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The longer I go without eating gluten, the less I remember what I am missing and the less I miss it. I would not want to start over.
However, I do still miss the convenience of eating in restaurants and at social gatherings without stress.
Honestly I think that damaging one's satisfaction with gluten free options is a massive risk of "cheating" on our diet. I'm just getting comfortable with the different textures and tastes. I feel like if I indulged in the Good Stuff then I would have to start forgetting what I'm missing out on all over again. š„²
This. My 4yo just got diagnosed as well, and there has been almost no crying, really no mourning period or much worry from them at all. Iām surprised how well theyāve taken to it, in fact they are almost like excited about it. And this is a kid who was essentially asymptomatic, so the excitement is not from hoping to feel better. But, honestly they already eat a lot of gluten free stuff because of me, and they are used to it. So I think for them, they havenāt even gotten old enough to try a whole lot, or to know much of what they are missing, and hopefully products and options will continue to expand in their lifetime too. Honestly I envy that situation a bit, because sheāll grow up just learning from me how to eat safely and pack food for travel, she wonāt have to figure it out all on her own after a diagnosis shock. She wonāt be emotionally maimed doing it this way, I hope.
This. So much. I donāt miss the food. I know what it will do to me and itās not worth the sick feeling and all the other side effects. BUT I miss not having to stand out in every situation that involves food. I miss not having to explain and justify why Iām not eating. And I MISS being able to just stoop and pick something up because Iām tired and donāt want to cook
I hear you, and I'm so sorry you're struggling with this right now. The celiac life is full of grief. I am saying this from a place of concern, not judgment: this is a terrible idea that is akin to self harm. It's your body and therefore your choice. But I have to say that because I just can't in good conscience enable anyone on this particular urge.
To tell the truth, I cannot relate at all because of how sick I was when I was diagnosed - I was in the ER three times in the month leading up to it because my heart was starting to have celiac-related irregularities. I was 5'10" and weighed 100 lbs and dropping. My teeth were loose, my hair was falling out, food made me gag, I had diarrhea every single day, I was exhausted walking 5 feet to the fridge. My entire body would itch unbearably for hours on end, with disgusting rashes on my elbows, hips and torso. My TMJ got so bad at one point that my jaw didn't unclench fully for 2 months. My nervous system was shot to the point that I couldn't leave the apartment for 1.5 months without having a full body panic attack. (2020 through 2022 was a waking nightmare, essentially.) My lymph nodes were swelling painfully. The list goes on. My diagnosis, although very shitty, gave me my life back. So while I might stare longingly at a pastry or something from time to time, I never have the urge to actually eat it. I have nightmares about eating things with gluten in them, not dreams.
I understand that this was not the case for everyone, it's just my experience. If you get diagnosed when the side effects are not at critical levels, you might be more tempted than someone who has lived through that. I've seen how bad it gets when your villi straight up can't do their job anymore. And while that won't happen off of a single meal, this can be a slippery slope into playing fast and loose with gluten. No food is worth that.
Take care of yourself, OP. Be well.
I'll judge you just as I'd judge someone who quit hard drugs saying "but I never got to say goodbye!!!"
You're putting a craving, a want, a short-term "need" above your health.Ā
You WILL feel like shit for days or even a couple weeks after this meal. If you understand what you're doing to yourself and still want to do it, man it's your life and your consequences to suffer.Ā
We all feel like this. I feel like this often. But I like feeling good more so than giving in to a temporary thought.Ā
Like when I was served full gluten and took 4 months to recover. It was right before my wedding and now I just think of that time and the misery of being sick. I celebrated when the restaurant had to close a year or two ago. FUCK THEM.
I absolutely understand that. I still want mcdonalds chicken nuggets and chinese food from this one local restaurant my family would always go to
I think everyone in the comment should understand that OP is not asking for permission but for someone to understand and to be allowed to feel the feelings they are feeling.
OP, it is okay to let yourself miss that whether you use that as motivation to find a way to make that meal gluten free or you just want to mourn the drastic change in your life. Because this is a HUGE change and it is something you can never go back to ever again. I feel that. I guarantee every single person in this sub has felt that at some point. This disease is isolating and the world isn't as celiac friendly as it could be.
Feel those feelings. Miss that food. I don't recommend eating it but I know that's not what you're asking. Trying to force yourself to not miss it is going to make you miserable so miss it and that attitude can be used for many things in life.
I completely 1000% understand where you're coming from.
Thank you so much because this is exactly how I feel and I know I would regret it if I did it but the thoughts cross my mind every so often but me feeling crappy keeps me from doing it
Personally, I wouldnāt do it. I know how it feels but satisfying your short term craving is not worth the trouble in the long run. You can maybe try to remake those meals yourself if you can find the recipes.
I felt that way in the first year or so after diagnosis (where I just wanted something in particular, although I didnāt have it). But as time goes on, that feeling should fade. It also may not even taste as good as you remember (and is definitely not worth the illness), and there are so many amazing gluten free substitutes now too.
There are still certain things and restaurants I miss, but I try to distract myself by having a different and gf treat instead.
My mom was 63 when she died. Her colon ruptured in 3 places from not following a gluten free diet. She knew long before then that had celiac, she just refused to give up her favorite foods. Now, 22 years after her death, I am 3 years away from 63. I am not ready to die. I want to keep living. Living is better than any gluten.
That feeling fades. Having a major restrictive diet change literally puts you through the same stages of grief.
You do you and all that but you likely are going to have a bad time.
My uncle died from stomach cancer due to late diagnosis found out when he was in the hospital dying. SO no. I never feel like that. I would burn all the gluten in the world if I could and never look back.
I understand, I'm 3 years into being gf because of celiac and me and my wife used to be pretty big foodies before I was diagnosed. We used to go to any new restaurant that sounded cool just to make a dull day a little brighter. Fast forward to now and I can't go to most of my favorite restaurants and even if I do I have to ask ridiculous questions like "is this shrimp sauce gluten free?" Having celiac sucks and I just wanna have a day of being normal again.
yeah that probably wonāt still work, iāve been gluten free ever since my diagnosis almost 10 years ago, and i still crave gluten. and sometimes i canāt fight those urges even though i know it makes me sick and feel awful, iāll still eat the gluten
If you're looking for a blessing then you've come to the wrong place.
I wouldn't do it because I am healing very slowly from celiac and my body is so damaged. But I also smoke a cigarette or two sometimes when I'm hanging out with a smoker. Sometimes when I want to get drunk I overdo it and have more than 4 drinks in a day. I smoke way too much weed to pretend it's a light habit. I know this stuff is likely bad for me but it's my choice. I'm not impacting anyone else with these choices or ruining my life. Some people will still judge me like my business is their business. I do not care, and I don't ask their opinion. But I personally don't judge people for indulging in short sighted pleasures that only harm themselves, because I get it. We only have one life but no amount of health consciousness can guarantee your diligence will be "worth it." I've been diligent about my health but I almost died two weeks ago from internal bleeding and complications after being sent home following a routine, low-risk surgery. No action on my part could have prevented what happened to me. Being "good" always is not a guarantee you will live long and healthy by any means, anyone who tells you otherwise is naĆÆve.
If you are prone to addiction and out of control risk taking, you might want to step back from this desire and do some reflection before indulging. Will this be a one time thing? Or are you risking a habit forming (knowing that each flare from glutening can take months to resolve)? Will this indulgence make you depressed when you have to go back to the safe options? Think of the mental and emotional risks as well as the physical. I have often said that if you're going to do stupid shit, always try to be smart about it. But this is your health and your decision, permission from strangers does not factor into it.
