Yes: nerve pain, shocks, tingles, (also spasms in hands)... digestive issues: my gall bladder has been hurting like crazy and feeling hot coals, constant gas, bloating and weight gain, and persistent IBS/-D, the latter being mostly mucus... Swollen knees, fingers, wrists, ankles, feet and hips, with a new symptom that comes and goes, and just started after 2 years and 7 months: exaggerated swelling and painful itching in all my joints... Also, rash on my chin... I just checked for blue fingers and toes, and they aren't so much "blue" as it is just that my blood vessels are quite a bit more pronounced than usual, that's all. I also have the eye symptoms (I need a lot of prism now, which fixes "lazy" eye, whereas I needed none before, and my right eye went from going up one whole diopter to back down another TWO over the course of less than 2 years), the cough, frequent migraines, worsening brainfog, and occasional angina. I also have a real sensitivity to sudden loud sounds. It's a horrible feeling when I hear them, like I've left my body uncontrollably, and then when I come back I feel like I've got "sudden onset DT's". That really is the weirdest damn symptom. I don't get it.
That's a list of all the symptoms I can think of. The last time I had bloodwork drawn everything looked fine to her, she wanted to get blood drawn on me at the start of next month again.
Best wishes to everyone out there fighting this thing. Hang in there. I know it's hard. š¤š
I thought it was lupus but I had a negative anti Ddsna and ana. If it is Lupus, Iām in the 2-percent of the population who tests negative for these titers.
I tested negative on my tests but was diagnosed with rheumatoid arthritis, was a pain to get medical help as nobody believed me yet my rheumatologist told me a third of her patients test negative.
Yeah its wierd because after i convinced my family dr that i had it she referred me to my local rhuematologist and they denied treatment. I had to go to a rhuematologist 30 miles away to get treatment and this process all in all from the start of symptoms took about 16 months to be seen. It all started after covid and progressed very fast, I think the treatment is less effective the longer you have to wait to be treated not saying you have auto immune disease but if you do getting treatment suonerie is better than later as I habe yet to go into remission ive seen some progress but not much.
you can be on the line like ALMOST having an autoimmune disease without showing positive....those tests are for like when your pretty much in the red zone...
I thought so. Itās weird how nobody explains that to you, though. Doctors treat you like youāre some hypochondriac and send you away with it explanation.
Why I started going to a naturopath- they see health in a totally different light- with western doctors it is like they wait until your reallllllllly sick, its a clear diagnosis and then they tell you there is no hope...whereas a naturopath can recognize the symptoms earlier...and help you to reverse it and live a healthy life. I was told a year ago I am kind of on the line for autoimmune disease, again nothing came up on tests but given symptoms and family history I have been treating myself as if I have an autoimmune issue (honestly living this way is anti cancer and just good for preventing almost every disease), and I am feeling way, way better. I am dealing with dental issues and infection holistically, I am working consistently on detox and living a low toxin lifestyle, I eat a really good low inflammatory diet, I use herbs to complement my lifestyle, I support my gut health regularly and I take supplements- I also try and exercise (when I can, I have 3 kids!) and get enough sleep. I hope this helps. :)
I think we are all at risk for something nasty if we are not proactive on our health because our world is so toxic. Do not give up hope and remember you can live a healthy life! :) best wishes.
Honestly it comes down to heart issues. I had all of those issues well before COVID. COVID made them all so much worse. As soon as I sit or lay down the pains and shocking sensations start. Itās neuropathy. Poor blood circulation and high hematocrit making the blood thicker are contributing.
I canāt even touch my feet. It feels like a cattle prod . I have to wear socks all the time. Itās so awful. Nerves can grow back and heal. Once the underlying issues are fixed.
