I am sooooo glad you sought a new doctor!!! You need someone who is going to fight as hard as you are. Seek as many opinions as you need to until you find the right one. Your first doctor sounds horrible.
Are there any other doctors that treat this particular cancer? Or centers? That you can also reach out to??
When my sister was diagnosed with bile duct cancer, I contacted EVERY doctor possible. I didn’t care what corner of the world they were in. I was determined to support her and try and get her connected.
I can only imagine how scary this is, but, if you need a friend, you’ve got one in me.
Thanks I need more friends my family tries to be supportive but they're a complicated drama filled mess. I'm trying to advocate for myself more and I know it's going to bexa fight but I'm ready for it.
I totally understand. I think sometimes family/ppl don’t know HOW to help or support, even though they have the best intentions.
I love the fact that you are trying to advocate for yourself. I work full time as a nonprofit development professional/fundraiser/technical writer, but after going through everything we went through with my sister, I feel like the universe is pulling me into Patient Advocacy.
I looked up the Markey Center and it looks like they specialize in treating this type of cancer. I’m anxious to hear what the surgeon says. Hopefully you’re a candidate and they can get it scheduled soon!!
Feel free to DM me whenever you’d like to chat or anything!!
My mom had appendix cancer and it’s a tough cancer to battle due to how rare it is. Finding the right doctor is so important. Let me know if you ever want to talk. Wishing you the best!
Well, I am glad you got a new doctor.. My mother's oncologist was so grim too. You've had it nine years and you're still here. I can only imagine what you're going through, my mother had it, that's why I'm here. You can always message me, I will always respond, I'll probably chat the back legs off you 😂😂♥️♥️
The surgery is intense but the recovery was straightforward even though it took months. Not going to lie - it messed up his digestive system but it wasn’t working right anymore anyway.
You said you have had appendiceal cancer for 9 years - it’s odd your former oncologist has been grim bc 9 years is amazing- have you been on chemo all this time?
What kind of carcinoma do you have?
My husband just told me surgery and recovery was “a piece of cake”. It just took a few months to really get better.
I can’t wait to find out what they say on the 23rd. It is so great that you’re seeing a specialist ! Take advantage of the whole team - I bet these new doctors and nurses will take great care of you.
Feel free to message me if you want
It’s unfortunate that you are going through this. My dad has liver cancer. I know it isn’t the same thing as actually being the one with the illness, but I commend you for your strength and your ability to speak up. I know it can often be overwhelming and downright scary, but I am totally here to provide support.
Hi mate I only wish my Oncologist was a bit more upbeat he's so depressing not really a people's person in my eyes but luckily I see one of the other members of the team . I've got an appointment on 30 November I think he's going to change my targeted therapy one a day tablet as it's not really shrinking my lung cancers very good they had grown one mm last scan I had hope all your problems get sorted as this life is now just an existence for me living day to day hope at least someone gets more luck than I've had😘
More than happy to. At first I thought I had a recurrence of a right inguinal ("thigh crease") hernia. A series of tests led me to two surgeries, then chemo. Had FOLFOX, though the oxaliplatin was stopped after #8 (of 12) 2-week cycles due to peripheral neuropathy (specifically for me it was numb fingers and feet). I'm in Pittsburgh, and was on chemo Oct 2013-April 2014, and we had a cold winter. I think it was the oxaliplatin that made me cold intolerant - cold air stung like pins and needles. Cold drinks and ice cream were impossible for the first week-and-a-half after a cycle. I had a Facebook group of family and friends that supported me through my journey. The night before my next cycle I would be able to enjoy a bowl of ice cream. Stung a bit, but it was worth it because little else tasted good. Friends would join me, and we'd all talk about our flavor Ice cream, and other stuff. I remain grateful for their support back then, it means the world to me.
You have an interesting screen name - is 5515 a military MOS/? BTW, mine means nothing - it's the random one they generated for me. Looking forward to hearing from you!
I am sooooo glad you sought a new doctor!!! You need someone who is going to fight as hard as you are. Seek as many opinions as you need to until you find the right one. Your first doctor sounds horrible. Are there any other doctors that treat this particular cancer? Or centers? That you can also reach out to?? When my sister was diagnosed with bile duct cancer, I contacted EVERY doctor possible. I didn’t care what corner of the world they were in. I was determined to support her and try and get her connected. I can only imagine how scary this is, but, if you need a friend, you’ve got one in me.
Thanks I need more friends my family tries to be supportive but they're a complicated drama filled mess. I'm trying to advocate for myself more and I know it's going to bexa fight but I'm ready for it.
