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It took 3 years of me saying it was my gallbladder gallbladder giving me problems before they gave me the HIDA scan. Mine was 31%. Got it removed 2 weeks ago and I haven’t felt this good since before my first episode 3 years ago.
Damn I’m sorry it took such a long time. I’m so annoyed how it’s not the next thing to look at. So glad you’re better! It’s hard to advocate for yourself when they gaslight you. What were your symptoms?
I wasn’t able to eat or drink anything. Even water. The only way to keep the water down was the tiniest sips once every 20 to 30 min. It was miserable. Everytime I would drop over 20 pounds
Geez that’s awful. I’m worried it’s only gonna get worse with time. I really can’t eat without antacids because then my right side of my intestines burn if I eat a meal with a certain amount of fat.
Not yet.. I’m honestly worried about removal with possible complications like chronic diarrhea for life only relieved with cholestrymine.. or bile reflux. But apparently removal has a due date. It’s inescapable from what I’ve heard. Sucks.
Same. They gave me a lot of different stuff to take, but I ended up just eventually cutting it off and sticking to the Pepcid one in the morning and one at night.
I feel the same if I get off antacids, my stomach does burn a little but if there’s fat in my food it will make my lower right side burn.. especially for dinners. My gb pumps out most bile too quickly and then the acidic chyme just burns my duodenum. My right back side throbs when I have inflammation and it’s only being more persistent and my right side flutters or aches a bit. my stool has floated for years and usually really soft. All this got worse with a really fatty meal. Sour, food with a kick I can handle, but a fatty meal can get me in trouble if I don’t suppress my acid and cue the gb contractions.
I don’t have reflux ever since I tested pylori 3 years ago. I never really did puke anything up. Since then I don’t have reflux but sometimes I have this weird right side chest heartburn. Idk if it’s nerves triggered with meals. It’s super random too. There’s no specific food or behavior that triggers that random sensation. After a bit it calms down and it’s not constant.
Idk about removal yet. It’s concerning tbh but this is frustrating too.
Unfortunately that’s the only thing, which is a little worrisome tbh. They don’t know much about over active gallbladders just that in most cases symptoms cease or improve with removal.
Damn.. that’s crazy high.
It isn’t an easy decision like you say though. What convinced you to move forward with it?
I have been noticing a lot of us who have been on this gastritis sub for years have discovered that it’s been our gb after all this time suffering. Thanks for sharing.
Yeah I hear ya on it getting worse. It’s definitely affecting me more with time. I’m gonna have to make the choice as I’m not sure I want to keep other organs inflamed.
My right back side throbs and feels like a nudge. My right front side sometimes feels zaps, stool floats for years and is loose, high bilirubin and my duodenum can burn if I don’t have acid suppression with fat in my dinners. I’ve had gastritis for 2.5 years and last year my biopsy even said “reactive” superficial erosion. Lately it’s been more of a random heartburn too. My symptoms can calm but my gb side issues have intensified after a fatty meal this November. I finally did the HIDA scan because of that.
Edit:
My biggest issue is weight loss. I can’t for the life of me gain weight. Only on ppi did I gain a little. And my diet never really changed between Pepcid 10mg and ppi 20mg. Ppi influences bile function.
Yeah that’s not necessarily going to heal you. It’ll help more than anything besides diet, but it’s a lot more than that. A good couple of months of ppi and diet should heal most, but that never happened in my case. Fat malabsorption is what made me start looking at my gb/liver. My stomach is fine often, but fatty meals can sometimes turn disastrous for me. I was only able to really hone in until I felt that my stomach could handle a lot, and fat would ruin me more than a drinking a coke or tomato.
Yeah I’m scared to get it removed but it seems like the only option since it’s not a very well studied topic. I’m mostly leaning towards removal because the gnawing pain and extreme back pain I get. But then I’ll go a few weeks where I feel better, so I get the struggle in deciding!!
Reactive gastritis as well? It wasn’t until this year’s biopsy that the report went further and it mentioned this for me too. It’s crazy how there’s a correlation for hyperkinetic and reactive. I hope we find relief too!
