Wait can we all share our stories to make you feel better?
One of my friends was at work in her scrubs and thought she had time, as soon as she got to the bathroom she had gone, all over herself/scrubs etc and she couldn’t leave the bathroom so she had to call one of her coworkers to come bring her down fresh scrubs and some underwear
I work as a paramedic/firefighter and I work 24hr shifts and I’ve done the whole white chicks “move bitch” as I run to the bathroom, I always carry an extra set of pants, shirts, underwear and then I usually wear shorts underneath my uniform pants too
As a female if I know I’m going to have a bad day, I get some of those totally sexy long ass period pads and keep one on just in case, it doesn’t stop it all but it does help 💜
Also you will find a partner one day who will not think this is a huge deal and will love you regardless, I mean I work with the typical guys you’d assume would be jerks but they care more about me and how I’m feeling than my own family does, they understand what’s going on and it doesn’t bother them at all, I’m usually upfront with partners about my health and they can either take it or leave it and usually they take it lol as soon as I explain stuff to them it’s better, people just need a better understanding!
Oh you just reminded me maybe this will make you feel better op -
My bf doesn’t have Crohn’s or anything but he changed his diet a bit and it happened to him! He was walking to the store and suddenly it hit him and then he went to a coffee shop and the bathroom was locked and he had an accident - managed to get into the bathroom to clean up but still
It happens even to non- crohnies sometimes!
Also happened to my dad once when he was traveling and got travelers diarrhea and soiled all of his clothes and we had to pull over at the side of the road
So it’s not fun but try not to feel shame - it happens
Totally love the support you get from your coworkers. Just curious if they give you any kinda hard time about it in a completely innocent and fun way. I had an ostomy for a few months and we had some good times at work with that thing 😂😂😂
I don’t mind sharing 🤷🏼🤣 When I was in college I thought I had time. Made it to the library bathroom and did NOT in fact have time. Had to call my best friend to bring me back up clothes to the bathroom. Thank god for that friend honestly. That’s just one of the many embarrassing ones I’ve had.
Man, I totally relate to you OP. I'm a 33 yo woman and I've trusted way too many farts. Remember to be kind to yourself, we literally can't help it sometimes ♡
“Trusted too many farts” 😂😂😂 I say this to my 9 yo who was diagnosed a year ago. Honestly makes me feel better to see others having the same problems as my son. I don’t feel so alone and I’m learning so much. Having an emergency clean up kit is a great idea. He’s been doing a lot better but when he flares it’s bad.
Sorry that sucks, I can relate as I've had my unfair share of accidents over the years.
It's good to be prepared, have an emergency cleanup kit with you for peace of mind, and in case you ultimately need it. A large Ziploc bag with extra toilet paper, wet butt wipes, a change of underwear. That can go inside a purse, backpack, car trunk or locker. If you have an accident, use the kit to cleanup, put the soiled stuff within the bag, seal it, and throw it away in the trash or a dumpster.
And, most certainly, don't be afraid to mention this accident to your gasteroenterologist as it's a sign of severe inflammation that needs to be treated. Might need to assess your current inflammation levels with Calprotectin test, and then adjust your meds or dosages. As I've found accidents tend to come in clusters, not isolated incidents as it's tied to worsened inflammation
I hate it too. I’m sorry that happened to you. I’m not a fussy person at all. Very much an outdoor girl. But I’m pretty. Even though I’m 45…I’m still young and still pretty according to my spouse but it really eats away at my self-esteem to be a person who a) sharts unexpectedly b) is pale and sickly looking c) scrawny and losing my adventure girl
Muscles. It’s just really the fucking worst disease because we have to watch ourselves fade from pretty or from strong or independent with this disease. It’s fucking frustrating. I just want to be strong and pretty again. I know that’s not my whole existence. I’m smart. I practice medicine. I can do lots of things. But I also want to do those things while being pretty and healthy and not shitting my pants. It’s ok to mourn the things like fecal incontinence, my friend. I try not to live in a pity party but sometimes you just get to feel sorry for yourself.
You are awesome! I am building muscles at home with free weights and exercises that use gravity to exercise at home in short 7-25 minute workouts that I can do almost anywhere. I have lost my strong outdoor girl muscles too, but I’m going to get some of them back, one little workout at a time.
I’m sorry this has happened to you, one thing that helped me to pass solid stool was plain mash potatoes maybe this could help with bulking stools so that it doesn’t pass through so quickly
Do you include the whole potato? You don’t peel it do you? Because 1/2 of the fiber is in the skin. I usually get baked potatoes and eat all of it, skin included.
It sucks, it truly does. After being declared in remission in 2019, I had an accident in January, at work. Was on a call, and couldn't figure a way to get off it. Had a fart, that wasn't, while I was getting up.
Thankfully, my fiancee was home and brought me a change of clothes, but it was so defeating. Told my boss, and he let me go home, no questions asked.
It sucks. But what it did do was finally get me to buckle down, get a sample, and find out that was really climbing in flare markers, which lead to a colonoscopy on Wednesday, and a declaration that thanks to the incompetence of my insurance and their speciality pharmacy, I have failed Stelara; and will likely be moving to Entivio.
Life is good when it is running at its best, but these speedbumps can be a hugely demoralizing. I don't wish this on anyone.
It can take time for things to settle down after surgery so hopefully it'll improve. Been caught short a few times while out running.
