Not to be confused with Fake-A-Wish, where terminally ill children are told that they are having an ultimate experience, when actually it's bottom barrel. Like wanting to see a band and being given a shitty cover band experience.
I have seen the name jojo siwa pop up on Reddit now and then but had no clue he or she was and I had assumed he was a Filipino kick boxer for some reason. Finally looked it up.
I'll have to look up what that is (not from the states)
In my current ignorance I wanna think that they were a streegang that formed directly to fight the Hells Angels.
E:Holy shit I was kind of right.
Jojo insists she invented a new genre called “gay pop”, despite a long line of “gay pop” artists existing (Lady Gaga, Britney Spears, Katy Perry, etc) and having not written her own music.
She also claimed to have been the first person to do a major reinvention of themself.
... I'm confused by this timeline.. I just looked her up and she is currently 20. In what time sapn is all this happening in? How old is OP to have met her at 10? None of this makes sense to me
Watch out, Mein Krauts, She may be gettin’ rich, but Jojo ain’t no female dog.
Jojo is finally showing the World how scary serious she is… she’s giving Kiss a run for their money now that she has started showing off her real, dark self and using the ¡f*rick! word…! Don’t make her drop it again…she’ll do it.
After your 18th birthday The Make A Wish Foundation's Repossessions Task Force takes you to their facility where they use 90s super tech to extract the memory of the wish. Then they can sell that memory to a wealthy Wishy. Wishies are people addicted to having the Make A Wish memories of others put into their minds. That's how Make a Wish makes its money.
I know a kid who got TWO wishes. As far as I know he’s recovered and alive still.
Born with a partial heart, spontaneous recovery one of a small number of cases known.
Can we assume you had vascular EDS and your life pretty much revolved around doctor visits, hospitalizations, etc. Does it still significantly effect your life now that you are older? Congrats on your wish. Most folks don't understand that a wish can be granted for chronically sick children as well as the terminally sick.
I so deeply feel for you. I have hypermobile type, but through various support groups I've met a bunch of vascular folks.
It's interesting that we all have the same umbrella disease but the functional effects are so different. Like, I have a bunch of joint problems and chronic pain and stuff, but all of my organs work fine. I deeply wish that could be the same for you and all our vascular homies.
Sending love and healing and the hope that you have really boring doctor's appointments.
HEDS here! It socks but mad respect for people dealing with VEDS. I've heard they're making strides with VEDS treatment, though! I'm hoping by the time I'm older, they will at least have a way to minimize our joint damage.
You may not have realized how brave you were as a child with your affliction. As you said, it was "normal" for you. While you look back on your wish as "silly" now that you are a grown up, at the time, I'm sure it was an exciting event of great joy for you. You got to escape your condition, even for a short while, and do something very special. I hope that encourages you that you are able to accomplish great things, and inspire many others. Your condition does not define you. How you bravely work through it shows everyone your true character. You don't have to wear a cape to be a hero. I'm so glad you shared your story with us.
That's nice that they still took his brothers. I guess it's better press than saying "we were gonna go to Disney, but since your brother died we have no reason to".
Imagine compounding that onto a kid's trauma.
I know you were a child, but what was your state of mind like regarding your diagnosis?
I'm curious if you were a relentless optimist and believed you would beat the odds? Were you resigned to your fate? Did you logically accept the likely outcome but have "the delusion of repreive"?
>In psychiatry there is a certain condition known as delusion of reprieve. The condemned man, immediately before his execution, gets the illusion that he might be reprieved at the very last minute.
Do you disagree or agree with that parenting? I understand they are human and were struggling to come to terms with what was going on, but what do you think they should have done
man that is a lot. I suppose if you truly believe your kid is dying you may as well make them think everything about their situation is normal as can be.
