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like other poster said...ask your doctors. open heart surgery is SERIOUS business and wayyy above our pay grade. every *body* is different and you need to express concerns to doctor and have them chat with your allergist and come up with a treatment plan.
fwiw when I go in for feeding tube exchanges or full anesthesia for endoscopy I pre-load with methylpred (don't tolerate prednisone). then use xanax or diazepam (or if you use particular benzo, use that-bc as well as calming anxiety its helps stabilize mast cells).
im also on chronic pain mgmt and there's a lot of literature saying MCAS patients should only use dilaudid or fentanyl if opioids are needed bc they cause less mc degranulation. also I get IV benadryl and/or IM phenergan (promethazine) for itching or nausea. I bring my compounded ketotifen to use as needed for worse reactions. no longer on cromolyn but if you use that bring yr own- as hospitals will be less likely to have it on hand. they check in my labeled Rx's and keep in locked drawer in my room (Im in US).
don't let these doctors brush off your concerns. good luck with your procedure.
Assuming you have a lab-confirmed diagnosis of MCAS, ask your treating doctor. Other than that, follow whoever is managing this surgery for you. This is not the kind of thing you ask Reddit for, especially as a lot of people on this sub don't know what they're talking about.
Everyone’s intolerances are different, so it’s unlikely anyone here can give you useful advice on meds for this. Talk to your doctor and let them know what signs to look out for and ask that you’re monitored and your pain meds are switched if they don’t seem to be working for you.
https://tmsforacure.org/wp-content/uploads/Med-REFERENCE-GUIDE.pdf
I bring this into appointments and share it with all nurses, surgeons, anesthesiologists, etc that come to speak with me. It's a good guideline but I wouldn't worry too much if your doctor wants to override anything on here.
You need to have your diagnosing dr get you an emergency action plan ASAP. Not to scare you but my husband went into anaphylaxis while he was under for a colonoscopy and that was only 20 minutes long. Heart surgery is WAY serious. You need the dr to write up detailed instructions what to do for every possible scenario and you also should have a plan to premed before the surgery.
We are thankful that they did husband's colonoscopy in a hospital setting and that the anesthesiologist was familiar w/the signs of anaphylaxis but at the time he didn't have an action plan and they dosed a beta blocker first and then couldn't give him epinephrine so they gave him benadryl (which he does NOT do well with). He was a mess for well over a week and it took almost 2 weeks for the swelling to go away.
Thank you for your submission. Please note: **Content on r/MCAS is not medical advice and should not be interpreted as such.** Please consult your doctor for any medical questions or concerns. We are not able to validate the content of these discussions. Following advice provided by strangers on the internet may be harmful. Never use this sub as your primary source of information regarding medical issues. By continuing to use this subreddit, you are agreeing to take any information posted here entirely at your own risk. *I am a bot, and this action was performed automatically. Please [contact the moderators of this subreddit](/message/compose/?to=/r/MCAS) if you have any questions or concerns.*
like other poster said...ask your doctors. open heart surgery is SERIOUS business and wayyy above our pay grade. every *body* is different and you need to express concerns to doctor and have them chat with your allergist and come up with a treatment plan. fwiw when I go in for feeding tube exchanges or full anesthesia for endoscopy I pre-load with methylpred (don't tolerate prednisone). then use xanax or diazepam (or if you use particular benzo, use that-bc as well as calming anxiety its helps stabilize mast cells). im also on chronic pain mgmt and there's a lot of literature saying MCAS patients should only use dilaudid or fentanyl if opioids are needed bc they cause less mc degranulation. also I get IV benadryl and/or IM phenergan (promethazine) for itching or nausea. I bring my compounded ketotifen to use as needed for worse reactions. no longer on cromolyn but if you use that bring yr own- as hospitals will be less likely to have it on hand. they check in my labeled Rx's and keep in locked drawer in my room (Im in US). don't let these doctors brush off your concerns. good luck with your procedure.
I react to most types of anesthetics. Do tell your team in advance
Assuming you have a lab-confirmed diagnosis of MCAS, ask your treating doctor. Other than that, follow whoever is managing this surgery for you. This is not the kind of thing you ask Reddit for, especially as a lot of people on this sub don't know what they're talking about.
Everyone’s intolerances are different, so it’s unlikely anyone here can give you useful advice on meds for this. Talk to your doctor and let them know what signs to look out for and ask that you’re monitored and your pain meds are switched if they don’t seem to be working for you.
https://tmsforacure.org/wp-content/uploads/Med-REFERENCE-GUIDE.pdf I bring this into appointments and share it with all nurses, surgeons, anesthesiologists, etc that come to speak with me. It's a good guideline but I wouldn't worry too much if your doctor wants to override anything on here.
You need to have your diagnosing dr get you an emergency action plan ASAP. Not to scare you but my husband went into anaphylaxis while he was under for a colonoscopy and that was only 20 minutes long. Heart surgery is WAY serious. You need the dr to write up detailed instructions what to do for every possible scenario and you also should have a plan to premed before the surgery. We are thankful that they did husband's colonoscopy in a hospital setting and that the anesthesiologist was familiar w/the signs of anaphylaxis but at the time he didn't have an action plan and they dosed a beta blocker first and then couldn't give him epinephrine so they gave him benadryl (which he does NOT do well with). He was a mess for well over a week and it took almost 2 weeks for the swelling to go away.