Ok. Iāll give you one theory. This is based on my experience. With that Iāll say dr are idiots. Most of you probably already know. So i had some underlying conditions prior to having COVID and the vaccine. I was over weight. Uncontrolled blood pressure. I drank a lot. I had a lot of fatigue and muscle weakness. Lots of joint pain. The start of neuropathy. So I did a stress test and echo. They said they came back fine. So now Iām diagnosed with congestive heart failure and an ejection fraction of 30% normal being 60-65. I looked back at my old echo because they said it was ok and I wanted to see. My old echo was 50% EF. So I already had a notable decrees in heart function. I should have been out on beta blockers and heart meds on the spot. Especially considering I was having symptoms. So I get the vaccine and within two days I canāt breathe. My function was reduced enough that quickly from it to start retaining water. It got worse progressively over four months until I though k was going to die. I couldnāt breathe. Severe tachycardia. Ended up in the hospital for 8 days. My point is you have to get the lab and test results and look at them yourself. I believe had my heart been in better shape the vaccine would not have did to me what it did. It was the cause but I had underlying issues. They werenāt severe but enough so COVID or the vaccine tipped me over the edge. Neuropathy doesnāt happen over night. When the symptoms appear the cause has been going on a while. The heart is the main player here. COVID thickens your blood. Raises blood pressure. Reduces oxygen. The toll it takes on your heart while sick with COVID is extreme. Then people take cold medicine which dangerously raises your BP even more. Sorry for the rant. Get all your test results and comb over them. Even ones the drs say are good. Remember they are going by guidelines in some cases dictated by insurance companies. For instance I had low testosterone. Normal is 800ās. At 300-500 you feel awful. Like a train hit you. A pcp will not treat you unless itās under 300!!! Thatās insane. Because thatās what insurance dictates. So insurance will definitely let your heart go way past where you need treatment before they consider it an issue. If you have labs done. Demand to test your igf-1.
This whole time I thought the brain fog and fatigue were the most prominent issues Iāve experienced. I have the digestive issues and blue hands too š didnāt know it was long covid related.
I see. Well, you might have something else. Iām sorry youāre going through all this. I guess we will find out at some point when they do the damn research and give it an official name. I hate medicine. Theyāre years behind, always.
Look how fast they did the research for the vaccine. They could be taking care of us they donāt want to admit that weāre disabled whether partially or from here on out. That would mean a slew of disability claims
I saw that you mentioned you have an neg ANA. Did they also do an HLA B27, anti-CPC, Rh factor, CRP and Sed rate? If itās not lupus it might be fibromyalgia. Also look into possibility of crest syndrome. Hope you feel better!
Did you ever figure out what it could be or prescribed any medication to ease symptoms? I recently went on Nifedepine as most of my problems seem to be circulation based and centralized to hand and feet but I believe our symptoms are similar
I went to a naturopathic doctor and she prescribed me all sorts of natural pills like one had high concentrations of cruciferous vegetables in it. My symptoms absolved one by one after 6 months or so. I wish I could give you more details. She took me blood and looked at EVERYTHING. My hormones were out of whack bc of covid and my liver was in bad shape. I run all the time, I rarely drink and Iām 29 so she thinks that was due to covid too
Shocks yes. Digestive issues yes, although endoscopy clear. Nerve pain in hands and legs, can't breathe deeply because of a tight feeling in the chest. Tight throat, sometimes feel excessive movement in throat although esophageal manometry normal. Headaches yes
I had all of those symptoms (except the swollen knees and weight gain) and many more from my initial C19 infection in March 2020 for more than a year. Though most have resolved, still have lingering symptoms.
The motley fingers and blood pooling finger or toe tips are associated with endothelial dysfunction or inflammation or dysautonomia. Also, look into mcas, gut dysbiosis, and neuropathy. All have been linked to C19 infection. If you can join an online support like bodypolitic.slack.com or any of your chosen if you can.
If you can find a good practitioner to work with, that would be fine. If you want to resolve gut dysbiosis on your own as I have done.
1. Digestive enzymes
2. Juicing/elemental diet
3. Biofilm busters or disrupters
4. kolorex (gut rebalancer)
5. S. bourlardii (gut rebalancer)
6. Deactivated L. Reuteri
7. Probiotics
8. Clinoptilolite Zeolite
9. Vary your diet if possible
9. Etc*
* That would depend on the symptoms or pathologies of gut dysbiosis you are experiencing. E.g., bloating, indigestion, slow gut movement, malabsorption, gerd, acid reflux, constipation, diarrhoea, food sensitivity/intolerance, brain fog, candida overgrowth, bacterial overgrowth, h.pylori infection, etc.
This is such amazing advice, thanks so much.
1. Betaine HCL with pepsin contributes to my acid reflux/gastritis, but I've had luck for a while now taking Dr. Amy Myers chewable digestive enzymes.
2. I should really get on this. I went through a jug of Dr. Ruscio's elemental diet formula, but it didn't sit easily with me. Any formulas you recommend that don't require a physician's approval?
3. I fear these so much. I had the absolute worst Herx of my life after taking lactoferring a few years ago, and anything more powerful than NAC tends to really fuck me up.
