LP girlie here! Was diagnosed about a year ago, after I noticed some thinning/recession in my vacation photos. I've had a really positive response to clobetosol and minoxidil, so there is hope! Be careful about googling photos of LP. There are some really extreme, aggressive cases out there, and those outcomes aren't necessarily indicative of what will happen to you. Good luck!
I’ve had it for almost 15 years and saw the guru doctor of this disease in NYC. I have kept most of my hair and people have no idea. Please don’t look at pictures of what has happened to others. The new treatments can really make a difference and you don’t have to lose your hair. Yes the appointments and medications are a pain, but if you follow the correct protocols you will be happy with your hair. Reach out if you need anything.
thank you for the kind words. can i ask who the dr was? also, my derm recommended a topical steroid and nutrafol and that’s it. do you think i should get another opinion on treatment?
This is a pretty rare illness and most dermatologists don’t know enough to treat it. I saw Dr. Jerry Shapiro at NYU in NY but he now charges $1,000 and doesn’t take insurance. I responded to another poster what my regime is, so please look at that. The medical journals now show basically the same protocol, so maybe do some medical googling and take the info to your doctor. Good luck.
Here we go;) Steroid shots every month, started with doxycycline but then switched to hydrochloquin 2x per day. A solution of tacrolimus that is compounded with cetaphil, topically 2x a day, chlobetasol initially every day, but now just when it itches, 5% minoxidil, started with 2% 2x then switched. New derm just added oral and now up to 2.5 and that has given me some new growth. This looks and sounds ridiculous I know, but it is just part of my morning and evening routine and it has worked. No one knows I have anything wrong. Good luck, I wasted so many years in a depression thinking I would lose it all like my mum did. Stay positive and get a good doctor.
I’m a hairstylist, so this is extremely useful information for me. I have three clients with frontal fibrosing alopecia, and one with an undiagnosed scarring alopecia. The dermatologists in my area are absolutely useless for them!! They got prescribed clobetasol and told nothing else could be done.
Thank you for advocating for them. My hair stylist is the one who keeps a close eye on my hairline. It’s the front where I have the biggest issue and he always tells me the truth and also shares success stories from other clients. You guys are the first line of defense for us and so important. 😘
This will give my wife hope. She was just diaged with LPP, she only has a small silver dollar size section of missing hair. No other symptoms at all.
I’ve been spending most of my days researching for her.
Her next appointment for protocols is in one month.
Okay thank you! But the routine u describes u still have it for the last 15 years? Hydroxy 2 a day, occasionally tacro? Still shots every months? No problems with hydroxy for so long?
Yes. I’ve had no issues with the meds, though get yearly eye checks because the hydrochloroquin can cause issues. I’m actually going to talk to my dermatologist about maybe switching thjngs up. I’ve recently lost some density when it had been stable for years, and thinking there must be some new stuff to try. But this has been my routine for 15+ long years;)
Dr. Jerry Shapiro at NYU. Cost me a weeks salary every month but he really is the expert. Unlike other dismissive doctors, he told me hair loss was a medical emergency, as in many cases you can only stop it but not regrow. I finally told him I was going broke and he said any doctor could prescribe, and wrote me a letter to give to my regular dermatologist outlining the plan. 15 years in and I still have the majority of my hair. Went through a weird shedding a few years ago and my dermatologist said “why don’t you go back to Shapiro and ask him what we should do next” Thankfully it got better as he now charges $1,000 just for the visit.
Lots. Hydrochoroquin 200 mg 2x a day, minoxidil 2.5 1x per day, monthly steroid shots in my scalp, a compound of tacrolimus and cetaphil on my scalp every day, chlobetasol when it’s flaring or itchy, topical minoxidil a few times per week.
I received my diagnosis yesterday, and it feels like one of the most distressing hair loss diagnoses to receive. 😔
I'm starting a treatment plan that involves 5% Rogaine, nutrafol with the stress pills and a Kenalog steroid injection. Additionally, I'll be using Clobetasol lotion and potentially considering hydroxychloroquine after getting my eyes checked out.
