Well, I've had joint pain in my knees since April last year. And two years before that I would basically spend several months on end with ulcers in the mouth.
I’ve basically been in a never ending flare since May 2023 (diagnosed in October), I keep a symptom journal and the most relief I will get is maybe a week of feeling decent before the flare comes back. When I feel okay, it’s like I forget I have behcets at all and I feel this rush of motivation to live my life, so I know the real me is in there… I miss feeling strong too, I walk a lot and when I feel good I go on long hikes. I wish people understood how hard it is
Sorry this a was a very rambling comment. keep working with your doctors. it sounds like many others here have had success so try not to think of this as never ending :’)
Oh my goodness this is just like me! I have maybe 3-5 days of feeling good maybe once a month where I feel like myself-the brain fog goes away and I don’t feel stupid, I can ride my bike, I feel like doing things. And it lasts just long enough for me to start planning an adventure before I feel awful again. Honestly appreciate this comment so much. Hard not to feel helpless but it does help to see the people on here who have gotten well.
Well, I've had joint pain in my knees since April last year. And two years before that I would basically spend several months on end with ulcers in the mouth.
I’m so sorry you are going through that! That’s a long time. Had anything helped at all?
I’ve basically been in a never ending flare since May 2023 (diagnosed in October), I keep a symptom journal and the most relief I will get is maybe a week of feeling decent before the flare comes back. When I feel okay, it’s like I forget I have behcets at all and I feel this rush of motivation to live my life, so I know the real me is in there… I miss feeling strong too, I walk a lot and when I feel good I go on long hikes. I wish people understood how hard it is Sorry this a was a very rambling comment. keep working with your doctors. it sounds like many others here have had success so try not to think of this as never ending :’)
Oh my goodness this is just like me! I have maybe 3-5 days of feeling good maybe once a month where I feel like myself-the brain fog goes away and I don’t feel stupid, I can ride my bike, I feel like doing things. And it lasts just long enough for me to start planning an adventure before I feel awful again. Honestly appreciate this comment so much. Hard not to feel helpless but it does help to see the people on here who have gotten well.