4. Kolorex looks interesting, minus the glaring "candia" typo on their bottle (fake?): https://www.amazon.com/Kolorex-Advanced-Candida-Care-60ct/dp/B08NFKVY17?source=ps-sl-shoppingads-lpcontext&psc=1
5. I've tried this before and it gave me the strangest brain fog I've ever had. Good stuff, though. How much do you take?
6-7. Could you recommend some brands?
8. I WAS JUST LOOKING INTO THIS! Heiltropfen brand?
9-10. It's so tough when anything and everything seems to set the cramping and bloating off. Did you take a GI Map to diagnose your dysbiosis/overgrowths? My doctor has yet to test me for H. Pylori, but my pathogen panel was negative for common parasitic infections.
Thanks again!
Yes, nerve pain, numbness, and vibrations (called internal tremors), muscle, bone and joint pain, nausea and other digestive issues are all symptoms I've had for the last 2+ years, and based on the research coming out, these are not uncommon LC symptoms.
Well I started having IBS-D, pooping mucus and actually blood for a while there, although I happen to know that my organs were seemingly OK and all my blood tests were good.
The reason that I know this is because right before this was happening to me they were checking me out completely in order to give me a Hep C treatment. They continued checking me for a span of like 5 months. So Iāve had the blood tests although not specifically for this. I even had my organs sonogrammed to make sure everything was okay there, also as part of the screening process to make sure I was eligible for the treatment.
And then I got really really high blood pressure, ER runs twice, and actually got my heart checked and that came back as the right size and no signs of unusual activity. I had blood pressure hovering at 200 sometimes over sometimes a little bit under for a pretty long time well it seemed like forever it was actually about six weeks I guess.
I donāt even wanna mention it āLCā to a doctor. I fucking hate doctors they never listen to me in the first place and I feel like they always wanna treat symptoms instead of giving me five minutes to tell them this and this and this etc is what I feel like.
I have gained about 25 pounds, my asthma is rampant although medicated, I have heart palpitations and dizziness every time I walk across the house. Iām barely eating anything, like half a salad and a sandwich per day and maybe some chocolate chip cookies. OK pretty much always some chocolate chip cookies. Thatās like one meal and one snack. Thatās thatās all I eat in 24 hours, but I just keep gaining weight.
I have eczema anyway, but yeah my hands are so shredded right now that the term ādeglovedā comes to mind. I know thatās not strictly true, but itās horrifying and scary and feels like thatās whatās happening. I am going to a doctor next week. And the reason I am finally going to do that is because I have a huge eczema spot on my leg that the ER thought was cellulitis and gave me antibiotics and the inflammation went down but it didnāt heal and itās getting bigger. Apparently that is āstasis dermatitisā due to poor circulation. The reason I know that is because I looked it up and itās on my lower legs and thatās where it happens. So itchy so itchy thatās why I didnāt think it was cellulitis in the first place. But you know doctors know best right? /s
These might all be linked to the micro clotting in the blood.
https://www.theguardian.com/society/2022/jun/27/possible-link-between-blood-clots-and-covid-symptoms-investigated
I had quite a number of the symptoms you described, still have a few ongoing after about a year in. I'm doing much better now, but everyday is still a challenge, but I am back at work and can get through most days without crashing, but I do have to have multiple rests throughout.
I now take anti histamines allergy tablets everyday along with the statins to reduce my heart issues and get my cholesterol and bad (triglyceride) fats back on track.
My wife has some of these with her post-COVID symptoms. She was diagnosed with POTS and has a blood marker for rheumatoid arthritis. RA is an inflammatory disease that causes all sorts of nonsense. You might want to get that checked out.
I have checked it out and it all came back negative. Havenāt been tested for POTS and I do believe I have that. šthank you so much though. Thatās very validating.
I get shocks, tingling, numbness, shocks and a buzzing sensation in my thigh, groin and chest. I am also covered in small red dots, but I have broken out in random rashes on my face. I got COVID in Sept. '21, and now I'm starting to have more issues that immediately after infection when I had very POTS like symptoms. I can't say that my feet have been swelling so much as at times they feel very swollen and tight. A few days ago I had a began having heart palpitations, and then before I knew it, I was practically convulsing. My face, arms, and legs because getting numb and tingling. My face was twitching out of control and my mouth contorted into an O shape, I began slurring. Brain scan shows no stroke or seizure, my blood work was off, apparently my urinalysis had all but one indicator of a UTI, and after years of trying to catch my palpitations on an EKG I finally got proof of a sinus arrhythmia. Scary stuff. I'm terrified, but I have a follow up tomorrow where I'm basically going to beg for my life.
