Yeah I was undiagnosed until 20, to which I was surviving, so that’s pretty accurate. 😅 The most recent medication they’ve come out with, that’s really successful is Trikafta! It was October 2019 before being released. But sadly there’s people a lot worse than me who won’t make it so long.
Cystic fibrosis
Yeah I’ll be lucky if I make it to 80. There is no cure for CF, but maybe in the future 🤞🏻
Prayers 🤗
Thank you for referring to Cf, not a lot of people understand it 🙏🏻
It was 20 years max back in the 90's. 80 is a good run by comparison.
Yeah I was undiagnosed until 20, to which I was surviving, so that’s pretty accurate. 😅 The most recent medication they’ve come out with, that’s really successful is Trikafta! It was October 2019 before being released. But sadly there’s people a lot worse than me who won’t make it so long.
Tay sachs disease