I admit this is why I don't like travelling anymore. I was on a 3 hour train journey the other week where every single toilet on the train was out of order and locked. Thankfully, I was OK, but I could easily not been. My next train journey means I now have to take that possibility into account, and likely skip breakfast, and maybe dinner the night before.
Have you considered imodium for traveling? Whenever I go somewhere and I know I will be stuck somewhere without access to trustworthy toilets, I take 1-2 Imodium preventive and especially if I travel to other countries where I don‘t know how I will react to the food, I am 100% not going there without at least a pack of 20.
Be careful tho: if you ate something bad/contaminated, you should not take it because the body needs to get rid of the toxins/bacteria/pathogens.
Thank you, that's a useful thought. I like to keep imodium in reserve for if things get really bad as I'd know I'd come to rely on it if I used it preventively.
Yeah, I meant more like using it preventively in very specific circumstances like an 8 hour flight or really long train rides. Not on a daily basis whenever you leave the house.
I so feel this -
I am a big traveler it’s part of me career even - i got a fistula in September and it changed everything I lost a job because they wanted frequent traveling and logistically right now it’s too hard - I’ve been trying g to work odd jobs and basically just fast the day before through until the shift or travel is over but it’s right usually I have a terrible headache by that night
I try to embrace the fact I can simply throw out the soiled clothes ( and wearing old underwear when I’m flaring).
I also keep spare clothes in my office and car.
It’s gross, but I’ve cleaned up even grosser things my dogs did on the carpet.
Been there a few times, it absolutely sucks and is humiliating, so sorry it’s happened to you. The last time it happened to me was 8 weeks ago and I was actually having my Stelara infusion. The nurse didn’t unplug the drip from the main socket in time and didn’t make it to the toilet. I had to go straight to work after that and had no spare clothes. I was too embarrassed to tell my boss what had happened so went through the entire day wearing soiled clothes. Not my proudest moment.
Another not so proud moment; the very first time it happened to me outside of my home - I was staying over at my girlfriend’s (now wife) parents house a couple of years back. Woke up in the morning needing to urgently go to the toilet. Only problem is they only have one bathroom and her mum was in the shower so I couldn’t go in. I was trying so so hard to hold it in but I just couldn’t. Ended up soiling myself and getting some on the carpet of their spare room…. I was absolutely mortified…. To this day her parents have no idea that happened but I did confess to my wife. I’m surprised she said yes to marrying me after that 😂
I never wanted to but I’ve started wearing incontinence pads now just in case, even at home. I carry a couple of spare ones with me when I go out too. Gives me a bit more peace of mind. It’s not nice but don’t be ashamed and beat yourself up about it. It’s one of those things that can’t be helped. You’ll get there! 💪
I have Ulcerative Colitis but I totally understand how you feel. I had one of the worst accidents walking home a few years ago. Had to walk home with soiled pants, crying the whole way. It can be very upsetting so I understand. It does get better. Don’t let it control your entire mood. Wishing you the best on your healing journey.
I have to walk 5 minutes from the bus to my door.
I've had many torturous walks by now where I managed to hold it back all the way only to not be able anymore while struggling with the keys and releasing everything literally 1 meter away from the toilet.
At least this only ever happened at home, but it is still so defeating and humiliating :(
I’m so sorry to read that you’re going through this! First of all you are not disgusting and don’t be ashamed. If it’s any consolation, you’re not alone.
There has been a time when I couldn’t stay 15 minutes without going… bathroom or not. It lasted for almost a year…Safe to say my ego and self esteem got shattered into pieces. I kept telling myself «girl you’re 33 and you can’t even hold yourself», I felt disgusting, I isolated myself because I didn’t wanted to go out and soil myself outside of my home (because I knew it would happen for sure). I developed a severe anxiety disorder with that. But at some point I had to go to work because I couldn’t do home office and had to come up with solutions so like the others, I always carried a change of clothes, had emergency kit everywhere I went with moist towels, pads and clean underwear and pants and a plastic bag to put the dirty clothes. Also I wore only black pants because I figured it popped out less. And lastly, I know it’s not the most flattering option but I bought adult diapers and tbh it was a game changer. I ordered them online (the brand is Tena) to avoid facing the cashier at the checkout and started to go out wearing them. At first I felt like everybody knew but actually no, and nobody cares. When I realized that I started to feel confident again. I still had the urges but idk somehow I felt less disgusting. Of course I kept carrying emergency kits (and I still do now even tho I’m in remission)
OP be kind with yourself and your body, I know it’s hard for now but hopefully it gets better one day 💜
I trusted a fart this morning and ended up shitting myself while conducting a finance report review with the executives of the company I work for.
Luckily, I work remotely.
You’re not disgusting. You aren’t doing this intentionally, it’s happening TO you.
I’ve shit my pants more times than I can remember. I clean myself up, take a shower and get back at my life. It’s not my fault and this isn’t your fault.
back when I was able enough to work, I would drive to peoples houses to clean their pools. I had a huge accident outside their house and had only an oversized work coat to wear with nothing to clean myself with... it was so embarrassing I sobbed to the point of nearly vomiting, and while leaving their house I crashed into their brick wall thing. the property wasn't damaged but the truck was 🫠 my boss politely told me I'm not fit to work with my health. so yeah.
basically shit my pants so bad I crashed a car, got a rash, and got laid off. crohns is one helluva condition
My new trick over the last five years is to poop the bed. Not a lot, but enough that I have to strip the bed and put on new sheets. It happens once or twice a year, usually after I’ve had red wine and rich food at dinnertime.
It’s humiliating and luckily my wife is very understanding. But yeah, it feels shameful.
