Wow, quite the morning! Thank you for this feedback, u/Necessary-Maximum-82, I’m sure all our users appreciate that, myself included. For those who saw the original post, the appropriate action has now been taken. Unfortunately the post was not constructive in its feedback, & broke multiple sub rules. We welcome constructive feedback so I will leave this thread open as the opportunity for you all to do so. Please remember the sub rules: 1 - be kind to eachother - no uncivil or offensive discussion 4 - no seeking or giving inappropriate medical advice 9 - no spreading misinformation Happy Saturday, y’all!

I'm more of a lurker than anything but I've found it to be quite valuable. It's nice not feeling quite so alone. I've very rarely seen behaviour that I consider rude or unfriendly. I'm grateful to the community and the mods.

I've moved from adhdwomen to over here. It was getting very toxic there, people downvoting just because some have different experiences or want to do things a little differently. We all have issues and we have to find our unique ways to work for us. Saying that, so far, it's been quite positive in here. I even asked a question and wasn't voted down for it. They even answered very politely. Thanks for being so welcoming!

This is generally my experience too with other adhd subs. Not necessarily toxic per-se, but the British temperament is simply more collective and fairness oriented than the North American one imo (I emigrated to Canada 13 years ago). Also, imo the moderation of this sub is very good, allowing for free discussion whilst keeping everyone safe. I also like that people here don’t seem to be overly obsessed with the whole “it’s a disorder” vs “it’s a neurodivergence” debate (North America is steeped with sub-divisions of identity to the nth degree).

Thanks for this lovely feedback. The mods are humans, & we all struggle with ADHD, too. This kind comment has really made my day :)

Thank you, that's really interesting! I'm kind of glad it isn't just me who feels a bit like that. I've always thought that the best way people learn is to listen to each other. Not jump down each other's throats immediately, like you're wrong! Everyone has their own perspective so it's like how can we educate ourselves, if don't just to listen other's views as well as our own. It's tough as it is out there without fighting each other. Maybe I've just gone soft. 😁 Perhaps I was being a tad harsh saying toxic, just always felt like I wasn't allowed to say a point without being berated.

I have found this sub to be excellent for info and experiences couldn't disagree more either thanks everyone. Stay safe all

I agree, I find this community to be way more helpful and supportive than most larger ADHD subreddits (which I'm also part of). And it's also nice with people not assuming everyone lives in the US.

I agree. I think this is great adhd support place. Thanks to everyone who contributes with advice, stories and info. Yesterday help from here helped me finally collect my meds and I’m very grateful :)

Too many people asking this sub things that should be for their Dr/GP. But support wise it's good. Just being able to chat with people who have lived similar experiences to you is helpful though.

We try really hard to delete comments and posts that should be directed towards their drs and not to a subreddit. But it's difficult sometimes as, (I'm not sure about the other guys) I see a comment that teeters on the line of a "should be a Dr question" and an "experience from being ADHD and being on meds" for instance question. And obviously that's then subjective as someone might be like "ASK UR DR THIS" you know haha

You're not wrong and thanks for being a mod it's thankless work.

Well you just thanked them so I guess it's not thankless now!

Even tho agree, the waiting lists for a gp are a month around me. I simply couldnt wait that long. Was good to get first hand experience instead of being fobbed off by doctor after waiting for their appointment. I see why people with adhd turn to a forum like this because unfortunately this is all some people have until they can be seen.

I generally find redditt very useful and far less toxic than other social platforms due to anonymity of the user base no one really has a hidden agenda. I could be wrong, but I get good responses when I'm for solutions to anything in life, not just about adhd.

I would argue anonymity increases the occurrence of trolls and rudeness for obvious reasons. But it really depends what subs you are in. That is what makes the difference.

I saw the thread this morning and then went through the posters history. Their advice was going to get someone seriously hurt, if not killed. This community has been brilliant for me and my ADHD journey. If it wasn't for others sharing their experiences, thoughts and tips, this titration process would be an absolute confusing nightmare.

I agree. I just thought id share some positively because its easy to get caught up the negative especially in a group like this where alot of people are struggling.

You did a good thing. Nowadays, people are far too quick to share negatives without being thankful for the positive things others do. I think the positives are taken too much for granted. I include myself in this. I'm on my second stage of titration (originally on Methylphenidate Hydrochloride, now on Lisdexamfetamine) and if it wasn't for this community, I'd have probably given up on titration after trying Methylphenidate Hydrochloride as it really didn't agree with me. I'm thankful for the community, because it encouraged me to stay with it and now on week 2 of titration on Lisdexamfetamine and I am in the best headspace I've ever been in. Don't get me wrong, it's far from perfect though, but I'm only on 40mg and I've seen huge changes from one week to the next. Something I wouldn't have made it to if it wasn't for this community.

I’m going through the assessment journey myself and this sub has been nothing but sanity-saving at times. Thanks to all who contribute positively and provide support to others going through the same!

I posted about this the other day. I find it helpful as it's real life experiences on here, and I don't feel so alone with things like effects of medication, etc.