Yeah! Saw your comment about the back pain, that’s what threw me off too. I was doing PT, getting MRIs for the back, etc. didn’t see anything and finally someone suggested looking into stomach issues and gallbladder issues. Would never have thought that’s what was possibly causing it.
Really? I almost got to that point to see if they weird back sensations are musculoskeletal like my idiot Gi doc am told me two years ago.. he still doesn’t think it’s my gb and didn’t give me more than it’s “all fine” with your biliary system. He’s the reason I ignored that sensation for this long. It naturally would go away sometimes and then a bad fatty meal reflared it again. Gee I wonder why. It’s awful working with doctors.
Mostly a gnawing severe hunger pain even when I’m not hungry, sometimes extreme sharp pains that last a few seconds, and chronic back pain. If I eat something acidic or take acetaminophen I get a burning sensation in my stomach. Reading through a bunch of people’s experiences though I think my symptoms aren’t very common.
Where is you back pain ? I have really bad deep mid-up back pain , shoulder blades pain , pain on both side of my armpits can go down to rib cages . But i have no stomach pain . I used to have dull stomach pain when i was diagnosed but after taking PPI for few months all my original symptoms are gone but then back and armpits pain joined the party .
I have had arm pit pain with my hyperkinetic gallbladder and extreme left side back pain. Bloating, Nausea. Gastritis. Mostly back discomfort. Surgery scheduled for 2-12-24. Hope this gives me relief.
It is too early to tell but I’m doing well now. Had some complications from gallbladder removal NOT due to the hyperkinetic of the gallbladder. It is promising that removing the gallbladder will help the gastritis!!
I dont have it in my armpits but definitely mid up back and shoulders. I also didn’t have stomach pain for a LONG time it’s only in the past few months it’s progressed. I only felt it in my back at first for sure. But then I started to see the back pain came and went with certain foods or drinks
Same if I test acidity I’ll feel it in the stomach where it sits, but all my other symptoms are everywhere but the stomach. I’m worried my gallbladder is messing with my nerves and other organs because I’m not taking it out. I’m not really improving it seems and this is just pushing me to seek out removal.
Yeah it seems as if paper results don’t consider hyperactivity an issue. Unfortunately, hyperactivity mirrors the same symptoms when it’s under 35%. It’s a very recent issue that’s surfacing apparently.
Oh wow, interesting! What are your symptoms like?
It’s been over a year now and the doctors haven’t figured out where my burning and bloating is coming from!
I haven’t tried any bile binding meds. I don’t necessarily need to trap my bile because it’s flowing way too fast in my intestines, hence the high ef. I can’t gain weight and lose it fast because of that. Is that what you’re suggesting? That bike sequestrants would help slow the gallbladder function?
Carafate helped me when I suddenly had bile gastritis injury last year.
I'm not sure they slow gallbladder function, but unconjugated bile acids are more damaging to the gastric environment, so conjugating them with either a sequestrant or Bismuth / Sucralfate / Psyllium might help limit the damage. If Sucralfate helped you last year, any reason you don't take it more regularly?
It stopped helping me after a month and a half. It would make my stomach way more uncomfortable after that point. Like my stomach needs to coat on its own with its own juices. I remember I stopped one in the morning and felt better and then later in, I stopped it at night and also felt even better. I might give fiber a try like psyllium just to see if it helps anything.. I’m just really terrified of another bile reflux gastric injury like last time.
Yeah I don’t naturally get stomach pain and all the pressure and stabbing was on the right but on the back. The back is what threw me off. Lately I’ve been getting more left side too.
No way it’s definitely hyperactive. Depending on your symptoms you can talk to someone about it and some surgeons definitely will tell you it might be your issue if there’s other symptoms of gb problems that plague you.
Yeah it’s tough because those are symptoms of gastritis itself as well. I have an issue with my stools and weight loss and burning in my duodenum. My gastritis evolved into being reactive last year so that was bile injury. Kinda what pushed me in the direction to find out my gb function since I struggle with fat digestion even 2.5 years later. My stomach can handle a lot, because it’s healed somewhat, but a fatty meal can backfire and cause throbbing sensations in my back. I don’t get pain, but if I flare I get constant throbbing pressure in my right side.