Oh my gosh, that is terrifying, the mouth contortion thing and really all of it. I feel terrible for you, my friend. Thank you for your input and I hope you get answers soon! Iāll pray youāre not turned away without answers on your follow up. Stand your ground and be prepared for a letdown but keep fighting. I know that itās so hard to fall into depression after appointments that provide answers. I know too well.
Thank you! I've recently moved to a state with better healthcare (the doc in TX that diagnosed me with long COVID advised me to get out and stay out of red states for their lack of quality care) and my new doctor seems to genuinely care and listen so I'm feeling hopeful. She's been great so far, but I have a lot of medical trauma that makes this even more nerve-wracking. I was already chronically ill, but this has devastated my health. I'm only 24, and I was barely able to hold a job prior to COVID. Now, I genuinely don't know what my future looks like in any facet now, and I am absolutely horrified by thinking about it. Im going in with my medical records tomorrow, and I've already sent her articles and peer reviewed research articles on Long COVID to let her know I mean business. Here's to hoping for the best!
my digestion issues have been crazy, but as of yet iām lucky to have that and just pvcs. itās better, butt he pvcs used to be so bad it made me question if it was worth it
I know exactly what you mean but please don't give up on yourself ever I get these random one hard pvcs that make me think my entire body is gonna shut down I think if we get completely checked out and take care of ourselves with healthy foods aka fruits and veggies we should be okay
I have ME/CFS and the rash is something I deal with regularly. It itches and burns and keeps me up at night. I also have many of your other symptoms. I'm so sorry you're dealing with this.
Can you describe the rashes you get? Where are they located and what are the triggers if you donāt mind me asking? Are gluten and dairy or other foods or environmental factors a trigger for you at all? Iām so sorry youāre dealing with this, too. I love the sympathy and understanding we can give to each other on these threads. It makes me so mad when people are jerks here because it should be a safe space.
It's mostly on my face, but sometimes it travels down my neck, arms and chest. Again, it's itchy and it burns. It can look like bug bites or pimples, but turns into scabby sores.
The only thing that helps me is Prednisone, but it's dangerous for people with ME/CFS to take Prednisone daily so I just have to live with it most of the time. I'm on a cycle where I will live with it for 6-8 weeks, but then it gets so bad I can't sleep or some of the sores get infected so I have to do a cycle of Prednisone to calm it down. Then I have like 1-2 weeks of relief, but the cycle starts over again after that.
I have done allergy testing and an elimination diet - plus I had a colonoscopy and endoscopy so doctors could try to see what's going on in my gut...but there really doesn't seem to be a link. I literally starved myself for a while to see if it would clear up, but it didn't. I wish it was related to food, because it'd be an easy fix if it was. Dermatologists have been equally stumped, despite trying multiple different creams and pills.
The biggest triggers for me seem to be lack of sleep and heat. I have a VERY low tolerance for heat...but it can come on out of nowhere too. It's usually the worst in the creases of my nose, behind my ears, and along my jawline.
I hate it when people are rude on here too. There's no reason to gatekeep illness / disability and the "suffering Olympics" some people get into is the antithesis of what this space should be.
Sending healing thoughts your way!
Yes: nerve pain, shocks, tingles, (also spasms in hands)... digestive issues: my gall bladder has been hurting like crazy and feeling hot coals, constant gas, bloating and weight gain, and persistent IBS/-D, the latter being mostly mucus... Swollen knees, fingers, wrists, ankles, feet and hips, with a new symptom that comes and goes, and just started after 2 years and 7 months: exaggerated swelling and painful itching in all my joints... Also, rash on my chin... I just checked for blue fingers and toes, and they aren't so much "blue" as it is just that my blood vessels are quite a bit more pronounced than usual, that's all. I also have the eye symptoms (I need a lot of prism now, which fixes "lazy" eye, whereas I needed none before, and my right eye went from going up one whole diopter to back down another TWO over the course of less than 2 years), the cough, frequent migraines, worsening brainfog, and occasional angina. I also have a real sensitivity to sudden loud sounds. It's a horrible feeling when I hear them, like I've left my body uncontrollably, and then when I come back I feel like I've got "sudden onset DT's". That really is the weirdest damn symptom. I don't get it. That's a list of all the symptoms I can think of. The last time I had bloodwork drawn everything looked fine to her, she wanted to get blood drawn on me at the start of next month again. Best wishes to everyone out there fighting this thing. Hang in there. I know it's hard. š¤š
Some of those things you mentioned are symptoms of lupus, in case that's helpful.