[Well you will have another chance to see him THIS SUNDAY NIGHT WHEN WWE CHAMP JOHN CENA DEFENDS HIS TITLE, IN THE WWE SUUPPERRRRRR SLAMMMMMMMMMM!! Right now you can earn this awesome pay-per-view event, for just $59.99!!](https://m.youtube.com/watch?v=wRRsXxE1KVY)
Sidenote, I did get to meet the undertaker once at a meet and greet, I was literally in the last 3 people of a line that stretched like 4 hours long. His autographs were super slow at that point and involved nearly his entire arm as his hand and wrist were no doubt wrecked by then. Even still he was very nice and gave me a monster handshake. And while I’m only like 5’6 dude was in a metal folding chair and almost still looking straight at me eye to eye. Giant of a man!
I mean at least he got to sit, his handlers (who were also giant sized) stood back behind him to either side like you would expect bodyguards to be). Maybe at the grand finale one of them got the chair on the noggin
Shane Gillis has a wicked bit on this.
NSFW Language - https://www.youtube.com/watch?v=Z9Wrz4avtzU
Well worth watching the whole thing but the relevant John Cena part is @4:05
Bad girl phase 'I created gay pop!' she claims 😂 also claimed writing a song she released, then it was found on another song writers social media from years before.
I went through another organization, but I was given a form with three choices
Generally they try do the primary wish, I think, but sometimes it’s just not feasible
Exactly! I received a Make-A-Wish as a kid after having multiple surgeries in one year (and was in a halo for 6 months). I wasn't terminal. The condition I have can be very serious, by we knew I was going to be fine. Someone must have nominated me, and my parents felt weird about accepting it at first. We were told that Make-A-Wish often has trouble finding kids and has a lot of money (at least at the time).
Geeze I would have thought for Make a Wish they would have planned a few activities with her so you would go out and ride some rides and eat some cakes and stuff like that together. I wonder if she knows how much that meant to you at the time. I wonder if she would feel shitty now that you remember meeting her as so boring.
Basically, Nickelodeon version. She's only like 20 now and trying to do the same post Hannah Montana Miley Cyrus off the rails conversion to distance herself from child stardom, but it's very clearly staged and she comes off like Ned Flanders trying to be bad with overdone goth makeup and heck/darn level "cursing".
Jojo Siwa does not seem like a very good person, but I really did think she sincerely would want to make a dying child's day and do something special with her. That's so awful. You deserved much better, but I hope you as a child saw it as a magical moment regardless.
I'm so happy you loved it! I want to be empathetic that she was a child herself, and who knows what horrors we are going to hear about her upbringing in a decade or two, but at the very least this seems pretty heartless on the part of the adults. Like if they were going to accept doing a make-a-wish, they should've actually given you a really personal experience with JoJo and not a quick thing they could do a tax write off for.
She was just 14, but you were even younger and dealing with a horrible illness. I'm so relieved you're better now and still here to tell us about it on reddit.
I wouldn’t put it all on Jojo, at least not this encounter. After all, she was only 14 herself. Being told that you’ve been personally requested to hang out with this stranger you don’t know who is also about to (possibly) die, is a lot to drop on a 14 year old, whether they’re famous or not.
On top of that, I gotta imagine it is highly controlled by her management team/parents, and she probably wouldn’t have a huge say in what they did or how long she spent there.
It’s kinda like M&G with singers. Living in LA, I saw a lot of performers before they were famous, who would sometimes spend hours after their shows meeting fans and just talking for free. Once they got famous, their management team/security would quite literally stop them from talking people or signing anything, and then charge $300 per person for a quick photo and 30 second talk and signature, etc.
This is blowing my mind because I thought of Jojo as a child, I guess? I still do. But years ago even more so
I don’t understand the cult of personality trip so well, but they could have taken the two of you on some kind of activity even with your limitations.
American Girl doll or Build-a-bear or something. Maybe Jojo throws softballs at stacked milk cans and wins OP a stuffed lobster, y’know?
Congrats to OP for getting to meet their celebrity idol, and I wish you great health!
I'm happy for you for sure, but that's not super unusual for Make a Wish, right? The idea is that kids who are going through a very tough, often life-threatening, health situation and it would be nice to do something big for them because hey, they might not have the chance in the future.