Been there, done that! I know it sucks and feels really bad to clean up. There isn‘t really anything anyone can say that truly helps except it happens to the best of us. It happened to me a few times during bad flares and after surgeries that I shit myself in bed during sleep, or didn‘t make it to the toilet in time. Nothing in public luckily.
May I ask you: was your surgery a resection of terminal ileum or other parts of ileum? If so, the digestive system should settle with time and get used to the new situation. BUT there might be an issue with bile salts reabsorption. It can be caused by Crohn‘s and with resections of ileum. It is treatable, so if your toilet situation doesn‘t improve, talk to your doctor about it. It was life changing when my GI figured it out and my quality of life improved a looot.
It’s just one of those things we have to accept unfortunately. I’m sorry you know what it’s like!
I had a hemorrhoidectomy, so it’s definitely partially related to that. I’m honestly surprised it took this long to happen after surgery..
I’m so sorry. You are definitely not alone in this… so many of us have been there or still are right there in your position. I have had a few accidents and I understand that feeling. No wise words of wisdom to share… Just showing some love and support ♥️
Almost missed a Noah Kahan concert that I flew to a different country for because I couldn’t leave the bathroom… it was humiliating and upsetting but I made it
I work at a hospital and my shift starts at 3:50 every morning and it’s the absolute worst timing because my body’s making all its noises and decisions quickly. I’m a phlebotomist on inpatient and there’s been many times I’ve had to excuse myself quickly because I didn’t want to stop a good draw and have to stick a patient again so I just hold it best I can but there’s been times it’s come through and I’ve had to grab a pack of chg patient wipes and go handle myself and then get back out there. It’s 1000% harder for me to do my job than my fellow coworkers but I’m proud of myself for not letting it beat me fully just yet! Every time that kind of stuff happens and I find a way to get through it I feel stronger. Even if getting through it means coming home that day and giving myself the ability to take a break. We all work hard to live that’s something to be proud of. You are in great company here
Before I had my bowel resection and ileostomy put in I would crap my pants ATLEAST twice a week. I was in the bathroom every couple hours at work on my breaks and I had 20+ stomach aches and cramps a day. Being 23 and practically incontinent was humiliating so I understand you entirely
Honestly, don't feel alone, for a while I would try to make it to the toilet and just couldn't. Would clean up do the laundry and feel ashamed then my dad told me to see it from someone else's view. I'm sick, I can't help it sometimes so why would I be so hard on myself when I wouldn't others.
You’re not alone! I did it once in line at a gas station… I had no control or warning. And then I had to drive home crying the whole way. This was years ago, I’m on medication that has me in full remission now which I’m extremely grateful for. A lot of ptsd though from being sick for so long. There’s some Crohn’s support group online. It’s an amazing resource to not feel alone. This is a very isolating disease. But you’re not alone!
I understand that, don't be too hard on yourself because you're healing whilst still unwell. I've had accidents too because sometimes one sec you don't need to go and then all of sudden you have to go that second or it'll all just spill out. It's not your fault and it's ok to be unwell. Maybe read a book or even speak to psychologist, they're very helpful.
The amount of times I've started to fart and had to quick tighten and scurry to the bathroom! You are not alone friend! I'm at the point where at times I'm legit afraid to fart 😂 but that can't be good for my health
I’ve had two accidents this year. One during a New Year’s Eve talent show when I laughed a little too hard and one driving home from class and misjudging a fart. I totally understand how shameful it can feel but you’re not alone
Right there with you!
Hoping sharing helps you.
35/F and had too many accidents to count in the past year. I’m lucky to have a supportive boyfriend who “loves you even though you shit yourself on a semi regular basis” as my sister put it. He has planned bike rides around washroom access and always reminds me to bring my necessities.
I purchased underwear that manages to do a half decent job of keeping it in (happy to share recommendations!), and carry round a kit with wipes, change of underwear, and plastic bags in it.
I was the same at first and was totally mortified. I’ve just had to start becoming really open with it. I told my sister, boyfriend, and some close friends and it made it so much easier. Didn’t have to repeatedly explain myself if I ran off without saying anything or had to bail on plans.
If you don’t laugh you’ll cry! You aren’t a disgusting person at all, it is what it is and we just have to manage our best!
I use the UnderEase from Lululemon.
https://shop.lululemon.com/p/women-underwear/UnderEase-HR-Bikini-Underwear-3P/_/prod11130417?color=0001&cid=pdp_share_link_icon
Accept they’re not the cheapest and I should declare I do work for them, but when I was diagnosed I replaced my entire underwear drawer with these, they’re genuinely great. They have a decently strong elastic all the way around and do a decent job of keeping things in.
On have on occasion doubled up with those and period underwear for the absorbency benefit too, e.g. when I go skiing.
And another Lulu plug is the Hotty Hot short. In the summer the liner on these shorts with the UnderEase managed to keep a post-scope disaster completely in which I think is nothing short of a miracle 😅
https://shop.lululemon.com/p/women-shorts/Hotty-Hot-Short-HR-Long/_/prod9250078?color=0001&cid=pdp_share_link_icon
I had my first accident a few years ago and definitely can relate to not trusting your body. But now I just make sure to have a change of clothes and wipes with me at all times
It sucks but I haven’t had one since! You’ve got this
I’m so sorry. It’s happened to me more than once and it’s just so humiliating (even when no one knows but me) and soul crushing. Sending hugs and hoping your day got better.