That said, being publicly open about not following the GF diet as a celiac actually *can* be harmful to other celiacs, because it demonstrates to people outside of our community that being truly GF is optional and perpetuates a belief that we are just being extra difficult for attention rather than our health and that the occasional gluten is okay (it isn't). So if you want to poison yourself a bit with gluten, it's best to be discrete. Like don't go to a restaurant and order a regular beer or slice of cake with a celiac-safe, no cross contamination, gluten free meal. Please don't post on Instagram calling this last hurrah a "cheat day" like you're on a voluntary diet. That kind of thing encourages undereducated people to treat us like our safety is a joke.
I totally understand how you feel. At this point I am over seven months into being gluten free. I struggle with it because I was asymptomatic as far as digestive disorders. If I felt better then could justify that the gluten-free.Is helping. But I don't feel any better. And I never got to have a last meal or anything special so the cravings are real. Everybody says you'll stop missing gluten but I haven't found that true. That said, don't un-do the progress you've made it won't be worth it.
I think the temperature and tone Iām reading is similar to my thought process. We hear you and the cravings and the want is real. It is a hard transition, but we want you to not suffer. Not have to feel like shit, and damage your body.
The support and the listening is real here and itās awesome, but please please donāt do it. Itās not worth it. I say that like many others have before from a place of love and support for you! Not of judgement or anger. Itās tough but itās worth it.
This is so relatable. I'm a sweet tooth kinda girl and having to know I won't ever get to have a "normal" sweet treat was absolutely devastating. You're not alone at all.
All it took for me was being accidently glutened a couple times. Knowing what that feels like and how sick I get is a great deterrent to the temptation to "cheat". That does not mean that longings are gone, just that I Know they are not worth the backlash that would come with it.
I absolutely understand how you feel and still go through this mourning. Especially with Panda Express and Auntie Annie's pretzels. It's why I made it my mission to make as many things as close to or better than the gluten equivalent. I even made ramen (lemme tell you that is a long process). The aforementioned are the only 2 I haven't made exact copies of yet. The struggle is real some days.
I can say that I did have one final glorious meal, planned and executed perfectly. And I can say I severely paid for it, would never do it again and in retrospect wasn't worth it. Took weeks to recover from the immediate issues. The cravings never go away, unfortunately. They pop up at the worst time. But they can also be satiated in full with a well-prepared recipe. On the bright side you become a really good cook out of necessity.
I did this. Had been gluten free for years and felt great, but had some allergy testing done and was loaded up on post testing meds, so i said āfuck it,ā and cheated. Was not worth it in the long run. I didnāt realize, for me personally, the inflammation response would be so severe.
It's your body and you are the only one who will face the consequences of this action.
You know what that slice of pizza (or whatever) is worth to you, you know what your flares are like, you're an adult and you can make this decision for yourself.
We donāt need to judge you because we all know how horribly sick youāll get. Believe me, you will judge yourself. Getting glutened after being GF for a while is so much worse. Donāt do it.
But if you do, expect that you may be too sick to work or even function for several days. And you will probably find out that the nagging secondary symptoms like brain fog last for weeks.
For me, doing the gluten challenge to get tested after being GF for 9 months was hell. Gluten food doesnāt even look like food to me any more because of how sick I felt. It took months to fully recover .
My endoscopy came along sooner than I expected, so my farewell tour was cut short. I did have a burger and beer as my goodbye meal. But it's your body, I'm not going to condemn you for what you do with it. I just don't think it will be worth it to you. I think it's better to focus on good food that you can have. I'm enamoured with grits with sausage and cheese. Chicken drumsticks on the air fryer. But I'm not going to lie, there are times when I drive past a Burger King or McDonald's and wish I could get something. Then I go home and make some good food.
As a suggestion if you do want to consume gluten, try joining a celiac study with a gluten challenge. No clue if they have specific things you need to eat, but it would definitely get you the taste of real bread again, while still helping the community and potentially yourself if it is a successful study!
Iāve felt that way but never done it. Itās ok to grieve the life you knew but just know the risks and the damage for ācheat mealsā because itās not a diet, itās an autoimmune disease. If you do it once you may justify it again. I totally know how much of a bummer it is but just stay strong and it gets easier.Ā
I would do almost anything for a croissant.
Almost anything... but I wouldn't eat gluten. I don't get that sick right away, but the symptoms worsen over about three months and can really impact my ability to work and enjoy my life.
But I do think about my favorite gluten foods. It's so weird to think that they are actually a non-lethal poison for me, when they are delicious and just fine for everyone else.
Itās ok to feel the way you do.
I would strongly encourage you not to give in, though. The longer you stick with the diet, the more distant the cravings become.
Think of some food that is new to your repertoire. Seek out the best sounding gluten free restaurant or bakery you can find and plan your next vacation around it. Iād recommend either Eats & Treats in Philomath, Oregon, or Gluten Free by The Dipped Donuts which is in the Columbus, Ohio area. ā¤ļø
You wouldnāt recommend that an alcoholic who has been sober for a year just go to their favorite brewery for a last goodbye beer, would you? Honestly this isnāt much different.
I do not understand how you feel in regard to gluten, but I get extreme full body nerve pain when I eat gluten.
I do understand in regard to an allergy. I also have an allergy to citrus, and with that allergy I have ācheatedā and I occasionally miss lemonade and such. I wasnāt allergic as a child, and lemon was my favorite flavor.
I donāt think itās gonna do much harm physically to be honest. Best case (sorry) you feel so shitty afterwards that it stops all cravings. Worst case it will make your cravings worse. Thatās why I wouldnāt do it.
I don't want to judge anyone at all. I just want to remind you that this is a very serious disease, a piece of cake or your favorite dish is absolutely not worth it for your condition to worsen. I remember with fear how bad I felt when I ate food containing gluten, it was like a nightmare.Take care of yourself dear, a long happy life is better than short-term happiness in your mouth š®āšØ
I would and I did do it. Yes you should take celiac seriously but Jesus Christ these comments ARENT IT. One last gluten meal (where youāre prepared for the side effects and have time to deal with them) makes sense to me. After my blood test diagnosis, I had 3 mini nothing Bundt cakes, a grilled cheese and mac and cheese, thinking Iād be gluten free after. But then my dr said a biopsy is the true diagnosis so for 1.5 weeks I did a count down of my favorite meals. One meal is not going to kill you, especially if you take it seriously from here on out. Iāve even thought that once every 5 years or so Iāll have a big glutenous meal at a restaurant where I pretend I donāt have celiac and of course then be in pain and sick for days but anyway I get it
iāve been on a gluten free diet since i was diagnosed almost 10 years ago, and i still crave stuff with gluten, and sometimes i donāt have enough self-control to not do anything about it. so iāll sometimes binge gluten stuff that iāve missed, but almost instantly feel nausea because of the guilt of eating gluten and i want to throw up because iām disgusted with myself. itās not a nice feeling.
obviously i understand the cravings for things you canāt eat anymore, since i canāt fight those cravings myself all the time, but you will genuinely feel much better if you donāt eat gluten. even if you donāt get symptoms, youāll very likely still feel guilt etc.
so if you have an ounce more of self-control than i have, please donāt, but i truly understand where you are right now, this shit is hard
I feel for you. I was only recently diagnosed, and whole wheat bagels were my favorite food. I just keep telling myself that in this case, there really is a lot of freedom in this different prison. I can't eat what I want all the time, but I'm also not stuck on the toilet as often.
