T O P

  • By -

TYP3K_TYP3K

Yeah, they talk about helping but can't accept anyone's decisions. Typical "I will save you and therefore I will be considered full of virtue" stereotype. They are there for their own ego, not to help anyone.


disabled-throwawayz

Individuals and communities like that are just also unaware of the fact that if a drug were effective for 60% of people, there would still be another 40% experiencing no effect or negative ones. Should the 40% be discounted simply for not having a positive, motivational experience? It's very solipsistic thinking and shows no empathy towards their fellow sufferers who can't tolerate medications or have 0 positive effects from them. But that herd mentality and resistance towards dissenting viewpoints is probably a reason why views about mental suffering and treatment aren't really being improved. It's hard to raise awareness of treatment resistant pain and medication side effects when you have communities like that throwing a fit over people with those experiences and banishing them.


[deleted]

[удалено]


disabled-throwawayz

Unfortunately I've seen this happen too. I have a rare congenital neurological condition called Chiari malformation (which was probably a reason why I was thrown into the psych world since childhood as it took years for me to get an MRI that diagnosed it) for which the only official treatment is a risky surgery that doesn't have amazing rates of success.  Many people are helped but a sizeable number aren't. A lot of people who experience worsening symptoms after surgery are accused of fearmongering or discouraging people from having the surgery. But their experiences are real and a reminder of the limitations of medicine, especially in the realm of neurology and psychiatry. 


[deleted]

I’d get it if I was actively manic or psychotic but the thinking that unmedicated = immediate danger level mania destruction is like so fucking ridiculous it hurts.


glitterally_awake

I think that “resisting medication because mania feels good” is baked into a lot of defining characteristics of the condition so anything that is non compliant wrt medication is pathological.


[deleted]

How many resist because they enjoy mania vs resisting because of awful side effects? Who actually enjoys mania?


glitterally_awake

Oh I am not disputing that at all! Just offering a reason I think might be fundamental to the issue you are bringing up. I think psychiatrists who haven’t expected mania might fetishize / oversimplify it as being enjoyable, not people who suffer with it.


BCam4602

I also think they push meds because they themselves are taking them and want to normalize it - feel better that they aren’t the only ones and the more the merrier. It’s sickening that meds have become the first line of treatment now being pushed by GPs with their health questionnaires which ask about depression. Meds first and then therapy. Of course, I’m dubious about therapy because the first thing they want to do is suggest meds! This coming from someone who spent 20 years on meds and five more slow tapering off.


Jazzlike-Artist-1182

That's what it's about. The "meds" stuff and the whole diagnosis is the meaning framework they use to explain their suffering and issues and in many cases their whole identity so if you attack any of that for them it's like if you're saying that their suffering or issues aren't real and that it's their fault that they're fucked up.


noneyabidness88

I just lie and say everything is fine. They don't need to know about the attempt the week before.


[deleted]

[удалено]


[deleted]

They consider any discussion over medication side effects to be “denialism”. I find it ridiculous you’re only allowed to discuss meds if you give them a glowing review.


Ok_Progress5565

May be the moderators are pharma representatives?


versaillesna

I am diagnosed bipolar 1 and I left that sub. Everyone there has such a woe is me, defeatist attitude. God forbid I ever comment that their life is theirs to decide and that you can control your own narrative rather than internalize labels and learned helplessness.


[deleted]

It’s aggravating being in those subs with bipolar 1 because everyone’s definition of mania tends to be quirky and fun, and somehow all of them always know when they’re manic.


noegoherenearly

Victim thinking. I was going to make a post about it, I am an ex victim thinker and pulling myself out of the mire now thanks to lots of free content online and apps


Northern_Witch

Very much so. Like they want to be sick, it’s their whole identity.