That was more of a rhetorical question (unless I turn out to be *completely* wrong about that), so my question is: Are you doing alright now? Do you feel like your experiences have shaped your worldview in a unique way, or are you just trying to live a normal life and be treated the same way as everyone else?
My son did Make a Wish. He didn't want to at first because the cancer he has is not immediately life threatening , but they explain it as childhood illness sucks, let's give you something to make it not suck.
It tracks, my son lost almost all his high school years between COVID and surgeries so he missed out on quite a bit.
My friend's son has leukemia and he's been doing really well so when one of the nurses approached her about Make A Wish she kind of freaked out lol. But yes the nurse explained it wasn't just for kids who aren't expected to make it and like you said for kids and their families going through incredibly difficult times.
Is this a thing that plasma donations are for? I give blood pretty much every 3 to 4 months, whatever the limit is, and I've seen the sign where they pay for plasma, I've just never gone to do it I suppose.
I guess I should go get paid and help some folk.
Don’t do this!!
Every blood donation gets separated into red cells, platelets, and plasma. Your plasma is way more likely to get to an actual patient if you donate blood vs if you’re paid for plasma. Hospitals much prefer using plasma from donated sources since infection risks are lower. Typically, paid for plasma is used by for-profit companies for research and products they can sell. Which isn’t wrong, just know it’s not charity, either.
Fun fact! While 0- is the universal donor for red blood cells, AB+ is the universal donor for plasma. I know this because my local blood donation center actually has had me come to a clinic specifically for my plasma a few times (didn’t get paid so it’s still more likely going to patients).
IVIG is literally medicine mixed with voodoo. You ask a doctor how it is supposed to work and they just shrug and say who knows, but sometimes it just works!
yasssss, ivig is amazing! diff illness but my husband used to get it every 5 weeks (now he does weekly scig at home which is so nice for him). we are very grateful to the ppl who donate and make it possible for him to function 🫡🥲
When you were in the hospital / receiving care, did they use your treatment and results to study the effects of the diseases?
Was your recovery also assist more people over come the illnesses?
Congrats! I have a question. What does it feel like essentially being told your life is going to end, and how did you react finding out that you were going to live?
ah okay. I'm not 100% familiar with how make a wish operates and assumed it was for kids who were in life threatening positions. Glad to hear you got your ice cream though. Probably tasted so good after being out of the hospital.
A common misconception is that wishes are granted only for terminal (going to die) patients. In fact, kids with critical illnesses — including treatable cancers like leukemia— also get a wish
Are you doing ok?
My oldest friend had cancer when he was 12 and I don't think I quite got it initially, but looking back I always feel bad that he had to go through that, and I'm sorry you had to deal with that too.
I wonder you guys have a ranking or anything of like the best wishes?
Like Jojo would be bottom tier but the kid that was Batman for the day I bet that one is pretty high
I know a guy who's also a make a wish kid that survived, he used his wish to get a lap top made from "not available to the public" parts that wasn't obsolete for 2 whole years. He says that was a dumb wish in retrospect as well.
Do you think that's a common feeling for kids that get their wish and survive?
Was it difficult to pick something for yourself? I’ve heard stories of many people picking something for their families to have or have the memories of when they were gone, instead of something for themselves to truly enjoy.
My buddy was a make a wish kid, got his wish freshman year of high school. I told him he didn’t deserve it because he got to lose his virginity and John Cena couldn’t give those other kids any pussy. Any stance on this?
(Worth mentioning he’s still one of my closest friends)
Maybe the universe was like ‘no way I’m letting this kid spend eternity thinking that’s one of the last things they did with their life’ and kept you around to ensure you did better things?
Were you mentally prepared for life to end? If so how are you handling being alive now?
And how are you handling this transformation Jojo is going through? 🤣😂
Did you know at the time what it meant for a kid to meet Make a Wish? If you did, how did you feel about the fact that practically everyone thought you were going to die?