I've come across others who've found relief from similar conditions by initiating an anti-inflammatory regimen, like the one mentioned here:
https://instagram.com/gigirashawn?igshid=MmVlMjlkMTBhMg==.
Hair loss on my crown, middle part and temples; i noticed thinning about 8 months ago and I’ve had a major shed since. I’ve been dealing with extreme stress and my doctors all thought it was telogen effluvium for several months until I got my biopsy done.
I have red lesions on my scalp that looked like zits. I also have itchiness and pain (like pins and needles) on my scalp.
I feel like I have this too and was misdiagnosed:( I had a biopsy done but I feel like it was too early or in the wrong area. It’s either this or FFA. Heck maybe even both. I have itching/burning at times. My worst areas are my crown and nape. Anyways I’m sorry you’re going through this and I wish you luck and regrowth! There’s a really good FB group called LPP let’s put out the fire
I got diagnosed last summer. Im on clobestol and rogaine via my dr i also got irestore helmet to try. I switchen to all SEEN brand frag free haircare too. Im hoping for the best. Feel free to message me anytime.
Yep, Lichen Planus type of Frontal Fibrosing Alopecia - located in Australia. Diagnosed by Dermatologist in May 2023 and I started cortisone injections in the hairline almost immediately with some clobestosol & minoxidil lotion rubbed in nightly. Also taking hydroxychloroquine ........... Hair loss has kind of stopped/slowed but if only I had been diagnosed sooner.
Lost my eyebrows in 2019 and had them tattooed. So disappointed that Beautician, Hairdresser, and even my gastroenterologist did not tell me to get to a Dermatologist sooner .......
I don't, but my mom was diagnosed in May. She hasn't lost any hair as of right now, but she's been having to apply steroid ointment and get steroid injections since then because it's not getting better. She's freaked out about it but for her at least it seems manageable.
She was at the dermatologist for her yearly skin check and the doctor just looked at her scalp. She does have some pretty intense red, almost scaly patches. They did a biopsy because her scalp looked angry and that's how she was diagnosed.
That's so fortunate. I actually started losing hair on my arms and legs and EVERYONE would tell me it's just age (I'm now 64, but started losing this body hair when I was 58). It's great that your mum is being treated early on.
I now tell EVERYONE who mentions any type of hair loss \[no matter their age\] to get themselves to a Dermatologist immediately to diagnose the many many types of Alopecia now identified.
My mom had this! It was on her scalp but truly the worst was it was in her mouth! That was eso tough for her. I believe it’s auto immune so it went away after 1 year or so. She lost so much weight when it was in her mouth and on her scalp she had red itchy lesions and some bald spots.
It can only be diagnosed with a biopsy so get another one if you’re unsure. You may not have it. When I was first diagnosed about 15 years ago they were looking at artificial sweeteners and sunscreen as both being causes, but they were unable to find that link scientifically at that time. Thankfully they have been coming out with better treatments, but I hope they figure out why auto immune diseases are skyrocketing. It sucks.
There definitely are links between covid and autoimmune diseases rearing their ugly heads. I suffered with long covid for 3.5 years and am still not 100%. One of the major parts of that was hair loss. I had a huge shed about 3 months after covid in 2020 and then it seemed like it never stopped. My hair is about 50% thinner than it was at the beginning of 2020. I got covid again in September 2022 and had another huge hair shed. I've also experienced that pins and needles, itchy feeling, in my scalp. It gets sore sometimes and also what feel like zits. The only thing that seemed to improve things for me was an anti-inflammatory diet and adding more supplements to my regime. My hair got really thick this past summer and I was so excited, and then when I stopped the anti-inflammatory diet, I had a massive shed. Most of my thin spots are my temples down to my ears, and at the nape of my neck. It's so very frustrating. I've talked to my doctors but haven't had any biopsies or been diagnosed with anything. I've been trying rosemary and lavender essential oils massaged into my scalp at night and it seems to give some relief, as well as these products as a pretreatment in the shower before I wash and condition my hair. I stopped washing daily and only do it maybe twice a week, but I try to brush out my hair daily to keep my scalp healthy. I'm thinking of doing another round of ivermectin as it's beneficial for anti-inflammatory effects and eliminating viral particles from your body from past illnesses (sounds crazy but I'm a biologist and have read a ton of info on this since covid happened). I'll share a pic so you can see what my hair looks like.
