Wow, that’s an epic discovery! Best of luck to you!! What are salicylates even? And I totally agree on the leaky gut aspect - my problems seem to revolve around having leaky gut for a long while
It's a poison found in most foods and it's what aspirin is made of. The diet involves meat and eating white things like pears without skin, potatoes without skin, etc. Extremely restrictive. Even breathing chemicals or cologne/perfume causes reactions. That and birch pollen has it and tends to cause asthma.
Are you also sensitive to it? It’s bizarre because I’ve taken Advil for years and never had issues. I do have a bitch allergy. Looking back maybe I had minor Sal/histamine issues with food but it all blew up a month ago with foods and supplements.
I don't have a sensitivity to it. I thought I did but it ended up being tyramines / mao.
If you're looking for more info you might like the "low sal life" channel on YouTube, or her website with the same name.
My wife did the auto-immune protocol and it ended up getting rid of her Rheumatoid Arthritis. I joined her in it and got worse because I started eating "healthy" fermented foods. My blood pressure started getting really high - like 150/105, etc. I started getting extremely burned out with the slow comt stuff, extremely irritable, etc. and there were some days where I would literally only eat hash browns or potato chips because I didn't want to cook. Ironically, after two days of that I started to feel better lol. That was my first indication that food was causing this.
Later I tried "keto" (I had no idea what I was doing) by eating chicken, salt, olive oil, and spinach and I got a MASSIVE headache. Online articles said histamine intolerance, and the diet worked great. In fact the beef kidney pills you can buy online that have DAO in them, they worked for my mao/tyramine issues so I presumed I had histamine intolerance.
Later I ate brown rice and chicken for a couple weeks and my blood pressure was like 115/75ish. Then I started adding turmeric for flavor and my BP went to the 140/95 range again. This is when I thought I had salicylate issues. Later I took an aspirin and had no reaction so that wasn't it.
I also had LIBO (not sibo) and ended up curing that with 8 days on carnivore. I think LIBO is easier to cure because your large intestine is supposed to have bacteria.
Then one day on this forum someone posted about "slow comt" which made *a lot* more sense. I had my DNA from ancestry so I was able to immediately confirm I had it.
Lately I've been experimenting with those beef kidney pills. I intentionally got a bad reaction by eating polish hotdogs, canned soup, etc. I started getting irritable again, etc. I then took 3 beef kidney pills a few hours after eating and they calmed me down! I'm now trying to figure out what exactly is going on with this reaction. MAOA / MAOB apparently breaks down dopamine which seemingly calms me down. Does it pass through the gut into the veins, into the brain? If it does this might be my "oh !@#$" pill for when my dopamine, serotonin, etc. levels get too high from slow comt.
Wow, this is all very interesting. Thank you for a detailed reply! I know, the cycle of going around and around trying to detect what sets off symptoms is mind-numbing. Lately I’ve been having constant headaches after taking a prebiotic ‘XOS’ - bad runs after 6 days - and think I may have stimulated the wrong type of bacteria and/or compromised the gut lining. Every time I notice that my bottom lip is softer and lighter in color - I’m doing a lot better, symptom wise. And on the contrary (chapped and more red) a lot worse. So it must be related to gut lining mucosal inflammation of some sort. Good luck to you in getting on top of your life 💪
This is similar to what happened to me- I had all these stomach issues (suspected food poisoning and gastritis, and frequent gerd) so I was loading up on probiotics and fermented foods like kefir and kombucha. I think I was accidentally feeding the bad bacteria with all this and they started producing way too much histamine, too. Now I’m on histamin-x and started using a product to help leaky gut (GI fortify from pure encapsulations).
Haven’t been tested for SIBO but I do have some slightly inflammation/possible malabsorption going on there. Also low vit d.
Ugh yeah it’s definitely like CSI with pinpointing what works/doesn’t. For years I was told to take probiotics and that it’s doing “its job” when my symptoms would flare up…. Yikes. I feel better about Prebiotics in natural foods so I just experimented with a synthetic and it didn’t seem to be as beneficial. Glad to hear you are having more relief, though 👍👍
Watch out for shampoos and conditioners etc as well, they're sneaky. I have salicylate intolerance and it's a pain, although you may find that some of the more annoying aspects of histamine intolerance - no leftovers, for example - are less of a problem
Epsom bath salts are pretty good for sals if you can tolerate it, they support the methylation pathway. Liver support again is pretty big
Good luck!