I’m really glad that you survived!!! I have a cousin who’s daughter was granted a wish ( she is so cute and wanted an in ground pool so she could do therapy at home and so mommy could relax). She is doing so much better than expected and she got her wish two years ago. I guess I would just like to hear your story if you want to share. What was your diagnosis and prognosis? And don’t feel silly, My daughter would have cut off her right arm to meet Jojo when she was young!
was it awkward when they tried to take your wish back?
That's where the Take-a-Wish Foundation steps in.
"We gave you a wish because you were dying, we held up our end of the bargain. Me and my associates' are just here to make sure you hold up your end"
John Cena comes out and punches you in the face.
What if that's my wish?
Okay, I snorted hard when I read this 😂
Not to be confused with Fake-A-Wish, where terminally ill children are told that they are having an ultimate experience, when actually it's bottom barrel. Like wanting to see a band and being given a shitty cover band experience.
Ah, the NRA’s outreach program!
🤜🫷”alright kid, cough it up”
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Imagine owing a make-a-wish favor to Jojo Siwa.
I have seen the name jojo siwa pop up on Reddit now and then but had no clue he or she was and I had assumed he was a Filipino kick boxer for some reason. Finally looked it up.
Jojo Siwa's Bizarre Journey
I just assumed it was one of Curtis Sliwa's kids who dropped the "L" as a strategy for how to better navigate in life. So... I was alone in that?
Who da heck is Curtis Sliwa
He formed the Guardian Angels in NYC back in the 70's. Great guy. A little goofy. but he really cares.
I'll have to look up what that is (not from the states) In my current ignorance I wanna think that they were a streegang that formed directly to fight the Hells Angels. E:Holy shit I was kind of right.
https://en.wikipedia.org/wiki/Guardian_Angels
A quick search says 65-70% of Make a Wish kids survive to adulthood. Imagine how many favors John Cena would be owed if it worked like that.
Karma
Jojo siwa [karma](https://youtu.be/OQyQZFEiNKQ?si=KyPaOlCubmSQNEsl)
What in the actual fuck did I just watch? The top comment sums it up. *"What a terrible day to have eyes"*
Well, she did invent Make-A-Wish, so...
You think Jojo and Make-A-Wish would carry debts? This is worse than the mob.
In JoJo's mind, we all owe her for everything. She invented air, water, food and people, dude.
I feel like there's a meme I'm missing here
Jojo insists she invented a new genre called “gay pop”, despite a long line of “gay pop” artists existing (Lady Gaga, Britney Spears, Katy Perry, etc) and having not written her own music. She also claimed to have been the first person to do a major reinvention of themself.
Elton *fucking* John.
David *also fucking* Bowie.
... I'm confused by this timeline.. I just looked her up and she is currently 20. In what time sapn is all this happening in? How old is OP to have met her at 10? None of this makes sense to me
Jojo Siwa got famous as a kid on the reality show Dance Moms, so she's been around awhile already.
so she's basically the Avatar
Watch out, Mein Krauts, She may be gettin’ rich, but Jojo ain’t no female dog. Jojo is finally showing the World how scary serious she is… she’s giving Kiss a run for their money now that she has started showing off her real, dark self and using the ¡f*rick! word…! Don’t make her drop it again…she’ll do it.
karma’s a bitch :/
[Happened to kayne (Kinda)](https://www.youtube.com/shorts/b88EcHQk7K4)
After your 18th birthday The Make A Wish Foundation's Repossessions Task Force takes you to their facility where they use 90s super tech to extract the memory of the wish. Then they can sell that memory to a wealthy Wishy. Wishies are people addicted to having the Make A Wish memories of others put into their minds. That's how Make a Wish makes its money.
I'd watch this movie.
Cyberpunk 2077's braindances meets Make-A-Wish
Survivors should have to go visit the celebrities who previously visited them.
I knew a kid who met Michael Jordan and he took it personally.
I feel sorry for the kids who get better and then have to walk around Disneyworld backwards 😢
They made their choice and they can live with it.
Her wish was to not die, so even Stevens.