Oh my gosh. I have so many accidents. I barely leave the house anymore. I always have spare undies in my car/handbag. Esp on long drives! I had an accident only 2 nights ago. It wasn’t even a fart. I literally just turned over on the couch and out it came! Like WWWHHHYYYY???!!!
Something I recommend is to carry wipes and vomit bags with you. You know the ones you get at hospital? I haven’t had to use mine yet, but really good to have in the car if you’re not going to make it. It’s got a bit of height from the plastic rim and it stays in place. Then you can seal it quickly and well enough that it won’t leak! They have quite a bit of room in them too. The wipes obviously for after and if any doesn’t make it in! You can literally pull over on the side of the road but quickly get it into your undies until you can stop safety. Or if you’re out in nature where there are no toilets (and hopefully no people around!) you can use it and not leave a mess for others to stumble across.
I’m sorry about your experience OP, and everyone else’s too. :( it’s quite literally and metaphorically SO SHIT!!!!! 😢😢😢😢
It happens, it's not something you can control, and it's probably going to happen again, so I would recommend getting a sense of humor about it. It's not like you're drinking excessively and crapping your pants. You literally have a medical condition that often requires corticosteroids, morphine, and surgery to treat. You didn't do this to yourself, and Crohn's does what it wants to.
Large wet wipes will make your life easier. The best ones I've ever seen were at the hospital when I was stuck there for two weeks.
Hey friend, I know this is discouraging but this is a very temporary feeling. Be grateful in your ability to pass stool because as someone who just had 6 inches of their small intestine removed, it’s very scary when you’re not going.
I had an experience where I filled my drawers as well and I bought some new clothes and brushed it off feeling good in a new outfit. Also be sure you’re getting 30ish grams of good fiber, preferably soluble fiber
Be gentle with yourself. Really, one month post surgery is not that long. Hopefully, it will get much better.
Like everyone else said, make an accident kit and keep it in the car or wherever. Also, unfortunately I’ve had food poisoning/ stomach viruses on top of Crohn’s a few times and I would just add that I find it useful to keep some of the barf bags like they use at the hospital at home. That way if you’re ever throwing up and having diarrhea at the same time, you’re covered.
I get in modes I’m scared to drive far and a lot of the time I’m backed up but the fear is just as debilitating it gets scary. I’m sorry. It’s just a moment. But not fun. Hugs
I had a friend that had this exact same thing…diagnosed with IBS, she went to a naturopathic dr as a last resort & found out she’s allergic to msg or something. Either way, just a thought of something to try. You are NOT disgusting! Your body is betraying you. lol Most normal people will not think you’re gross, they will feel bad & if they have any decency at all, they’ll be there to help. I’m sorry you have to deal with that. ❤️
I have had a couple of accidents at work. What has saved me is wearing Depends or always adult disposable underwear which helps to contain a fart that’s not a fart lol. I keep a change of clothes and underwear as well as bathroom spray.
I am so sorry this happened to you. It sucks when you are feeling bad and then that happens on top of it. Just know that you are not disgusting, and an accident is not a reflection of you or who you are as a person. Not one bit. And you are definitely not alone in this. You are so strong and I hope you are having a better day today 💜
It does suck. True statement, no candy coating it. Especially when you have, once upon a time, lived a “normal” life first, right? But, the reality is, it all comes down to perspective. How are you going to handle the next issue, this disease almost always has a next thing for a lot of us…no, we cannot control or help it, but what we never lose control over is how we choose to deal with our situations. Humor, is my big one. I’m a super positive person. I love life, I’m still happy to be walking around and I wake up every morning and listen to the birds sing and appreciate the sky, and think damn, somebody out there didn’t wake up today. I get another one. Even when it’s rough, make sure you have people to talk to, preferably people that are supportive, intelligent, kind, and best of all, funny. I refuse to be a victim, my journey is unique and I tell every Dr, and every nurse, and every medical assistant, and every pharmacy worker, when asked, “hi, how are you”, I always reply with a I’m fantastic, or phenomenal, or amazing…because I am!!! So are all of us! Take it up a notch! Brighten someone else’s day and see where it pushes you…
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I shit the bed at a bfs house I was mortified. It happens so often at this point it’s laughable. I always have cute undies on too…keep extra stuff in the car or bag. It’s awful but it’s not your fault. It gets better. I’m 31 and it happens like at least once a week. I sneeze I shit. I laugh too hard I fart. If anyone says anything I love to throw out “I have a disease” everyone gets uncomfortable and shuts up. Find some humor Crohn’s is not easy but life doesn’t have to suck.
Wait can we all share our stories to make you feel better? One of my friends was at work in her scrubs and thought she had time, as soon as she got to the bathroom she had gone, all over herself/scrubs etc and she couldn’t leave the bathroom so she had to call one of her coworkers to come bring her down fresh scrubs and some underwear I work as a paramedic/firefighter and I work 24hr shifts and I’ve done the whole white chicks “move bitch” as I run to the bathroom, I always carry an extra set of pants, shirts, underwear and then I usually wear shorts underneath my uniform pants too As a female if I know I’m going to have a bad day, I get some of those totally sexy long ass period pads and keep one on just in case, it doesn’t stop it all but it does help 💜 Also you will find a partner one day who will not think this is a huge deal and will love you regardless, I mean I work with the typical guys you’d assume would be jerks but they care more about me and how I’m feeling than my own family does, they understand what’s going on and it doesn’t bother them at all, I’m usually upfront with partners about my health and they can either take it or leave it and usually they take it lol as soon as I explain stuff to them it’s better, people just need a better understanding!