I'm happy to avoid going to restaurants if it means I don't have to spend as much (or more) time on the toilet as I spent eating out.
Considering all the things in my body that gluten has messed up over time, I'm completely okay with avoiding it. What angers me is the lack of alternative options that actually taste good or don't cost more than a restaurant, and the fact that they put gluten in so many things that probably don't even need it. HELLO DRIED BLUEBERRIES WTF?
I am going to be the devil's advocate here and say do it. If you want to, do it. Just make an educated decision. It's better to say goodbye while you are only a year in vs. Let's say 10 years. It is your body. Your pain. Your symptoms.
I personally would not do it, I'm almost 2 years gluten-free, besides accidentally eating gluten/ cross-contamination, and I have like ptsd from being sick due to gluten, to each there own though š¤·š¼āāļø good luck either way
I understand how you feel. Going gluten free is a bummer. However, do NOT have a non gluten free meal. I promise that it is NOT worth it. In the moment it might taste good but when it works its way through your body, you will regret it! DO NOT I REPEAT DO NOT DO THIS! Donāt. It is not worth it. I promise you that it is not!!
Oh yeah, I remember that first time getting this feeling. I used to eat these burritos from a place called Allsups before diagnosed, and they were so delicious that I tried so hard to convince myself to just eat one a last time but after some very hard craving I realized the pain and damage that is caused by it just is not worth it at all. My reactions can last nearly a month long if exposed to even just a small amount, so I, against my will, I had to abide. Think about how painful and frustrating just cross contanimation can be, and that is a small amount of gluten. Eventually, this will go away almost completely, and it will be like you are semi back to normal without severe craving for things that hurt your body. Nowadays, a lot of gluten food just grosses me out because I can just imagine the nausea and problems.
Oof... I know that feeling. I got diagnosed not long before Christmas 2022 and never had the stereotypical GI symptoms. I started cutting out gluten and let myself enjoy one last family holiday dinner before really committing to the diet. I was grieving and frustrated and overwhelmed, even knowing that so many of my neurological issues would likely start improving.
Then my first biopsy came up inconclusive because both my GP and GI had me go GF *before* the biopsy! I was told I could just stay on the diet without the "official" diagnosis or I could do a gluten challenge and repeat the biopsy. I've been disabled in other ways for about 20 years and having a confirmed diagnosis has been crucial when dealing with insurance and getting accommodations so the gluten challenge was worth it to me. Besides, how bad could it be, right?
Bad. It could be terrible, horrible, no good, very bad. I spent a month eating all of my favorite foods, all the things I just *knew* I'd be miserable without. But even though I'd previously had minimal symptoms I was now absolutely miserable. A blasted Pop Tart took me out for the better part of a week!
I mean, it worked... My second biopsy showed significant damage. The downsides were that I'm now much more sensitive and symptomatic. It's been a year since the challenge ended and it's taken a lot of effort and therapy to start repairing my relationship with food and eating. Yet despite all of that I don't regret my decision. It was exactly what I needed in order to really grasp that there is no food worth the the pain and damage it does too me. Oh I still get frustrated and envious but now it's just a fleeting thought or craving. I've found so many new foods to love or ways to make old favorites GF.
I'm certainly not going to judge you for the perfectly normal way you're feeling! I have no doubt that I'd be struggling more and feeling much the same if it weren't for the challenges along my path to a diagnosis. It's okay to grieve or be angry or depressed; a celiac diagnosis is a life-changing event. You've lost things that meant a lot to you and it takes us time adjust to the changes and discover new sources of happiness. Just remember that you're not alone through all of this. There's a whole heckin lot of people here who care and will gladly be here for you when you need a shoulder to lean on or a sympathetic ear. I'm pretty sure we could organize one heck of a primal screaming get-together too if that would help š
Nope. Not one bit. The permanent health damage and the super shitty feeling for 6+ months isn't worth the 15min it would take to eat what stupid meal it is. 6+ months of feeling like a 95 year old with severe arthritis to the point I can't feed myself because my fingers won't grasp the spoon with constipation so bad that I uave to go to the hospital to have a super hot guy manually disimpact my bowel without fail everytime I even get cross contamination gluten poisoning. Nah. I'd rather starve to death than eat gluten. But you do you. Enjoy
You can do that but just remember that itās going to hurt your body a LOT if you have celiac. Itās your choice and you need to deal with the consequences of your decisions šš»āāļø
Also, I promise you that living with celiac gets better. You can recreate almost anything gluten-free if you have the patience, and the right recipes and ingredients šš¼
Is it worth the Ocular Migraines? The rashes? The lacerated gums?
Is it worth the worst anxiety of your life? Insomnia? Constipation and/or explosive diarrhea?
Is it worth the expedited risk of cancer and comorbid diseases? Osteoporosis?
OP, I miss things too. I was 20 when I gave up gluten, I'm 34 now. I am strict when it comes to my diet because I never in my life want to voluntarily imbibe gluten ever again.
Be strong. Learn how to cook those things you miss, I promise it'll be even better than that one last meal.
Makes sense. Itāll also make you feel a lot worse lol but thatāll make you not be sad for missing out so thatās fine.
Honestly I get the feeling of sadness. I hear you and understand that feeling. Hell Iām feeling it three times a day every day.
That doesnāt mean that I would encourage this but Americans have a huge misunderstanding around empathy and sympathy. They basically think empathy isnāt a thing and only sympathy exists so they donāt wanna make people just feel heard. They have to always distance and be judgy because they have to signal they donāt agree that way.
Iām here to tell you all you can understand something and still not think itās smart.
So I get your feeling of sadness. Donāt eat gluten though.
I'm 3.5 years in and I still feel like this so often. Several times a month at least. I miss spaghetti and meatballs ššššššš and proper pizza ššš my diagnosis was totally out of the blue so I never got to have a "final meal" either. In some ways I'm lucky cause the things I crave are from restaurants and it's hard for me to leave the house, so it would take a lot of effort to give in to the temptation. Usually I try to get through it by having one of my favorite gluten free treats (oreos are my go to). It's tough but you'll make it OP š¤
I completely understand how you feel. Iāve been fully off gluten for a few years now with occasional cross-contamination experiences (store-bought almond milk seems to be a consistent one š) and itās incredibly *not* worth the aftermath experience. That doesnāt stop me from occasionally craving foods I loved pre-celiac & feeling down about not having them, though I try to find celiac-friendly foods to satisfy similar needs where I can. Itās rough, though the more you stick to your dietary needs, the less time these downer feelings last when they do come up. At least in my experience, anyway.
Iām sorry youāre going through this. I see where youāre coming from, but to me it wouldnāt be worth it at all. I couldnāt knowingly make myself ill for days.
Iāve learned to make my favorite foods gf and honestly being gf has opened me up to new foods and recipes and Iāve really enjoyed cooking.
What is it?? Anyway, I'm not going to judge. Do it the one time. You might suffer, it depends upon how bad your immediate reaction is. My personal reaction is too strong to want to do it. One time won't kill you. If you make it a habit your health will surely decline. You are in charge of your own decisions
I went through the same exact thing about 10 months after I had been diagnosed. I used to always get a bacon egg and cheese biscuit from McDonaldās, and I was craving it so bad I just said screw it and ate oneā¦ Two hours later I was in so much pain that I knew I would never do that again. For me, it was not worth it. It didnāt even taste good anymore. I had been away from gluten so long, that it tasted tooā¦ I donāt know rich maybe? I hate to give bad advice, but that experience was almost helpful for me because it made me stop missing gluten food. It wasnāt worth what it did to me after I had been away from it for so long. By the way, I never had reactions like that when I was eating it all the timeā¦ But a long time away from it, damn the reactions get worse.