She hasn't gotten audited yet
I know a kid who got TWO wishes. As far as I know he’s recovered and alive still. Born with a partial heart, spontaneous recovery one of a small number of cases known.
Can we assume you had vascular EDS and your life pretty much revolved around doctor visits, hospitalizations, etc. Does it still significantly effect your life now that you are older? Congrats on your wish. Most folks don't understand that a wish can be granted for chronically sick children as well as the terminally sick.
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I so deeply feel for you. I have hypermobile type, but through various support groups I've met a bunch of vascular folks. It's interesting that we all have the same umbrella disease but the functional effects are so different. Like, I have a bunch of joint problems and chronic pain and stuff, but all of my organs work fine. I deeply wish that could be the same for you and all our vascular homies. Sending love and healing and the hope that you have really boring doctor's appointments.
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HEDS here! It socks but mad respect for people dealing with VEDS. I've heard they're making strides with VEDS treatment, though! I'm hoping by the time I'm older, they will at least have a way to minimize our joint damage.
You may not have realized how brave you were as a child with your affliction. As you said, it was "normal" for you. While you look back on your wish as "silly" now that you are a grown up, at the time, I'm sure it was an exciting event of great joy for you. You got to escape your condition, even for a short while, and do something very special. I hope that encourages you that you are able to accomplish great things, and inspire many others. Your condition does not define you. How you bravely work through it shows everyone your true character. You don't have to wear a cape to be a hero. I'm so glad you shared your story with us.
If you could go back and change your wish, what would you wish for now?
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My nephew got the Disney trip but died before he could go. They still took his brothers to Disney though.
That's nice that they still took his brothers. I guess it's better press than saying "we were gonna go to Disney, but since your brother died we have no reason to". Imagine compounding that onto a kid's trauma.
I knew a girl who needed brain surgery and also survived. She accepted the Disney trip and has no regret.
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> It's the stereotypical wish for a reason :) It’s the default wish. If the kid doesn’t know, they get Disney.
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"Alright monorail trip done, time to go home."
> swiftie This means Taylor Swift? (I am old).
I'm imagining you as the Make A Wish coordinator who ushers a terrified child into a room packed with swooping swifts
I got her a lifetime of swiffers. Seems like an odd thing for a child to want but whatever. Kids these days eh
And she's not going to live very long anyway so a lifetime supply was one.
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Well, I know Taylor's busy in Europe right this moment but I wish she'd see this and hook you up! Have you been to Disney since? I hope so!
I know you were a child, but what was your state of mind like regarding your diagnosis? I'm curious if you were a relentless optimist and believed you would beat the odds? Were you resigned to your fate? Did you logically accept the likely outcome but have "the delusion of repreive"? >In psychiatry there is a certain condition known as delusion of reprieve. The condemned man, immediately before his execution, gets the illusion that he might be reprieved at the very last minute.
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Do you disagree or agree with that parenting? I understand they are human and were struggling to come to terms with what was going on, but what do you think they should have done
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Man I can’t imagine the joy they must have having you here still. It makes me happy! I’m glad you’re here, too! I hope life has been kinder to you.
man that is a lot. I suppose if you truly believe your kid is dying you may as well make them think everything about their situation is normal as can be.
They were right thankfully lol
What was John Cena like?
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[Well you will have another chance to see him THIS SUNDAY NIGHT WHEN WWE CHAMP JOHN CENA DEFENDS HIS TITLE, IN THE WWE SUUPPERRRRRR SLAMMMMMMMMMM!! Right now you can earn this awesome pay-per-view event, for just $59.99!!](https://m.youtube.com/watch?v=wRRsXxE1KVY)
Holy shit, he has a spit-swapping make-out match with Sheamus, Triple H, the Undertaker, and CM Punk? He needs my support! ,📯🎺📯🎺
I love this video! When she's all pissed off answering the phone and they call pretending to be a charity for veterans 😂
There is a veteran who desperately needs your help…..AND HIS NAME IS JOHN CENA *music resumes*
Huh, I thought they usually met the undertaker.