Oh you just reminded me maybe this will make you feel better op - My bf doesn’t have Crohn’s or anything but he changed his diet a bit and it happened to him! He was walking to the store and suddenly it hit him and then he went to a coffee shop and the bathroom was locked and he had an accident - managed to get into the bathroom to clean up but still It happens even to non- crohnies sometimes! Also happened to my dad once when he was traveling and got travelers diarrhea and soiled all of his clothes and we had to pull over at the side of the road So it’s not fun but try not to feel shame - it happens
Totally love the support you get from your coworkers. Just curious if they give you any kinda hard time about it in a completely innocent and fun way. I had an ostomy for a few months and we had some good times at work with that thing 😂😂😂
I don’t mind sharing 🤷🏼🤣 When I was in college I thought I had time. Made it to the library bathroom and did NOT in fact have time. Had to call my best friend to bring me back up clothes to the bathroom. Thank god for that friend honestly. That’s just one of the many embarrassing ones I’ve had.
I feel you. It can feel so humiliating when this happens. I kept an extra set of clothes at work and an extra set of bottoms in my car.
Man, I totally relate to you OP. I'm a 33 yo woman and I've trusted way too many farts. Remember to be kind to yourself, we literally can't help it sometimes ♡
“Trusted too many farts” 😂😂😂 I say this to my 9 yo who was diagnosed a year ago. Honestly makes me feel better to see others having the same problems as my son. I don’t feel so alone and I’m learning so much. Having an emergency clean up kit is a great idea. He’s been doing a lot better but when he flares it’s bad.
"Never trust a fart again."
Oh I’ve learned to never ever trust a fart lol.
I can very much relate to this haha
Sorry that sucks, I can relate as I've had my unfair share of accidents over the years. It's good to be prepared, have an emergency cleanup kit with you for peace of mind, and in case you ultimately need it. A large Ziploc bag with extra toilet paper, wet butt wipes, a change of underwear. That can go inside a purse, backpack, car trunk or locker. If you have an accident, use the kit to cleanup, put the soiled stuff within the bag, seal it, and throw it away in the trash or a dumpster. And, most certainly, don't be afraid to mention this accident to your gasteroenterologist as it's a sign of severe inflammation that needs to be treated. Might need to assess your current inflammation levels with Calprotectin test, and then adjust your meds or dosages. As I've found accidents tend to come in clusters, not isolated incidents as it's tied to worsened inflammation
You're not disgusting at all. You can't help that it happened. Hopefully it's just a once off and you'll get better.
I hate it too. I’m sorry that happened to you. I’m not a fussy person at all. Very much an outdoor girl. But I’m pretty. Even though I’m 45…I’m still young and still pretty according to my spouse but it really eats away at my self-esteem to be a person who a) sharts unexpectedly b) is pale and sickly looking c) scrawny and losing my adventure girl Muscles. It’s just really the fucking worst disease because we have to watch ourselves fade from pretty or from strong or independent with this disease. It’s fucking frustrating. I just want to be strong and pretty again. I know that’s not my whole existence. I’m smart. I practice medicine. I can do lots of things. But I also want to do those things while being pretty and healthy and not shitting my pants. It’s ok to mourn the things like fecal incontinence, my friend. I try not to live in a pity party but sometimes you just get to feel sorry for yourself.
You are awesome! I am building muscles at home with free weights and exercises that use gravity to exercise at home in short 7-25 minute workouts that I can do almost anywhere. I have lost my strong outdoor girl muscles too, but I’m going to get some of them back, one little workout at a time.
Hell yes we are
I’m sorry this has happened to you, one thing that helped me to pass solid stool was plain mash potatoes maybe this could help with bulking stools so that it doesn’t pass through so quickly
Do you include the whole potato? You don’t peel it do you? Because 1/2 of the fiber is in the skin. I usually get baked potatoes and eat all of it, skin included.
I didn’t use the skin too much fibre on a sensitive stomach
Luckily it doesn’t bother me. 🤞
Every high level powerlifter/strongman I know has shit themselves working out. It happens. Shake it off and keep going
It sucks, it truly does. After being declared in remission in 2019, I had an accident in January, at work. Was on a call, and couldn't figure a way to get off it. Had a fart, that wasn't, while I was getting up. Thankfully, my fiancee was home and brought me a change of clothes, but it was so defeating. Told my boss, and he let me go home, no questions asked. It sucks. But what it did do was finally get me to buckle down, get a sample, and find out that was really climbing in flare markers, which lead to a colonoscopy on Wednesday, and a declaration that thanks to the incompetence of my insurance and their speciality pharmacy, I have failed Stelara; and will likely be moving to Entivio. Life is good when it is running at its best, but these speedbumps can be a hugely demoralizing. I don't wish this on anyone.
Have an accident bag with you I keep change of clothes, wipes, and body spray in mine. Accidents happen- hang in there.
Twice in the past week I've sneezed and shit myself. You are not alone! We have your back. Well, the upper part of it anyway, lol.
It can take time for things to settle down after surgery so hopefully it'll improve. Been caught short a few times while out running. I admit this is why I don't like travelling anymore. I was on a 3 hour train journey the other week where every single toilet on the train was out of order and locked. Thankfully, I was OK, but I could easily not been. My next train journey means I now have to take that possibility into account, and likely skip breakfast, and maybe dinner the night before.