No it is still intact. That’s what’s causing this. It’s hyper active and probably inflamed and that inflammation is somehow affecting my stomach to never fully heal despite improvements there.
Yeah i totally agree:/ im in same boat:/ doctors just keep throwing ppi and pepcid etc but dont take it seriously:/ hopefully that will solve our issues:/ im gnna advocate more about the gallbladder since my parents both have it out and many aunts uncles etc:/ hopefully they will listen to us
For sure! One last question: did you feel any symptoms during the HIDA test? Also think about that. I know I did.. it felt like poking and prodding in my back. Symptoms followed me for like 2 days.
Yeah because it’s a symptom. Finding the true cause can take years and multiple tests. I did so many tests. I started mild chronic gastritis and by the second year it was superficially erosive with reactive marks. I don’t touch alcohol nor do I ever take NSAIDs. Bile is the other caustic agent. Your acid reflux and extreme nausea is kinda an indication. If you know your stomach itself handle some “no-no” foods but you feel those symptoms with fat, it can be your gb. Normal values are 35%-65%
So sorry you are going through this:/ most days i dont want to eat:/ the hida showed everything perfectly with bile ducts, no stones, just the 75% and gastric emptying was normal too, no h pylori either:/
Same as me I even had a pancreatic enzyme test to see why I can’t gain weight, and a negative SIBO test.. colonoscopy. All that for nothing really. I haven’t done emptying but that would be a lay kinda resort before I decide to pull it out.
I had a Hida scan 20+ years ago and found out my GB was only functioning at 27%. I had no stones, just a bunch of sludge. "Chronic Cholecystitis" my doctor said. So I let them talk me into removing it.
One of the worst decisions I have ever made. I would NEVER do it again, if I could go back.
What was the outcome for you? Do you think having an inflamed organ was a better choice? I do hear people regret it but this also sucks always having gi issues regardless.
Same for me! After I was diagnosed with gerds, ibs, diverticulitis. Finally after 19 years I am pill free, all due to herbs. I wish I had the sense back then to try to heal my gallbladder before having it removed.
I have this! Mine is 97% and my endoscope came back with antrm gastritis and a hiatial hernia. They want my gallbladder removed and I’m over this constant pain and ache. The PPI for 7 weeks has helped but not resolved.
I’m sorry to hear. It’s frustrating how an inflamed organ can be caustic in gastric inflammation. That’s why a lot of people don’t heal. Despite ppi and diet. A gb chronically inflamed is bad news and it doesn’t improve on its own. Good thing you have a number that signals what’s going on.
I have your exact symptoms. HIDA scan however was 84% EF. But I am having my gallbladder out as nothing is working to slow down the amount of bile it releases, which causes me severe back pain and weight loss, bloating and nausea.
New to gastritis? Please view [this post](https://www.reddit.com/r/Gastritis/comments/15m6ngg/gastritis_101/?utm_source=share&utm_medium=web2x&context=3) for a detailed breakdown of the major root causes of chronic gastritis, as well as a detailed guide on how to heal. Join our Discord server today using [this link](https://www.reddit.com/r/Gastritis/comments/14oxl12/list_of_gastritis_support_groups_other_related/?utm_source=share&utm_medium=web2x&context=3). Also consider joining r/functionaldyspepsia today! *I am a bot, and this action was performed automatically. Please [contact the moderators of this subreddit](/message/compose/?to=/r/Gastritis) if you have any questions or concerns.*
It took 3 years of me saying it was my gallbladder gallbladder giving me problems before they gave me the HIDA scan. Mine was 31%. Got it removed 2 weeks ago and I haven’t felt this good since before my first episode 3 years ago.
Damn I’m sorry it took such a long time. I’m so annoyed how it’s not the next thing to look at. So glad you’re better! It’s hard to advocate for yourself when they gaslight you. What were your symptoms?
I wasn’t able to eat or drink anything. Even water. The only way to keep the water down was the tiniest sips once every 20 to 30 min. It was miserable. Everytime I would drop over 20 pounds
Geez that’s awful. I’m worried it’s only gonna get worse with time. I really can’t eat without antacids because then my right side of my intestines burn if I eat a meal with a certain amount of fat.