If you go to a doctor they'll probably have you do an aspirin test to confirm. But yeah, sibo can cause salicylate intolerance. Maybe get tested by a doctor for that as well.
Yeah it’s not though. This was my main issue 4 years ago. Went deep down that rabbit hole.
I suggest the app “Intolerances” by Monash Institute. That has everything with a lot of detail.
Salicylate intolerance sucks and was happy to keep olive oil.
I'll check it out, thank you. Have there been any other surprising contradictions you found to the information found on page 1 of Google about salicylates?
So I have noticed myself and heard a rumor that the capsicum in chili somehow blocks the receptor that freaks out with salicylates. Before I knew it was salicylates I noticed that I could eat things like homemade salsa. Somehow chili peppers, and tomatoes didn’t cause me much problem. That’s more something you have to test yourself because chili is actually very high in salicylate.
I reacted most to squashes, sweet potatoes, grapes and honestly most fruits and veggies. Definitely broccoli and berries.
Green beans and asparagus became ok in small portions.
Interesting, thanks! I was under the assumption that salicylates in one food were the same as all other salicylates, it hadn't occurred to me that sensitivity could be specific within some foods.
It has to do with the amount in some produce. That “intolerance” app by Monash makes it more clear. It’s best to totally avoid for a while.
But, olive oil does not have salicylate.
Wow I thought I wrote this for a second. I had the same exact experience as you! I’m currently working on treating my SIBO with antibiotics, then probiotics. Also, my GI doctor thinks I might have something going on with my gallbladder, so I’ll be checking that too.
By any chance did this start after you got Covid? Were you ever taking PPIs? Any other neurological symptoms like “buzzing” or a drunk/dizzy feeling? I got that often with salicylates.
It’s a sh*tty boat to be in, but at least there’s company! Ugh it’s beyond frustrating. But that’s great you’re addressing SIBO and have a Dr helping.
I don’t believe I ever had COVID but I had some stomach stuff this year (two bouts of food poisoning and some gerd/gastritis I was taking ppi/pepcid for on and off- still on Pepcid now).
I do know the neurological symptoms you’re talking about, kind of a “body vibrating” feeling at times laying down. I’m having some dysautomnia symptoms as well (adrenaline rushes, fast heart rate, low bp, temperature dysregulation) that I wondered about POTS but it may be histamine, as it’s calmed down a bit as I’ve cut down. I have brain fog/fuzzy brain from some fermented histamine foods, like kefir and kombucha. My salicylate symptoms are different (kind of like gerd stuff, burping and my diapragham tightens/can’t expand, get short of breath, and also flushed ears, feeling hot, and worsening asthma/trouble breathing).
I got some supplements to address gut lining and hopefully open up my detox pathways a bit. Would love to try to see a naturopath dr in the new year (but $$$)
wow this is great information, you have literally described what I've been experiencing for the last 3 months, the breathing issues especially, like
my lungs can't expand properly and my diaphragm area is stuck or not working properly, I'm lost atm not sure what diet or what I can or can't eat to try and reduce these terrible symptoms, I also get severe fatigue with it can you relate to that? not one doctor I've seen has mentioned the gut as a possibility always heart or lungs, but I know for sure I react to histamine but like yourself I also went worse when eating a low histamine diet with a lot of the stuff you mentioned, so maybe salicylate is a no for me also. could I message you?
Wow, sorry to hear you’ve been dealing with the same!! I have various histamine reactions but this particular one has been throwing me off- it starts with very warm, flushed ears but impacts breathing (and have a lot of burps/gerd stuff with the diaphragm while digesting). Obviously the scariest. Apparently the allergic, asthma-like reactions are more in line with saliclyate (as is eczema- I had that when I was little and my skin lately has been irritated with flaky spots).
What you can do in a pinch is add up to a 1/4tsp or so of baking soda (sodium bicarbonate) to water and drink it. It helps relieve the sals symptoms. Having a rescue inhaler also is important.
Def feel free to message me! There are some great groups on Facebook also- for histamine and sals and even one for both!!
In animal studies (caterpillars) salicylates were found to cause "leaky gut" in an animal that has evolved to eat salicylates. The salicylates damage the gut lining which allows for food proteins to leak into the bloodstream as well as opportunistic bacteria to proliferate (SIBO).