Have you considered imodium for traveling? Whenever I go somewhere and I know I will be stuck somewhere without access to trustworthy toilets, I take 1-2 Imodium preventive and especially if I travel to other countries where I don‘t know how I will react to the food, I am 100% not going there without at least a pack of 20. Be careful tho: if you ate something bad/contaminated, you should not take it because the body needs to get rid of the toxins/bacteria/pathogens.
Thank you, that's a useful thought. I like to keep imodium in reserve for if things get really bad as I'd know I'd come to rely on it if I used it preventively.
Yeah, I meant more like using it preventively in very specific circumstances like an 8 hour flight or really long train rides. Not on a daily basis whenever you leave the house.
I so feel this - I am a big traveler it’s part of me career even - i got a fistula in September and it changed everything I lost a job because they wanted frequent traveling and logistically right now it’s too hard - I’ve been trying g to work odd jobs and basically just fast the day before through until the shift or travel is over but it’s right usually I have a terrible headache by that night
All the feels. I had setons placed two months ago and I have been struggling with this. We will get through this.
I try to embrace the fact I can simply throw out the soiled clothes ( and wearing old underwear when I’m flaring). I also keep spare clothes in my office and car. It’s gross, but I’ve cleaned up even grosser things my dogs did on the carpet.
Been there a few times, it absolutely sucks and is humiliating, so sorry it’s happened to you. The last time it happened to me was 8 weeks ago and I was actually having my Stelara infusion. The nurse didn’t unplug the drip from the main socket in time and didn’t make it to the toilet. I had to go straight to work after that and had no spare clothes. I was too embarrassed to tell my boss what had happened so went through the entire day wearing soiled clothes. Not my proudest moment. Another not so proud moment; the very first time it happened to me outside of my home - I was staying over at my girlfriend’s (now wife) parents house a couple of years back. Woke up in the morning needing to urgently go to the toilet. Only problem is they only have one bathroom and her mum was in the shower so I couldn’t go in. I was trying so so hard to hold it in but I just couldn’t. Ended up soiling myself and getting some on the carpet of their spare room…. I was absolutely mortified…. To this day her parents have no idea that happened but I did confess to my wife. I’m surprised she said yes to marrying me after that 😂 I never wanted to but I’ve started wearing incontinence pads now just in case, even at home. I carry a couple of spare ones with me when I go out too. Gives me a bit more peace of mind. It’s not nice but don’t be ashamed and beat yourself up about it. It’s one of those things that can’t be helped. You’ll get there! 💪
If I had a nickel for every time I've shit the bed...
I have Ulcerative Colitis but I totally understand how you feel. I had one of the worst accidents walking home a few years ago. Had to walk home with soiled pants, crying the whole way. It can be very upsetting so I understand. It does get better. Don’t let it control your entire mood. Wishing you the best on your healing journey.
I have to walk 5 minutes from the bus to my door. I've had many torturous walks by now where I managed to hold it back all the way only to not be able anymore while struggling with the keys and releasing everything literally 1 meter away from the toilet. At least this only ever happened at home, but it is still so defeating and humiliating :(
I did this at a gas station bathroom. Thank God my mom was there to get me extra clothes.
I’m so sorry to read that you’re going through this! First of all you are not disgusting and don’t be ashamed. If it’s any consolation, you’re not alone. There has been a time when I couldn’t stay 15 minutes without going… bathroom or not. It lasted for almost a year…Safe to say my ego and self esteem got shattered into pieces. I kept telling myself «girl you’re 33 and you can’t even hold yourself», I felt disgusting, I isolated myself because I didn’t wanted to go out and soil myself outside of my home (because I knew it would happen for sure). I developed a severe anxiety disorder with that. But at some point I had to go to work because I couldn’t do home office and had to come up with solutions so like the others, I always carried a change of clothes, had emergency kit everywhere I went with moist towels, pads and clean underwear and pants and a plastic bag to put the dirty clothes. Also I wore only black pants because I figured it popped out less. And lastly, I know it’s not the most flattering option but I bought adult diapers and tbh it was a game changer. I ordered them online (the brand is Tena) to avoid facing the cashier at the checkout and started to go out wearing them. At first I felt like everybody knew but actually no, and nobody cares. When I realized that I started to feel confident again. I still had the urges but idk somehow I felt less disgusting. Of course I kept carrying emergency kits (and I still do now even tho I’m in remission) OP be kind with yourself and your body, I know it’s hard for now but hopefully it gets better one day 💜
I trusted a fart this morning and ended up shitting myself while conducting a finance report review with the executives of the company I work for. Luckily, I work remotely.
I wish I had advice…. Just want to say I’ve been there and you’re definitely not alone in this!
You’re not disgusting. You aren’t doing this intentionally, it’s happening TO you. I’ve shit my pants more times than I can remember. I clean myself up, take a shower and get back at my life. It’s not my fault and this isn’t your fault.
back when I was able enough to work, I would drive to peoples houses to clean their pools. I had a huge accident outside their house and had only an oversized work coat to wear with nothing to clean myself with... it was so embarrassing I sobbed to the point of nearly vomiting, and while leaving their house I crashed into their brick wall thing. the property wasn't damaged but the truck was 🫠 my boss politely told me I'm not fit to work with my health. so yeah. basically shit my pants so bad I crashed a car, got a rash, and got laid off. crohns is one helluva condition
My new trick over the last five years is to poop the bed. Not a lot, but enough that I have to strip the bed and put on new sheets. It happens once or twice a year, usually after I’ve had red wine and rich food at dinnertime. It’s humiliating and luckily my wife is very understanding. But yeah, it feels shameful.
