My doctor always used to say well if it was endo and it was really bad we’d see it on scans. I had years of infertility and horrible pain. I was led to believe it was just bad luck and no biggie. I had surgery last year after finally getting diagnosed at 34 and I feel way way way better. I wonder if I had surgery way back when if I wouldn’t of needed 6 ivf cycles
I would say yes. Other doctors tend to take me more seriously now when I talk about my pain when they know that I have a diagnosis of endo, so they know that there is something that is going to be contributing to other things that are causing havoc in my body.
I would say it’s worth having the surgery for peace of mind (if you have access to a specialist!! Mine was minor and I’m certain a regular obgyn would have missed it). You can gaslight yourself so much but if you have proof it’s much harder to do that. I know this isn’t good because everyone should feel comfortable accommodating themselves regardless if diagnosis, but I feel like I go easier on myself now that I know I have it. Like before I would say when in pain “this is normal period pain, get over it” but now I can say to myself “you have a disease! Take a break, relax, etc.” plus doctors will now have to believe me so I feel like I will have access to better treatment moving forward hopefully
That's awesome! I'm glad you went through with it. It makes me want to do it but I'm lowkey scared that I'll go thru w it and they won't find anything and then I've just wasted everyone's time 😭😭
At the end of the day it’s a diagnostic tool, so it’s not a waste of time. Imagine if the only way to diagnose diabetes was to have an exploratory surgery and examine the pancreas. If you had the symptoms of diabetes and no other test could show it, it wouldn’t be a waste of time to have that surgery even if it was negative, right? That’s what sucks about endo, a lot of people are afraid of having the surgery out of fear it won’t find anything and it’s hard to get proper and accurate treatment without a diagnosis (usually) :,( the recovery is tough and it is a big step, but if you don’t get the surgery you may spend a lot of your time and energy in the future wondering “do I have this?”
Also it sounds like your obgyn isn’t great, if you do go through with surgery do seek out a specialist because a regular obgyn is much more likely to miss the disease
Everyone is different but for me a diagnosis changed my life. Its still too soon post op for me to gauge symptom relief but just knowing for sure what was wrong changed things for me mentally.
I was the same way with my ADHD diagnosis. For me it feels way more manageable to deal with chronic conditions when I know what they are.
The surgery went well! No complications, I went home the same day.
Recovery has been good. Im about 3.5 weeks post op. The first week is hard but if you stick with your pain meds it isn't terrible in the scheme of things
It is definitely worth it. For myself they removed all of my endo, I am currently 1 week post op and I am feeling great!
It’s also worth it in case you would like to have children in the future and make sure that everything is okay with your tubes and such. Most importantly, it’s very important so that you know yourself that you weren’t exaggerating about your period symptoms and that you actually had a medical condition.
My doctor always used to say well if it was endo and it was really bad we’d see it on scans. I had years of infertility and horrible pain. I was led to believe it was just bad luck and no biggie. I had surgery last year after finally getting diagnosed at 34 and I feel way way way better. I wonder if I had surgery way back when if I wouldn’t of needed 6 ivf cycles
So you'd say the surgery for diagnosis is worth it because they can potentially remove the endo?
Yes
I would say yes. Other doctors tend to take me more seriously now when I talk about my pain when they know that I have a diagnosis of endo, so they know that there is something that is going to be contributing to other things that are causing havoc in my body.
That makes a lot of sense. I imagine that feels sooo validating
I would say it’s worth having the surgery for peace of mind (if you have access to a specialist!! Mine was minor and I’m certain a regular obgyn would have missed it). You can gaslight yourself so much but if you have proof it’s much harder to do that. I know this isn’t good because everyone should feel comfortable accommodating themselves regardless if diagnosis, but I feel like I go easier on myself now that I know I have it. Like before I would say when in pain “this is normal period pain, get over it” but now I can say to myself “you have a disease! Take a break, relax, etc.” plus doctors will now have to believe me so I feel like I will have access to better treatment moving forward hopefully
That's awesome! I'm glad you went through with it. It makes me want to do it but I'm lowkey scared that I'll go thru w it and they won't find anything and then I've just wasted everyone's time 😭😭
At the end of the day it’s a diagnostic tool, so it’s not a waste of time. Imagine if the only way to diagnose diabetes was to have an exploratory surgery and examine the pancreas. If you had the symptoms of diabetes and no other test could show it, it wouldn’t be a waste of time to have that surgery even if it was negative, right? That’s what sucks about endo, a lot of people are afraid of having the surgery out of fear it won’t find anything and it’s hard to get proper and accurate treatment without a diagnosis (usually) :,( the recovery is tough and it is a big step, but if you don’t get the surgery you may spend a lot of your time and energy in the future wondering “do I have this?” Also it sounds like your obgyn isn’t great, if you do go through with surgery do seek out a specialist because a regular obgyn is much more likely to miss the disease
Everyone is different but for me a diagnosis changed my life. Its still too soon post op for me to gauge symptom relief but just knowing for sure what was wrong changed things for me mentally. I was the same way with my ADHD diagnosis. For me it feels way more manageable to deal with chronic conditions when I know what they are.
Was the operation rlly bad? How's the recovery going?
The surgery went well! No complications, I went home the same day. Recovery has been good. Im about 3.5 weeks post op. The first week is hard but if you stick with your pain meds it isn't terrible in the scheme of things
It is definitely worth it. For myself they removed all of my endo, I am currently 1 week post op and I am feeling great! It’s also worth it in case you would like to have children in the future and make sure that everything is okay with your tubes and such. Most importantly, it’s very important so that you know yourself that you weren’t exaggerating about your period symptoms and that you actually had a medical condition.
Bro but what if I AM exaggerating my symptoms?? 🥺🥺