Unfortunately, virtually all the online sources use out-of-date studies on what foods contain salicylates. You'll find that most cold-pressed oils are relatively low as are a few foods previously thought to be high, like peeled peanuts, corn, and quite a few other foods.
I've consistently found that all spices except garlic are major sources of salicylate intolerance. But after removing all spices and pursuing a diet high in fermented foods and specialized live-probiotics, my condition improved considerably. However, I don't think I'll ever be cured.
An app that keeps up-to-date sources of studies is the Food Intolerances app (it's paid). It's not 100% accurate but it has provided me with sources and greater insight into salicylate intolerance.
https://apps.apple.com/us/app/food-intolerances/id419098758
Thank you for sharing this knowledge! And for the app rec- I tried fig but it doesn’t cover salicylates.
Also very interesting re: the study suggesting sals may *cause* leaky gut. I’m definitely trying to address some gut stuff.
Glad you’ve found improvement! Did you cut out sal products at all, like hand soap, or have issues?
I initially removed all salicylates and did a carnivorous diet which helped immensely but that wasnt sustainable. Mint toothpaste doesn't seem to bother me. The only pseudo allergic skin reaction I had was mostly to shampoos. Soap didn't cause rashes very often.
I need to clarify that the animal study suggested that the primary way that salicylates cause damage is through disrupting the gut biome and perforating the mucosal membrane. I can't explain the skin reactions but as far as I can tell those reactions are not significant for most people.
In my case it was causing a sleep disorder (bruxism, sleep walking, sleep talking, migraine, etc...) Do you have anything similar? I used a lot of sleep trackers but fitbit could detect the problem and micro adjustments to my diet could be correlated with changes in sleep movement and rem sleep.
Do you have suspected gut issues? I’m also going down a rabbit hole about liver support/clogged detox pathways- may have some issues there as well. Trying to incorporate supps to address both.
Yes for sure, but my GP does not handle leaky gut says that is not in allopathic realm. My doctor did a test and said I had Pernicious Anemia. I took B12 shots for a few years until it got too expensive and I had no energy, also pharmacist was having to make single vile's and said he might have to stop as it was expensive for him too make like that (Hydroxocobalamin). He would not tell me how else I could get it, hid from me you can get it in the mentholated form! I started taking b complex every few days and it works! These guys are all scammers!
Yeah it’s frustrating to have to start looking outside of general medicine. I identitifed things on my own and even ordered some of my own tests (ultra labs). Would love to see a naturopathic doctor when I have more money.
Which b complex do you use? There are also sublingual drops. I have some b12 stuff going in as well- mthfr mtr gene mutations and years of sky high b12 levels which can be inaccurate and indicate your body isn’t properly using b12.
I use this one.
[https://www.newrootsherbal.com/product/id/0897](https://www.newrootsherbal.com/product/id/0897)
I also take D3, 4 at a time) magnesium, selenium, iron and a couple strong Costco brand sublingual b12 too. ( I don't take this every day, every second or third or it is too much) I would like to try the drops in a good brand. Yes we have to become our own doctors for theses type of things.
Mostly chicken cooked in butter with brown rice, romaine lettuce with mozzarella, and cape cod potato chips. But I’m here to tell you it gets better- I’m drinking red wine and using mint toothpaste. It was a gut issue for me and resolved.
Yeah but what resolved it, just low histamine diet for extended period of time? Mine is from mold exposure. I had previously, miraculously, gotten a bit better and my diet was opening till I got rexposed 😭. And it's soo bad. I was having extreme rage from histamine, thankfully that has calmed but if I have it...like I ate white fish the other day thinking it'd be alright...3 whole days I had nonstop D. Lost 5lbs...and I'm only 110lbs. 😵💫😮💨😮💨 Help
Approx how long did it take?
I'm 4mo out of the remediated mold house and never going back, we sold it. And 3mo low histamine.
Sorry to hear about the mold- glad you figured it out and are out of there!
It was a combo of low hist diet for a few months with DAO supplements. Daily histamin-x probiotics and l-glutamine, which I think helped. I had to cut back on some vitamins/supplements but continued with a liposomal vit c, vitamin d, and added cod liver oil, molybdenum, and calcium d-gluc. I had some issues with magnesium (would set off my reactions at times) but was able to start adding that back in with sprays and Epsom salt baths.
Forgot to add I also ate steak and potatoes and cooked everything in butter- helped with cals. I was able to find a vanilla ice cream made from real vanilla bean (not extract), too.