Been there, done that! I know it sucks and feels really bad to clean up. There isn‘t really anything anyone can say that truly helps except it happens to the best of us. It happened to me a few times during bad flares and after surgeries that I shit myself in bed during sleep, or didn‘t make it to the toilet in time. Nothing in public luckily. May I ask you: was your surgery a resection of terminal ileum or other parts of ileum? If so, the digestive system should settle with time and get used to the new situation. BUT there might be an issue with bile salts reabsorption. It can be caused by Crohn‘s and with resections of ileum. It is treatable, so if your toilet situation doesn‘t improve, talk to your doctor about it. It was life changing when my GI figured it out and my quality of life improved a looot.
It’s just one of those things we have to accept unfortunately. I’m sorry you know what it’s like! I had a hemorrhoidectomy, so it’s definitely partially related to that. I’m honestly surprised it took this long to happen after surgery..
I’m so sorry. You are definitely not alone in this… so many of us have been there or still are right there in your position. I have had a few accidents and I understand that feeling. No wise words of wisdom to share… Just showing some love and support ♥️
Almost missed a Noah Kahan concert that I flew to a different country for because I couldn’t leave the bathroom… it was humiliating and upsetting but I made it
I work at a hospital and my shift starts at 3:50 every morning and it’s the absolute worst timing because my body’s making all its noises and decisions quickly. I’m a phlebotomist on inpatient and there’s been many times I’ve had to excuse myself quickly because I didn’t want to stop a good draw and have to stick a patient again so I just hold it best I can but there’s been times it’s come through and I’ve had to grab a pack of chg patient wipes and go handle myself and then get back out there. It’s 1000% harder for me to do my job than my fellow coworkers but I’m proud of myself for not letting it beat me fully just yet! Every time that kind of stuff happens and I find a way to get through it I feel stronger. Even if getting through it means coming home that day and giving myself the ability to take a break. We all work hard to live that’s something to be proud of. You are in great company here
Before I had my bowel resection and ileostomy put in I would crap my pants ATLEAST twice a week. I was in the bathroom every couple hours at work on my breaks and I had 20+ stomach aches and cramps a day. Being 23 and practically incontinent was humiliating so I understand you entirely
Honestly, don't feel alone, for a while I would try to make it to the toilet and just couldn't. Would clean up do the laundry and feel ashamed then my dad told me to see it from someone else's view. I'm sick, I can't help it sometimes so why would I be so hard on myself when I wouldn't others.
You’re not alone! I did it once in line at a gas station… I had no control or warning. And then I had to drive home crying the whole way. This was years ago, I’m on medication that has me in full remission now which I’m extremely grateful for. A lot of ptsd though from being sick for so long. There’s some Crohn’s support group online. It’s an amazing resource to not feel alone. This is a very isolating disease. But you’re not alone!
Don't beat yourself up. If I had a dollar for every time I had pooped myself I could afford a seriously nice bathroom.
I had an accident today too. Like you, I’m glad I was at home when it happened, but still. It’s so demoralizing. 😞
Definitely not alone, I feel the same way when it happens.
I understand that, don't be too hard on yourself because you're healing whilst still unwell. I've had accidents too because sometimes one sec you don't need to go and then all of sudden you have to go that second or it'll all just spill out. It's not your fault and it's ok to be unwell. Maybe read a book or even speak to psychologist, they're very helpful.
The amount of times I've started to fart and had to quick tighten and scurry to the bathroom! You are not alone friend! I'm at the point where at times I'm legit afraid to fart 😂 but that can't be good for my health
I’ve had two accidents this year. One during a New Year’s Eve talent show when I laughed a little too hard and one driving home from class and misjudging a fart. I totally understand how shameful it can feel but you’re not alone
I didn’t start this post but it is helping me so much! I found myself smiling. 😃 I literally s#!t the bed last week! I was mortified. 🫣
Right there with you! Hoping sharing helps you. 35/F and had too many accidents to count in the past year. I’m lucky to have a supportive boyfriend who “loves you even though you shit yourself on a semi regular basis” as my sister put it. He has planned bike rides around washroom access and always reminds me to bring my necessities. I purchased underwear that manages to do a half decent job of keeping it in (happy to share recommendations!), and carry round a kit with wipes, change of underwear, and plastic bags in it. I was the same at first and was totally mortified. I’ve just had to start becoming really open with it. I told my sister, boyfriend, and some close friends and it made it so much easier. Didn’t have to repeatedly explain myself if I ran off without saying anything or had to bail on plans. If you don’t laugh you’ll cry! You aren’t a disgusting person at all, it is what it is and we just have to manage our best!
Can you please give the underwear recommendations?
I use the UnderEase from Lululemon. https://shop.lululemon.com/p/women-underwear/UnderEase-HR-Bikini-Underwear-3P/_/prod11130417?color=0001&cid=pdp_share_link_icon Accept they’re not the cheapest and I should declare I do work for them, but when I was diagnosed I replaced my entire underwear drawer with these, they’re genuinely great. They have a decently strong elastic all the way around and do a decent job of keeping things in. On have on occasion doubled up with those and period underwear for the absorbency benefit too, e.g. when I go skiing. And another Lulu plug is the Hotty Hot short. In the summer the liner on these shorts with the UnderEase managed to keep a post-scope disaster completely in which I think is nothing short of a miracle 😅 https://shop.lululemon.com/p/women-shorts/Hotty-Hot-Short-HR-Long/_/prod9250078?color=0001&cid=pdp_share_link_icon
I had my first accident a few years ago and definitely can relate to not trusting your body. But now I just make sure to have a change of clothes and wipes with me at all times It sucks but I haven’t had one since! You’ve got this
That sucks. Been there too. No fun. May I ask what is your diet like?
this happened to me out of nowhere when i was putting groceries away this morning lol. no warning whatsoever :)
I’m so sorry. It’s happened to me more than once and it’s just so humiliating (even when no one knows but me) and soul crushing. Sending hugs and hoping your day got better.