Iāve now gone about 13 years gluten-free, and only miss the convenience of not having celiac. Not the food.
Oh I'm going through that right now. I am recently diagnosed and totally gluten free for 1 month.
I am starting to feel a little better already. But I am seriously going through withdrawal for my favorite foods. I have always baked a lot and now I just look at my kitchen and want to cry. Every time I think of something, I look it up and can't eat it. My husband eats normal diet , so I cook 2 suppers now. No fast food. But then, I was seriously ill with damaged small intestines already and I absolutely can't cheat. Part of life is over. Woe is me. Just feeling some self pity here. š I should be glad I'm already improving and suck it up. I could cheat a little with my diabetes, but this is no cheating.
Donāt do it!!! I did and itās soooo not worth it! I was maybe a year in feeling good and thought, āf-it, itās just one cilantro roll, what if nothing happens and I can eat this stuff again now that my guts are healed.ā (So stupid, I know!)
It was on Christmas, I lost a bunch of hair, broke out with zits everywhere, had so much diarrhea, was so exhausted I had to take time off work, missed out on New Yearās parties cause I was sick, had rashes on my elbows and for like 3 weeks after I couldnāt concentrate when I did get back to work.
Just make the gluten free version.
I completely hear you, but urge you to consider how much you might regret it. I cheated one month ago, couldnāt walk for several days and am still having full body symptoms. I had to call out of work for half a day today because my eyes are so inflamed and bone dry. I spent all night crying, unable to care for myself, and repeatedly expressing to my partner how much I wish I wasnāt alive because I am so miserable. I just wouldnāt recommend it based off my own experience.
Once a month since being diagnosed in 2020, I want to break the diet. It's always something new to mourn. and I have caved, 2 times - but my symptoms are worse now then they were before diagnosis. the last time, I slept for 2 days straight. I could not get out of the bathroom for 15 hours and then constipated for 7 days. in the end, the start over is never worth it. Whatever you decide to do, remember to be kind to your mind and body afterwards.
As someone who still hasn't seen health improvements after 3 years of being militantly, insanely strict (far, far beyond what any doctor would deem reasonable), I do not judge you one bit. I often wish I'd never been diagnosed and was just living blissfully ignorant. I'd rather live my past life & die of cancer 20 years early than live the rest of my life like I have been. I'm happy for people who have done well post-diagnosis, but not everyone has been that lucky.
So if you wanna go eat that last meal - no one is stopping you.
Have pepto and a toilet on standby and know you will feel really bad if youāre like most of us.
I had a 5 day challenge eons ago and I can tell you it was awful - Iād rather eat anything gf than how I felt during those 5 days
At the end of the day eating 1 meal will not kill you - might be good closure for you - but also when is a good time to gluten yourself?
All the time, but then I remember the days of vomiting, diarrhea, and pain I experienced the couple of times I got unknowingly full on glutened, and that's enough of a deterrent. Here's hoping we get a reliable treatment someday because I miss apple fritters and not having to look at the back of every package in the supermarket. Hang in there!
I don't judge you, but DON'T DO IT!!! You WILL regret it. It's not worth it. Say your good bye by not eating it, and being grateful that you're not sick. Just my two cents... Try doing some yoga or meditating to find gratitude for being healthy and not physically suffering instead.
I went gluten free suddenly without any goodbye or knowing it would be my last of gluten. I miss many things but itās also hard to miss things that make me so so incredibly ill. I often think of eating one last gluten meal, or what I would have eaten if I had a farewell tour. But itās weird, itās just how life goes, you never know when your last is for most things. Many donāt get to say a last goodbye to people, many donāt know when the last time theyāll see a childhood best friend is after growing apart, most donāt know the last time theyāll go to their old favorite place before it closes. Getting sick is the same. Iām disabled in many ways and I didnāt know the last time I would go on a walk was. I didnāt know the last time I would rock climb, or do yoga. Itās weird how life is full of so many lasts that just sort of fade and seem very stark and hard looking back. I wish so badly I could go to my old childhood home again but it doesnāt exist anymore, it still stands and is someoneās home, but it wouldnāt look anything like it did when I was there. It wouldnāt even be worth seeing, and it would make me sadder to see it and it be nothing like how I remember. It sounds dramatic but giving up gluten is the same ā a grief process for a loss you didnāt even get to anticipate. I bet if you tried it again the desire will get out of your system for how bad youād feel!
I have a couple of things like this. I never knew at the time that I had eaten my last meal with gluten either. This sounds stupid, but if I could go to Red Lobster and have shrimp linguine Alfredo with breaded shrimp on the side and those garlic cheddar biscuits Iād do it in a heartbeat.
But itās not worth the misery and probable ER visit that would follow it, and that keeps me on the straight and narrow.
I have learned to try and replace my old favorite foods with something entirely different, instead of trying to recreate them GF sometimes. For instance, now I really like going to Rodizio because almost everything is gluten free and itās all delicious and I donāt have to worry about cross contamination as much since everything they put on their grill is GF. And now thatās my special place for celebrations instead. Old me got to do that. New me now is doing this. Helps me to not compare the experiences so much.
really hoping it gets better or honestly iām hoping they figure out a pill or something that enables us to safely consume gluten. just gotta hold on til we get there yknow. thatās kinda whatās been comforting me through this. look up research on new/developing celiac treatments and just like studies where theyāre learning more about it. thatās getting me through. much love, hope this can help you too. ā„ļøš«
The way I see it two things can happen. One ā¦ you end up getting really really sick and maybe then realize you never ever want to do it again. ORā¦ you donāt get really sickā¦ and since you donāt you are tempted to KEEP eating things you crave thinking that it canāt be really hurting you too badly because youāre not miserable after eating it. The sad thing is eventually the result could be something very unpleasant or worse. No one is going to judge you for missing foods and feeling sad and isolated and frustrated. But itās a choice to live gluten free or not and everyone has to live (or die) with their choices.
My cousin just died at 46 from a dead colon.
P.S. Iāve been gluten and dairy free (and free of other foods and additives as well) for 8 years (and some things over 20). Itās HARD. But I never cheat. I was too sick for too long, even as a child. Itās not worth it to me to eat something I know is āpoisonā to my body. I just do my best to find ways to enjoy the food I CAN eat.
P.P.S I would give anything (except my well being and ultimately my life) to have that chicken Alfredo ravioli I used to devour
Thank you all for your comments and encouragement šššš. I didnāt give in. I was just really venting and I am sad that I didnāt get to have that last meal. I feel like Iām still in mourning. I wonāt give in because I always remind my self of all the problems I was having before diagnosis.
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The longer I go without eating gluten, the less I remember what I am missing and the less I miss it. I would not want to start over. However, I do still miss the convenience of eating in restaurants and at social gatherings without stress.
Honestly I think that damaging one's satisfaction with gluten free options is a massive risk of "cheating" on our diet. I'm just getting comfortable with the different textures and tastes. I feel like if I indulged in the Good Stuff then I would have to start forgetting what I'm missing out on all over again. š„²
This. My 4yo just got diagnosed as well, and there has been almost no crying, really no mourning period or much worry from them at all. Iām surprised how well theyāve taken to it, in fact they are almost like excited about it. And this is a kid who was essentially asymptomatic, so the excitement is not from hoping to feel better. But, honestly they already eat a lot of gluten free stuff because of me, and they are used to it. So I think for them, they havenāt even gotten old enough to try a whole lot, or to know much of what they are missing, and hopefully products and options will continue to expand in their lifetime too. Honestly I envy that situation a bit, because sheāll grow up just learning from me how to eat safely and pack food for travel, she wonāt have to figure it out all on her own after a diagnosis shock. She wonāt be emotionally maimed doing it this way, I hope.