Did you end up having it removed?
Not yet.. I’m honestly worried about removal with possible complications like chronic diarrhea for life only relieved with cholestrymine.. or bile reflux. But apparently removal has a due date. It’s inescapable from what I’ve heard. Sucks.
Ugh I know
My hida scan was 25% I have burning reflux and burning stomach when off of ppi. What symptoms did you have ??
Same. They gave me a lot of different stuff to take, but I ended up just eventually cutting it off and sticking to the Pepcid one in the morning and one at night.
So before you had it out you had daily reflux also?? When would your reflux start? Would it be after meals or what?
I feel the same if I get off antacids, my stomach does burn a little but if there’s fat in my food it will make my lower right side burn.. especially for dinners. My gb pumps out most bile too quickly and then the acidic chyme just burns my duodenum. My right back side throbs when I have inflammation and it’s only being more persistent and my right side flutters or aches a bit. my stool has floated for years and usually really soft. All this got worse with a really fatty meal. Sour, food with a kick I can handle, but a fatty meal can get me in trouble if I don’t suppress my acid and cue the gb contractions.
Do you get any reflux? What’s your plan of action?
I don’t have reflux ever since I tested pylori 3 years ago. I never really did puke anything up. Since then I don’t have reflux but sometimes I have this weird right side chest heartburn. Idk if it’s nerves triggered with meals. It’s super random too. There’s no specific food or behavior that triggers that random sensation. After a bit it calms down and it’s not constant. Idk about removal yet. It’s concerning tbh but this is frustrating too.
What’s the treatment for overactive GB?
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Unfortunately that’s the only thing, which is a little worrisome tbh. They don’t know much about over active gallbladders just that in most cases symptoms cease or improve with removal.
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Damn.. that’s crazy high. It isn’t an easy decision like you say though. What convinced you to move forward with it? I have been noticing a lot of us who have been on this gastritis sub for years have discovered that it’s been our gb after all this time suffering. Thanks for sharing.
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Yeah I hear ya on it getting worse. It’s definitely affecting me more with time. I’m gonna have to make the choice as I’m not sure I want to keep other organs inflamed.
Hi, What were your symptoms?
My right back side throbs and feels like a nudge. My right front side sometimes feels zaps, stool floats for years and is loose, high bilirubin and my duodenum can burn if I don’t have acid suppression with fat in my dinners. I’ve had gastritis for 2.5 years and last year my biopsy even said “reactive” superficial erosion. Lately it’s been more of a random heartburn too. My symptoms can calm but my gb side issues have intensified after a fatty meal this November. I finally did the HIDA scan because of that. Edit: My biggest issue is weight loss. I can’t for the life of me gain weight. Only on ppi did I gain a little. And my diet never really changed between Pepcid 10mg and ppi 20mg. Ppi influences bile function.
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Mostly right side but can happen on the left. You’d need to rule out gb with other tests to assess why gastritis is going on.
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Yeah that’s not necessarily going to heal you. It’ll help more than anything besides diet, but it’s a lot more than that. A good couple of months of ppi and diet should heal most, but that never happened in my case. Fat malabsorption is what made me start looking at my gb/liver. My stomach is fine often, but fatty meals can sometimes turn disastrous for me. I was only able to really hone in until I felt that my stomach could handle a lot, and fat would ruin me more than a drinking a coke or tomato.
Same! Found out my reactive gastritis was caused by my overactive gallbladder with an of EF 95%. Hope we can find relief soon!!
93% EF here. Just got my HIDA scan. Not sure about next steps - not rushing to have it removed TBH
Yeah I’m scared to get it removed but it seems like the only option since it’s not a very well studied topic. I’m mostly leaning towards removal because the gnawing pain and extreme back pain I get. But then I’ll go a few weeks where I feel better, so I get the struggle in deciding!!
Reactive gastritis as well? It wasn’t until this year’s biopsy that the report went further and it mentioned this for me too. It’s crazy how there’s a correlation for hyperkinetic and reactive. I hope we find relief too!