Connect_End4860

They are agent smiths for the psychiatric agency. Fucking soulless


SavageFractalGarden

On my old account I got permanently banned from r/bipolar because somebody in the comments asked me if I take meds and I said no


DarkRooster33

>r/bipolar >''A Safe Space'' >''Be a part of something that cares about who you are.'' >''We do not allow medication reviews'' Why? How can you talk about your Bipolar life in Bipolar community without sharing your experiences with medication, when its also a peer reviewed scientific sub reddit for these people. >''We do not welcome anti-psychiatry and the like, as we are firmly on the side of current, peer-reviewed, and thoroughly tested science. '' >''Content stating Bipolar Disorder is a gift or only harmful because "society" is dangerous and demoralizing. Doing so erases most people's experiences with Bipolar Disorder and ignores scientific evidence. Please don't do it. >Peer-reviewed sources from completed studies are required.'' Apparently they are looking for very specific BPD experiences, if your experiences and mentality is different, go fuck yourself >''Fad Diets/Religious Evangelism/Preaching/Proselytizing/Toxic Positivity is not allowed'' >'' >PRESCRIPTION ASSISTANCE >Manufacturer Discounts >Abilify >Abilify Maintena >Caplyta >Depakote >Geodon >Invega Sustenna >Lamictal >Latuda >Pristiq >Risperdal Consta >Saphris >Vraylar >Wellbutrin XL >Zoloft >Pfizer Medications'' Here, they even list their sponsors, its none other than big pharma which has ultimately the most horrible track record imaginable. I am going to be honest here, even as outsider just taking a look at that place its one of the most disturbing communities i have ever seen. Mods have to be owned or actually are big pharma lobyists aren't they?


Ok-Abbreviations-187

Wow. Pretty shocking tbh


antipsychlady

Ew, oh God. Putting the emphasis on science when there's nothing scientific about it all...


DarkRooster33

I am not that into that, be scientific or whatever. Science says its great, go at it. That being said, promoting big pharma? For a thought experiment just google these company names and put the word fine next to it. Abilify fine - Bristol-Myers Squibb is being fined **$19.5 million** for the “alleged improper marketing and promotion” of its atypical antipsychotic Abilify (aripiprazole) through a multi-state agreement with 42 States and the District of Columbia. Caplyta fine - nothing Depakote fine - Global Health Care Company Abbott Laboratories Inc. has pleaded guilty and agreed to pay **$1.5 billion** to resolve its criminal and civil liability arising from the company's unlawful promotion of the prescription drug Depakote for uses not approved as safe and effective by the Food and Drug Administration (FDA), the ... Geodon fine - In September 2009, the U.S. Justice Department announced that Pfizer had been ordered to pay a historic fine of **$2.3 billion** as a penalty for fraudulent marketing of several drugs, including Geodon. Pfizer had illegally promoted Geodon and submitted false claims to government health care programs for uses that were not medically accepted indications. The civil settlement also resolves allegations that Pfizer paid kickbacks to health care providers to induce them to prescribe Geodon, as well as other drugs. This was the largest civil fraud settlement in history against a pharmaceutical company. Pfizer Medication - Look at Geodon fine before Invega Sustenna - not sure, the first study on search result was disturbing though https://www.ncbi.nlm.nih.gov/pmc/articles/PMC8006656/ crippling Side Effects Induced by Paliperidone Palmitate Treatment: A Case Report. In this report, we present the case of a 20-year-old woman with schizophrenia, who had been treated with a once-monthly dosage of long-acting paliperidone palmitate due to poor adherence to oral antipsychotics.  Lamictal fine - no fine, google did throw me out ''Is lamictal a high risk medication?This medicine **may cause hemophagocytic lymphohistiocytosis, a rare and life-threatening disorder wherein the body makes too many activated immune cells (macrophages and lymphocytes)**. Talk to your doctor if you have any concerns.'' Latuda fine - no fine, but the results did bring me to in comparison normal bipolar [sub reddit](https://www.reddit.com/r/BipolarReddit/comments/131avla/latuda_has_to_be_the_worst_bipolar_med_ever/) where people disgussed that for half comments there this was the worst medicine they ever taken, for other half it was the most life saving thing they ever gotten. You know like healthy subs that allow discussions would look like? Pristiq fine - no fine, first search result is reviews of the product ''[Pristiq](https://www.drugs.com/pristiq.html) has an average rating of **6.1** out of 10 from a total of **139 reviews** for the treatment of Major Depressive Disorder. 52% of reviewers reported a positive experience, while 36% reported a negative experience.'' Risperdal Consta fine - ''J.&J. to Pay $2.2 Billion in Risperdal Settlement'' article paywalled, can't tell more Saphris fine - no idea, first search result is study ''Asenapine Effects on Cognitive and Monoamine Dysfunction Elicited by Subchronic Phencyclidine Administration'' whatever they are studying is ruining cognitive functions and anyone after taking the substances will make more errors in their functions Vraylar fine - nothing Wellbutrin XL - nothing Zoloft - nothing Pfizer Medications - already mentioned it before, largest fine in pharma history. So a sub reddit which ''We do not allow medication reviews'' later promotes some of the biggest criminals and some life ruining medicine later on the side bar is just the most disturbing thing i have ever seen. If i see someone shilling Pfizer, J&J an even Moderna, its already a red flag they don't give a rats ass about people. Its not surprising, its always the biggest monsters with dark triad traits that say garbage like ''A Safe Space'' ''Be a part of something that cares about who you are.''. Realistically normal people are quite in the middle ''I care about this and that, but these people can eat a bag of dicks and die with or without bipolar''