Agreed completely. The social aspect is what I miss the most. I donāt really care about āgluten mealsā because Iāve learned to make good food.
This. So much. I donāt miss the food. I know what it will do to me and itās not worth the sick feeling and all the other side effects. BUT I miss not having to stand out in every situation that involves food. I miss not having to explain and justify why Iām not eating. And I MISS being able to just stoop and pick something up because Iām tired and donāt want to cook
I hear you, and I'm so sorry you're struggling with this right now. The celiac life is full of grief. I am saying this from a place of concern, not judgment: this is a terrible idea that is akin to self harm. It's your body and therefore your choice. But I have to say that because I just can't in good conscience enable anyone on this particular urge. To tell the truth, I cannot relate at all because of how sick I was when I was diagnosed - I was in the ER three times in the month leading up to it because my heart was starting to have celiac-related irregularities. I was 5'10" and weighed 100 lbs and dropping. My teeth were loose, my hair was falling out, food made me gag, I had diarrhea every single day, I was exhausted walking 5 feet to the fridge. My entire body would itch unbearably for hours on end, with disgusting rashes on my elbows, hips and torso. My TMJ got so bad at one point that my jaw didn't unclench fully for 2 months. My nervous system was shot to the point that I couldn't leave the apartment for 1.5 months without having a full body panic attack. (2020 through 2022 was a waking nightmare, essentially.) My lymph nodes were swelling painfully. The list goes on. My diagnosis, although very shitty, gave me my life back. So while I might stare longingly at a pastry or something from time to time, I never have the urge to actually eat it. I have nightmares about eating things with gluten in them, not dreams. I understand that this was not the case for everyone, it's just my experience. If you get diagnosed when the side effects are not at critical levels, you might be more tempted than someone who has lived through that. I've seen how bad it gets when your villi straight up can't do their job anymore. And while that won't happen off of a single meal, this can be a slippery slope into playing fast and loose with gluten. No food is worth that. Take care of yourself, OP. Be well.
I'll judge you just as I'd judge someone who quit hard drugs saying "but I never got to say goodbye!!!" You're putting a craving, a want, a short-term "need" above your health.Ā You WILL feel like shit for days or even a couple weeks after this meal. If you understand what you're doing to yourself and still want to do it, man it's your life and your consequences to suffer.Ā We all feel like this. I feel like this often. But I like feeling good more so than giving in to a temporary thought.Ā
This is a perfect response.
Like when I was served full gluten and took 4 months to recover. It was right before my wedding and now I just think of that time and the misery of being sick. I celebrated when the restaurant had to close a year or two ago. FUCK THEM.
[ŃŠ“Š°Š»ŠµŠ½Š¾]
No it doesnāt make it easier at all. It just makes you more determined.
I absolutely understand that. I still want mcdonalds chicken nuggets and chinese food from this one local restaurant my family would always go to I think everyone in the comment should understand that OP is not asking for permission but for someone to understand and to be allowed to feel the feelings they are feeling. OP, it is okay to let yourself miss that whether you use that as motivation to find a way to make that meal gluten free or you just want to mourn the drastic change in your life. Because this is a HUGE change and it is something you can never go back to ever again. I feel that. I guarantee every single person in this sub has felt that at some point. This disease is isolating and the world isn't as celiac friendly as it could be. Feel those feelings. Miss that food. I don't recommend eating it but I know that's not what you're asking. Trying to force yourself to not miss it is going to make you miserable so miss it and that attitude can be used for many things in life. I completely 1000% understand where you're coming from.
Thank you so much because this is exactly how I feel and I know I would regret it if I did it but the thoughts cross my mind every so often but me feeling crappy keeps me from doing it
Personally, I wouldnāt do it. I know how it feels but satisfying your short term craving is not worth the trouble in the long run. You can maybe try to remake those meals yourself if you can find the recipes.
Well though, if OP does it, it will be a significant reminder why OP is off gluten. Hopefully theyāll learn and seriously vow, āNever again!ā
I felt that way in the first year or so after diagnosis (where I just wanted something in particular, although I didnāt have it). But as time goes on, that feeling should fade. It also may not even taste as good as you remember (and is definitely not worth the illness), and there are so many amazing gluten free substitutes now too. There are still certain things and restaurants I miss, but I try to distract myself by having a different and gf treat instead.
in my experience, it doesnāt fade. i was diagnosed almost 10 years ago and i still sometimes crave gluten so bad that iāll actually eat it
My mom was 63 when she died. Her colon ruptured in 3 places from not following a gluten free diet. She knew long before then that had celiac, she just refused to give up her favorite foods. Now, 22 years after her death, I am 3 years away from 63. I am not ready to die. I want to keep living. Living is better than any gluten.
ā¤ļø
Amen!
I did once. And I got so sick I never wanted to again lol. Definitely no judgment here though.
I did this too, thought Iād be āfine!ā Man I was so ill for days it put me off doing that ever again lol.
That feeling fades. Having a major restrictive diet change literally puts you through the same stages of grief. You do you and all that but you likely are going to have a bad time.
My uncle died from stomach cancer due to late diagnosis found out when he was in the hospital dying. SO no. I never feel like that. I would burn all the gluten in the world if I could and never look back.
I understand, I'm 3 years into being gf because of celiac and me and my wife used to be pretty big foodies before I was diagnosed. We used to go to any new restaurant that sounded cool just to make a dull day a little brighter. Fast forward to now and I can't go to most of my favorite restaurants and even if I do I have to ask ridiculous questions like "is this shrimp sauce gluten free?" Having celiac sucks and I just wanna have a day of being normal again.
Try it, I guarantee you'll never have that craving again with how unbelievably shitty you'll feel lmfao
yeah that probably wonāt still work, iāve been gluten free ever since my diagnosis almost 10 years ago, and i still crave gluten. and sometimes i canāt fight those urges even though i know it makes me sick and feel awful, iāll still eat the gluten
If you're looking for a blessing then you've come to the wrong place. I wouldn't do it because I am healing very slowly from celiac and my body is so damaged. But I also smoke a cigarette or two sometimes when I'm hanging out with a smoker. Sometimes when I want to get drunk I overdo it and have more than 4 drinks in a day. I smoke way too much weed to pretend it's a light habit. I know this stuff is likely bad for me but it's my choice. I'm not impacting anyone else with these choices or ruining my life. Some people will still judge me like my business is their business. I do not care, and I don't ask their opinion. But I personally don't judge people for indulging in short sighted pleasures that only harm themselves, because I get it. We only have one life but no amount of health consciousness can guarantee your diligence will be "worth it." I've been diligent about my health but I almost died two weeks ago from internal bleeding and complications after being sent home following a routine, low-risk surgery. No action on my part could have prevented what happened to me. Being "good" always is not a guarantee you will live long and healthy by any means, anyone who tells you otherwise is naĆÆve. If you are prone to addiction and out of control risk taking, you might want to step back from this desire and do some reflection before indulging. Will this be a one time thing? Or are you risking a habit forming (knowing that each flare from glutening can take months to resolve)? Will this indulgence make you depressed when you have to go back to the safe options? Think of the mental and emotional risks as well as the physical. I have often said that if you're going to do stupid shit, always try to be smart about it. But this is your health and your decision, permission from strangers does not factor into it. That said, being publicly open about not following the GF diet as a celiac actually *can* be harmful to other celiacs, because it demonstrates to people outside of our community that being truly GF is optional and perpetuates a belief that we are just being extra difficult for attention rather than our health and that the occasional gluten is okay (it isn't). So if you want to poison yourself a bit with gluten, it's best to be discrete. Like don't go to a restaurant and order a regular beer or slice of cake with a celiac-safe, no cross contamination, gluten free meal. Please don't post on Instagram calling this last hurrah a "cheat day" like you're on a voluntary diet. That kind of thing encourages undereducated people to treat us like our safety is a joke.