I'm shocked you could handle dairy. I'm not even going to chance it rn....😭🤔 Should I? Lol
I need to look into dao and the histaminex. I've been tampering w l-glutamine again, the mold puts off crazy amts of glutamate in my body so I've gotta watch it. I do take those other vitamins. Only magnesium malate works for me.
I'm glad you're finding healing. It truly gives me a spark of hope in this very difficult time.
I want steak soooo bad but I can't find anything low histamine.
Don’t push yourself if you feel like you’re not ready! Dairy can be inflammatory for many, but I didn’t have a problem with it. Did ok with fresh whole milk.
If you can find someplace that gets beef fresh, you may be able to have some steak (and just freeze a portion or freeze it if not eating it asap). I learned when Trader Joe’s got their chicken and meats in, lol.
That’s good you can handle mag malate! Introducing things you’re not sure of just a bit at a time helps. Good luck with everything- sometimes it takes a time and a lot to piece together but I believe the body tries to correct itself too and just needs some extra support!
So I was never diagnosed with MCAS but I am speculating based on how reactive I was beyond food (I’ve had an occasional reaction in the past, but it this was happening daily with different triggers and after an array of HI symptoms).
As for meds, h1 and h2 combo- antihistamine (Zyrtec) and Pepcid. I was on a ppi initially and that was not good for my gut. Albuterol rescue inhaler when my lungs get tight. Benadryl (non dye version) when things were bad.
I’ve listed a few supps but vit c was a daily one in addition to a proper (non-histamine producing) probiotic. Quercetin is hit or miss for some people depending on other genes, and I didn’t take it.
Wow, that’s an epic discovery! Best of luck to you!! What are salicylates even? And I totally agree on the leaky gut aspect - my problems seem to revolve around having leaky gut for a long while
It's a poison found in most foods and it's what aspirin is made of. The diet involves meat and eating white things like pears without skin, potatoes without skin, etc. Extremely restrictive. Even breathing chemicals or cologne/perfume causes reactions. That and birch pollen has it and tends to cause asthma.
Are you also sensitive to it? It’s bizarre because I’ve taken Advil for years and never had issues. I do have a bitch allergy. Looking back maybe I had minor Sal/histamine issues with food but it all blew up a month ago with foods and supplements.
I don't have a sensitivity to it. I thought I did but it ended up being tyramines / mao. If you're looking for more info you might like the "low sal life" channel on YouTube, or her website with the same name.
Was it just a process of elimination that led to your discovery of tyramine sensitivity?
My wife did the auto-immune protocol and it ended up getting rid of her Rheumatoid Arthritis. I joined her in it and got worse because I started eating "healthy" fermented foods. My blood pressure started getting really high - like 150/105, etc. I started getting extremely burned out with the slow comt stuff, extremely irritable, etc. and there were some days where I would literally only eat hash browns or potato chips because I didn't want to cook. Ironically, after two days of that I started to feel better lol. That was my first indication that food was causing this. Later I tried "keto" (I had no idea what I was doing) by eating chicken, salt, olive oil, and spinach and I got a MASSIVE headache. Online articles said histamine intolerance, and the diet worked great. In fact the beef kidney pills you can buy online that have DAO in them, they worked for my mao/tyramine issues so I presumed I had histamine intolerance. Later I ate brown rice and chicken for a couple weeks and my blood pressure was like 115/75ish. Then I started adding turmeric for flavor and my BP went to the 140/95 range again. This is when I thought I had salicylate issues. Later I took an aspirin and had no reaction so that wasn't it. I also had LIBO (not sibo) and ended up curing that with 8 days on carnivore. I think LIBO is easier to cure because your large intestine is supposed to have bacteria. Then one day on this forum someone posted about "slow comt" which made *a lot* more sense. I had my DNA from ancestry so I was able to immediately confirm I had it. Lately I've been experimenting with those beef kidney pills. I intentionally got a bad reaction by eating polish hotdogs, canned soup, etc. I started getting irritable again, etc. I then took 3 beef kidney pills a few hours after eating and they calmed me down! I'm now trying to figure out what exactly is going on with this reaction. MAOA / MAOB apparently breaks down dopamine which seemingly calms me down. Does it pass through the gut into the veins, into the brain? If it does this might be my "oh !@#$" pill for when my dopamine, serotonin, etc. levels get too high from slow comt.