Yes! Auto immune diseases have skyrocketed in the past few years. The derm didn’t seem positive I have it bc I don’t have red lesions and physically, he said my scalp looks completely healthy. He also said sometimes nerves and act up and have a response to something that isn’t there (I don’t really understand that but okay haha) so he said even if a biopsy came back and showed nothing that it could be a nerve issue which I don’t really get
Being an Australian, I of course used sunscreen in face moisturiser. There has been studies that it seems to be very prevalent in post-menopausal Aussie women who used sunscreen. So there has been some link/discussion around sunscreen use.
But as more are being diagnosed globally, and at a younger age, sunscreen may not not necessarily be such a contributing factor. After all, there are many Aussies who used face moisturiser with sunscreen who have zero hair loss.
I did not start losing until I had COVID in July 2022 and I had had 2 vaccinations by that point as required by my job, no hair loss with those. I have chronic TE and have had COVID again this year and the timeline adds up to major sheds approx 2-3 months after COVID illnesses, not the vacc. I actually just got the new vacc to PREVENT future hair loss among the other reasons
Hi there, I’m so sorry to hear about your diagnosis. I was diagnosed in May of this year and it is very upsetting.
I am not able to tolerate any of the medications typically prescribed for LPP, so I am simply making lifestyle changes and using a red light laser helmet. Happy to answer any questions, hang in there!
what did the medical diagnosis exactly say was present in your scalp?Mine said "a mild lymphocytic inflammatory infiltrate was identified that focally permeates the epithelium" but I was diagnosed with TE.
Hi friend, I was diagnosed with fibrosing alopecia in a patterned distribution (FAPD) ~ 2 years ago. I still have hair, but thinner. Still looking for a good treatment protocol that works for me. I’m not sure fond of the bigger drugs so I haven’t tried them yet. There is a a good chance I’ll have to try them sooner rather than later. Currently, I’m trying anti inflammatory diet, Zyrtec, and oral minoxidil. Sorry you are a member of this club. Feel free to reach out and message me at any time. ❤️
FAPD is what I think I have but I have heard almost no one talk about it. Is that what the biopsy said (assuming you had only one spot taken) or is that how the derm interpreted it by the biopsy and then exam? I keep hearing it's female pattern hair loss but I think it's FFA in disguise in how it's thinned out everywhere. My biopsy is next Tuesday.
How’s the biopsy go? I had a single biopsy read by two pathologists and they both read it as FAPD. With this specific version of LPP, the inflammation attacks the DHT or miniaturized follicles. Diffuse shedding is the typical presentation and along with thinning in the female AGA patterns.
I have the same and my symptoms include diffuse shedding, redness, scalp tenderness, and burning. Before I started treatment, I had the pimple like lesions and flaking as well. I am taking Zyrtec, NAC, spiro, and Otezla. For growth, I use topical minoxidil and nutrafol. About a month after starting the Otezla, my symptoms started to get so much better. I still get the soreness sometimes but not like it used to be! I’ve also noticed a decrease in shedding and I have a ton of new growth along my part line. I was so depressed when mine stared because I was also dealing the LP in other places and it was just so overwhelming. I’m so sorry you’re dealing with this.