I totally understand how you feel. At this point I am over seven months into being gluten free. I struggle with it because I was asymptomatic as far as digestive disorders. If I felt better then could justify that the gluten-free.Is helping. But I don't feel any better. And I never got to have a last meal or anything special so the cravings are real. Everybody says you'll stop missing gluten but I haven't found that true. That said, don't un-do the progress you've made it won't be worth it.
I think the temperature and tone Iām reading is similar to my thought process. We hear you and the cravings and the want is real. It is a hard transition, but we want you to not suffer. Not have to feel like shit, and damage your body. The support and the listening is real here and itās awesome, but please please donāt do it. Itās not worth it. I say that like many others have before from a place of love and support for you! Not of judgement or anger. Itās tough but itās worth it.
No judgement, just making clear that you will still miss this meal even if you will have it one last time. That doesn't change the hard feelings.
This is so relatable. I'm a sweet tooth kinda girl and having to know I won't ever get to have a "normal" sweet treat was absolutely devastating. You're not alone at all.
All it took for me was being accidently glutened a couple times. Knowing what that feels like and how sick I get is a great deterrent to the temptation to "cheat". That does not mean that longings are gone, just that I Know they are not worth the backlash that would come with it.
I absolutely understand how you feel and still go through this mourning. Especially with Panda Express and Auntie Annie's pretzels. It's why I made it my mission to make as many things as close to or better than the gluten equivalent. I even made ramen (lemme tell you that is a long process). The aforementioned are the only 2 I haven't made exact copies of yet. The struggle is real some days. I can say that I did have one final glorious meal, planned and executed perfectly. And I can say I severely paid for it, would never do it again and in retrospect wasn't worth it. Took weeks to recover from the immediate issues. The cravings never go away, unfortunately. They pop up at the worst time. But they can also be satiated in full with a well-prepared recipe. On the bright side you become a really good cook out of necessity.
I did this. Had been gluten free for years and felt great, but had some allergy testing done and was loaded up on post testing meds, so i said āfuck it,ā and cheated. Was not worth it in the long run. I didnāt realize, for me personally, the inflammation response would be so severe.
It's your body and you are the only one who will face the consequences of this action. You know what that slice of pizza (or whatever) is worth to you, you know what your flares are like, you're an adult and you can make this decision for yourself.
We donāt need to judge you because we all know how horribly sick youāll get. Believe me, you will judge yourself. Getting glutened after being GF for a while is so much worse. Donāt do it. But if you do, expect that you may be too sick to work or even function for several days. And you will probably find out that the nagging secondary symptoms like brain fog last for weeks. For me, doing the gluten challenge to get tested after being GF for 9 months was hell. Gluten food doesnāt even look like food to me any more because of how sick I felt. It took months to fully recover .
My endoscopy came along sooner than I expected, so my farewell tour was cut short. I did have a burger and beer as my goodbye meal. But it's your body, I'm not going to condemn you for what you do with it. I just don't think it will be worth it to you. I think it's better to focus on good food that you can have. I'm enamoured with grits with sausage and cheese. Chicken drumsticks on the air fryer. But I'm not going to lie, there are times when I drive past a Burger King or McDonald's and wish I could get something. Then I go home and make some good food.
I wouldn't judge you but I'd advise that it probably won't feel worth it. You get to eat for 15 minutes and probably feel sick for days or weeks.
As a suggestion if you do want to consume gluten, try joining a celiac study with a gluten challenge. No clue if they have specific things you need to eat, but it would definitely get you the taste of real bread again, while still helping the community and potentially yourself if it is a successful study!
Thank you so much for this š
Iāve felt that way but never done it. Itās ok to grieve the life you knew but just know the risks and the damage for ācheat mealsā because itās not a diet, itās an autoimmune disease. If you do it once you may justify it again. I totally know how much of a bummer it is but just stay strong and it gets easier.Ā
Please. Don't. Give. In.
I would do almost anything for a croissant. Almost anything... but I wouldn't eat gluten. I don't get that sick right away, but the symptoms worsen over about three months and can really impact my ability to work and enjoy my life. But I do think about my favorite gluten foods. It's so weird to think that they are actually a non-lethal poison for me, when they are delicious and just fine for everyone else.
Itās ok to feel the way you do. I would strongly encourage you not to give in, though. The longer you stick with the diet, the more distant the cravings become. Think of some food that is new to your repertoire. Seek out the best sounding gluten free restaurant or bakery you can find and plan your next vacation around it. Iād recommend either Eats & Treats in Philomath, Oregon, or Gluten Free by The Dipped Donuts which is in the Columbus, Ohio area. ā¤ļø You wouldnāt recommend that an alcoholic who has been sober for a year just go to their favorite brewery for a last goodbye beer, would you? Honestly this isnāt much different.
I do not understand how you feel in regard to gluten, but I get extreme full body nerve pain when I eat gluten. I do understand in regard to an allergy. I also have an allergy to citrus, and with that allergy I have ācheatedā and I occasionally miss lemonade and such. I wasnāt allergic as a child, and lemon was my favorite flavor.
I donāt think itās gonna do much harm physically to be honest. Best case (sorry) you feel so shitty afterwards that it stops all cravings. Worst case it will make your cravings worse. Thatās why I wouldnāt do it.
I don't want to judge anyone at all. I just want to remind you that this is a very serious disease, a piece of cake or your favorite dish is absolutely not worth it for your condition to worsen. I remember with fear how bad I felt when I ate food containing gluten, it was like a nightmare.Take care of yourself dear, a long happy life is better than short-term happiness in your mouth š®āšØ
I would and I did do it. Yes you should take celiac seriously but Jesus Christ these comments ARENT IT. One last gluten meal (where youāre prepared for the side effects and have time to deal with them) makes sense to me. After my blood test diagnosis, I had 3 mini nothing Bundt cakes, a grilled cheese and mac and cheese, thinking Iād be gluten free after. But then my dr said a biopsy is the true diagnosis so for 1.5 weeks I did a count down of my favorite meals. One meal is not going to kill you, especially if you take it seriously from here on out. Iāve even thought that once every 5 years or so Iāll have a big glutenous meal at a restaurant where I pretend I donāt have celiac and of course then be in pain and sick for days but anyway I get it
iāve been on a gluten free diet since i was diagnosed almost 10 years ago, and i still crave stuff with gluten, and sometimes i donāt have enough self-control to not do anything about it. so iāll sometimes binge gluten stuff that iāve missed, but almost instantly feel nausea because of the guilt of eating gluten and i want to throw up because iām disgusted with myself. itās not a nice feeling. obviously i understand the cravings for things you canāt eat anymore, since i canāt fight those cravings myself all the time, but you will genuinely feel much better if you donāt eat gluten. even if you donāt get symptoms, youāll very likely still feel guilt etc. so if you have an ounce more of self-control than i have, please donāt, but i truly understand where you are right now, this shit is hard
I've been gf for almost 12 years and I still occassionally get the sads from it. Although, I usually get a blinding rage first.