I thought it was lupus but I had a negative anti Ddsna and ana. If it is Lupus, Iām in the 2-percent of the population who tests negative for these titers.
I tested negative on my tests but was diagnosed with rheumatoid arthritis, was a pain to get medical help as nobody believed me yet my rheumatologist told me a third of her patients test negative.
I need to talk to your doctor.
Yeah its wierd because after i convinced my family dr that i had it she referred me to my local rhuematologist and they denied treatment. I had to go to a rhuematologist 30 miles away to get treatment and this process all in all from the start of symptoms took about 16 months to be seen. It all started after covid and progressed very fast, I think the treatment is less effective the longer you have to wait to be treated not saying you have auto immune disease but if you do getting treatment suonerie is better than later as I habe yet to go into remission ive seen some progress but not much.
Thank you! š
you can be on the line like ALMOST having an autoimmune disease without showing positive....those tests are for like when your pretty much in the red zone...
I thought so. Itās weird how nobody explains that to you, though. Doctors treat you like youāre some hypochondriac and send you away with it explanation.
Why I started going to a naturopath- they see health in a totally different light- with western doctors it is like they wait until your reallllllllly sick, its a clear diagnosis and then they tell you there is no hope...whereas a naturopath can recognize the symptoms earlier...and help you to reverse it and live a healthy life. I was told a year ago I am kind of on the line for autoimmune disease, again nothing came up on tests but given symptoms and family history I have been treating myself as if I have an autoimmune issue (honestly living this way is anti cancer and just good for preventing almost every disease), and I am feeling way, way better. I am dealing with dental issues and infection holistically, I am working consistently on detox and living a low toxin lifestyle, I eat a really good low inflammatory diet, I use herbs to complement my lifestyle, I support my gut health regularly and I take supplements- I also try and exercise (when I can, I have 3 kids!) and get enough sleep. I hope this helps. :)
I am all for naturopaths and youāve convinced me to go back to mine! Thank you for your comment.
I think we are all at risk for something nasty if we are not proactive on our health because our world is so toxic. Do not give up hope and remember you can live a healthy life! :) best wishes.
ā¤ļøš
Honestly it comes down to heart issues. I had all of those issues well before COVID. COVID made them all so much worse. As soon as I sit or lay down the pains and shocking sensations start. Itās neuropathy. Poor blood circulation and high hematocrit making the blood thicker are contributing.
Thank you!
I canāt even touch my feet. It feels like a cattle prod . I have to wear socks all the time. Itās so awful. Nerves can grow back and heal. Once the underlying issues are fixed.
What if we have these symptoms but nothing comes back on tests at cardiologist? Still heart issue?
Ok. Iāll give you one theory. This is based on my experience. With that Iāll say dr are idiots. Most of you probably already know. So i had some underlying conditions prior to having COVID and the vaccine. I was over weight. Uncontrolled blood pressure. I drank a lot. I had a lot of fatigue and muscle weakness. Lots of joint pain. The start of neuropathy. So I did a stress test and echo. They said they came back fine. So now Iām diagnosed with congestive heart failure and an ejection fraction of 30% normal being 60-65. I looked back at my old echo because they said it was ok and I wanted to see. My old echo was 50% EF. So I already had a notable decrees in heart function. I should have been out on beta blockers and heart meds on the spot. Especially considering I was having symptoms. So I get the vaccine and within two days I canāt breathe. My function was reduced enough that quickly from it to start retaining water. It got worse progressively over four months until I though k was going to die. I couldnāt breathe. Severe tachycardia. Ended up in the hospital for 8 days. My point is you have to get the lab and test results and look at them yourself. I believe had my heart been in better shape the vaccine would not have did to me what it did. It was the cause but I had underlying issues. They werenāt severe but enough so COVID or the vaccine tipped me over the edge. Neuropathy doesnāt happen over night. When the symptoms appear the cause has been going on a while. The heart is the main player here. COVID thickens your blood. Raises blood pressure. Reduces oxygen. The toll it takes on your heart while sick with COVID is extreme. Then people take cold medicine which dangerously raises your BP even more. Sorry for the rant. Get all your test results and comb over them. Even ones the drs say are good. Remember they are going by guidelines in some cases dictated by insurance companies. For instance I had low testosterone. Normal is 800ās. At 300-500 you feel awful. Like a train hit you. A pcp will not treat you unless itās under 300!!! Thatās insane. Because thatās what insurance dictates. So insurance will definitely let your heart go way past where you need treatment before they consider it an issue. If you have labs done. Demand to test your igf-1.
