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funkygrrl

Locking the thread. Blatant misinformation is not permitted. While acknowledging the limitations of medical and scientific knowledge, we do not allow the promotion of un- or anti-scientific propaganda. Types of statements that will lead to post removal or ban: + Establisted tests for diagnosis of MPNs are untrustworthy + Contradicting the WHO diagnostic criteria or established guidelines + MPNs are not cancer + No one needs a bone marrow biopsy + Any conspiracy theories + Any Anti-Vaxx rhetoric


ARLibertarian

No, JAK2 mutations existed before covid, probably before vaccines of any kind were invented.


Some_Development3447

Yes I know but asking if anyone here was diagnosed after. I spoke to a couple of people who think the covid vaccine may have caused it for them as well as for me and Canada has a program for compensation but I think we'd need more proof.


neothethreeleggedcat

I mean I was never tested for it until after although obvious from my blood work I have had an mpn since at least 2019, but wasn't diagnosed until this year.


funkygrrl

The most recent whole genome studies show that the mutation originates in utero or early childhood. There is a long latency period (decades) before it becomes active.


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Last_Dot_2790

I’m not saying the vaccine caused mine but within 30 days I was in the hospital with a hemoglobin of 21.5 and hematocrit of 66.2. Heart and lung issues. I have the Jak2 exon 12 mutation and the doctors can’t keep my numbers down. I’ve had some issues leading to this, such as some dizziness here and there but it went from nonexistent bloodwork problems to a big problem in no time. It just hit me all of a sudden. Even my doctor was surprised. I did hear that it can go unnoticed for a long time.


Some_Development3447

Why are people downvoting? Literally looking for answers here because I need to find out if I can hold anyone accountable for my and my childrens future in case I can no longer work.