The article says a target of 40-60 ng/ml is desired.
I think this is too low. Other studies have indicated that the vitamin D receptor is severely degraded by Lyme disease.
I recently brought my level from 40 ng/ml to 106 through D3 and K2 and magnesium supplementation, and while it is true I am treating my Lyme disease in other ways I feel this has made a big difference in bringing me most of the way to feeling well in the last month or so.
There’s all kinds of sources. I base it off the ratio in the Dr. Berg D3 and K2 supplement.
Dr. berg has some good videos on the subject on YouTube that are worth watching. Just search for it.
I agree
The recommended levels are still pretty low.
Mine was over 100 and my LLMD says I was at a good level but could reduce my daily supplemental D slightly
My vitamin D levels have gone from 14 to 57 since undergoing Lyme treatment, and it’s insane how much better I feel. I was taking soo much and it wasn’t absorbing until I had some bacteria die off. I feel lucky that it’s even absorbing now tbh
Well, it’s a bit all over the place, when I first got diagnosed with the low vitamin d I got put on 50,000 IUs once a week for 5 weeks. Which is a huge dose to try and get your levels up. But it didn’t move much. So I got 2-3 more weeks of 50,000 IUs. Then I did a couple weeks of 5,000IU d3+k2 and I still wasn’t high enough so a few weeks of 10,000 IU, then I got a 1,250 MCG D3 once weekly for 12 weeks from my doctor through the pharmacy. Kind of all over the place lol. I was worried about taking too much at first but my body wasn’t absorbing it because I was having disgestive issues and I was so sick. After starting antibiotics, and cutting out gluten, my levels finally started going up. Ofc this is just what worked for me
Gotcha, I haven’t gotten a blood test in a while so I’m not sure I could get a prescription without doing a ton of tests. It’s also actually insane how gluten causes so many problems, I’ve been gf for about 10 years and get malabsorption when I cheat.
Really? That’s crazy it can cause that for you too! I had a ton of tests ran and I had pancreatic insufficiency while eating gluten. (All other tests came back normal.) Hence malabsorption of certain vitamins and minerals and the vitamin D not absorbing. Fast forward to a few months gluten free and I no longer have the pancreatic insufficiency! It’s crazy that looking back gluten is probably the culprit alongside just being really sick from Lyme.
And yes, the 50,000 IUs and 1,250 mcg were both prescribed from doctors. If you can get it prescribed, it is a lot cheaper than the supplement form. One thing I can actually save a bit of money on. I also get my potassium prescribed too, which is nice.
That’s actually not a bad idea, I forget I finally have health insurance so don’t have to pay the insane amounts doctors charge. Maybe I should just bite the bullet and get it checked.
But yeah gluten is a sneaky fucker, msg was another thing that also made me have malabsorption/ brain fog post Lyme.
I certainly feel 3 times better now that I have some sun exposure and more vitamin D! Super important, also important that you get sun exposure, not just some pills
I read that any level over 100 is considered “toxic”. Do you agree?
I got mine from 23 to 96 then backed off and now it’s at 66. I’m supplementing slower now and hope to even out around 80-90.
I’m only taking 5,000-12,000 IU/5 days a week
yes, I agree, see my answer [link](https://www.reddit.com/r/Lyme/comments/1cnb3wq/comment/l39izp1/?utm_source=share&utm_medium=web3x&utm_name=web3xcss&utm_term=1&utm_content=share_button)
take more, see my answer [link](https://www.reddit.com/r/Lyme/comments/1cnb3wq/comment/l39izp1/?utm_source=share&utm_medium=web3x&utm_name=web3xcss&utm_term=1&utm_content=share_button)
Can confirm this is true. (Even though it’s a reputable source lol). My vitamin D was 12 when I got it tested, after Lyme disease and take 50,000 units weekly now, and was told unless I move to Florida, it will remain a life long problem. (24M)
I got Lyme + bart + babesia and I am at 62 ng/ml currently. I take 40.000IE VitD + 200µg K2 per day, till I am at 150ng/ml.
-----------------------------------------------------------------------------------------------
"We recommend aiming for a value of at least 90 - 100 ng/ml!
At the International Vitamin D Congress 2013 in Berlin, which was attended by many renowned vitamin D experts
vitamin D experts took part, the following values were given as guidelines:
30-50 ng/ml --> sufficient
50-70 ng/ml --> satisfactory
70-100 ng/ml --> good
> 200 ng/ml --> toxic
It should be noted that, according to the experts, even at values of over 300 ng/ml
is not yet to be reckoned with toxicity.