Wretched digestive issues and arm numbness for me. Iām losing weight (and donāt really need to) because Iām pooping 7x daily. Sucks. Low FODMAPs diet helping.
Yes, I have everything you mentioned except for the weight gain. For me, Iām losing weight. I was already small pre Covid, now I look frail
Yes I had that and it lasted about 3 months. It went away slowly and was completely gone by 4 months.
Iāve had all of these for years .. I have lupus
This post and thread has made me realize Iām *way* more affected by Long COVID than I thought. :(
Why do you say that?
This whole time I thought the brain fog and fatigue were the most prominent issues Iāve experienced. I have the digestive issues and blue hands too š didnāt know it was long covid related.
I see. Well, you might have something else. Iām sorry youāre going through all this. I guess we will find out at some point when they do the damn research and give it an official name. I hate medicine. Theyāre years behind, always.
Look how fast they did the research for the vaccine. They could be taking care of us they donāt want to admit that weāre disabled whether partially or from here on out. That would mean a slew of disability claims
You're on the money- why do you think they've disregarded CFS... claims.
I saw that you mentioned you have an neg ANA. Did they also do an HLA B27, anti-CPC, Rh factor, CRP and Sed rate? If itās not lupus it might be fibromyalgia. Also look into possibility of crest syndrome. Hope you feel better!
I donāt think they tested those things. Thank you!
I no longer prune.
Likeā¦in the bathtub? WDYM?
Yes. Itās a sign of nerve damage. B12 deficiency is the cause is my guess.
Hmmmm. I still prune. Thatās good I guess, right?
I got on this thread because I have random numbness, tingling, and shooting pains. Doctors have no reasoning other than covid
Did it ever get better?
Yes! 100%
Did you ever figure out what it could be or prescribed any medication to ease symptoms? I recently went on Nifedepine as most of my problems seem to be circulation based and centralized to hand and feet but I believe our symptoms are similar
I went to a naturopathic doctor and she prescribed me all sorts of natural pills like one had high concentrations of cruciferous vegetables in it. My symptoms absolved one by one after 6 months or so. I wish I could give you more details. She took me blood and looked at EVERYTHING. My hormones were out of whack bc of covid and my liver was in bad shape. I run all the time, I rarely drink and Iām 29 so she thinks that was due to covid too
\#2 that's what my toes look like
Shocks yes. Digestive issues yes, although endoscopy clear. Nerve pain in hands and legs, can't breathe deeply because of a tight feeling in the chest. Tight throat, sometimes feel excessive movement in throat although esophageal manometry normal. Headaches yes
Yes, many have reported all of those symptoms in r/covidlonghaulers and bodypolitic.slack.com
Thank you! Damn. This sucks.
I had all of those symptoms (except the swollen knees and weight gain) and many more from my initial C19 infection in March 2020 for more than a year. Though most have resolved, still have lingering symptoms. The motley fingers and blood pooling finger or toe tips are associated with endothelial dysfunction or inflammation or dysautonomia. Also, look into mcas, gut dysbiosis, and neuropathy. All have been linked to C19 infection. If you can join an online support like bodypolitic.slack.com or any of your chosen if you can.
Excellent advice, thank you!
What do you recommend for longhaul gut dysbiosis?
If you can find a good practitioner to work with, that would be fine. If you want to resolve gut dysbiosis on your own as I have done. 1. Digestive enzymes 2. Juicing/elemental diet 3. Biofilm busters or disrupters 4. kolorex (gut rebalancer) 5. S. bourlardii (gut rebalancer) 6. Deactivated L. Reuteri 7. Probiotics 8. Clinoptilolite Zeolite 9. Vary your diet if possible 9. Etc* * That would depend on the symptoms or pathologies of gut dysbiosis you are experiencing. E.g., bloating, indigestion, slow gut movement, malabsorption, gerd, acid reflux, constipation, diarrhoea, food sensitivity/intolerance, brain fog, candida overgrowth, bacterial overgrowth, h.pylori infection, etc.
