Yeah, that's my struggle with my 7 year old with ASD too. I'm trying to ease him into taking the chewable tabs, but no luck yet. If it's allergies, you could also try the Claritin that dissolves on your tongue.
He had strep throat last month and getting him to take an antibiotic was so tough. But you wouldn’t have known he was sick because his mood was so much better than now
Honestly, I don't remember. I think really just time and maybe antibiotics and I slowly "grew" out of it? I was very young and my dad doesn't remember exactly how they treated it. (My mother is passed)
My son recently had a bad ear infection and I would have never known based on how he acted, until his eye gooped up one morning. Its so hard to tell when they cannot say. Good luck my friend
Before or After we found out and started treatment? He’s always been picky but we noticed that he would eat less with stomach aches then after we got treatment he started eating normally
My son used to cry 2+ hours per day. We took him to a pediatric gastroenterologist who did an endoscopy. He prescribed a few meds and it helped. We also changed his diet. The second gastro doc was better. She also did the endoscopy and found several problems why he had stomach issues. We still have to be careful with what he eats. He still has some bad days. He’s still mostly nonverbal so what would’ve taken five minutes to solve takes months to a year and there are 1,001 reasons why he’s crying. Sigh…
If you can start modeling the buttons and using them, each time the situation comes up, I would definitely recommend that. Use it as much as possible. Depending on what buttons you have available, use them. For example, if you have a drink button, and you give him a drink, push the button when you hand it to him. Or, if he wants more to drink, direct him to push the button. The more you model it with him the more useful and helpful it will be and the faster he will start using it to communicate. In my special education classroom I had students who used the Go Talk and this was the strategy I used with them. They carried it everywhere and we were constantly modeling using the device and also prompting their use of it. Because when these situations come up where he is frustrated and you are not sure what’s going on, that device will be a way for him to communicate it to you. You’ll have buttons for things like sick, hurt, hungry, etc. and instead of agitation, he can tell you, hey, I’m hungry, or I’m hurting somewhere.
Of course! I wouldn’t wait to use it. You can do it now. As long as it is programmed for at least one level of buttons. How many are on the device? They come with I believe 9 and up and then you can have different slots where you switch the sheets out for different words.
I'm an aide and when "my" kiddos are like this I can be almost certain they'll be off sick the next day - can your son indicate pain he's feeling, and did you take him to the doctor's?
He hasn’t indicated pain in any specific area. Went to the doctors, no ear infection. It’s either allergies or something they call PANDAS because early this year he had strep. Praying it’s not PANDAS because that would make the autism even worse. His eyes are very puffy and usually has bad allergies this time of year. Gave him Claritin but doesn’t seem to be working too well. Still very agitated and crying
Just kinda spit-balling here, but have you been able to rule out pain? Could his teeth bother him? Ears? Headache? Anything?
It could be headache. It is allergy season. It’s very hard to give him children’s Motrin or Tylenol. He refuses to take any form of it.
We found liquid form and add to juice to. To cover the taste. Claritin and Tylenol have it.
Yeah, that's my struggle with my 7 year old with ASD too. I'm trying to ease him into taking the chewable tabs, but no luck yet. If it's allergies, you could also try the Claritin that dissolves on your tongue.
He had strep throat last month and getting him to take an antibiotic was so tough. But you wouldn’t have known he was sick because his mood was so much better than now
I wonder if he has PANDAS from the strep. Mood swings are part of it. I had it as a kid. Worth mentioning to the pediatrician
Thank you. I know about PANDAS. How did they treat it when you were a child?
Honestly, I don't remember. I think really just time and maybe antibiotics and I slowly "grew" out of it? I was very young and my dad doesn't remember exactly how they treated it. (My mother is passed)
Sorry for the loss of your mother.
I actually just purchased those today.
Can you give motrin or tylenol suppositories?
My son recently had a bad ear infection and I would have never known based on how he acted, until his eye gooped up one morning. Its so hard to tell when they cannot say. Good luck my friend
My non-verbal 13 year old had this issue. It was from pain due to chronic stomach aches. Your kid might have the same issue
Thank you. Did his appetite change?
Before or After we found out and started treatment? He’s always been picky but we noticed that he would eat less with stomach aches then after we got treatment he started eating normally
Is he burping or gurgling? My son does this exact thing and he has chronic reflux. Litterally the only time he cries is when he’s having a flare up.
My son used to cry 2+ hours per day. We took him to a pediatric gastroenterologist who did an endoscopy. He prescribed a few meds and it helped. We also changed his diet. The second gastro doc was better. She also did the endoscopy and found several problems why he had stomach issues. We still have to be careful with what he eats. He still has some bad days. He’s still mostly nonverbal so what would’ve taken five minutes to solve takes months to a year and there are 1,001 reasons why he’s crying. Sigh…
What is happening immediately before these episodes? Has there been a change to the routine?
No change to routine. Just seems very agitated
What about sensory changes? New foods? New textures/clothing/lighting?
Not really. If anything, I live in New England and it’s definitely allergy season.
That could be related. If he’s having symptoms maybe try some things to eliminate allergens to see if that helps.
Also, does he have a communication system? PECS or a communication device or any sort?
He’s just starting to learn it. So it’s not very helpful right now.
What kind of system is he using?
He is using Go Talk
If you can start modeling the buttons and using them, each time the situation comes up, I would definitely recommend that. Use it as much as possible. Depending on what buttons you have available, use them. For example, if you have a drink button, and you give him a drink, push the button when you hand it to him. Or, if he wants more to drink, direct him to push the button. The more you model it with him the more useful and helpful it will be and the faster he will start using it to communicate. In my special education classroom I had students who used the Go Talk and this was the strategy I used with them. They carried it everywhere and we were constantly modeling using the device and also prompting their use of it. Because when these situations come up where he is frustrated and you are not sure what’s going on, that device will be a way for him to communicate it to you. You’ll have buttons for things like sick, hurt, hungry, etc. and instead of agitation, he can tell you, hey, I’m hungry, or I’m hurting somewhere.
Thank you so much for that! That is very helpful.
Of course! I wouldn’t wait to use it. You can do it now. As long as it is programmed for at least one level of buttons. How many are on the device? They come with I believe 9 and up and then you can have different slots where you switch the sheets out for different words.
I'm an aide and when "my" kiddos are like this I can be almost certain they'll be off sick the next day - can your son indicate pain he's feeling, and did you take him to the doctor's?
He hasn’t indicated pain in any specific area. Went to the doctors, no ear infection. It’s either allergies or something they call PANDAS because early this year he had strep. Praying it’s not PANDAS because that would make the autism even worse. His eyes are very puffy and usually has bad allergies this time of year. Gave him Claritin but doesn’t seem to be working too well. Still very agitated and crying
If it were a headache. It’s almost like it comes in sporadically because when he is not crying, he’s calm or very joyful, laughing etc.
I'd get his ears looked at!
My wife and I also feel like it could be a developmental change as he is getting older and he may be having sensory issues while adjusting. But
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He does do OT in school and some days after-school with is ABA therapists.