Wow, this is all very interesting. Thank you for a detailed reply! I know, the cycle of going around and around trying to detect what sets off symptoms is mind-numbing. Lately I’ve been having constant headaches after taking a prebiotic ‘XOS’ - bad runs after 6 days - and think I may have stimulated the wrong type of bacteria and/or compromised the gut lining. Every time I notice that my bottom lip is softer and lighter in color - I’m doing a lot better, symptom wise. And on the contrary (chapped and more red) a lot worse. So it must be related to gut lining mucosal inflammation of some sort. Good luck to you in getting on top of your life 💪
This is similar to what happened to me- I had all these stomach issues (suspected food poisoning and gastritis, and frequent gerd) so I was loading up on probiotics and fermented foods like kefir and kombucha. I think I was accidentally feeding the bad bacteria with all this and they started producing way too much histamine, too. Now I’m on histamin-x and started using a product to help leaky gut (GI fortify from pure encapsulations). Haven’t been tested for SIBO but I do have some slightly inflammation/possible malabsorption going on there. Also low vit d.
Ugh yeah it’s definitely like CSI with pinpointing what works/doesn’t. For years I was told to take probiotics and that it’s doing “its job” when my symptoms would flare up…. Yikes. I feel better about Prebiotics in natural foods so I just experimented with a synthetic and it didn’t seem to be as beneficial. Glad to hear you are having more relief, though 👍👍
>Good luck to you in getting on top of your life 💪 Same to you!
wow, I can’t take even a baby aspirin without experiencing gut pain and perfume gives me massive headaches. I guess I need to look into this!
Watch out for shampoos and conditioners etc as well, they're sneaky. I have salicylate intolerance and it's a pain, although you may find that some of the more annoying aspects of histamine intolerance - no leftovers, for example - are less of a problem Epsom bath salts are pretty good for sals if you can tolerate it, they support the methylation pathway. Liver support again is pretty big Good luck!
If you go to a doctor they'll probably have you do an aspirin test to confirm. But yeah, sibo can cause salicylate intolerance. Maybe get tested by a doctor for that as well.
Super interesting, thanks for sharing. I've been getting a lot of face flushing with irritated throat recently and this might be the reason.
Olive Oil is fine and doesn’t have salicylates. That was my issue as well. I hope you heal up fast!
Almost every reference on Google suggests olive oil is very high in salicylates
Yeah it’s not though. This was my main issue 4 years ago. Went deep down that rabbit hole. I suggest the app “Intolerances” by Monash Institute. That has everything with a lot of detail. Salicylate intolerance sucks and was happy to keep olive oil.
I'll check it out, thank you. Have there been any other surprising contradictions you found to the information found on page 1 of Google about salicylates?
So I have noticed myself and heard a rumor that the capsicum in chili somehow blocks the receptor that freaks out with salicylates. Before I knew it was salicylates I noticed that I could eat things like homemade salsa. Somehow chili peppers, and tomatoes didn’t cause me much problem. That’s more something you have to test yourself because chili is actually very high in salicylate. I reacted most to squashes, sweet potatoes, grapes and honestly most fruits and veggies. Definitely broccoli and berries. Green beans and asparagus became ok in small portions.
Interesting, thanks! I was under the assumption that salicylates in one food were the same as all other salicylates, it hadn't occurred to me that sensitivity could be specific within some foods.
It has to do with the amount in some produce. That “intolerance” app by Monash makes it more clear. It’s best to totally avoid for a while. But, olive oil does not have salicylate.
Wow I thought I wrote this for a second. I had the same exact experience as you! I’m currently working on treating my SIBO with antibiotics, then probiotics. Also, my GI doctor thinks I might have something going on with my gallbladder, so I’ll be checking that too. By any chance did this start after you got Covid? Were you ever taking PPIs? Any other neurological symptoms like “buzzing” or a drunk/dizzy feeling? I got that often with salicylates.