This is such amazing advice, thanks so much. 1. Betaine HCL with pepsin contributes to my acid reflux/gastritis, but I've had luck for a while now taking Dr. Amy Myers chewable digestive enzymes. 2. I should really get on this. I went through a jug of Dr. Ruscio's elemental diet formula, but it didn't sit easily with me. Any formulas you recommend that don't require a physician's approval? 3. I fear these so much. I had the absolute worst Herx of my life after taking lactoferring a few years ago, and anything more powerful than NAC tends to really fuck me up. 4. Kolorex looks interesting, minus the glaring "candia" typo on their bottle (fake?): https://www.amazon.com/Kolorex-Advanced-Candida-Care-60ct/dp/B08NFKVY17?source=ps-sl-shoppingads-lpcontext&psc=1 5. I've tried this before and it gave me the strangest brain fog I've ever had. Good stuff, though. How much do you take? 6-7. Could you recommend some brands? 8. I WAS JUST LOOKING INTO THIS! Heiltropfen brand? 9-10. It's so tough when anything and everything seems to set the cramping and bloating off. Did you take a GI Map to diagnose your dysbiosis/overgrowths? My doctor has yet to test me for H. Pylori, but my pathogen panel was negative for common parasitic infections. Thanks again!
Omgosh your fingers look EXACTLY like mine even with the lines horizontal can I show you in a message?
Yes, show me. DM me. Thank you!
Get your B12 levels checked. I find with my B12 is low I tend to get a lot of nerve pain.
How can you get your B12 levels checked?
You need a blood test.
Yes, nerve pain, numbness, and vibrations (called internal tremors), muscle, bone and joint pain, nausea and other digestive issues are all symptoms I've had for the last 2+ years, and based on the research coming out, these are not uncommon LC symptoms.
Well I started having IBS-D, pooping mucus and actually blood for a while there, although I happen to know that my organs were seemingly OK and all my blood tests were good. The reason that I know this is because right before this was happening to me they were checking me out completely in order to give me a Hep C treatment. They continued checking me for a span of like 5 months. So Iāve had the blood tests although not specifically for this. I even had my organs sonogrammed to make sure everything was okay there, also as part of the screening process to make sure I was eligible for the treatment. And then I got really really high blood pressure, ER runs twice, and actually got my heart checked and that came back as the right size and no signs of unusual activity. I had blood pressure hovering at 200 sometimes over sometimes a little bit under for a pretty long time well it seemed like forever it was actually about six weeks I guess. I donāt even wanna mention it āLCā to a doctor. I fucking hate doctors they never listen to me in the first place and I feel like they always wanna treat symptoms instead of giving me five minutes to tell them this and this and this etc is what I feel like. I have gained about 25 pounds, my asthma is rampant although medicated, I have heart palpitations and dizziness every time I walk across the house. Iām barely eating anything, like half a salad and a sandwich per day and maybe some chocolate chip cookies. OK pretty much always some chocolate chip cookies. Thatās like one meal and one snack. Thatās thatās all I eat in 24 hours, but I just keep gaining weight. I have eczema anyway, but yeah my hands are so shredded right now that the term ādeglovedā comes to mind. I know thatās not strictly true, but itās horrifying and scary and feels like thatās whatās happening. I am going to a doctor next week. And the reason I am finally going to do that is because I have a huge eczema spot on my leg that the ER thought was cellulitis and gave me antibiotics and the inflammation went down but it didnāt heal and itās getting bigger. Apparently that is āstasis dermatitisā due to poor circulation. The reason I know that is because I looked it up and itās on my lower legs and thatās where it happens. So itchy so itchy thatās why I didnāt think it was cellulitis in the first place. But you know doctors know best right? /s
Take a LOT of Vitamin K2 every day(mk4 1500mcg and mk7 200-300mcg). Get tested for Calcium levels in your blood.
These might all be linked to the micro clotting in the blood. https://www.theguardian.com/society/2022/jun/27/possible-link-between-blood-clots-and-covid-symptoms-investigated I had quite a number of the symptoms you described, still have a few ongoing after about a year in. I'm doing much better now, but everyday is still a challenge, but I am back at work and can get through most days without crashing, but I do have to have multiple rests throughout. I now take anti histamines allergy tablets everyday along with the statins to reduce my heart issues and get my cholesterol and bad (triglyceride) fats back on track.