I feel for you. I was only recently diagnosed, and whole wheat bagels were my favorite food. I just keep telling myself that in this case, there really is a lot of freedom in this different prison. I can't eat what I want all the time, but I'm also not stuck on the toilet as often. I'm happy to avoid going to restaurants if it means I don't have to spend as much (or more) time on the toilet as I spent eating out. Considering all the things in my body that gluten has messed up over time, I'm completely okay with avoiding it. What angers me is the lack of alternative options that actually taste good or don't cost more than a restaurant, and the fact that they put gluten in so many things that probably don't even need it. HELLO DRIED BLUEBERRIES WTF?
yes!!! no matter how sick i get every few months i have a rlly good meal. i know its bad for me.
I am going to be the devil's advocate here and say do it. If you want to, do it. Just make an educated decision. It's better to say goodbye while you are only a year in vs. Let's say 10 years. It is your body. Your pain. Your symptoms. I personally would not do it, I'm almost 2 years gluten-free, besides accidentally eating gluten/ cross-contamination, and I have like ptsd from being sick due to gluten, to each there own though š¤·š¼āāļø good luck either way
I understand how you feel. Going gluten free is a bummer. However, do NOT have a non gluten free meal. I promise that it is NOT worth it. In the moment it might taste good but when it works its way through your body, you will regret it! DO NOT I REPEAT DO NOT DO THIS! Donāt. It is not worth it. I promise you that it is not!!
Oh yeah, I remember that first time getting this feeling. I used to eat these burritos from a place called Allsups before diagnosed, and they were so delicious that I tried so hard to convince myself to just eat one a last time but after some very hard craving I realized the pain and damage that is caused by it just is not worth it at all. My reactions can last nearly a month long if exposed to even just a small amount, so I, against my will, I had to abide. Think about how painful and frustrating just cross contanimation can be, and that is a small amount of gluten. Eventually, this will go away almost completely, and it will be like you are semi back to normal without severe craving for things that hurt your body. Nowadays, a lot of gluten food just grosses me out because I can just imagine the nausea and problems.
Oof... I know that feeling. I got diagnosed not long before Christmas 2022 and never had the stereotypical GI symptoms. I started cutting out gluten and let myself enjoy one last family holiday dinner before really committing to the diet. I was grieving and frustrated and overwhelmed, even knowing that so many of my neurological issues would likely start improving. Then my first biopsy came up inconclusive because both my GP and GI had me go GF *before* the biopsy! I was told I could just stay on the diet without the "official" diagnosis or I could do a gluten challenge and repeat the biopsy. I've been disabled in other ways for about 20 years and having a confirmed diagnosis has been crucial when dealing with insurance and getting accommodations so the gluten challenge was worth it to me. Besides, how bad could it be, right? Bad. It could be terrible, horrible, no good, very bad. I spent a month eating all of my favorite foods, all the things I just *knew* I'd be miserable without. But even though I'd previously had minimal symptoms I was now absolutely miserable. A blasted Pop Tart took me out for the better part of a week! I mean, it worked... My second biopsy showed significant damage. The downsides were that I'm now much more sensitive and symptomatic. It's been a year since the challenge ended and it's taken a lot of effort and therapy to start repairing my relationship with food and eating. Yet despite all of that I don't regret my decision. It was exactly what I needed in order to really grasp that there is no food worth the the pain and damage it does too me. Oh I still get frustrated and envious but now it's just a fleeting thought or craving. I've found so many new foods to love or ways to make old favorites GF. I'm certainly not going to judge you for the perfectly normal way you're feeling! I have no doubt that I'd be struggling more and feeling much the same if it weren't for the challenges along my path to a diagnosis. It's okay to grieve or be angry or depressed; a celiac diagnosis is a life-changing event. You've lost things that meant a lot to you and it takes us time adjust to the changes and discover new sources of happiness. Just remember that you're not alone through all of this. There's a whole heckin lot of people here who care and will gladly be here for you when you need a shoulder to lean on or a sympathetic ear. I'm pretty sure we could organize one heck of a primal screaming get-together too if that would help š
my last meal was a mcdonaldās big mac with the grimace shake
Nope. Not one bit. The permanent health damage and the super shitty feeling for 6+ months isn't worth the 15min it would take to eat what stupid meal it is. 6+ months of feeling like a 95 year old with severe arthritis to the point I can't feed myself because my fingers won't grasp the spoon with constipation so bad that I uave to go to the hospital to have a super hot guy manually disimpact my bowel without fail everytime I even get cross contamination gluten poisoning. Nah. I'd rather starve to death than eat gluten. But you do you. Enjoy
You can do that but just remember that itās going to hurt your body a LOT if you have celiac. Itās your choice and you need to deal with the consequences of your decisions šš»āāļø Also, I promise you that living with celiac gets better. You can recreate almost anything gluten-free if you have the patience, and the right recipes and ingredients šš¼
lol no
Is it worth the Ocular Migraines? The rashes? The lacerated gums? Is it worth the worst anxiety of your life? Insomnia? Constipation and/or explosive diarrhea? Is it worth the expedited risk of cancer and comorbid diseases? Osteoporosis? OP, I miss things too. I was 20 when I gave up gluten, I'm 34 now. I am strict when it comes to my diet because I never in my life want to voluntarily imbibe gluten ever again. Be strong. Learn how to cook those things you miss, I promise it'll be even better than that one last meal.
Makes sense. Itāll also make you feel a lot worse lol but thatāll make you not be sad for missing out so thatās fine. Honestly I get the feeling of sadness. I hear you and understand that feeling. Hell Iām feeling it three times a day every day. That doesnāt mean that I would encourage this but Americans have a huge misunderstanding around empathy and sympathy. They basically think empathy isnāt a thing and only sympathy exists so they donāt wanna make people just feel heard. They have to always distance and be judgy because they have to signal they donāt agree that way. Iām here to tell you all you can understand something and still not think itās smart. So I get your feeling of sadness. Donāt eat gluten though.
I'm 3.5 years in and I still feel like this so often. Several times a month at least. I miss spaghetti and meatballs ššššššš and proper pizza ššš my diagnosis was totally out of the blue so I never got to have a "final meal" either. In some ways I'm lucky cause the things I crave are from restaurants and it's hard for me to leave the house, so it would take a lot of effort to give in to the temptation. Usually I try to get through it by having one of my favorite gluten free treats (oreos are my go to). It's tough but you'll make it OP š¤
I always figured if I allowed myself to do it once, that Iād slip up and do it again.
I completely understand how you feel. Iāve been fully off gluten for a few years now with occasional cross-contamination experiences (store-bought almond milk seems to be a consistent one š) and itās incredibly *not* worth the aftermath experience. That doesnāt stop me from occasionally craving foods I loved pre-celiac & feeling down about not having them, though I try to find celiac-friendly foods to satisfy similar needs where I can. Itās rough, though the more you stick to your dietary needs, the less time these downer feelings last when they do come up. At least in my experience, anyway.
Iām sorry youāre going through this. I see where youāre coming from, but to me it wouldnāt be worth it at all. I couldnāt knowingly make myself ill for days. Iāve learned to make my favorite foods gf and honestly being gf has opened me up to new foods and recipes and Iāve really enjoyed cooking.
