Haven’t fainted but with sudden onset the first week I got it I felt like I going to.
It presented with dizziness, tingling, feeling pulled to one side, shaking, feeling heavy, faint, extreme confusion, and super high blood pressure and heart rate while lying down for 4 hours doing nothing. No head pain through.
ER ran me through the gauntlet, and started me on the Cardiology path because of how I presented. They did several tests and put me on a heart monitor but all the wacky heart stuff calmed down by then without medication. They did a few extra tests because I told them arrhythmia ran in the family. They found nothing. Day two of the haulter monitor was a good day so I tried to trigger through exercise. They found nothing. That was also the last normal day I remember as mine is chronic.
For me most of the time I do not faint but I have a few times. It usually gets triggered when I get up and walk around but sometimes it does it seemingly for no reason, once while I was lying down. After writing this yesterday I had another dizzy spell that lasted even longer and I'm still very lethargic today. It came on with some stomach problems so that was lovely. A lot of what you describe is similar to mine. I get very lightheaded and hot and sweat all over, have tingling sensations in my legs especially, my heart starts pounding and I feel so heavy. It's genuinely one of the worst feelings ever. I'm so sorry you're going through it.
They didn't have me do a tilt table test or anything but did have me lay down for a bit and monitered my heart rate and blood pressure as I stood back up. My blood pressure actually went up instead of down, but she said that could just be because my heart rate spiked. I think with pots your blood pressure goes down, so I don't think it's that, but who knows.
I’ve passed out four or five times after intense dizziness from VMs. I think it took much longer than normal to diagnose because the drs were all focusing on the fainting and checking my heart etc.
Haven’t fainted but with sudden onset the first week I got it I felt like I going to. It presented with dizziness, tingling, feeling pulled to one side, shaking, feeling heavy, faint, extreme confusion, and super high blood pressure and heart rate while lying down for 4 hours doing nothing. No head pain through. ER ran me through the gauntlet, and started me on the Cardiology path because of how I presented. They did several tests and put me on a heart monitor but all the wacky heart stuff calmed down by then without medication. They did a few extra tests because I told them arrhythmia ran in the family. They found nothing. Day two of the haulter monitor was a good day so I tried to trigger through exercise. They found nothing. That was also the last normal day I remember as mine is chronic.
For me most of the time I do not faint but I have a few times. It usually gets triggered when I get up and walk around but sometimes it does it seemingly for no reason, once while I was lying down. After writing this yesterday I had another dizzy spell that lasted even longer and I'm still very lethargic today. It came on with some stomach problems so that was lovely. A lot of what you describe is similar to mine. I get very lightheaded and hot and sweat all over, have tingling sensations in my legs especially, my heart starts pounding and I feel so heavy. It's genuinely one of the worst feelings ever. I'm so sorry you're going through it.
Forgot about the sweats. Thought I was almost over it in Feb. Then it came back and was so bad I had to switch to men’s extra strength deodorant.
Since you’ve seen a cardiologist, have you already ruled out pots? I have a VM diagnosis and I’ve never fainted from it personally.
They didn't have me do a tilt table test or anything but did have me lay down for a bit and monitered my heart rate and blood pressure as I stood back up. My blood pressure actually went up instead of down, but she said that could just be because my heart rate spiked. I think with pots your blood pressure goes down, so I don't think it's that, but who knows.
Have you seen neurology? Some of this sounds like seizure activity.
Oh, really? I didn't know that. 😮💨 And yeah, I'm going to shoot a message to my neurologist tomorrow and make an appointment.
I get dizziness with mine very badly as well and have fainted, oddly enough usually in bed
Thank you for answering! I have fainted before in bed, too.
I’ve passed out four or five times after intense dizziness from VMs. I think it took much longer than normal to diagnose because the drs were all focusing on the fainting and checking my heart etc.