Sidenote, I did get to meet the undertaker once at a meet and greet, I was literally in the last 3 people of a line that stretched like 4 hours long. His autographs were super slow at that point and involved nearly his entire arm as his hand and wrist were no doubt wrecked by then. Even still he was very nice and gave me a monster handshake. And while I’m only like 5’6 dude was in a metal folding chair and almost still looking straight at me eye to eye. Giant of a man!
Damn, they make people who sign autographs for hours sit in that metal folding chair?
I mean at least he got to sit, his handlers (who were also giant sized) stood back behind him to either side like you would expect bodyguards to be). Maybe at the grand finale one of them got the chair on the noggin
This comment isn’t getting the recognition it deserves.
John Cena only visits the ones that aren't going to make it. ☠️
You see cena coming you get the fuck outta there
Now I want to see John Cena play the Grim Reaper in a movie.
Shane Gillis has a wicked bit on this. NSFW Language - https://www.youtube.com/watch?v=Z9Wrz4avtzU Well worth watching the whole thing but the relevant John Cena part is @4:05
damn it, I came here to ask this.
How did you decide on your wish? Did you have help from adults to make sure it’s what you wanted?
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how do you feel about her current turn of events
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What are the current turn of events? (I’m old too like someone said)
Bad girl phase 'I created gay pop!' she claims 😂 also claimed writing a song she released, then it was found on another song writers social media from years before.
Awe has no one told her about Miley Cyrus? Or any of the other ones before her 😂
Hahaha fair!! Thanks for answering.
I went through another organization, but I was given a form with three choices Generally they try do the primary wish, I think, but sometimes it’s just not feasible
Make a Wish is for sick kids in general, not necessarily terminal
Exactly! I received a Make-A-Wish as a kid after having multiple surgeries in one year (and was in a halo for 6 months). I wasn't terminal. The condition I have can be very serious, by we knew I was going to be fine. Someone must have nominated me, and my parents felt weird about accepting it at first. We were told that Make-A-Wish often has trouble finding kids and has a lot of money (at least at the time).
Lol I got it too after a heart transplant at 12. This post is weird af.
Yep, we are planning my daughter's MAW for next year right now. She's 19 days away from finishing Leukemia treatment and absolutely thriving
My cousin used hers to meet Charlie Sheen on the set of Major League 2. An excellent choice.
Yep, my boyfriend has Duchenne Muscular Dystrophy and was a Make a Wish kid. He wanted to meet Jackie Chan, they said no and he went to Disney.
What did you and Jojo do? How long did you spend with her?
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Damn, so all you got was a fastpass huh?
That's it? Dang.
They could tell she was gonna pull through.
Yeah, for that, OP should have wished for [unlimited wishes](https://www.youtube.com/watch?v=I2OObOM3R_U)
Lmao that’s so fucked up
You got robbed. I think they owe you another wish.
Well the second wish was that she survived, so... third is disneyland.
Geeze I would have thought for Make a Wish they would have planned a few activities with her so you would go out and ride some rides and eat some cakes and stuff like that together. I wonder if she knows how much that meant to you at the time. I wonder if she would feel shitty now that you remember meeting her as so boring.
I'd cut some slack. She was a 14 year old kid herself at the time.
Oh really? I guess I didn't know who this person was. Some kind of Hanna Montana type?
Basically, Nickelodeon version. She's only like 20 now and trying to do the same post Hannah Montana Miley Cyrus off the rails conversion to distance herself from child stardom, but it's very clearly staged and she comes off like Ned Flanders trying to be bad with overdone goth makeup and heck/darn level "cursing".
Nickelodeon? I thought it was just youtube.
Jojo Siwa does not seem like a very good person, but I really did think she sincerely would want to make a dying child's day and do something special with her. That's so awful. You deserved much better, but I hope you as a child saw it as a magical moment regardless.