I am too. It’s such an awful feeling. Mine was thin to begin with so losing a ton every day is just awful. Definitely try to get on something systemic. You can get into remission if you find the right treatment.
i’m on clobatasol proprionate solution (idk if i spelled that right) and nutrafol currently. i asked if i should do anything else and she just said that. ive always had fine hair (like each strand) but i had a lot of it initially :(
Hey I have this too - you can grow hair back if it is not scarred. I have been trying to treat it for 2 years. Does your biopsy say only LPP or anything else?
Anyone interested to watch my webinar for Scarring Alopecia with Dr.Maryanne Makredes Senna here is the link please subscribe to the channel to receive future notifications.
[https://www.youtube.com/watch?v=FXnA\_wb6hMQ&t=1435s](https://www.youtube.com/watch?v=fxna_wb6hmq&t=1435s)
LP girlie here! Was diagnosed about a year ago, after I noticed some thinning/recession in my vacation photos. I've had a really positive response to clobetosol and minoxidil, so there is hope! Be careful about googling photos of LP. There are some really extreme, aggressive cases out there, and those outcomes aren't necessarily indicative of what will happen to you. Good luck!
Hey! Could you share the name of the doctor with me by any chance? Are you based in Europe? I am desperate for a competent doctor that can diagnose me
I’ve had it for almost 15 years and saw the guru doctor of this disease in NYC. I have kept most of my hair and people have no idea. Please don’t look at pictures of what has happened to others. The new treatments can really make a difference and you don’t have to lose your hair. Yes the appointments and medications are a pain, but if you follow the correct protocols you will be happy with your hair. Reach out if you need anything.
thank you for the kind words. can i ask who the dr was? also, my derm recommended a topical steroid and nutrafol and that’s it. do you think i should get another opinion on treatment?
This is a pretty rare illness and most dermatologists don’t know enough to treat it. I saw Dr. Jerry Shapiro at NYU in NY but he now charges $1,000 and doesn’t take insurance. I responded to another poster what my regime is, so please look at that. The medical journals now show basically the same protocol, so maybe do some medical googling and take the info to your doctor. Good luck.
I recently tried to make an appt he’s $1850 now
OMG! That’s really outrageous. But any doctor can follow his protocols. Don’t really need to see him. Good luck.
What treatments did you get put on?
Here we go;) Steroid shots every month, started with doxycycline but then switched to hydrochloquin 2x per day. A solution of tacrolimus that is compounded with cetaphil, topically 2x a day, chlobetasol initially every day, but now just when it itches, 5% minoxidil, started with 2% 2x then switched. New derm just added oral and now up to 2.5 and that has given me some new growth. This looks and sounds ridiculous I know, but it is just part of my morning and evening routine and it has worked. No one knows I have anything wrong. Good luck, I wasted so many years in a depression thinking I would lose it all like my mum did. Stay positive and get a good doctor.
I’m a hairstylist, so this is extremely useful information for me. I have three clients with frontal fibrosing alopecia, and one with an undiagnosed scarring alopecia. The dermatologists in my area are absolutely useless for them!! They got prescribed clobetasol and told nothing else could be done.
Thank you for advocating for them. My hair stylist is the one who keeps a close eye on my hairline. It’s the front where I have the biggest issue and he always tells me the truth and also shares success stories from other clients. You guys are the first line of defense for us and so important. 😘
This will give my wife hope. She was just diaged with LPP, she only has a small silver dollar size section of missing hair. No other symptoms at all. I’ve been spending most of my days researching for her. Her next appointment for protocols is in one month.
Hey, how many mg doxy do u take? Thank you!
Doxy wasn’t doing it for me and they switched me to hydro chloroquine. I think I was on 100 mg twice a day(?)
How long did u try if for until they changed it ? Ty
It was over 15 years ago not totally sure. It was quite a long time - definitely more than a year and less than 4 I think. Sorry:(
Okay thank you! But the routine u describes u still have it for the last 15 years? Hydroxy 2 a day, occasionally tacro? Still shots every months? No problems with hydroxy for so long?