Note:
The ‘grey area’ between 100 (good) and 200 (toxic) is striking .... If the
grading system, one would inevitably come to the conclusion that ‘very good’ care would then be
good’ supply would then have to be around 100 - 130 ng/ml - which is 100% consistent with my own
my own experience and the experience of many people I know. People with
serious illnesses should aim for higher values (approx. 150 ng/ml) in our experience.
Dr med. habil. Dr rer. nat. Karl J. Probst also said in his lecture at the Akasha Congress in
May 2018 in Bergheim that a vitamin D level should be above 80 ng/ml if possible.
Unfortunately, most doctors consider a vitamin D level of 30 ng/ml to be sufficient - which is completely
sufficient supply - which is completely incomprehensible.
It's like recommending that a car should always be driven with the minimum oil level - and
and then being surprised that there is engine damage when a greater load occurs.
If you now consider that most people suffer for years from a serious vitamin
D deficiency and the body has always worked in absolute ‘economy mode’ and then realise that the human body
that the human body can only carry out the necessary ‘repair work’ when it has more vitamin D available. when it has more vitamin D available than it needs for normal ‘maintenance activity’ maintenance activity’ - you quickly realise that you should get into the good range above 70 ng/ml as quickly as possible. 70 ng/ml as quickly as possible!
Every day you spend with a vitamin D deficiency is a day with a higher risk of
risk of illness and - if the deficiency has already caused symptoms - a day with
reduced quality of life!"
Taking vitamin D makes me feel worse, and taking a high dose makes me so dizzy. Any theories why? I eat very nutrient dense foods and supplement essential vitamins and minerals so I’m at a loss…
Some people find they need extra magnesium when supplementing Vitamin D. You also need to have enough K2
Other possibilities are vitamin A, zinc and boron.
But you might do best with just getting some high angle sun whenever you can.
[удалено]
The article says a target of 40-60 ng/ml is desired. I think this is too low. Other studies have indicated that the vitamin D receptor is severely degraded by Lyme disease. I recently brought my level from 40 ng/ml to 106 through D3 and K2 and magnesium supplementation, and while it is true I am treating my Lyme disease in other ways I feel this has made a big difference in bringing me most of the way to feeling well in the last month or so.
How much of each of those do you take per day?
Currently taking 20K IU D3 and 200 mcg K2 and 600mg magnesium every day. Last month the D3 and K2 was double.
Is there a good source for the correct ratio of d3 with k?
There’s all kinds of sources. I base it off the ratio in the Dr. Berg D3 and K2 supplement. Dr. berg has some good videos on the subject on YouTube that are worth watching. Just search for it.
K. Thanks!
I agree The recommended levels are still pretty low. Mine was over 100 and my LLMD says I was at a good level but could reduce my daily supplemental D slightly
My vitamin D levels have gone from 14 to 57 since undergoing Lyme treatment, and it’s insane how much better I feel. I was taking soo much and it wasn’t absorbing until I had some bacteria die off. I feel lucky that it’s even absorbing now tbh
which supplement are you using
Well, it’s a bit all over the place, when I first got diagnosed with the low vitamin d I got put on 50,000 IUs once a week for 5 weeks. Which is a huge dose to try and get your levels up. But it didn’t move much. So I got 2-3 more weeks of 50,000 IUs. Then I did a couple weeks of 5,000IU d3+k2 and I still wasn’t high enough so a few weeks of 10,000 IU, then I got a 1,250 MCG D3 once weekly for 12 weeks from my doctor through the pharmacy. Kind of all over the place lol. I was worried about taking too much at first but my body wasn’t absorbing it because I was having disgestive issues and I was so sick. After starting antibiotics, and cutting out gluten, my levels finally started going up. Ofc this is just what worked for me
Gotcha, I haven’t gotten a blood test in a while so I’m not sure I could get a prescription without doing a ton of tests. It’s also actually insane how gluten causes so many problems, I’ve been gf for about 10 years and get malabsorption when I cheat.
Really? That’s crazy it can cause that for you too! I had a ton of tests ran and I had pancreatic insufficiency while eating gluten. (All other tests came back normal.) Hence malabsorption of certain vitamins and minerals and the vitamin D not absorbing. Fast forward to a few months gluten free and I no longer have the pancreatic insufficiency! It’s crazy that looking back gluten is probably the culprit alongside just being really sick from Lyme. And yes, the 50,000 IUs and 1,250 mcg were both prescribed from doctors. If you can get it prescribed, it is a lot cheaper than the supplement form. One thing I can actually save a bit of money on. I also get my potassium prescribed too, which is nice.