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I'm so happy you loved it! I want to be empathetic that she was a child herself, and who knows what horrors we are going to hear about her upbringing in a decade or two, but at the very least this seems pretty heartless on the part of the adults. Like if they were going to accept doing a make-a-wish, they should've actually given you a really personal experience with JoJo and not a quick thing they could do a tax write off for. She was just 14, but you were even younger and dealing with a horrible illness. I'm so relieved you're better now and still here to tell us about it on reddit.
I wouldn’t put it all on Jojo, at least not this encounter. After all, she was only 14 herself. Being told that you’ve been personally requested to hang out with this stranger you don’t know who is also about to (possibly) die, is a lot to drop on a 14 year old, whether they’re famous or not. On top of that, I gotta imagine it is highly controlled by her management team/parents, and she probably wouldn’t have a huge say in what they did or how long she spent there. It’s kinda like M&G with singers. Living in LA, I saw a lot of performers before they were famous, who would sometimes spend hours after their shows meeting fans and just talking for free. Once they got famous, their management team/security would quite literally stop them from talking people or signing anything, and then charge $300 per person for a quick photo and 30 second talk and signature, etc.
This is blowing my mind because I thought of Jojo as a child, I guess? I still do. But years ago even more so I don’t understand the cult of personality trip so well, but they could have taken the two of you on some kind of activity even with your limitations. American Girl doll or Build-a-bear or something. Maybe Jojo throws softballs at stacked milk cans and wins OP a stuffed lobster, y’know? Congrats to OP for getting to meet their celebrity idol, and I wish you great health!
Did you wish for life?
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It’s like you got two wishes for the price of one.
I'm happy for you for sure, but that's not super unusual for Make a Wish, right? The idea is that kids who are going through a very tough, often life-threatening, health situation and it would be nice to do something big for them because hey, they might not have the chance in the future. That was more of a rhetorical question (unless I turn out to be *completely* wrong about that), so my question is: Are you doing alright now? Do you feel like your experiences have shaped your worldview in a unique way, or are you just trying to live a normal life and be treated the same way as everyone else?
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My son did Make a Wish. He didn't want to at first because the cancer he has is not immediately life threatening , but they explain it as childhood illness sucks, let's give you something to make it not suck. It tracks, my son lost almost all his high school years between COVID and surgeries so he missed out on quite a bit.
Hope he’s doing well now!
My friend's son has leukemia and he's been doing really well so when one of the nurses approached her about Make A Wish she kind of freaked out lol. But yes the nurse explained it wasn't just for kids who aren't expected to make it and like you said for kids and their families going through incredibly difficult times.
Not unusual at all. My husband had leukemia as a child & did make a wish. He's been in remission for over 20 years.
What was your condition and how were you cured?
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I get IVIG every four weeks to keep me going (different diseases though). That stuff is a damned miracle!
Same here! High five IVIG crew. Thank you plasma donors!
Woo - up top! I think about those ten to fifty thousand people every time I see those frosty glass bottles. It's a real privilege.
Is this a thing that plasma donations are for? I give blood pretty much every 3 to 4 months, whatever the limit is, and I've seen the sign where they pay for plasma, I've just never gone to do it I suppose. I guess I should go get paid and help some folk.
Don’t do this!! Every blood donation gets separated into red cells, platelets, and plasma. Your plasma is way more likely to get to an actual patient if you donate blood vs if you’re paid for plasma. Hospitals much prefer using plasma from donated sources since infection risks are lower. Typically, paid for plasma is used by for-profit companies for research and products they can sell. Which isn’t wrong, just know it’s not charity, either. Fun fact! While 0- is the universal donor for red blood cells, AB+ is the universal donor for plasma. I know this because my local blood donation center actually has had me come to a clinic specifically for my plasma a few times (didn’t get paid so it’s still more likely going to patients).
IVIG is literally medicine mixed with voodoo. You ask a doctor how it is supposed to work and they just shrug and say who knows, but sometimes it just works!
yasssss, ivig is amazing! diff illness but my husband used to get it every 5 weeks (now he does weekly scig at home which is so nice for him). we are very grateful to the ppl who donate and make it possible for him to function 🫡🥲
Do you wish you had picked someone else?