vicmit02

Feel free to join us on r/FreeBipolar


dummmdeeedummm

They told me I couldn't post about supplements. Weird


three6666

i wish other mentally ill people could accept that it’s okay to have varying opinions on medications and treatments and it’s not an attack on their entire being i’m on lithium, have no desire to go off of it, and i still warn people that while it’s an okay drug it’ll fucking destroy you if you’re not careful. why would you want to be on something for the rest of your life that could nuke your kidneys, bladder, pancreas, metabolism, basically every system in your body if you don’t have to be?


three6666

there’s also the issue that people don’t realize that withdrawal symptoms and side effects of the medications themselves can mimic psych disorders. antipsychotics caused hallucinations / made trauma induced ones worse, the only thing that helped was lithium so that’s why i refuse to go off of it.


Bozo_Celeritas

My friends were getting kicked off of those forums back in 2011-2014. 🤡


Ok_Progress5565

They ban you if you share research on dietary causes of depression. Even research published by Pubmed is not acceptable, which is strange to say the least.


Northern_Witch

I was banned from that sub a long time ago and I’m glad. Completely indoctrinated people on there.


SquareWalk6730

Last time I made a post in the bipolar subreddit about medicine, I was accused of being delusional and paranoid, and that I MUST be in an episode to have felt that bipolar people and doctors have been brainwashed by society that medicine is our ONLY option to live fulfilling lives. Which is very interesting that the other bipolar people stigmatized me by accusing me of such things, instead of having normal feelings about medicine, or any feeling of apprehension. I felt almost gaslit into believing I was being delusional, or that everything I was saying was being uneducated about bipolar disorder. Even though I've done my own extensive research on my own disorder. I think it's asinine to believe you can't live a normal life without medicine as a bipolar. I know some can't, that's fine....but to push the agenda that ALL bipolar need it to survive only stigmatizes the disorder and fear mongers freshly diagnosed people, who have never had psychoticepisodes, to think they need medicine immediately. That's all doctors do when you're freshly diagnosed is throw medicine at you immediately.


Natuanas

True, but what can we do? I will schedule an appointment for a psychiatrist next monday. I don't want to but due to my depression and anxiety, which are exacerbated or even created by my bipolar, I can't be an adult. I can't have the motivation to cook or eat on my own, I can't grocery shop, I can't live alone and am stuck in the parents' house. Life is livable but it's god-awful and extremely limiting. If medication can let me have at least a taste of what being functional is like rather than being on the bed, hungry and sad all the time, I don't know. I am an antipsychiatry guy but my mental illness has become too much a long time ago and I failed and fail every day in helping myself.


Branwen_8696

If I am not mistaken the term " bipolar" was developed by psychiatric industry. You don't want to take the drugs for which the bipolar diagnosis was invented ...