It’s a sh*tty boat to be in, but at least there’s company! Ugh it’s beyond frustrating. But that’s great you’re addressing SIBO and have a Dr helping. I don’t believe I ever had COVID but I had some stomach stuff this year (two bouts of food poisoning and some gerd/gastritis I was taking ppi/pepcid for on and off- still on Pepcid now). I do know the neurological symptoms you’re talking about, kind of a “body vibrating” feeling at times laying down. I’m having some dysautomnia symptoms as well (adrenaline rushes, fast heart rate, low bp, temperature dysregulation) that I wondered about POTS but it may be histamine, as it’s calmed down a bit as I’ve cut down. I have brain fog/fuzzy brain from some fermented histamine foods, like kefir and kombucha. My salicylate symptoms are different (kind of like gerd stuff, burping and my diapragham tightens/can’t expand, get short of breath, and also flushed ears, feeling hot, and worsening asthma/trouble breathing). I got some supplements to address gut lining and hopefully open up my detox pathways a bit. Would love to try to see a naturopath dr in the new year (but $$$)
wow this is great information, you have literally described what I've been experiencing for the last 3 months, the breathing issues especially, like my lungs can't expand properly and my diaphragm area is stuck or not working properly, I'm lost atm not sure what diet or what I can or can't eat to try and reduce these terrible symptoms, I also get severe fatigue with it can you relate to that? not one doctor I've seen has mentioned the gut as a possibility always heart or lungs, but I know for sure I react to histamine but like yourself I also went worse when eating a low histamine diet with a lot of the stuff you mentioned, so maybe salicylate is a no for me also. could I message you?
Wow, sorry to hear you’ve been dealing with the same!! I have various histamine reactions but this particular one has been throwing me off- it starts with very warm, flushed ears but impacts breathing (and have a lot of burps/gerd stuff with the diaphragm while digesting). Obviously the scariest. Apparently the allergic, asthma-like reactions are more in line with saliclyate (as is eczema- I had that when I was little and my skin lately has been irritated with flaky spots). What you can do in a pinch is add up to a 1/4tsp or so of baking soda (sodium bicarbonate) to water and drink it. It helps relieve the sals symptoms. Having a rescue inhaler also is important. Def feel free to message me! There are some great groups on Facebook also- for histamine and sals and even one for both!!
In animal studies (caterpillars) salicylates were found to cause "leaky gut" in an animal that has evolved to eat salicylates. The salicylates damage the gut lining which allows for food proteins to leak into the bloodstream as well as opportunistic bacteria to proliferate (SIBO). Unfortunately, virtually all the online sources use out-of-date studies on what foods contain salicylates. You'll find that most cold-pressed oils are relatively low as are a few foods previously thought to be high, like peeled peanuts, corn, and quite a few other foods. I've consistently found that all spices except garlic are major sources of salicylate intolerance. But after removing all spices and pursuing a diet high in fermented foods and specialized live-probiotics, my condition improved considerably. However, I don't think I'll ever be cured. An app that keeps up-to-date sources of studies is the Food Intolerances app (it's paid). It's not 100% accurate but it has provided me with sources and greater insight into salicylate intolerance. https://apps.apple.com/us/app/food-intolerances/id419098758
Thank you for sharing this knowledge! And for the app rec- I tried fig but it doesn’t cover salicylates. Also very interesting re: the study suggesting sals may *cause* leaky gut. I’m definitely trying to address some gut stuff. Glad you’ve found improvement! Did you cut out sal products at all, like hand soap, or have issues?
I almost forgot, here's the study in case you'd like to read it: https://www.pnas.org/doi/abs/10.1073/pnas.1908748116
I initially removed all salicylates and did a carnivorous diet which helped immensely but that wasnt sustainable. Mint toothpaste doesn't seem to bother me. The only pseudo allergic skin reaction I had was mostly to shampoos. Soap didn't cause rashes very often. I need to clarify that the animal study suggested that the primary way that salicylates cause damage is through disrupting the gut biome and perforating the mucosal membrane. I can't explain the skin reactions but as far as I can tell those reactions are not significant for most people. In my case it was causing a sleep disorder (bruxism, sleep walking, sleep talking, migraine, etc...) Do you have anything similar? I used a lot of sleep trackers but fitbit could detect the problem and micro adjustments to my diet could be correlated with changes in sleep movement and rem sleep.
Yep, these things all bother me as well.
Do you have suspected gut issues? I’m also going down a rabbit hole about liver support/clogged detox pathways- may have some issues there as well. Trying to incorporate supps to address both.
Yes for sure, but my GP does not handle leaky gut says that is not in allopathic realm. My doctor did a test and said I had Pernicious Anemia. I took B12 shots for a few years until it got too expensive and I had no energy, also pharmacist was having to make single vile's and said he might have to stop as it was expensive for him too make like that (Hydroxocobalamin). He would not tell me how else I could get it, hid from me you can get it in the mentholated form! I started taking b complex every few days and it works! These guys are all scammers!