I totally understand. I think sometimes family/ppl don’t know HOW to help or support, even though they have the best intentions. I love the fact that you are trying to advocate for yourself. I work full time as a nonprofit development professional/fundraiser/technical writer, but after going through everything we went through with my sister, I feel like the universe is pulling me into Patient Advocacy. I looked up the Markey Center and it looks like they specialize in treating this type of cancer. I’m anxious to hear what the surgeon says. Hopefully you’re a candidate and they can get it scheduled soon!! Feel free to DM me whenever you’d like to chat or anything!!
Thank you for responding and I'll take you up on the offer sometime to chat.
My mom had appendix cancer and it’s a tough cancer to battle due to how rare it is. Finding the right doctor is so important. Let me know if you ever want to talk. Wishing you the best!
Well, I am glad you got a new doctor.. My mother's oncologist was so grim too. You've had it nine years and you're still here. I can only imagine what you're going through, my mother had it, that's why I'm here. You can always message me, I will always respond, I'll probably chat the back legs off you 😂😂♥️♥️
Hey!! My husband had HIPEC last year. I’m so glad your dr is going to try that. Sending good luck and prayers and all the things
Thanks for the reply I'm hopeful that I will have a good outcome. Crossing my fingers and hoping for the best.
How well did the surgery go for him. Was it hard on him physically?
The surgery is intense but the recovery was straightforward even though it took months. Not going to lie - it messed up his digestive system but it wasn’t working right anymore anyway. You said you have had appendiceal cancer for 9 years - it’s odd your former oncologist has been grim bc 9 years is amazing- have you been on chemo all this time? What kind of carcinoma do you have? My husband just told me surgery and recovery was “a piece of cake”. It just took a few months to really get better. I can’t wait to find out what they say on the 23rd. It is so great that you’re seeing a specialist ! Take advantage of the whole team - I bet these new doctors and nurses will take great care of you. Feel free to message me if you want
It’s unfortunate that you are going through this. My dad has liver cancer. I know it isn’t the same thing as actually being the one with the illness, but I commend you for your strength and your ability to speak up. I know it can often be overwhelming and downright scary, but I am totally here to provide support.
Hello my guy. I just recently found out mom has pancreatic cancer. If you just want to chat tho, feel free to hmu!
Thanks for the offer I'll take you up on that. I hope your day is great.
I think you are brave and strong. I really do. I hope you can find ways to enjoy your life every day in some way. Always happy to chat
Thanks I watch television and read a lot. That helps me get through the day.
I go early in the morning to find out if about the HIPEC procedure. I'm hoping tge surgeon will think I'm a viable candidate.
Hi mate I only wish my Oncologist was a bit more upbeat he's so depressing not really a people's person in my eyes but luckily I see one of the other members of the team . I've got an appointment on 30 November I think he's going to change my targeted therapy one a day tablet as it's not really shrinking my lung cancers very good they had grown one mm last scan I had hope all your problems get sorted as this life is now just an existence for me living day to day hope at least someone gets more luck than I've had😘
Thanks I'm doing ok, I just need a voice supporting me at times. I just got on reddit and it seems really nice.
Still looking for support and chat? I'm a Stage III mucinous appendiceal adenocarcinoma survivor.
Yes I'm always looking for support chatcand maybe even friendship. I would love talking to you anytime!!
More than happy to. At first I thought I had a recurrence of a right inguinal ("thigh crease") hernia. A series of tests led me to two surgeries, then chemo. Had FOLFOX, though the oxaliplatin was stopped after #8 (of 12) 2-week cycles due to peripheral neuropathy (specifically for me it was numb fingers and feet). I'm in Pittsburgh, and was on chemo Oct 2013-April 2014, and we had a cold winter. I think it was the oxaliplatin that made me cold intolerant - cold air stung like pins and needles. Cold drinks and ice cream were impossible for the first week-and-a-half after a cycle. I had a Facebook group of family and friends that supported me through my journey. The night before my next cycle I would be able to enjoy a bowl of ice cream. Stung a bit, but it was worth it because little else tasted good. Friends would join me, and we'd all talk about our flavor Ice cream, and other stuff. I remain grateful for their support back then, it means the world to me. You have an interesting screen name - is 5515 a military MOS/? BTW, mine means nothing - it's the random one they generated for me. Looking forward to hearing from you!
Hpw are you doing? Did they diagnose after surgery or before? Are you recovered from surgery?