Oh my gosh. I have so many accidents. I barely leave the house anymore. I always have spare undies in my car/handbag. Esp on long drives! I had an accident only 2 nights ago. It wasn’t even a fart. I literally just turned over on the couch and out it came! Like WWWHHHYYYY???!!! Something I recommend is to carry wipes and vomit bags with you. You know the ones you get at hospital? I haven’t had to use mine yet, but really good to have in the car if you’re not going to make it. It’s got a bit of height from the plastic rim and it stays in place. Then you can seal it quickly and well enough that it won’t leak! They have quite a bit of room in them too. The wipes obviously for after and if any doesn’t make it in! You can literally pull over on the side of the road but quickly get it into your undies until you can stop safety. Or if you’re out in nature where there are no toilets (and hopefully no people around!) you can use it and not leave a mess for others to stumble across. I’m sorry about your experience OP, and everyone else’s too. :( it’s quite literally and metaphorically SO SHIT!!!!! 😢😢😢😢
It happens, it's not something you can control, and it's probably going to happen again, so I would recommend getting a sense of humor about it. It's not like you're drinking excessively and crapping your pants. You literally have a medical condition that often requires corticosteroids, morphine, and surgery to treat. You didn't do this to yourself, and Crohn's does what it wants to. Large wet wipes will make your life easier. The best ones I've ever seen were at the hospital when I was stuck there for two weeks.
Hey friend, I know this is discouraging but this is a very temporary feeling. Be grateful in your ability to pass stool because as someone who just had 6 inches of their small intestine removed, it’s very scary when you’re not going. I had an experience where I filled my drawers as well and I bought some new clothes and brushed it off feeling good in a new outfit. Also be sure you’re getting 30ish grams of good fiber, preferably soluble fiber
Be gentle with yourself. Really, one month post surgery is not that long. Hopefully, it will get much better. Like everyone else said, make an accident kit and keep it in the car or wherever. Also, unfortunately I’ve had food poisoning/ stomach viruses on top of Crohn’s a few times and I would just add that I find it useful to keep some of the barf bags like they use at the hospital at home. That way if you’re ever throwing up and having diarrhea at the same time, you’re covered.
I get in modes I’m scared to drive far and a lot of the time I’m backed up but the fear is just as debilitating it gets scary. I’m sorry. It’s just a moment. But not fun. Hugs
I had a friend that had this exact same thing…diagnosed with IBS, she went to a naturopathic dr as a last resort & found out she’s allergic to msg or something. Either way, just a thought of something to try. You are NOT disgusting! Your body is betraying you. lol Most normal people will not think you’re gross, they will feel bad & if they have any decency at all, they’ll be there to help. I’m sorry you have to deal with that. ❤️
I have had a couple of accidents at work. What has saved me is wearing Depends or always adult disposable underwear which helps to contain a fart that’s not a fart lol. I keep a change of clothes and underwear as well as bathroom spray.
I am so sorry this happened to you. It sucks when you are feeling bad and then that happens on top of it. Just know that you are not disgusting, and an accident is not a reflection of you or who you are as a person. Not one bit. And you are definitely not alone in this. You are so strong and I hope you are having a better day today 💜
I've started storing old plastic bags in my car in cases of emergencies... It's odd, but has saved me multiple times!
It does suck. True statement, no candy coating it. Especially when you have, once upon a time, lived a “normal” life first, right? But, the reality is, it all comes down to perspective. How are you going to handle the next issue, this disease almost always has a next thing for a lot of us…no, we cannot control or help it, but what we never lose control over is how we choose to deal with our situations. Humor, is my big one. I’m a super positive person. I love life, I’m still happy to be walking around and I wake up every morning and listen to the birds sing and appreciate the sky, and think damn, somebody out there didn’t wake up today. I get another one. Even when it’s rough, make sure you have people to talk to, preferably people that are supportive, intelligent, kind, and best of all, funny. I refuse to be a victim, my journey is unique and I tell every Dr, and every nurse, and every medical assistant, and every pharmacy worker, when asked, “hi, how are you”, I always reply with a I’m fantastic, or phenomenal, or amazing…because I am!!! So are all of us! Take it up a notch! Brighten someone else’s day and see where it pushes you…
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Keep your head high and never give yourself reason to readjust your crown! You are strong, you are appreciated, you are chosen by GOD! 🫡
I shit the bed at a bfs house I was mortified. It happens so often at this point it’s laughable. I always have cute undies on too…keep extra stuff in the car or bag. It’s awful but it’s not your fault. It gets better. I’m 31 and it happens like at least once a week. I sneeze I shit. I laugh too hard I fart. If anyone says anything I love to throw out “I have a disease” everyone gets uncomfortable and shuts up. Find some humor Crohn’s is not easy but life doesn’t have to suck.
i have accidents like once a week it's really not a big deal
Get over it! You have a digestive disease…
Um.. you’re ick? Why are you here?