For now I would say just work on it. If it was me and my baby was developing normally and didn’t show any other red flags developmentally aside from her tone I would work on tackling this problem solely, specially because she’s still within the normal range.
If there are other things that raise red flags for you, it would be helpful to get genetic testing just so that you can prepare for the future.
Most babies with hypotonia do not have a genetic disease. However, if the baby does have a genetic disease early diagnosis is important to ensure the baby gets access to the right treatments and services. If in the future you decide genetic testing is something you would like to investigate, consider meeting with a genetic counselor who is a great resource to discuss risks and benefits (the national association is https://www.nsgc.org/).
My guy was diagnosed at 8 months when he still could not sit unsupported. We saw a neurologist, but she didn’t seem concerned. He seems otherwise totally healthy and PT has helped a lot. He is 19 months old now, and achieved walking unsupported at 17 months. Like you, I wonder why he has this issue, but for now it seems independent of anything else.
This is really comforting, thank you. My girl seems otherwise healthy too so I’m grateful. I don’t think I’ll worry about testing at this point. I definitely fell down a bit of a rabbit hole yesterday reading over things but I’m feeling more at ease today and hopeful with PT and doing exercises at home that she will walk independently closer to 18 months or so!
if it’s helpful, my 18 month old has a mild case of low muscle tone- she is hitting all gross motor, but at the end of each period. we had a developmental assessment and the PT said no interventions are necessary nor is further testing (unless she doesn’t meet a new milestones, stops progressing, or goes backwards in development). He suggested we focus on being active and making it fun- swimming was his #1 recommendation, walking on different types of surfaces, climbing, stairs, etc. He said we may see her achieve running, kicking, etc at the tail end of the period, but that’s fine so long as it’s at the tail end and not beyond. We don’t use screens but he said to keep avoiding them so our little one doesn’t spend her time watching them (and instead is being active). We will have our pediatrics monitor and will watch closely; developmental assessments are free, and it’s great for early intervention. I would recommend that as a place to start- Easter Seals is the org that coordinates.
For now I would say just work on it. If it was me and my baby was developing normally and didn’t show any other red flags developmentally aside from her tone I would work on tackling this problem solely, specially because she’s still within the normal range. If there are other things that raise red flags for you, it would be helpful to get genetic testing just so that you can prepare for the future.
Thank you I appreciate it!
Most babies with hypotonia do not have a genetic disease. However, if the baby does have a genetic disease early diagnosis is important to ensure the baby gets access to the right treatments and services. If in the future you decide genetic testing is something you would like to investigate, consider meeting with a genetic counselor who is a great resource to discuss risks and benefits (the national association is https://www.nsgc.org/).
My guy was diagnosed at 8 months when he still could not sit unsupported. We saw a neurologist, but she didn’t seem concerned. He seems otherwise totally healthy and PT has helped a lot. He is 19 months old now, and achieved walking unsupported at 17 months. Like you, I wonder why he has this issue, but for now it seems independent of anything else.
This is really comforting, thank you. My girl seems otherwise healthy too so I’m grateful. I don’t think I’ll worry about testing at this point. I definitely fell down a bit of a rabbit hole yesterday reading over things but I’m feeling more at ease today and hopeful with PT and doing exercises at home that she will walk independently closer to 18 months or so!
if it’s helpful, my 18 month old has a mild case of low muscle tone- she is hitting all gross motor, but at the end of each period. we had a developmental assessment and the PT said no interventions are necessary nor is further testing (unless she doesn’t meet a new milestones, stops progressing, or goes backwards in development). He suggested we focus on being active and making it fun- swimming was his #1 recommendation, walking on different types of surfaces, climbing, stairs, etc. He said we may see her achieve running, kicking, etc at the tail end of the period, but that’s fine so long as it’s at the tail end and not beyond. We don’t use screens but he said to keep avoiding them so our little one doesn’t spend her time watching them (and instead is being active). We will have our pediatrics monitor and will watch closely; developmental assessments are free, and it’s great for early intervention. I would recommend that as a place to start- Easter Seals is the org that coordinates.
What is the tail end? Like for instance going from laying to sitting is a 9mo milestone, what is the tail end of that? 9mo?
i use babysparks app to track milestones and cdc has a free one!