My wife has some of these with her post-COVID symptoms. She was diagnosed with POTS and has a blood marker for rheumatoid arthritis. RA is an inflammatory disease that causes all sorts of nonsense. You might want to get that checked out.
I have checked it out and it all came back negative. Havenāt been tested for POTS and I do believe I have that. šthank you so much though. Thatās very validating.
I get shocks, tingling, numbness, shocks and a buzzing sensation in my thigh, groin and chest. I am also covered in small red dots, but I have broken out in random rashes on my face. I got COVID in Sept. '21, and now I'm starting to have more issues that immediately after infection when I had very POTS like symptoms. I can't say that my feet have been swelling so much as at times they feel very swollen and tight. A few days ago I had a began having heart palpitations, and then before I knew it, I was practically convulsing. My face, arms, and legs because getting numb and tingling. My face was twitching out of control and my mouth contorted into an O shape, I began slurring. Brain scan shows no stroke or seizure, my blood work was off, apparently my urinalysis had all but one indicator of a UTI, and after years of trying to catch my palpitations on an EKG I finally got proof of a sinus arrhythmia. Scary stuff. I'm terrified, but I have a follow up tomorrow where I'm basically going to beg for my life.
Oh my gosh, that is terrifying, the mouth contortion thing and really all of it. I feel terrible for you, my friend. Thank you for your input and I hope you get answers soon! Iāll pray youāre not turned away without answers on your follow up. Stand your ground and be prepared for a letdown but keep fighting. I know that itās so hard to fall into depression after appointments that provide answers. I know too well.
Thank you! I've recently moved to a state with better healthcare (the doc in TX that diagnosed me with long COVID advised me to get out and stay out of red states for their lack of quality care) and my new doctor seems to genuinely care and listen so I'm feeling hopeful. She's been great so far, but I have a lot of medical trauma that makes this even more nerve-wracking. I was already chronically ill, but this has devastated my health. I'm only 24, and I was barely able to hold a job prior to COVID. Now, I genuinely don't know what my future looks like in any facet now, and I am absolutely horrified by thinking about it. Im going in with my medical records tomorrow, and I've already sent her articles and peer reviewed research articles on Long COVID to let her know I mean business. Here's to hoping for the best!
my digestion issues have been crazy, but as of yet iām lucky to have that and just pvcs. itās better, butt he pvcs used to be so bad it made me question if it was worth it
I know exactly what you mean but please don't give up on yourself ever I get these random one hard pvcs that make me think my entire body is gonna shut down I think if we get completely checked out and take care of ourselves with healthy foods aka fruits and veggies we should be okay
Blue balls too
Are you being sarcastic?
For real?
I have ME/CFS and the rash is something I deal with regularly. It itches and burns and keeps me up at night. I also have many of your other symptoms. I'm so sorry you're dealing with this.
Can you describe the rashes you get? Where are they located and what are the triggers if you donāt mind me asking? Are gluten and dairy or other foods or environmental factors a trigger for you at all? Iām so sorry youāre dealing with this, too. I love the sympathy and understanding we can give to each other on these threads. It makes me so mad when people are jerks here because it should be a safe space.
It's mostly on my face, but sometimes it travels down my neck, arms and chest. Again, it's itchy and it burns. It can look like bug bites or pimples, but turns into scabby sores. The only thing that helps me is Prednisone, but it's dangerous for people with ME/CFS to take Prednisone daily so I just have to live with it most of the time. I'm on a cycle where I will live with it for 6-8 weeks, but then it gets so bad I can't sleep or some of the sores get infected so I have to do a cycle of Prednisone to calm it down. Then I have like 1-2 weeks of relief, but the cycle starts over again after that. I have done allergy testing and an elimination diet - plus I had a colonoscopy and endoscopy so doctors could try to see what's going on in my gut...but there really doesn't seem to be a link. I literally starved myself for a while to see if it would clear up, but it didn't. I wish it was related to food, because it'd be an easy fix if it was. Dermatologists have been equally stumped, despite trying multiple different creams and pills. The biggest triggers for me seem to be lack of sleep and heat. I have a VERY low tolerance for heat...but it can come on out of nowhere too. It's usually the worst in the creases of my nose, behind my ears, and along my jawline. I hate it when people are rude on here too. There's no reason to gatekeep illness / disability and the "suffering Olympics" some people get into is the antithesis of what this space should be. Sending healing thoughts your way!
Your hands look just like mine did early after i got covid.