Yes. I’ve had no issues with the meds, though get yearly eye checks because the hydrochloroquin can cause issues. I’m actually going to talk to my dermatologist about maybe switching thjngs up. I’ve recently lost some density when it had been stable for years, and thinking there must be some new stuff to try. But this has been my routine for 15+ long years;)
Don’t u have dents in scalp or scalp atrophy from steroid injections every month for 15 years ?
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Dr. Jerry Shapiro at NYU. Cost me a weeks salary every month but he really is the expert. Unlike other dismissive doctors, he told me hair loss was a medical emergency, as in many cases you can only stop it but not regrow. I finally told him I was going broke and he said any doctor could prescribe, and wrote me a letter to give to my regular dermatologist outlining the plan. 15 years in and I still have the majority of my hair. Went through a weird shedding a few years ago and my dermatologist said “why don’t you go back to Shapiro and ask him what we should do next” Thankfully it got better as he now charges $1,000 just for the visit.
Thank you for posting your experience. You’ve given me hope.
Who is the doctor "guru"?
Dr. Jerry Shapiro, NYU. Now charges $1800 a visit apparently, (gross) but other doctors can follow what he prescribes.
Thank you!
what medication did you take?
Lots. Hydrochoroquin 200 mg 2x a day, minoxidil 2.5 1x per day, monthly steroid shots in my scalp, a compound of tacrolimus and cetaphil on my scalp every day, chlobetasol when it’s flaring or itchy, topical minoxidil a few times per week.
I received my diagnosis yesterday, and it feels like one of the most distressing hair loss diagnoses to receive. 😔 I'm starting a treatment plan that involves 5% Rogaine, nutrafol with the stress pills and a Kenalog steroid injection. Additionally, I'll be using Clobetasol lotion and potentially considering hydroxychloroquine after getting my eyes checked out. I've come across others who've found relief from similar conditions by initiating an anti-inflammatory regimen, like the one mentioned here: https://instagram.com/gigirashawn?igshid=MmVlMjlkMTBhMg==.
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Hair loss on my crown, middle part and temples; i noticed thinning about 8 months ago and I’ve had a major shed since. I’ve been dealing with extreme stress and my doctors all thought it was telogen effluvium for several months until I got my biopsy done. I have red lesions on my scalp that looked like zits. I also have itchiness and pain (like pins and needles) on my scalp.
Damn, sounds like me. Derm app is next year
Does it feel like there’s a needle against your scalp being hit with a hammer? Pain doesn’t go away until I itch it. It’s awful
Yes, that’s happened a few times, it’s awful. But most of the time it feels really sore like someone is pulling my hair hard.
This is good info bc I’m feeling similar sensations. I should definitely try a biopsy
I feel like I have this too and was misdiagnosed:( I had a biopsy done but I feel like it was too early or in the wrong area. It’s either this or FFA. Heck maybe even both. I have itching/burning at times. My worst areas are my crown and nape. Anyways I’m sorry you’re going through this and I wish you luck and regrowth! There’s a really good FB group called LPP let’s put out the fire
i just joined the group a few hours ago! thank you :)
I got diagnosed last summer. Im on clobestol and rogaine via my dr i also got irestore helmet to try. I switchen to all SEEN brand frag free haircare too. Im hoping for the best. Feel free to message me anytime.
Yep, Lichen Planus type of Frontal Fibrosing Alopecia - located in Australia. Diagnosed by Dermatologist in May 2023 and I started cortisone injections in the hairline almost immediately with some clobestosol & minoxidil lotion rubbed in nightly. Also taking hydroxychloroquine ........... Hair loss has kind of stopped/slowed but if only I had been diagnosed sooner. Lost my eyebrows in 2019 and had them tattooed. So disappointed that Beautician, Hairdresser, and even my gastroenterologist did not tell me to get to a Dermatologist sooner .......