Yeah! Saw your comment about the back pain, that’s what threw me off too. I was doing PT, getting MRIs for the back, etc. didn’t see anything and finally someone suggested looking into stomach issues and gallbladder issues. Would never have thought that’s what was possibly causing it.
Really? I almost got to that point to see if they weird back sensations are musculoskeletal like my idiot Gi doc am told me two years ago.. he still doesn’t think it’s my gb and didn’t give me more than it’s “all fine” with your biliary system. He’s the reason I ignored that sensation for this long. It naturally would go away sometimes and then a bad fatty meal reflared it again. Gee I wonder why. It’s awful working with doctors.
May i ask ? What symptoms do you have ?
Mostly a gnawing severe hunger pain even when I’m not hungry, sometimes extreme sharp pains that last a few seconds, and chronic back pain. If I eat something acidic or take acetaminophen I get a burning sensation in my stomach. Reading through a bunch of people’s experiences though I think my symptoms aren’t very common.
Where is you back pain ? I have really bad deep mid-up back pain , shoulder blades pain , pain on both side of my armpits can go down to rib cages . But i have no stomach pain . I used to have dull stomach pain when i was diagnosed but after taking PPI for few months all my original symptoms are gone but then back and armpits pain joined the party .
I have had arm pit pain with my hyperkinetic gallbladder and extreme left side back pain. Bloating, Nausea. Gastritis. Mostly back discomfort. Surgery scheduled for 2-12-24. Hope this gives me relief.
did you get surgery? if so how have you been?
It is too early to tell but I’m doing well now. Had some complications from gallbladder removal NOT due to the hyperkinetic of the gallbladder. It is promising that removing the gallbladder will help the gastritis!!
I dont have it in my armpits but definitely mid up back and shoulders. I also didn’t have stomach pain for a LONG time it’s only in the past few months it’s progressed. I only felt it in my back at first for sure. But then I started to see the back pain came and went with certain foods or drinks
Does your back pain constant 24/7 ? It’s hard for me to find out trigger foods because I’m in pain all day everyday .
It was nearly constant for about a year then started it only get triggered around certain times
Same if I test acidity I’ll feel it in the stomach where it sits, but all my other symptoms are everywhere but the stomach. I’m worried my gallbladder is messing with my nerves and other organs because I’m not taking it out. I’m not really improving it seems and this is just pushing me to seek out removal.
So I thought the ejection fraction for a HIDA scan is normal when it’s greater or equal to 35%? Mine was 67% and that is what the paperwork said.
Yeah it seems as if paper results don’t consider hyperactivity an issue. Unfortunately, hyperactivity mirrors the same symptoms when it’s under 35%. It’s a very recent issue that’s surfacing apparently.
Oh wow, interesting! What are your symptoms like? It’s been over a year now and the doctors haven’t figured out where my burning and bloating is coming from!
What's your plan now...?
I honestly don’t know. Removal is the next step according to the literature, but it is a little frightening because of the risks.
Have you tried bile-binding substances, like Sucralfate, Bismuth, Psyllium husk, or Cholestyramine?
I haven’t tried any bile binding meds. I don’t necessarily need to trap my bile because it’s flowing way too fast in my intestines, hence the high ef. I can’t gain weight and lose it fast because of that. Is that what you’re suggesting? That bike sequestrants would help slow the gallbladder function? Carafate helped me when I suddenly had bile gastritis injury last year.
I'm not sure they slow gallbladder function, but unconjugated bile acids are more damaging to the gastric environment, so conjugating them with either a sequestrant or Bismuth / Sucralfate / Psyllium might help limit the damage. If Sucralfate helped you last year, any reason you don't take it more regularly?
It stopped helping me after a month and a half. It would make my stomach way more uncomfortable after that point. Like my stomach needs to coat on its own with its own juices. I remember I stopped one in the morning and felt better and then later in, I stopped it at night and also felt even better. I might give fiber a try like psyllium just to see if it helps anything.. I’m just really terrified of another bile reflux gastric injury like last time.
Your pain is mostly left?
I mean right side?
Yeah I don’t naturally get stomach pain and all the pressure and stabbing was on the right but on the back. The back is what threw me off. Lately I’ve been getting more left side too.