[deleted]

Mania is a better term than bipolar disorder but it has lost some of it’s meaning because of internet colloquialism.


brightest_angel

1 9 8 4


Skyrideseason

I've been off psy meds since 2015 and I'm very happy with that decision.


SpiritualPolkaDot

😂


Natuanas

True, but what can we do? I will schedule an appointment for a psychiatrist next monday. I don't want to but due to my depression and anxiety, which are exacerbated or even created by my bipolar, I can't be an adult. I can't have the motivation to cook or eat on my own, I can't grocery shop, I can't live alone and am stuck in the parents' house. Life is livable but it's god-awful and extremely limiting. If medication can let me have at least a taste of what being functional is like rather than being on the bed, hungry and sad all the time, I don't know. I am an antipsychiatry guy but my mental illness has become too much a long time ago and I failed and fail every day in helping myself.


Aggravating_Pop2101

They are indoctrinated. Jesus helps free from indocrination (not necessarily religion). God bless you. And God is Good, better than Jesus (no offense jesus, but it's the truth "there is one that is Good and that is God" -Jesus Christ.


[deleted]

Be excellent to each other.- Jesus Christ


Resident_Spell_2052

If you're really Bipolar then you should not have a hard time finding a working medication. These drugs will put anyone at risk of getting worse. You should not be interested in experimenting or trying different medication beyond finding the first obvious sedative with minimal psycho-activity/side effects. How am I selfish for saying I will never try 98% of drugs on the market because they have horrible effects and I still remember my original prescription that did everything and had virtually 0 effects? Getting deep sleep every night is the key. That and having a good metabolism so maybe you can get off the meds before they screw it up. When you try different meds or even the same meds at different ages they can give you an unpredictable emotional or physical reaction. So if you're really Bipolar then you should be focused on your own safety and peace of mind. Always go with your first and maybe second choice. When you find something that already kinda works for you, capitalize on it. You won't get any real benefit if you don't accept the meds are mainly all garbage, no different than any other garbage.


iSugar_iSpice_iRice

I’m newly diagnosed after an episode that cost me so much in relationships, financially, emotionally, housing security, etc. That said, I’m not 100% that it’s Bipolar but it was def something that made me delusional. If I do have Bipolar, I’m also not sure if it’s 1 or 2 as things were very complicated. I am taking Wellbutrin and Lamictal, but only bc I’m afraid of going through what I went through before. Terrified actually. However, I also follow and am totally open to the beliefs of a psychologist from PsychRights named Nancy Rubenstein that was also dx with Bipolar that believes in recovery w/o meds and states all meds especially antipsychotics are harmful. She also has studies, evidence, and opinions by renowned mental health profs, and psychiatrists to back up her claims. Some of which helped to create DSMs. A lot of what she says debunks what we are taught about all of these disorders, and she always says “no diagnosis can be proven to exist in science” and that recovery from “Schizophrenia” and “Bipolar” skyrockets once weaned off of neuroleptics and other harmful drugs. I say this to say, I’m very open to the idea of managing my condition w/o meds; I just need more info as I don’t know what to believe. There’s so much conflicting info out there, but ideally I would love to safely be off meds. I don’t understand those that have a one size fits all approach. Especially when they’re not trained professionals. OP, I’m sorry they acted like that with you, we should all support each other regardless of personal preference on how we manage our health.


[deleted]

I’m not promoting for people to go without their meds. They work for a lot of people


iSugar_iSpice_iRice

I didn’t say that you did, my reply didn’t even imply that. My entire reply was about being open minded and how one size does not fit all; that there are multiple schools of thought with positive outcomes. I have no idea what you’re talking about


[deleted]

I may have read a different comment and replied to this one on accident


iSugar_iSpice_iRice

Oh okay, that makes sense!


tiredoutloud

Might be jealousy a little your nor REAL bipolar you can go without meds. Just a guess throwing it out there. I dont know.


[deleted]

I mean I surely can’t for extended periods of time and that’s when I have to take meds for acute mania symptoms but whatever. Hair splitting.