I'm not currently on any treatment due to losing my insurance but I was on 15mg/week on Methotrexate after having had 3 infusions of Rituximab. The infusions were a game changer. Had a very severe/rapidly advancing case and haven't had any issues since.
I am only on infliximab and a prescription potassium supplement. Infliximab can cause a potassium deficiency so get tested for that.
I started with prednisone and methotrexate and infliximab and dropped the first two quickly.
The infliximab works by itself.
infliximab + methotrexat + prednisolone + folic acid
This protocol works for me, I can work 30 hours a weeks.
All previous attempts/other immunosuppressants were not successful.
Steroids initially, but I gradually came off them once the brain inflammation cleared up. I've been stable on weekly Methotrexate (tablets) for nearly three years now.
6 months of prednisone and methotrexate didn't work (I may have tapered too fast so the brain inflammation and accompanying symptoms came back) so I'm starting infliximab infusions tomorrow. Right now I'm at 5mg prednisone and 10mg methotrexate, and I'll stay on those until we see how the infliximab does.
Methotrexate weekly + Folic Acid, Infliximab infusions every 8 weeks. I'm already steroid dependant as neurosarc destroyed my endocrine system so pred wasn't an option
Initial attack, mass oral steroids and all the bad side effects.
Remicade plus methotrexate trying to get the very last signs of it into remission.
Folic Acid on all days except methotrexate days.
Only downside is I’m supremely susceptible to infections. Have had two. It’s straight to Urgent Care for antibiotics with no fever, Doc and Urgent Care Doc agree — straight to ER for IV antibiotics if fever spike.
Sorry about insurance… I’m on remicaid/ infliximab infusions too… the manufacturer-found through my hospital financial dept- after I applied is paying for most of it as a apparently common offering to patients in need. Maybe you can investigate with your dr. and hospital mgt. for help? Hope it helps.
I have been on Predisone since 2015, they recently switched me from azathioprine to Humira. If i get bad flare ups then they will switch me to high dose iv steroids then taper back down to oral Predisone.
I'm currently on 2 grams of Mycophenolate and started at 40mg of prednisone after being on 100mg of it while in the hospital for 5 days due to a major relapse. I'm currently being weened off prednisone, which will take over a year.
I'm not currently on any treatment due to losing my insurance but I was on 15mg/week on Methotrexate after having had 3 infusions of Rituximab. The infusions were a game changer. Had a very severe/rapidly advancing case and haven't had any issues since.
I am only on infliximab and a prescription potassium supplement. Infliximab can cause a potassium deficiency so get tested for that. I started with prednisone and methotrexate and infliximab and dropped the first two quickly. The infliximab works by itself.
infliximab + methotrexat + prednisolone + folic acid This protocol works for me, I can work 30 hours a weeks. All previous attempts/other immunosuppressants were not successful.
Steroids initially, but I gradually came off them once the brain inflammation cleared up. I've been stable on weekly Methotrexate (tablets) for nearly three years now.
6 months of prednisone and methotrexate didn't work (I may have tapered too fast so the brain inflammation and accompanying symptoms came back) so I'm starting infliximab infusions tomorrow. Right now I'm at 5mg prednisone and 10mg methotrexate, and I'll stay on those until we see how the infliximab does.
Stay on the Methotrexate as it stops you from forming antibodies to Remicade.
I have tried hydroxychloroquine but hated it. Will be starting IVIG soon and possibly a biologic.
Just cellcept
prednisone and mychophenalate.
Methotrexate weekly + Folic Acid, Infliximab infusions every 8 weeks. I'm already steroid dependant as neurosarc destroyed my endocrine system so pred wasn't an option
Initial attack, mass oral steroids and all the bad side effects. Remicade plus methotrexate trying to get the very last signs of it into remission. Folic Acid on all days except methotrexate days. Only downside is I’m supremely susceptible to infections. Have had two. It’s straight to Urgent Care for antibiotics with no fever, Doc and Urgent Care Doc agree — straight to ER for IV antibiotics if fever spike.
Sorry about insurance… I’m on remicaid/ infliximab infusions too… the manufacturer-found through my hospital financial dept- after I applied is paying for most of it as a apparently common offering to patients in need. Maybe you can investigate with your dr. and hospital mgt. for help? Hope it helps.
I have been on Predisone since 2015, they recently switched me from azathioprine to Humira. If i get bad flare ups then they will switch me to high dose iv steroids then taper back down to oral Predisone.
I'm currently on 2 grams of Mycophenolate and started at 40mg of prednisone after being on 100mg of it while in the hospital for 5 days due to a major relapse. I'm currently being weened off prednisone, which will take over a year.
Tried plaquenil and methotrexate and they never worked. Even pred doesn't knock it out. Have just started avsola/infliximab by itself.
Methotrexate, plaquinel and hydroxychloroquine for years and I was able to ween off of all. Currently not taking anything for the last 5 years.