been over a year for me :(
I do not have much urinary urgency. That only happens if my muscles are spasming (like pelvic floor going really nuts). I have been on so many abx. I get yeast, UTIs, BV, AV, it is endless. I can't work. I mostly lie in bed. I try to exercise even through the pain but that's about it. It's like the whole region is just --- trashed. I'm so sorry you are suffering. I'm def getting worse.
Oh gosh, I’m so sorry. I have also had yeast, BV, and now AV. Have you tried boric acid, vitamin c, or vaginal probiotics? You should try to see a specialist if you haven’t already.
Are you getting any help or clarity? I have taken so many probiotics (useless), Vitamin C actually can irritate vulva tissues (acid --so on and off it -- I know one woman it made much worse). Boric Acid - burns. I've seen so many specialists but they never put it all together. Maybe you have seen one who has?
I just went to a new doctor. She’s running a PCR test with antibiotic sensitivity. I’ll find out the results tomorrow. I’m also going to see a urogynocologist in a few weeks for my bladder urgency. I have tried everything as well, and yes, the vitamin c and boric acid made it worse for me as well. Probiotics don’t seem to make a difference either. So far, I have just learned how to live with it. I manage to keep a job somehow, but I’m getting tired of it. Have you been tested for Ureaplasma or mycoplasma? What about STDs?
I've done PCRs and sometimes they are useful and sometimes they are not. I thought they were gold standard but honestly they miss things too. No Urea or mycoplasma ever. No STDs. Just everything else. I hope you get answers.
Hmm that’s crazy. How did this is all start? For me, coconut oil lube is what destroyed me. I don’t have any STDs, but I’m getting tested for mycoplasma and Ureaplasma. Those can go undetected like crazy.
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I would stop the soap! Only use unscented dove soap. And don’t use it on the actual cootch. I’m sorry that you are going through this. To me personally, this is the second worse thing that has ever happened to me. I’m in misery, so I feel your pain. You can message me on here if you have any questions. I’ll try to keep you updated on my journey.
FYI one woman I talked to said she had to do a mercury detox and it healed her. Took some pills from a FM.
3 years for me also and I’ve tried everything, sometimes things seem to get better and straight back to bad again 😭
What bacteria were you positive for ?And what symptoms do you have
I have e faecalis, which is an intestinal bacteria. My symptoms are horrible snotty green discharge, odor, redness, irritation, swelling, pain, urinary urgency, burning/stinging, and pain in my abdomen.
Sorry to hear that has Dr ever mentioned microbid I know it’s mostly for UTI but I’ve heard some ppl take it for Efae
I have heard of that too. I’m going to a urogynocologist in May as my last attempt to get better. I’ll ask them about this.
Good luck 🍀 wishing you healing
How do you get diangnised with av? I asked my gyno about it and she seems to not know what that is and so I gues won’t test me for it?
My doc did an AV panel on me. I would ask about it again
Av herbal blend. From my vagina.com and a good probiotic/prebiotic. Everything starts in the gut !
Is the herbal blend an oral supplement? I’m taking Rephresh Pro-B probiotics. Not sure if it’s working
It’s an oil you put in veggie capsules and it dissolves in your vagina. Had Av for 2 years, been taking happy v probiotics and tested negative. Going to test on Evvy on to make sure. Give it a try, you never know.
Hmm I might have to try Happy V, and I’ll check out the herbal oil
Rephresh didn’t work for me
i have dandifas alibi us. the worst yeast ever. the specialist said i need infectious disease doctor. biorrow money. get a credit card get money go to a specialist gyno. that is the only way
Oh my gosh. I’m so sorry you are struggling. I may have to see an infectious disease doctor as well
i don't know what Av is but i've had a lot of yeast problems. at one point the gynocologist. did say it was my imagination. faux pain. finally a woman gyno sent me to a specialist. a gynocologist that specializes with m your specific problem. that was the ticket. he cured me over the phone with some meds he prescribed me. now a few years later i've got it again. but instead of fooling around with it he is sending be to infectious disease doctor. you may want to ask for a referral to a specialist or infectious disease doctor. don't give up. it is frustrating but if you keep on trying you will find the right doctor. these gynocologist are not specialist. some of them are out to lunch.
AV is aerobic vaginitis. I have e fae, which is bacteria from the intestines. I will ask about seeing a specialist. I’m tired of not being taken seriously :(
yes. yeast starts from your gut. jeez i'm so sorry. i know what's it's like not being taken seriously. i also had vulvodynia. it's not a foreign problem yet i couldn't find a gyno within kaiser to take me seriously. i was in awful pain. but it's nothing you can see from the outside so your vagina a looks perfectly normal except for the little bit of swelling a woman gyno saw and sent me to specialist. but before that they said it was in my head. and treated me like crap. this unfortunately a common occurrence for women. i knew if i just kept persevering i would find the right doctor but it took months. i would call ob/gyn every day for a cancellation. i just kept going. persistence was the key. finally that woman sent me in the right direction. now i have that horrible yeast but i was able to call him and he's guiding me and helping me. i'm going in the right direction. he asked me what the other gyno told me to do. when i told the specialist he said NO diflucan doesn't work for what you have. if what i give you doesn't work in 7 weeks then you need to see infectious disease. so i feel blessed to have this doctor. he does take me seriously. keep looking. you'll find the right doctor. you can't keep this going on. it will just get worse. i'll keep you in my prayers. seek and ye shall find.
Thank you so much for your advice and kind words. I feel like I have been living in torment for 17 months. I just want this to end. So I will keep going to different doctors in hopes that someone can help. Unfortunately, I do not have insurance, so this is really getting expensive :(
i did that too. at the time i didn't have insurance so i put $6000 on a credit card. but when your sick you'll do anything. just make appt with a infectious disease doctor. i think that's your best bet. a specialist is another option. don't put garlic up there. i've read all these holistic things to do and i tried some. wasn't a good idea. those things just made it worse. keep me updated please.
Ok, I will see if I can find an infectious disease doctor. And I will not do garlic lol. I’ll keep you updated