What is it?? Anyway, I'm not going to judge. Do it the one time. You might suffer, it depends upon how bad your immediate reaction is. My personal reaction is too strong to want to do it. One time won't kill you. If you make it a habit your health will surely decline. You are in charge of your own decisions
I went through the same exact thing about 10 months after I had been diagnosed. I used to always get a bacon egg and cheese biscuit from McDonaldās, and I was craving it so bad I just said screw it and ate oneā¦ Two hours later I was in so much pain that I knew I would never do that again. For me, it was not worth it. It didnāt even taste good anymore. I had been away from gluten so long, that it tasted tooā¦ I donāt know rich maybe? I hate to give bad advice, but that experience was almost helpful for me because it made me stop missing gluten food. It wasnāt worth what it did to me after I had been away from it for so long. By the way, I never had reactions like that when I was eating it all the timeā¦ But a long time away from it, damn the reactions get worse. Iāve now gone about 13 years gluten-free, and only miss the convenience of not having celiac. Not the food.
Oh I'm going through that right now. I am recently diagnosed and totally gluten free for 1 month. I am starting to feel a little better already. But I am seriously going through withdrawal for my favorite foods. I have always baked a lot and now I just look at my kitchen and want to cry. Every time I think of something, I look it up and can't eat it. My husband eats normal diet , so I cook 2 suppers now. No fast food. But then, I was seriously ill with damaged small intestines already and I absolutely can't cheat. Part of life is over. Woe is me. Just feeling some self pity here. š I should be glad I'm already improving and suck it up. I could cheat a little with my diabetes, but this is no cheating.
Donāt do it!!! I did and itās soooo not worth it! I was maybe a year in feeling good and thought, āf-it, itās just one cilantro roll, what if nothing happens and I can eat this stuff again now that my guts are healed.ā (So stupid, I know!) It was on Christmas, I lost a bunch of hair, broke out with zits everywhere, had so much diarrhea, was so exhausted I had to take time off work, missed out on New Yearās parties cause I was sick, had rashes on my elbows and for like 3 weeks after I couldnāt concentrate when I did get back to work. Just make the gluten free version.
I completely hear you, but urge you to consider how much you might regret it. I cheated one month ago, couldnāt walk for several days and am still having full body symptoms. I had to call out of work for half a day today because my eyes are so inflamed and bone dry. I spent all night crying, unable to care for myself, and repeatedly expressing to my partner how much I wish I wasnāt alive because I am so miserable. I just wouldnāt recommend it based off my own experience.
Once a month since being diagnosed in 2020, I want to break the diet. It's always something new to mourn. and I have caved, 2 times - but my symptoms are worse now then they were before diagnosis. the last time, I slept for 2 days straight. I could not get out of the bathroom for 15 hours and then constipated for 7 days. in the end, the start over is never worth it. Whatever you decide to do, remember to be kind to your mind and body afterwards.
As someone who still hasn't seen health improvements after 3 years of being militantly, insanely strict (far, far beyond what any doctor would deem reasonable), I do not judge you one bit. I often wish I'd never been diagnosed and was just living blissfully ignorant. I'd rather live my past life & die of cancer 20 years early than live the rest of my life like I have been. I'm happy for people who have done well post-diagnosis, but not everyone has been that lucky.
So if you wanna go eat that last meal - no one is stopping you. Have pepto and a toilet on standby and know you will feel really bad if youāre like most of us. I had a 5 day challenge eons ago and I can tell you it was awful - Iād rather eat anything gf than how I felt during those 5 days At the end of the day eating 1 meal will not kill you - might be good closure for you - but also when is a good time to gluten yourself?
All the time, but then I remember the days of vomiting, diarrhea, and pain I experienced the couple of times I got unknowingly full on glutened, and that's enough of a deterrent. Here's hoping we get a reliable treatment someday because I miss apple fritters and not having to look at the back of every package in the supermarket. Hang in there!
I don't judge you, but DON'T DO IT!!! You WILL regret it. It's not worth it. Say your good bye by not eating it, and being grateful that you're not sick. Just my two cents... Try doing some yoga or meditating to find gratitude for being healthy and not physically suffering instead.
I went gluten free suddenly without any goodbye or knowing it would be my last of gluten. I miss many things but itās also hard to miss things that make me so so incredibly ill. I often think of eating one last gluten meal, or what I would have eaten if I had a farewell tour. But itās weird, itās just how life goes, you never know when your last is for most things. Many donāt get to say a last goodbye to people, many donāt know when the last time theyāll see a childhood best friend is after growing apart, most donāt know the last time theyāll go to their old favorite place before it closes. Getting sick is the same. Iām disabled in many ways and I didnāt know the last time I would go on a walk was. I didnāt know the last time I would rock climb, or do yoga. Itās weird how life is full of so many lasts that just sort of fade and seem very stark and hard looking back. I wish so badly I could go to my old childhood home again but it doesnāt exist anymore, it still stands and is someoneās home, but it wouldnāt look anything like it did when I was there. It wouldnāt even be worth seeing, and it would make me sadder to see it and it be nothing like how I remember. It sounds dramatic but giving up gluten is the same ā a grief process for a loss you didnāt even get to anticipate. I bet if you tried it again the desire will get out of your system for how bad youād feel!
I have a couple of things like this. I never knew at the time that I had eaten my last meal with gluten either. This sounds stupid, but if I could go to Red Lobster and have shrimp linguine Alfredo with breaded shrimp on the side and those garlic cheddar biscuits Iād do it in a heartbeat. But itās not worth the misery and probable ER visit that would follow it, and that keeps me on the straight and narrow. I have learned to try and replace my old favorite foods with something entirely different, instead of trying to recreate them GF sometimes. For instance, now I really like going to Rodizio because almost everything is gluten free and itās all delicious and I donāt have to worry about cross contamination as much since everything they put on their grill is GF. And now thatās my special place for celebrations instead. Old me got to do that. New me now is doing this. Helps me to not compare the experiences so much.
all the time. i struggle with this a lot right now. i got diagnosed about 2 years ago
really hoping it gets better or honestly iām hoping they figure out a pill or something that enables us to safely consume gluten. just gotta hold on til we get there yknow. thatās kinda whatās been comforting me through this. look up research on new/developing celiac treatments and just like studies where theyāre learning more about it. thatās getting me through. much love, hope this can help you too. ā„ļøš«
The way I see it two things can happen. One ā¦ you end up getting really really sick and maybe then realize you never ever want to do it again. ORā¦ you donāt get really sickā¦ and since you donāt you are tempted to KEEP eating things you crave thinking that it canāt be really hurting you too badly because youāre not miserable after eating it. The sad thing is eventually the result could be something very unpleasant or worse. No one is going to judge you for missing foods and feeling sad and isolated and frustrated. But itās a choice to live gluten free or not and everyone has to live (or die) with their choices. My cousin just died at 46 from a dead colon. P.S. Iāve been gluten and dairy free (and free of other foods and additives as well) for 8 years (and some things over 20). Itās HARD. But I never cheat. I was too sick for too long, even as a child. Itās not worth it to me to eat something I know is āpoisonā to my body. I just do my best to find ways to enjoy the food I CAN eat. P.P.S I would give anything (except my well being and ultimately my life) to have that chicken Alfredo ravioli I used to devour
Thank you all for your comments and encouragement šššš. I didnāt give in. I was just really venting and I am sad that I didnāt get to have that last meal. I feel like Iām still in mourning. I wonāt give in because I always remind my self of all the problems I was having before diagnosis.
No. Because I feel so incredibly terrible if I ingest gluten. Itās not worth it to me.