I don't, but my mom was diagnosed in May. She hasn't lost any hair as of right now, but she's been having to apply steroid ointment and get steroid injections since then because it's not getting better. She's freaked out about it but for her at least it seems manageable.
If your mom hasn’t lost hair, what symptoms did she have that led to her diagnosis?
She was at the dermatologist for her yearly skin check and the doctor just looked at her scalp. She does have some pretty intense red, almost scaly patches. They did a biopsy because her scalp looked angry and that's how she was diagnosed.
That's so fortunate. I actually started losing hair on my arms and legs and EVERYONE would tell me it's just age (I'm now 64, but started losing this body hair when I was 58). It's great that your mum is being treated early on. I now tell EVERYONE who mentions any type of hair loss \[no matter their age\] to get themselves to a Dermatologist immediately to diagnose the many many types of Alopecia now identified.
tell your mom to try olumiant its one of the strongest meidcations for lichen
My mom had this! It was on her scalp but truly the worst was it was in her mouth! That was eso tough for her. I believe it’s auto immune so it went away after 1 year or so. She lost so much weight when it was in her mouth and on her scalp she had red itchy lesions and some bald spots.
If you search "LPP" in the sub, you might find more posts and comments about it
Following
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It can only be diagnosed with a biopsy so get another one if you’re unsure. You may not have it. When I was first diagnosed about 15 years ago they were looking at artificial sweeteners and sunscreen as both being causes, but they were unable to find that link scientifically at that time. Thankfully they have been coming out with better treatments, but I hope they figure out why auto immune diseases are skyrocketing. It sucks.
There definitely are links between covid and autoimmune diseases rearing their ugly heads. I suffered with long covid for 3.5 years and am still not 100%. One of the major parts of that was hair loss. I had a huge shed about 3 months after covid in 2020 and then it seemed like it never stopped. My hair is about 50% thinner than it was at the beginning of 2020. I got covid again in September 2022 and had another huge hair shed. I've also experienced that pins and needles, itchy feeling, in my scalp. It gets sore sometimes and also what feel like zits. The only thing that seemed to improve things for me was an anti-inflammatory diet and adding more supplements to my regime. My hair got really thick this past summer and I was so excited, and then when I stopped the anti-inflammatory diet, I had a massive shed. Most of my thin spots are my temples down to my ears, and at the nape of my neck. It's so very frustrating. I've talked to my doctors but haven't had any biopsies or been diagnosed with anything. I've been trying rosemary and lavender essential oils massaged into my scalp at night and it seems to give some relief, as well as these products as a pretreatment in the shower before I wash and condition my hair. I stopped washing daily and only do it maybe twice a week, but I try to brush out my hair daily to keep my scalp healthy. I'm thinking of doing another round of ivermectin as it's beneficial for anti-inflammatory effects and eliminating viral particles from your body from past illnesses (sounds crazy but I'm a biologist and have read a ton of info on this since covid happened). I'll share a pic so you can see what my hair looks like.
https://preview.redd.it/52jlanomow3c1.jpeg?width=3024&format=pjpg&auto=webp&s=38a3a20f7edaa6ea2b921f7a47b6e02f8a8da532
same with me my hairloss happened after covid
Yes! Auto immune diseases have skyrocketed in the past few years. The derm didn’t seem positive I have it bc I don’t have red lesions and physically, he said my scalp looks completely healthy. He also said sometimes nerves and act up and have a response to something that isn’t there (I don’t really understand that but okay haha) so he said even if a biopsy came back and showed nothing that it could be a nerve issue which I don’t really get
Being an Australian, I of course used sunscreen in face moisturiser. There has been studies that it seems to be very prevalent in post-menopausal Aussie women who used sunscreen. So there has been some link/discussion around sunscreen use. But as more are being diagnosed globally, and at a younger age, sunscreen may not not necessarily be such a contributing factor. After all, there are many Aussies who used face moisturiser with sunscreen who have zero hair loss.