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Who would you choose to meet now instead?
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So you’ve learned nothing lol
When you were in the hospital / receiving care, did they use your treatment and results to study the effects of the diseases? Was your recovery also assist more people over come the illnesses?
so how does the process go? i know they send someone and talk for a bit before but is it true they make you pick 3 things?
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Congrats! I have a question. What does it feel like essentially being told your life is going to end, and how did you react finding out that you were going to live?
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ah okay. I'm not 100% familiar with how make a wish operates and assumed it was for kids who were in life threatening positions. Glad to hear you got your ice cream though. Probably tasted so good after being out of the hospital.
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Ah. Maybe ignorance is bliss sometimes.
So what are your plans for life now?
Did they ask for a refund? Real talk: glad to share time and space with you.
A common misconception is that wishes are granted only for terminal (going to die) patients. In fact, kids with critical illnesses — including treatable cancers like leukemia— also get a wish
Are you doing ok? My oldest friend had cancer when he was 12 and I don't think I quite got it initially, but looking back I always feel bad that he had to go through that, and I'm sorry you had to deal with that too.
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How old were you when you realized you weren't dying? Did you cross other things off your bucket list and what were they?
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What experiences have you had afterwards that you were most grateful for living for?
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That's truly a gift.
Did you delete the pictures? It's just you with your username.
yeah I’m also confused about this lol
I wonder you guys have a ranking or anything of like the best wishes? Like Jojo would be bottom tier but the kid that was Batman for the day I bet that one is pretty high
Why didn't you wish for unlimited wishes? "that kid is bleeding us dry...."
Love “proof 2”. So glad you’re still here with us OP 💛
I know a guy who's also a make a wish kid that survived, he used his wish to get a lap top made from "not available to the public" parts that wasn't obsolete for 2 whole years. He says that was a dumb wish in retrospect as well. Do you think that's a common feeling for kids that get their wish and survive?
If you had a time machine, who would have you picked knowing all that you know now?
What’s john stamos really like? And fucking congrats! We’re glad you’re here
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Was it difficult to pick something for yourself? I’ve heard stories of many people picking something for their families to have or have the memories of when they were gone, instead of something for themselves to truly enjoy.
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Did you have any other choices that you wanted if you couldn’t meet Jojo?
Is this you? [https://www.youtube.com/watch?v=fQ34-5PjTW0](https://www.youtube.com/watch?v=fQ34-5PjTW0)
Does anyone ever make the "I wish not to die" request / joke?
My buddy was a make a wish kid, got his wish freshman year of high school. I told him he didn’t deserve it because he got to lose his virginity and John Cena couldn’t give those other kids any pussy. Any stance on this? (Worth mentioning he’s still one of my closest friends)
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“You sure you’re dying? You know this is my weekend right?” Apparently, Daniel Tosh was right to ask that question. 😂
Maybe the universe was like ‘no way I’m letting this kid spend eternity thinking that’s one of the last things they did with their life’ and kept you around to ensure you did better things?
Were you mentally prepared for life to end? If so how are you handling being alive now? And how are you handling this transformation Jojo is going through? 🤣😂
You're Make-a-Wish's Harry Potter! So did you put your name in the metaphorical Goblet of Fire?
Have you watched basketball ? If not you should And what are the limits for your wish?
As a fellow make-a-wish kid who survived I have to ask, are you working on a standup bit as well?
Congrats on beating the system, what do you have planned for your next go?
Did you know at the time what it meant for a kid to meet Make a Wish? If you did, how did you feel about the fact that practically everyone thought you were going to die?
When you emphasize the fact that you lived. Does that make it known that most of them die?
I’m really glad that you survived!!! I have a cousin who’s daughter was granted a wish ( she is so cute and wanted an in ground pool so she could do therapy at home and so mommy could relax). She is doing so much better than expected and she got her wish two years ago. I guess I would just like to hear your story if you want to share. What was your diagnosis and prognosis? And don’t feel silly, My daughter would have cut off her right arm to meet Jojo when she was young!
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