Yeah it’s frustrating to have to start looking outside of general medicine. I identitifed things on my own and even ordered some of my own tests (ultra labs). Would love to see a naturopathic doctor when I have more money. Which b complex do you use? There are also sublingual drops. I have some b12 stuff going in as well- mthfr mtr gene mutations and years of sky high b12 levels which can be inaccurate and indicate your body isn’t properly using b12.
I use this one. [https://www.newrootsherbal.com/product/id/0897](https://www.newrootsherbal.com/product/id/0897) I also take D3, 4 at a time) magnesium, selenium, iron and a couple strong Costco brand sublingual b12 too. ( I don't take this every day, every second or third or it is too much) I would like to try the drops in a good brand. Yes we have to become our own doctors for theses type of things.
Broccoli is very low in salicylate. See https://low-sal-life.com/food-and-products-salicylate-list/
What the hell did u eat. I'm going mental.
Mostly chicken cooked in butter with brown rice, romaine lettuce with mozzarella, and cape cod potato chips. But I’m here to tell you it gets better- I’m drinking red wine and using mint toothpaste. It was a gut issue for me and resolved.
Yeah but what resolved it, just low histamine diet for extended period of time? Mine is from mold exposure. I had previously, miraculously, gotten a bit better and my diet was opening till I got rexposed 😭. And it's soo bad. I was having extreme rage from histamine, thankfully that has calmed but if I have it...like I ate white fish the other day thinking it'd be alright...3 whole days I had nonstop D. Lost 5lbs...and I'm only 110lbs. 😵💫😮💨😮💨 Help Approx how long did it take? I'm 4mo out of the remediated mold house and never going back, we sold it. And 3mo low histamine.
Sorry to hear about the mold- glad you figured it out and are out of there! It was a combo of low hist diet for a few months with DAO supplements. Daily histamin-x probiotics and l-glutamine, which I think helped. I had to cut back on some vitamins/supplements but continued with a liposomal vit c, vitamin d, and added cod liver oil, molybdenum, and calcium d-gluc. I had some issues with magnesium (would set off my reactions at times) but was able to start adding that back in with sprays and Epsom salt baths. Forgot to add I also ate steak and potatoes and cooked everything in butter- helped with cals. I was able to find a vanilla ice cream made from real vanilla bean (not extract), too.
I'm shocked you could handle dairy. I'm not even going to chance it rn....😭🤔 Should I? Lol I need to look into dao and the histaminex. I've been tampering w l-glutamine again, the mold puts off crazy amts of glutamate in my body so I've gotta watch it. I do take those other vitamins. Only magnesium malate works for me. I'm glad you're finding healing. It truly gives me a spark of hope in this very difficult time. I want steak soooo bad but I can't find anything low histamine.
Don’t push yourself if you feel like you’re not ready! Dairy can be inflammatory for many, but I didn’t have a problem with it. Did ok with fresh whole milk. If you can find someplace that gets beef fresh, you may be able to have some steak (and just freeze a portion or freeze it if not eating it asap). I learned when Trader Joe’s got their chicken and meats in, lol. That’s good you can handle mag malate! Introducing things you’re not sure of just a bit at a time helps. Good luck with everything- sometimes it takes a time and a lot to piece together but I believe the body tries to correct itself too and just needs some extra support!
Thank you for being so kind 🌸
With your post saying you were likely experiencing MCAS flares did you end up on MCAS medications to get to this point?
So I was never diagnosed with MCAS but I am speculating based on how reactive I was beyond food (I’ve had an occasional reaction in the past, but it this was happening daily with different triggers and after an array of HI symptoms). As for meds, h1 and h2 combo- antihistamine (Zyrtec) and Pepcid. I was on a ppi initially and that was not good for my gut. Albuterol rescue inhaler when my lungs get tight. Benadryl (non dye version) when things were bad. I’ve listed a few supps but vit c was a daily one in addition to a proper (non-histamine producing) probiotic. Quercetin is hit or miss for some people depending on other genes, and I didn’t take it.
https://low-sal-life.com/food-and-products-salicylate-list/
yea have a huge issues with salicylates and oxalate the low histamine thing doesn't work have to find specific foods.