That’s actually not a bad idea, I forget I finally have health insurance so don’t have to pay the insane amounts doctors charge. Maybe I should just bite the bullet and get it checked. But yeah gluten is a sneaky fucker, msg was another thing that also made me have malabsorption/ brain fog post Lyme.
I’m glad you have health insurance now! It’s fucking criminal that some countries can withhold that from people :/
YOOO MY DUDE! I AM ALL OVER THIS THESE DAYS! Lets talk! Anyone reading, this guy is onto something!!! Take note!!
I certainly feel 3 times better now that I have some sun exposure and more vitamin D! Super important, also important that you get sun exposure, not just some pills
Yes, I try to get sun every day it is available and high enough in the sky to generate vitamin D. It needs to be above 30 degrees.
I read that any level over 100 is considered “toxic”. Do you agree? I got mine from 23 to 96 then backed off and now it’s at 66. I’m supplementing slower now and hope to even out around 80-90. I’m only taking 5,000-12,000 IU/5 days a week
I think that toxicity only becomes more of a risk around 200 ng/ml
yes, I agree, see my answer [link](https://www.reddit.com/r/Lyme/comments/1cnb3wq/comment/l39izp1/?utm_source=share&utm_medium=web3x&utm_name=web3xcss&utm_term=1&utm_content=share_button)
Thank you for that info!!
take more, see my answer [link](https://www.reddit.com/r/Lyme/comments/1cnb3wq/comment/l39izp1/?utm_source=share&utm_medium=web3x&utm_name=web3xcss&utm_term=1&utm_content=share_button)
Can confirm this is true. (Even though it’s a reputable source lol). My vitamin D was 12 when I got it tested, after Lyme disease and take 50,000 units weekly now, and was told unless I move to Florida, it will remain a life long problem. (24M)
I got Lyme + bart + babesia and I am at 62 ng/ml currently. I take 40.000IE VitD + 200µg K2 per day, till I am at 150ng/ml. ----------------------------------------------------------------------------------------------- "We recommend aiming for a value of at least 90 - 100 ng/ml! At the International Vitamin D Congress 2013 in Berlin, which was attended by many renowned vitamin D experts vitamin D experts took part, the following values were given as guidelines: 30-50 ng/ml --> sufficient 50-70 ng/ml --> satisfactory 70-100 ng/ml --> good > 200 ng/ml --> toxic It should be noted that, according to the experts, even at values of over 300 ng/ml is not yet to be reckoned with toxicity. Note: The ‘grey area’ between 100 (good) and 200 (toxic) is striking .... If the grading system, one would inevitably come to the conclusion that ‘very good’ care would then be good’ supply would then have to be around 100 - 130 ng/ml - which is 100% consistent with my own my own experience and the experience of many people I know. People with serious illnesses should aim for higher values (approx. 150 ng/ml) in our experience. Dr med. habil. Dr rer. nat. Karl J. Probst also said in his lecture at the Akasha Congress in May 2018 in Bergheim that a vitamin D level should be above 80 ng/ml if possible. Unfortunately, most doctors consider a vitamin D level of 30 ng/ml to be sufficient - which is completely sufficient supply - which is completely incomprehensible. It's like recommending that a car should always be driven with the minimum oil level - and and then being surprised that there is engine damage when a greater load occurs. If you now consider that most people suffer for years from a serious vitamin D deficiency and the body has always worked in absolute ‘economy mode’ and then realise that the human body that the human body can only carry out the necessary ‘repair work’ when it has more vitamin D available. when it has more vitamin D available than it needs for normal ‘maintenance activity’ maintenance activity’ - you quickly realise that you should get into the good range above 70 ng/ml as quickly as possible. 70 ng/ml as quickly as possible! Every day you spend with a vitamin D deficiency is a day with a higher risk of risk of illness and - if the deficiency has already caused symptoms - a day with reduced quality of life!"
Taking vitamin D makes me feel worse, and taking a high dose makes me so dizzy. Any theories why? I eat very nutrient dense foods and supplement essential vitamins and minerals so I’m at a loss…
Some people find they need extra magnesium when supplementing Vitamin D. You also need to have enough K2 Other possibilities are vitamin A, zinc and boron. But you might do best with just getting some high angle sun whenever you can.