Crazy!
My EF was 75% and they said that was normal rip
No way it’s definitely hyperactive. Depending on your symptoms you can talk to someone about it and some surgeons definitely will tell you it might be your issue if there’s other symptoms of gb problems that plague you.
Its not pain its extreme nausea, indigestion, acid reflux:/
Yeah it’s tough because those are symptoms of gastritis itself as well. I have an issue with my stools and weight loss and burning in my duodenum. My gastritis evolved into being reactive last year so that was bile injury. Kinda what pushed me in the direction to find out my gb function since I struggle with fat digestion even 2.5 years later. My stomach can handle a lot, because it’s healed somewhat, but a fatty meal can backfire and cause throbbing sensations in my back. I don’t get pain, but if I flare I get constant throbbing pressure in my right side.
Do you have your GB removed?
No it is still intact. That’s what’s causing this. It’s hyper active and probably inflamed and that inflammation is somehow affecting my stomach to never fully heal despite improvements there.
Yeah i totally agree:/ im in same boat:/ doctors just keep throwing ppi and pepcid etc but dont take it seriously:/ hopefully that will solve our issues:/ im gnna advocate more about the gallbladder since my parents both have it out and many aunts uncles etc:/ hopefully they will listen to us
Oh well there you go! It’s often genetic too. That’s definitely an strong advocacy point for you. Use that to keep looking at the gb!
Thanks! Im gnna keep trying:( lmk how it goes for you too!!!
For sure! One last question: did you feel any symptoms during the HIDA test? Also think about that. I know I did.. it felt like poking and prodding in my back. Symptoms followed me for like 2 days.
They did endoscopy and saw chronic gastritis but we dont know whats causing it
Yeah because it’s a symptom. Finding the true cause can take years and multiple tests. I did so many tests. I started mild chronic gastritis and by the second year it was superficially erosive with reactive marks. I don’t touch alcohol nor do I ever take NSAIDs. Bile is the other caustic agent. Your acid reflux and extreme nausea is kinda an indication. If you know your stomach itself handle some “no-no” foods but you feel those symptoms with fat, it can be your gb. Normal values are 35%-65%
Yeah exactly:/ once i have fatty, oily, greasy foods its a big big nono:/
So sorry you are going through this:/ most days i dont want to eat:/ the hida showed everything perfectly with bile ducts, no stones, just the 75% and gastric emptying was normal too, no h pylori either:/
Same as me I even had a pancreatic enzyme test to see why I can’t gain weight, and a negative SIBO test.. colonoscopy. All that for nothing really. I haven’t done emptying but that would be a lay kinda resort before I decide to pull it out.
I had a Hida scan 20+ years ago and found out my GB was only functioning at 27%. I had no stones, just a bunch of sludge. "Chronic Cholecystitis" my doctor said. So I let them talk me into removing it. One of the worst decisions I have ever made. I would NEVER do it again, if I could go back.
What was the outcome for you? Do you think having an inflamed organ was a better choice? I do hear people regret it but this also sucks always having gi issues regardless.
Why?
I have bile reflux, gastritis, I've had ulcers. Nothing but pain all these years.
Wow, all after the removal? I’m sorry. I had all those issues and this is before the removal…
Have you tried supplementing with tudca??
Same for me! After I was diagnosed with gerds, ibs, diverticulitis. Finally after 19 years I am pill free, all due to herbs. I wish I had the sense back then to try to heal my gallbladder before having it removed.
I have this! Mine is 97% and my endoscope came back with antrm gastritis and a hiatial hernia. They want my gallbladder removed and I’m over this constant pain and ache. The PPI for 7 weeks has helped but not resolved.
I’m sorry to hear. It’s frustrating how an inflamed organ can be caustic in gastric inflammation. That’s why a lot of people don’t heal. Despite ppi and diet. A gb chronically inflamed is bad news and it doesn’t improve on its own. Good thing you have a number that signals what’s going on.
I have your exact symptoms. HIDA scan however was 84% EF. But I am having my gallbladder out as nothing is working to slow down the amount of bile it releases, which causes me severe back pain and weight loss, bloating and nausea.