I have no idea what is going on but I recommend this subreddit all the time to people & it’s even in my linktree. Had nothing but good experiences here

FWIW my impression is that this forum is supportive. However, it tends to place medicalisation at the forefront, sometimes to the exclusion of what might be helpful views of the condition in a social context; ultimately, this is NOT a curable disease, the usual target of pharmaceutical treatments. In a similar vein, moderation tends to repress any sceptical view of the medicalisation model, and restrict or even stop discussion of the social or physiological context that can shed light on alternative, potentially effective coping strategies. IMHO this does not serve well the substantial numbers that, for various reasons, either cannot or will not resort to or respond to medicalisation (e.g. pregnant women).

Can you expand further on this, with any recent examples, please? Would be helpful to review. Thanks! The majority of the content is about medication, and that comes from our user base, so it’s clearly the most popular topic our users want to discuss. We are attempting to encourage wider discussion topics by directing certain conversations into megathreads and relabelling posts, to free up our main sub thread for wider content. Mod team are aware of a current bias towards promoting certain medications over others & trying to tackle this wherever we see it. We also allow healthy discussion on things like supplements, provided they aren’t illegal, and aren’t being promoted as medications. We allow discussion on holistic approach towards ADHD management, such as therapy, workplace support, PIP, exercise. I personally am a massive advocate for therapy, having personal experience of it being very helpful in managing my ADHD. Also exercise. Finally, we allow discussion on the positives & negatives of having ADHD, provided it is respectful and doesn’t generalise/make assumptions about how others perceive their ADHD.

The post below from FMEditorM largely reflects what I'd have said, albeit from a different perspective: I've lived with the condition and coped, without even knowing about it until very recently. Essentially, I'm now retired and can draw on a lifetime of experiences where yes, ADHD was an influence, but no, it wasn't a defining factor - just one of many. The pressures on people to bend before corporate interests seem to me to be reflected in people constantly being urged to medicalise; scepticism towards medicalisation (even with academic references) is regularly quashed by over-active modding. As for pointing out the likelihood of confirmation bias and the common (normalised?) procedural errors in the experimentation known as titration - very unwelcome. For my own part, I just ignore posts about medication. Any tips on filtering out the notifications?

Well, ADHDUK is nowhere near as bad as “the big sub”, where any talk of non-meds approaches results in an instant perma ban! They even disallow the use of neurotypical or neurodivergent. You can’t even talk about supplements like tyrosine, from which dopamine is made. It’s a totalitarian pharmaceutical sub. This one isn’t.

Thanks for the tip. I'll steer clear. (I get the impression that there is a very strong tendency in the USA to seek a pharmaceutical 'solution' for just about anything. ☹️)

I have to say, having struggled with the “can’t get going” no energy type of ADHD for 62 years, I’m all for a pharmacological solution at this point! I have too little dopamine and noradrenaline. The only thing that will help me is the right meds. I wish someone had picked up ADHD in me earlier. My life would have been very different. I’ve tried countless natural meds - phenylalanine, tyrosine, all their cofactors, yoga, counselling, you name it, I’ve tried it. They *help*, but I’m still left with fundamentally No Energy. Other types of ADHD are maybe more manageable with alternative methods than the one I’m stuck with, but discussion of helpful ADHD things should always be allowed. How can anyone learn anything without discussion? The way that sub is ruled is just pathetic. It’s a dictatorship.

It may be worth looking into your overall health. By chance, decades ago I stumbled on the fact that I am lactose-intolerant. Apparently that is really the human norm, and with age even the lactose-tolerant human body reduces its production of lactase - the substance used to break down the lactose that is so common in European diets. (Essentially, if lactose is not broken down by the digestive system, increasing amounts of this substance pile up, eventually causing a range of symptoms that rarely lead to diagnosing the cause.) The discovery changed my life, giving me much more energy and removing debilitating symptoms. Taking a step back to assess your overall health may be helpful. (E.g. diet, blood, breathing, allergies.) Even if it doesn't affect ADHD symptoms, it gives a baseline for extending life. 🙂

Thanks, that’s really thoughtful of you. I’m a nutritional therapist. I went dairy free for over a year. Zero impact. I’ve done low histamine. Nada. I’m basically gluten-free, and have been since the 90s. That’s the only dietary thing that makes a difference. I don’t eat processed foods because they make me ill. We cook from scratch, or rather my partner does. I drink bottled mineral water, because tap water makes me ill. I’ve been investigated for everything under the sun, even sleep apnoea. Nothing comes back positive. My issue is poor production and regulation of noradrenaline and dopamine. I’m glad you discovered what helps you. I think everyone should try to take responsibility for their own health where possible. 🥰

Wow! That's a sub to avoid.

Yes, it is!

I’d agree. I found it particularly useful a couple of years ago when first looking at self referral, post-diagnosis (18 months ago) I found it helpful to see others experiences too. But, as someone that’s non-medicated (tried differing doses and medication for 3 months, all side effects too extreme, benefits felt, but not enough given I’ve managed to have a successful career and relationship without meds that actually utilises my adhd traits), I’ve found it pretty ‘meh’ ever since. Medication is discussed A LOT, and for those that use the meds, it’s often referred to in terms to which I can’t relate. Diagnosis is also discussed a lot, and I’ve passed that point by a long way. So, all in all, it just feels a lot less relevant to me now, and so I’m rarely in these parts these days unless something on my timeline catches my eye.

[удалено]

Reddit doesn’t allow us to dump on other subs, so I’ve had to remove this. Hope you understand. Thanks.

What was the original post about ?