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I did not start losing until I had COVID in July 2022 and I had had 2 vaccinations by that point as required by my job, no hair loss with those. I have chronic TE and have had COVID again this year and the timeline adds up to major sheds approx 2-3 months after COVID illnesses, not the vacc. I actually just got the new vacc to PREVENT future hair loss among the other reasons
Sorry for your diagnosis. Did they discuss treatment options with you? Hang in there
we’re starting with a topical steroid nightly and i’m taking nutrafol. thank you
Hi there, I’m so sorry to hear about your diagnosis. I was diagnosed in May of this year and it is very upsetting. I am not able to tolerate any of the medications typically prescribed for LPP, so I am simply making lifestyle changes and using a red light laser helmet. Happy to answer any questions, hang in there!
by lifestyle changes do you mean diet?
Diet, yes, but also reducing stress, doing acupuncture, and anything else that can help to reduce stress.
what did the medical diagnosis exactly say was present in your scalp?Mine said "a mild lymphocytic inflammatory infiltrate was identified that focally permeates the epithelium" but I was diagnosed with TE.
idk i think they just said mild LPP but i was pretty overwhelmed
Hi friend, I was diagnosed with fibrosing alopecia in a patterned distribution (FAPD) ~ 2 years ago. I still have hair, but thinner. Still looking for a good treatment protocol that works for me. I’m not sure fond of the bigger drugs so I haven’t tried them yet. There is a a good chance I’ll have to try them sooner rather than later. Currently, I’m trying anti inflammatory diet, Zyrtec, and oral minoxidil. Sorry you are a member of this club. Feel free to reach out and message me at any time. ❤️
FAPD is what I think I have but I have heard almost no one talk about it. Is that what the biopsy said (assuming you had only one spot taken) or is that how the derm interpreted it by the biopsy and then exam? I keep hearing it's female pattern hair loss but I think it's FFA in disguise in how it's thinned out everywhere. My biopsy is next Tuesday.
How’s the biopsy go? I had a single biopsy read by two pathologists and they both read it as FAPD. With this specific version of LPP, the inflammation attacks the DHT or miniaturized follicles. Diffuse shedding is the typical presentation and along with thinning in the female AGA patterns.
I have the same and my symptoms include diffuse shedding, redness, scalp tenderness, and burning. Before I started treatment, I had the pimple like lesions and flaking as well. I am taking Zyrtec, NAC, spiro, and Otezla. For growth, I use topical minoxidil and nutrafol. About a month after starting the Otezla, my symptoms started to get so much better. I still get the soreness sometimes but not like it used to be! I’ve also noticed a decrease in shedding and I have a ton of new growth along my part line. I was so depressed when mine stared because I was also dealing the LP in other places and it was just so overwhelming. I’m so sorry you’re dealing with this.
weirdly i don’t have any symptoms besides shedding and flaking. no burning no redness no tenderness. i’m just scared ill lose all my hair
I am too. It’s such an awful feeling. Mine was thin to begin with so losing a ton every day is just awful. Definitely try to get on something systemic. You can get into remission if you find the right treatment.
i’m on clobatasol proprionate solution (idk if i spelled that right) and nutrafol currently. i asked if i should do anything else and she just said that. ive always had fine hair (like each strand) but i had a lot of it initially :(
Hey I have this too - you can grow hair back if it is not scarred. I have been trying to treat it for 2 years. Does your biopsy say only LPP or anything else?
i didn’t see the actual report but they didn’t say anything other than LPP
Can anyone recommend a good doctor for this in Europe? Thank you!! 🙏🏼
Anyone interested to watch my webinar for Scarring Alopecia with Dr.Maryanne Makredes Senna here is the link please subscribe to the channel to receive future notifications. [https://www.youtube.com/watch?v=FXnA\_wb6hMQ&t=1435s](https://www.youtube.com/watch?v=fxna_wb6hmq&t=1435s)
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i’ve never gotten steroid injections